Nurse assistants’ experiences of encountering patients in grief due to the death of a loved one - a qualitative study in municipal health and social care

References

• Åhlin, J., Ericsson- Lidman, E., & Strandberg, G. (2020). Assessment of stress conscience, burnout and social support amongst care providers in home care and residential care for older people. Scandinavian Journal of Caring Sciences, 36(1), 131–13. https://doi.org/10.1111/scs.12970
   Web of Science ®Google Scholar
• American Psychiatric Association, APA. (2022). Diagnostic and statistical manual of mental disorders, fifth edition, text revision (DSM-5–TR). https://www.psychiatry.org/psychiatrists/practice/dsm/updates-to-dsm/updates-to-dsm-5-tr-criteria-text
   Google Scholar
• Aoun, S. M., Keegan, O., Roberts, A., & Breen, L. J. (2020). The impact of bereavement support on wellbeing: A comparative study between Australia and Ireland. Palliative Care and Social Practice, 14, 2632352420935132. https://doi.org/10.1177/2632352420935132
   Google Scholar
• Arizmendi, B. J., & O’Connor, M.-F. (2015). What is “normal” in grief? Australian Critical Care, 28(2), 58–62. https://doi.org/10.1016/j.aucc.2015.01.005
   PubMed Web of Science ®Google Scholar
• Bammer, G. (2019). Key issues in co-creation with stakeholders when research problems are complex. Evidence & Policy, 15(3), 423–435. https://doi.org/10.1332/174426419X15532579188099
   Web of Science ®Google Scholar
• Beck, I., Törnquist, A., Broström, L., & Edberg, A.-K. (2012). Having to focus on doing rather than being—Nurse assistants’ experience of palliative care in municipal residential care settings. International Journal of Nursing Studies, 49(4), 455–464. https://doi.org/10.1016/j.ijnurstu.2011.10.016
   PubMed Web of Science ®Google Scholar
• Buber, M. (1970). I and Thou (Vol. 243). Simon and Schuster.
   Google Scholar
• Buckley, T., Sunari, D., Marshall, A., Bartrop, R., McKinley, S., & Tofler, G. (2022). Physiological correlates of bereavement and the impact of bereavement interventions. Dialogues in Clinical Neuroscience, 14(2), 129–139. https://doi.org/10.31887/DCNS.2012.14.2/tbuckley
   Google Scholar
• Carlsson, N., Bremer, A., Alvariza, A., Årestedt, K., & Axelsson, L. (2022). Losing a close person following death by sudden cardiac arrest: Bereaved family members’ lived experiences. Death Studies, 46(5), 1139–1148. https://doi.org/10.1080/07481187.2020.1799453
   PubMed Web of Science ®Google Scholar
• Carlsson, M., Hedström, E., Beck, I., & Janlöv, A. (2022). Anhörigkonsulenternas erfarenheter av att uppmärksamma och bemöta anhöriga i sorg i samband med att en närstående avlidit. En kvalitativ intervjustudie [Counsellors’ experiences of paying attention and responding to relatives in grief in connection with the death of a loved one. A qualitative interview study]. Kristianstad University.
   Google Scholar
• Craftman, Å. G., Grundberg, Å., & Westerbotn, M. (2018). Experiences of home care assistants providing social care to older people: A context in transition. International Journal of Older People Nursing, 13(4), e12207. https://doi.org/10.1111/opn.12207
   PubMed Web of Science ®Google Scholar
• Eilertsen, I., & Kiik, R. (2016). Nurses’ emotional challenges in providing home care in Norway. Nordic Journal of Nursing Research, 36(2), 82–87. https://doi.org/10.1177/2057158515623406
   Google Scholar
• Ericsson, E., Lindskog, A., Janlöv, A., & Einberg, E. (2022). Har egen upplevd sorg någon betydelse i mötet med personer i sorg inom hemsjukvården? – Distriktssköterskors erfarenheter [Does self-experienced grief have any significance in the encounter with people in grief in home care? - District nurses’ experiences]. Kristianstad University.
   Google Scholar
• Frumkin, M. R., Robinaugh, D. J., LeBlanc, N. J., Ahmad, Z., Bui, E., Nock, M. K., Simon, N. M., & McNally, R. J. (2021). The pain of grief: Exploring the concept of psychological pain and its relation to complicated grief, depression, and risk for suicide in bereaved adults. Journal of Clinical Psychology, 77(1), 254–267. https://doi.org/10.1002/jclp.23024
   PubMed Web of Science ®Google Scholar
• Funk, L. M., Peters, S., & Roger, K. S. (2017). The emotional labor of personal grief in palliative care: Balancing caring and professional identities. Qualitative Health Research, 27(14), 2211–2221. https://doi.org/10.1177/1049732317729139
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Guba, E. G. (1981). Annual review paper: Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Communication and Technology: A Journal of Theory, Research and Development, 29(2), 75–91. https://doi.org/10.1007/BF02766777
   Web of Science ®Google Scholar
• Gustafsson, T., Maurin Söderholm, H., Sundler, A. J., Karlsson, P., & Lindberg, E. (2023). ‘Sometimes you need an eye‐opener’: A qualitative study on nursing assistants’ experiences of developing communication skills through an educational intervention on person‐centred communication. Nursing Open, 2023(10), 4560–4569. https://doi.org/10.1002/nop2.1702
   Google Scholar
• Hall, C. (2014). Bereavement theory: Recent developments in our understanding of grief and bereavement. Bereavement Care, 33(1), 7–12. https://doi.org/10.1080/02682621.2014.902610
   Google Scholar
• Hashemi, M., Irajpour, A., & Taleghani, F. (2018). Caregivers needing care: The unmet needs of the family caregivers of end-of-life cancer patients. Supportive Care in Cancer, 26(3), 759–766. https://doi.org/10.1007/s00520-017-3886-2
   PubMed Web of Science ®Google Scholar
• Iglewicz, A., Shear, M. K., Reynolds, C. F., III, Simon, N., Lebowitz, B., & Zisook, S. (2020). Complicated grief therapy for clinicians: An evidence‐based protocol for mental health practice. Depression and Anxiety Association of America, 37(1), 90–98. https://doi.org/10.1002/da.22965
   Google Scholar
• Jones, E., Oka, M., Clark, J., Gardner, H., Hunt, R., & Dutson, S. (2019). Lived experience of young widowed individuals: A qualitative study. Death Studies, 43(3), 183–192. https://doi.org/10.1080/07481187.2018.1445137
   PubMed Web of Science ®Google Scholar
• Knowles, L. M., Ruiz, J. M., & O’Connor, M.-F. (2019). A systematic review of the association between bereavement and biomarkers of immune function. Psychosomatic Medicine, 81(5), 415–433. https://doi.org/10.1097/PSY.0000000000000693
   PubMed Web of Science ®Google Scholar
• Kõlves, K., Zhao, Q., Ross, V., Hawgood, J., Spence, S. H., & De Leo, D. (2020). Suicide and sudden death bereavement in Australia: A longitudinal study of family members over 2 years after death. Australian & New Zealand Journal of Psychiatry, 54(1), 89–98. https://doi.org/10.1177/0004867419882490
   PubMed Web of Science ®Google Scholar
• Krueger, R. A., & Casey, M. A. (2015). Focus groups: A practical guide for applied research. Sage Publications.
   Google Scholar
• Kübler- Ross, E. (1969). On death and dying. McMillan.
   Google Scholar
• Løgstrup, K. E., & Brandby-Cöster, M. (1994). Det etiska kravet [The ethical demand]. Daidalos.
   Google Scholar
• Mason, T. M., Tofthagen, C. S., & Buck, H. G. (2020). Complicated grief: Risk factors, protective factors, and interventions. Journal of Social Work in End-Of-Life & Palliative Care, 16(2), 151–174. https://doi.org/10.1080/15524256.2020.1745726
   PubMed Web of Science ®Google Scholar
• McCance, T., & McCormack, B. (Eds.). (2016). The person-centred practice framework. In Person-Centred Practice in Nursing and Health Care: Theory and Practice ( 2nd ed., pp. 36–64). Wiley Blackwell.
   Google Scholar
• Näppä, U., Lundgren, A.-B., & Axelsson, B. (2016). The effect of bereavement groups on grief, anxiety, and depression-a controlled, prospective intervention study. BMC Palliative Care, 15(1), 1–8. https://doi.org/10.1186/s12904-016-0129-0
   PubMedGoogle Scholar
• National Board of Health and Welfare. (2001). Utan fast punkt- om förvaltning, kunskap, språk och etik i socialt arbete [no fixed point- on management, knowledge, language and ethics in social work]. (Artikelnummer 2001-123-52). https://www.socialstyrelsen.se/_api/publication/huvuddokument/?artikelnummer=2001-123-52
   Google Scholar
• National Board of Health and Welfare. (2016). Din rätt Till vård Och Omsorg - En vägvisare för äldre. [Your right to health and social care - a guide for older people]. https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/vagledning/2016-5-5.pdf
   Google Scholar
• National Board of Health and Welfare. (2021a). Läkemedel- Delegera läkemedelshantering (Särskilt Reglerad). För hälso- Och sjukvården Och tandvården. [Medicines - Delegating Medicine Management (Specifically Regulated). For healthcare and dental services]. https://www.socialstyrelsen.se/kunskapsstod-och-regler/regler-och-riktlinjer/vem-far-gora-vad/lakemedel-delegera-lakemedelshantering/
   Google Scholar
• National Board of Health and Welfare. (2021b). Vård och omsorg för äldre- lägesrapport- 2021. [Health and care for the older- progress report – 2021]. Vård och omsorg för äldre (socialstyrelsen.se)
   Google Scholar
• Naylor, M., & Keating, S. A. (2008). Transitional care. Journal of Social Work Education, 44(3), 65–73. https://doi.org/10.5175/JSWE.2008.773247714
   Google Scholar
• O’Connor, M.-F. (2022). Immunological and neuroimaging biomarkers of complicated grief. Dialogues in Clinical Neuroscience, 14(2), 141–148. https://doi.org/10.31887/DCNS.2012.14.2/mfoconnor
   Google Scholar
• Parkes, C. M. (1998). Coping with loss, bereavement in adult life. BMJ National Library of Medicine, 316(7134), 856–859. https://doi.org/10.1136/bmj.316.7134.856
   Google Scholar
• Polit, D. F., & Beck, C. T. (2017). Nursing research. Generating and assessing evidence for nursing practice (10 ed.). Wolters Kluwer Health.
   Google Scholar
• Rachel, H., & Francesco, S. (2018). Factors associated with and impact of burnout in nursing and residential home care workers for the elderly. Acta Bio Medica: Atenei Parmensis, 89(Suppl 7), 60. https://doi.org/10.23750/abm.v89i7-S.7830
   Google Scholar
• Schumacher, K. L., Jones, P. S., & Meleis, A. I. (1999). Helping elderly persons in transition: A framework for research and practice. School of Nursing Departmental Papers, 10.
   Google Scholar
• Shear, M. K. (2022). Grief and mourning gone awry: Pathway and course of complicated grief. Dialogues in Clinical Neuroscience, 14(2), 119. https://doi.org/10.31887/DCNS.2012.14.2/mshear
   Google Scholar
• Simon, N. M. (2013). Treating complicated grief. Jama, 310(4), 416–423. https://doi.org/10.1001/jama.2013.8614
   PubMed Web of Science ®Google Scholar
• SKR, The Swedish Association of Local Authorities. (2021). Äldreomsorg [Elderly care]. https://skr.se/skr/arbetsgivarekollektivavtal/personalochkompetensforsorjning/aldreomsorg.35046.html
   Google Scholar
• Statens Offentliga Utredningar (SOU, 2019:20). (2019). [Swedish Government Official Reports]. Stärkt Kompetens I vård Och omsorg. [Strengthening skills in health and social care]. https://www.regeringen.se/4adab8/contentassets/e38875e2c15f4bdc8e10e2a15b177949/starkt-kompetens-i-vard-och-omsorg-sou-2019_20.pdf
   Google Scholar
• Stroebe, M., & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197–224. https://doi.org/10.1080/074811899201046
   PubMed Web of Science ®Google Scholar
• Stroebe, M., & Schut, H. (2010). The dual process model of coping with bereavement: A decade on. OMEGA-Journal of Death and Dying, 61(4), 273–289. https://doi.org/10.2190/OM.61.4.b
   PubMed Web of Science ®Google Scholar
• Sundström, M., Edberg, A.-K., Rämgård, M., & Blomqvist, K. (2018). Encountering existential loneliness among older people: Perspectives of health care professionals. International Journal of Qualitative Studies on Health and Well-Being, 13(1), 1474673. https://doi.org/10.1080/17482631.2018.1474673
   PubMed Web of Science ®Google Scholar
• The Swedish Parliament. (2001). 453 Social Services Act (in Swedish). https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/socialtjanstlag-2001453_sfs-2001-453
   Google Scholar
• The Swedish Parliament. (2018). 1724 Social Services Act (in Swedish). https://www.lagboken.se/Lagboken/start/socialratt/socialtjanstlag-2001453/d_3397285-sfs-2018_1724-lag-om-andring-i-socialtjanstlagen-2001_453
   Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Udo, C., Neljesjö, M., Strömkvist, I., & Elf, M. (2018). A qualitative study of assistant nurses´ experiences of palliative care in residential care. Nursing Open, 5(4), 527–535. https://doi.org/10.1002/nop2.159
   PubMed Web of Science ®Google Scholar
• Van Humbeeck, L., Dillen, L., Piers, R., & Van den Noortgate, N. (2016). Grief and loss in older people residing in nursing homes: (un) detected by nurses and care‐assistants? Journal of Advanced Nursing, 72(12), 3125–3136. https://doi.org/10.1111/jan.13063
   PubMed Web of Science ®Google Scholar
• Wortman, C. B., & Boerner, K. (2011). Beyond the myths of coping with loss. Prevailing Assumptions Versus Scientific Evidence.
   Google Scholar