From powerlessness to recognition the meaning of palliative care clinicians’ experience of suffering

References

• Aries, P. (1981). The hour of our death. Knopf.
   Google Scholar
• Back, A., Steinhauser, K., Kamal, A., & Jackson, V. (2016). Building resilience for palliative care clinicians: An approach to burnout prevention based on individual skills and workplace factors. Journal of Pain and Symptom Management, 52(2), 284–11. https://doi.org/10.1016/j.jpainsymman.2016.02.002
   PubMed Web of Science ®Google Scholar
• Becker, E. (1973). The denial of death. Free Press.
   Google Scholar
• Bleicher, J. (2017). Contemporary hermeneutics: Hermeneutics as method, philosophy and critique. Routledge.
   Google Scholar
• Bourgeois-Guérin, V. (2012). L’expérience de la souffrance chez les femmes âgées atteintes d’un cancer incurable. (Master’s thesis, Université du Québec à Montréal). Available from: https://archipel.uqam.ca/5657/1/D2439.pdf
   Google Scholar
• Byock, I. (2002). The meaning and value of death. Journal of Palliative Medicine, 5(2), 279–288. https://doi.org/10.1089/109662102753641278
   Google Scholar
• Crimmins, R. M., Elliott, L., & Absher, D. T. (2020). Palliative care in a death-denying culture: exploring barriers to timely palliative efforts for heart failure patients in the primary care setting. American Journal of Hospice and Palliative Medicine, 104990912092054. https://doi.org/10.1177/1049909120920545
   Web of Science ®Google Scholar
• Fillion, L., Vachon, M., & Gagnon, P. (2017). Enhancing meaning at work and preventing burnout: The meaning-centered intervention for palliative care clinicians. In W. S. Breitbart (Ed.), Meaning-centered psychotherapy in the cancer setting: Finding meaning and hope in the face of suffering (pp. 168–181). Oxford University Press. https://doi.org/10.1093/med/9780199837229.001.0001
   Google Scholar
• Fillion, L., & Vachon, M. L. S. (2018). The costs and rewards of caring in palliative care. In C. Walshe, N. Preston, & B. Johnston (Eds.), Palliative care nursing: Principles and evidence for practice (3rd ed., pp. 340–363). Open University Press.
   Google Scholar
• Fillion, L., Saint-Laurent, L., & Rousseau, N. (2003). Les stresseurs liés à la pratique infirmière en soins palliatifs: Les points de vue des infirmières. Les Cahiers Des Soins Palliatifs, 4(1), 5–40.
   Google Scholar
• Guzys, D., Dickson-Swift, V., Kenny, A., & Threlkeld, G. (2015). Gadamerian philosophical hermeneutics as a useful methodological framework for the Delphi technique. International Journal of Qualitative Studies on Health and Well-being, 10(1), 26291. https://doi.org/10.3402/qhw.v10.26291
   PubMed Web of Science ®Google Scholar
• Harrison, K. L., Dzeng, E., Ritchie, C. S., Shanafelt, T. D., Kamal, A. H., Bull, J. H., … Swetz, K. M. (2017). Adressing palliative care clinician burnout in organizations: A workforce necessity, an ethical imperative. Journal of Pain and Symptom Management, 53(6), 1091–1096. https://doi.org/10.1016/j.jpainsymman.2017.01.007
   Web of Science ®Google Scholar
• Hill, R. C., Dempster, M., Donnelly, M., & McCorry, N. K. (2016). Improving the wellbeing of staff who work in palliative care settings: A systematic review of psychosocial interventions. Palliative Medecine, 30(9), 825–833. https://doi.org/10.1177/0269216316637237
   Web of Science ®Google Scholar
• Kamal, A., Bull, J., Wolf, S., Samsa, G., Ast, K., Swetz, K. M., … Abernethy, A. P. (2014). Burnout among palliative care clinicians in the USA: Results of a national survey. Journal of Clinical Oncology, 32(15_suppl), e20530-e20530. https://doi.org/10.1200/jco.2014.32.15_suppl.e20530
   Web of Science ®Google Scholar
• Kamal, A. H., Bull, J. H., Wolf, S. P., Swtz, K. M., Shanafelt, T. D., Ast, K., … Sinclair, C. T. (2019). Prevalence and predictors of burnout among hospice and palliative care clinicians in the U.S. Journal of Pain and Symptom Management, 59(5), e6–e13. https://doi.org/10.1016/j.jpainsymman.2019.11.017
   Web of Science ®Google Scholar
• Kamau, C., Medisauskaite, A., & Lopes, B. (2014). Orientations can avert psychosocial risks to palliative staff. Psych-Oncology, 23(6), 716–718. https://doi.org/10.1002/pon.3496
   Web of Science ®Google Scholar
• Kavallieratos, D., Siconolfi, D. E., Steinhauser, K. E., Bull, J., Arnold, R. M., Swetz, K. M., & Kamal, A. H. (2017). “It’s like heart failure. It’s chronic … and it will kill you”: A qualitative analysis of burnout among hospice and palliative care clinicians. Journal of Pain and Symptom Management, 53(5), 901–910. https://doi.org/10.1016/j.jpainsymman.2016.12.337
   Web of Science ®Google Scholar
• Métraux, J. C. (2000). Le don au secours des appartenances plurielles. In P. Centlivres & I. Girod (Eds.), Les Défis migratoires (pp. 457–463). Seismo.
   Google Scholar
• Métraux, J. C. (2007). Nourrir la reconnaissance mutuelle. Le Journal Des Psychologues, 252(9), 57–61. https://doi.org/10.3917/jpd.252.0057
   Google Scholar
• Morrow, S. L. (2005). Quality and trustworthiness in qualitative research in counselling psychology. Journal of Counselling Psychology, 52(2), 250–260. https://doi.org/10.1037/0022-0167.52.2.250
   Web of Science ®Google Scholar
• Ong, C. K., & Forbes, D. (2005). Embracing Cicely Saunders’s concept of total pain. BMJ: British Medical Journal, 331(7516), 576–577. https://doi.org/10.1136/bmj.331.7516.576-d
   Web of Science ®Google Scholar
• Péoc’h, N. (2016). La démarche de bientraitance au sein d’un cadre institutionnel. Soins, 61(805), 36–38. https://doi.org/10.1016/j.soin.2016.03.008
   Google Scholar
• Ponterotto, J. G. (2005). Qualitative Research in counseling psychology: A primer on research paradigms and philosophy of science. Journal of Counseling Psychology, 52(2), 126–136. https://doi.org/10.1037/0022-0167.52.2.126
   Web of Science ®Google Scholar
• RICŒUR, P. (1994). «La souffrance n’est pas la douleur», dans J.-M. Von Kaenel et B. Ajchbaum-Boffety, Souffrances, corps et âme, épreuves partagées, Paris, Éditions Autrement, p. 58-70.
   Google Scholar
• Ricoeur, P. (2005). The course of recognition. Harvard University Press.
   Google Scholar
• Sinclair, H. A. H., & Hamill, C. (2007). Does vicarious traumatisation affect oncology nurses? A literature review. European Journal of Oncology Nursing, 11(4), 348–356. https://doi.org/10.1016/j.ejon.2007.02.007
   PubMed Web of Science ®Google Scholar
• Slocum-Gori, S., Hemsworth, D., Chan, W. W. Y., Carson, A., & Kazanjian, A. (2013). Understanding compassion satisfaction, compassion fatigue and burnout: A survey of the hospice palliative care workforce. Palliative Medecine, 27(2), 172–178. https://doi.org/10.1177/0269216311431311
   PubMed Web of Science ®Google Scholar
• Smith, J. A., & Osborn, M. (2003). Interpretative phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 51–80)). Sage.
   Google Scholar
• Smith, J. A. (2004). Reflecting on the development of interpretative phenomenological analysis and to qualitative research in psychology. Qualitative Research in Psychology, 1(1), 39–54. https://doi.org/10.1191/1478888704qp004oa
   Google Scholar
• Smith, J. A., Flower, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. Sage Publishing.
   Google Scholar
• Tracy, S. J. (2010). Qualitative quality: Eight “big-tent” criteria for excellent qualitative research. Qualitative Inquiry, 16(10), 837–851. https://doi.org/10.1177/1077800410383121
   Web of Science ®Google Scholar
• Tradii, L., & Robert, M. (2019). Do we deny death? II. Critiques of the death-denial thesis. Mortality, 24(4), 377–388. https://doi.org/10.1080/13576275.2017.1415319
   Google Scholar
• Tuffour, I. (2017). A critical overview of interpretative phenomenological analysis: A contemporary qualitative research approach. Journal of Healthcare Communications, 2(4) 52-56. https://doi.org/10.4172/2472-1654.100093
   Google Scholar
• Vachon, M. (2020). Caring ethically for life and death: An existential perspective on palliative care and midwifery. Journal of Nursing and Midwifery, 1(1), 1-5. https://www.jresearchvalley.com/articles/caring-ethically-for-life-and-death-an-existential-perspective-on-palliative-care-and-midwifery.html
   Google Scholar
• Vachon, M., & Fillion, L. (2019). Development and implementation of a resilience-based intervention to support palliative care clinicians. Journal of Palliative Care and Nursing, 2(1), 1–7. https://www.elynspublishing.com/journal/article/development-and-implementation-of-a-resilience-based-intervention-to-support-palliative-care-clinicians
   Google Scholar
• Vachon, M., Fillion, L., & Achille, M. A. (2012). Death confrontation, spiritual-existential experience and caring attitudes in palliative care nurses: An interpretative phenomenological analysis. Qualitative Research in Psychology, 9(2), 151–172. https://doi.org/10.1080/14780881003663424
   Google Scholar
• World Health Organization. (2014). Global atlas of palliative care at the end of life. https://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf
   Google Scholar
• Yalom, I. D. (2008). Staring at the sun: Overcoming the terror of death. Jossey-Bass.
   Google Scholar
• Zimmerman, C. (2004). Denial if impending death: A discourse analysis of the palliative care literature. Social Sciences and Medicine, 59(8), 1769–1780. https://doi.org/10.1016/j.socscimed.2004.02.012
   Web of Science ®Google Scholar