Non-visible disease, the hidden disruptive experiences of chronic illness in adversity

References

• Airey, L. (2003). “Nae as nice a scheme as it used to be”: Lay accounts of neighbourhood incivilities and well-being. Health & Place, 9(2), 129–12. https://doi.org/10.1016/s1353-8292(03)00013-3
   PubMed Web of Science ®Google Scholar
• Bambra, C., Barr, B., & Milne, E. (2014). North and South: Addressing the English health divide. Journal of Public Health, 36(2), 183–186. https://doi.org/10.1093/pubmed/fdu029
   PubMed Web of Science ®Google Scholar
• Bambra, C., Gibson, M., Sowden, A., Wright, K., Whitehead, M., & Petticrew, M. (2010). Tackling the wider social determinants of health and health inequalities: Evidence from systematic reviews. Journal of Epidemiology and Community Health, 64(4), 284–291. https://doi.org/10.1136/jech.2008.082743
   PubMed Web of Science ®Google Scholar
• Barr, B., Higgerson, J., & Whitehead, M. (2017). Investigating the impact of the English health inequalities strategy: Time trend analysis. BMJ, 358, j3310. https://doi.org/10.1136/bmj.j3310
   PubMed Web of Science ®Google Scholar
• Bolam, B., Murphy, S., & Gleeson, K. (2006). Place-identity and geographical inequalities in health: A qualitative study. Psychology & Health, 21(3), 399–420. https://doi.org/10.1080/14768320500286526
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. SAGE Publications.
   Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182. https://doi.org/10.1111/1467-9566.ep11339939
   PubMedGoogle Scholar
• Bury, M. (1991). The sociology of chronic illness: A review of research and prospects. Sociology of Health & Illness, 13(4), 451–468. https://doi.org/10.1111/j.1467-9566.1991.tb00522.x
   Web of Science ®Google Scholar
• Bury, M. (2001). Illness narratives: Fact or fiction? Sociology of Health & Illness, 23(3), 263–285. https://doi.org/10.1111/1467-9566.00252
   Web of Science ®Google Scholar
• Calnan, M., & Rowe, R. (2005). Trust relations in the ‘new’ NHS: Theoretical and methodological challenges. Department of Social Medicine, University of Bristol. https://www.kent.ac.uk/scarr/events/Calnanand%20Rowe%20paper.pdf
   Google Scholar
• Capewell, S., & Capewell, A. (2018). An effectiveness hierarchy of preventive interventions: Neglected paradigm or self-evident truth? Journal of Public Health, 40(2), 350–358. https://doi.org/10.1093/pubmed/fdx055
   Web of Science ®Google Scholar
• Carricaburu, D., & Pierret, J. (1995). From biographical disruption to biographical reinforcement: The case of HIV-positive men. Sociology of Health & Illness, 17(1), 65–88. https://doi.org/10.1111/1467-9566.ep10934486
   Web of Science ®Google Scholar
• Chapple, A., Ziebland, S., McPherson, A., & Summerton, N. (2004). Lung cancer patients’ perceptions of access to financial benefits: A qualitative study. British Journal of General Practice, 54(505), 589–594. https://bjgp.org/content/54/505/589.long
   Web of Science ®Google Scholar
• Department for Communities and Local Government. (2015). The index of multiple deprivation 2015. National Statistics. https://www.gov.uk/government/statistics/english-indices-of-deprivation-2015
   Google Scholar
• Dorling, D., & Thomas, B. (2009). Geographical inequalities in health over the last century. In H. Graham (Ed.), Understanding health inequalities (pp. 66–83). Open University Press.
   Google Scholar
• Earnshaw, V. A., & Quinn, D. M. (2012). The impact of stigma in healthcare on people living with chronic illnesses. Journal of Health Psychology, 17(2), 157–168. https://doi.org/10.1177/1359105311414952
   PubMed Web of Science ®Google Scholar
• Edwards, S., & Gabbay, M. (2007). Living and working with sickness: A qualitative study. Chronic Illness, 3(2), 155–166. https://doi.org/10.1177/1742395307082124
   Google Scholar
• Faircloth, C. A., Boylstein, C., Rittman, M., Young, M. E., & Gubrium, J. (2004). Sudden illness and biographical flow in narratives of stroke recovery. Sociology of Health & Illness, 26(2), 242–261. https://doi.org/10.1111/j.1467-9566.2004.00388.x
   PubMed Web of Science ®Google Scholar
• Felde, L. H. (2011). Elevated cholesterol as biographical work - Expanding the concept of ‘biographical disruption’. Qualitative Sociology Review, 7(2), 101–120. http://www.qualitativesociologyreview.org/ENG/Volume19/QSR_7_2_Felde.pdf
   Google Scholar
• Frost-Gaskin, M., O’Kelly, R., Henderson, C., & Pacitti, R. (2003). A welfare benefits outreach project to users of community mental health services. International Journal of Social Psychiatry, 49(4), 251–263. https://doi.org/10.1177/0020764003494003
   Web of Science ®Google Scholar
• Garthwaite, K. (2011). ‘The language of shirkers and scroungers?’ Talking about illness, disability and coalition welfare reform. Disability & Society, 26(3), 369–372. https://doi.org/10.1080/09687599.2011.560420
   Web of Science ®Google Scholar
• Garthwaite, K., Collins, P. J., & Bambra, C. (2015). Food for thought: An ethnographic study of negotiating ill health and food insecurity in a UK foodbank. Social Science & Medicine, 132, 38–44. https://doi.org/10.1016/j.socscimed.2015.03.019
   PubMed Web of Science ®Google Scholar
• Graham, H. (2009). Understanding Health Inequalities. McGraw-Hill Education.
   Google Scholar
• Harvey, K. (2016). “When I go to bed hungry and sleep, I’m not hungry”: Children and parents’ experiences of food insecurity. Appetite, 99, 235–244. https://doi.org/10.1016/j.appet.2016.01.004
   PubMed Web of Science ®Google Scholar
• Hubbard, G., Kidd, L., & Kearney, N. (2010). Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis. Health (London), 14(2), 131–146. https://doi.org/10.1177/1363459309353294
   PubMed Web of Science ®Google Scholar
• Jepson, R. G., Harris, F. M., Platt, S., & Tannahill, C. (2010). The effectiveness of interventions to change six health behaviours: A review of reviews. BMC Public Health, 10(1), 538. https://doi.org/10.1186/1471-2458-10-538
   Web of Science ®Google Scholar
• Jupp, V. (2006). The SAGE dictionary of social research methods. SAGE.
   Google Scholar
• Laraia, B. A. (2013). Food insecurity and chronic disease. Advances in Nutrition, 4(2), 203–212. https://doi.org/10.3945/an.112.003277
   PubMed Web of Science ®Google Scholar
• Lawton, J. (2003). Lay experiences of health and illness: Past research and future agendas. Sociology of Health & Illness, 25(3), 23–40. https://doi.org/doi:10.1111/1467-9566.00338
   PubMed Web of Science ®Google Scholar
• Locock, L., Ziebland, S., & Dumelow, C. (2009). Biographical disruption, abruption and repair in the context of motor neurone disease. Sociology of Health & Illness, 31(7), 1043–1058. https://doi.org/10.1111/j.1467-9566.2009.01176.x
   PubMed Web of Science ®Google Scholar
• Marmot, M., Allen, J., Goldblatt, P., Boyce, T., McNeish, D., Grady, M., & Geddes, I. (2010). Fair society healthy lives (The Marmot review). Institute of Health Equity.
   Google Scholar
• McGill, R., Anwar, E., Orton, L., Bromley, H., Lloyd-Williams, F., O’Flaherty, M., … Capewell, S. (2015). Are interventions to promote healthy eating equally effective for all? Systematic review of socioeconomic inequalities in impact. BMC Public Health, 15(1), 457. https://doi.org/10.1186/s12889-015-1781-7
   PubMed Web of Science ®Google Scholar
• National Institute for Health Research. (2017). NIHR CLAHRC North West Coast Health Inequalities Assessment Toolkit (HIAT). National Institute for Health Research. http://www.hiat.org.uk/
   Google Scholar
• Nelson, M., Erens, B., Bates, B., Church, S., & Boshier, T. (2007). Low income diet and nutrition survey. London: The Stationery Office.
   Google Scholar
• Pallesen, H. (2014). Body, coping and self-identity. A qualitative 5-year follow-up study of stroke. Disability and Rehabilitation, 36(3), 232–241. https://doi.org/10.3109/09638288.2013.788217
   PubMed Web of Science ®Google Scholar
• Pearce, J., Mitchell, R., & Shortt, N. (2015). Place, space, and health inequalities.  In Smith, K. E., Bambra, C. and Hill, S. E. (eds.) Health Inequalities: Critical Perspectives (pp. 192-205). Oxford University Press: Oxford. ISBN 9780198703358
   Google Scholar
• Pilgrim, D., Tomasini, F., & Ivaylo Vassilev, I. (2010). Examining trust in healthcare: A multidisciplinary perspective. Red Globe Press.
   Google Scholar
• Popay, J., Thomas, C., Williams, G., Bennett, S., Gatrell, A., & Bostock, L. (2003). A proper place to live: Health inequalities, agency and the normative dimensions of space. Social Science & Medicine, 57(1), 55–69. https://doi.org/10.1016/s0277-9536(02)00299-x
   PubMed Web of Science ®Google Scholar
• Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of older age: The case of stroke. Sociology of Health & Illness, 20(4), 489–506. https://doi.org/10.1111/1467-9566.00112
   Web of Science ®Google Scholar
• Reeve, J., Lloyd-Williams, M., Payne, S., & Dowrick, C. (2010). Revisiting biographical disruption: Exploring individual embodied illness experience in people with terminal cancer. Health (London), 14(2), 178–195. https://doi.org/10.1177/1363459309353298
   PubMed Web of Science ®Google Scholar
• Sanderson, T., Calnan, M., Morris, M., Richards, P., & Hewlett, S. (2011). Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health & Illness, 33(4), 618–633. https://doi.org/10.1111/j.1467-9566.2010.01305.x
   PubMed Web of Science ®Google Scholar
• Seligman, H. K., & Schillinger, D. (2010). Hunger and socioeconomic disparities in chronic disease. New England Journal of Medicine, 363(1), 6–9. https://doi.org/10.1056/NEJMp1000072
   PubMed Web of Science ®Google Scholar
• Whitehead, M. (1992). The concepts and principles of equity and health. International Journal of Health Services, 22(3), 429–445. https://doi.org/10.2190/986l-lhq6-2vte-yrrn
   PubMed Web of Science ®Google Scholar
• Whitehead, M. (2014). Due North: Report of the Inquiry on Health Equity for the North. University of Liverpool and Centre for Local Economic Strategies. https://www.gmcvo.org.uk/system/files/Due-North-Report-of-the-Inquiry-on-Health-Equity-in-the-North-final.pdf
   Google Scholar
• Whittle, H. J., Palar, K., Ranadive, N. A., Turan, J. M., Kushel, M., & Weiser, S. D. (2017). “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living with poverty and chronic illness in the USA. Social Science & Medicine, 190, 181–189. https://doi.org/10.1016/j.socscimed.2017.08.031
   PubMed Web of Science ®Google Scholar
• Williams, O., & Gibson, K. (2018). Exercise as a poisoned elixir: Inactivity, inequality and intervention. Qualitative Research in Sport, Exercise and Health, 10(4), 412–428. https://doi.org/10.1080/2159676X.2017.1346698
   Web of Science ®Google Scholar
• Williams, S. (2000a). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health & Illness, 22(1), 40–67. https://doi.org/10.1111/1467-9566.00191
   Web of Science ®Google Scholar
• Williams, S. (2000b). Reason, emotion and embodiment: Is ‘mental’ health a contradiction in terms? Sociology of Health & Illness, 22(5), 559–581. https://doi.org/10.1111/1467-9566.00220
   Web of Science ®Google Scholar
• Wolfe, W. S., Frongillo, E. A., & Valois, P. (2003). Understanding the experience of food insecurity by elders suggests ways to improve its measurement. The Journal of Nutrition, 133(9), 2762–2769. https://doi.org/10.1093/jn/133.9.2762
   PubMed Web of Science ®Google Scholar
• Wood, J., Hennell, T., Jones, A., Hooper, J., Tocque, K., & Bellis, M. (2006). Where wealth means health. Illustrating inequality in the North West. North West Public Health Observatory.
   Google Scholar
• World Health Organization. (2008). Social determinants of health. World Health Organization. https://www.who.int/social_determinants/thecommission/finalreport/key_concepts/en/
   Google Scholar