Psychological health in patients with amyotrophic lateral sclerosis

References

• Pasetti C., Zanini G. The physician‐patient relationship in amyotrophic lateral sclerosis. Neurol Sci 2000; 21: 318–23
   PubMed Web of Science ®Google Scholar
• Kasarskis E., Winslow M. When did Lou Gehrig's personal illness begin?. Neurology 1989; 39: 1243–5
   PubMed Web of Science ®Google Scholar
• Strong M. The evidence for ALS as a multisystems disorder of limited phenotypic expression. Can J Neurol Sci 2001; 28: 283–98
   PubMed Web of Science ®Google Scholar
• Rabkin J., Albert S., Del Bene M., O'Sullivan I., Tider T., Rowland L., et al. Prevalence of depressive disorders and change over time in late‐stage ALS. Neurol 2005; 65: 62–7
   PubMed Web of Science ®Google Scholar
• Albert S., Rabkin J., Del Bene M., Tider T., O'Sullivan I., Rowland L., et al. Wish to die in end‐stage ALS. Neurol 2005; 65: 68–74
   PubMed Web of Science ®Google Scholar
• Blazer D., Hybels C. Origins of depression in later life. Psychol Med 2005; 35: 1241–52
   PubMed Web of Science ®Google Scholar
• Rabkin J., Wagner G., Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med 2000; 62: 271–9
   PubMed Web of Science ®Google Scholar
• Beck A. Depression: clinical, experimental, and theoretical aspects. Harper and Row, New York 1967
   Google Scholar
• Clark D., Beck A., Brown G. Cognitive mediation in general psychiatric outpatients: a test of the content‐specificity hypothesis. J Pers Soc Psychol 1989; 56: 958–64
   PubMed Web of Science ®Google Scholar
• Finlay‐Jones R., Brown G. Types of stressful life event and the onset of anxiety and depressive disorders. Psychol Med 1981; 11: 803–15
   PubMed Web of Science ®Google Scholar
• Beck A., Ward C., Mendelson M., Mock J., Erbaugh J. An inventory for measuring depression. Arch Gen Psychiatr 1961; 4: 53–63
   Web of Science ®Google Scholar
• Zigmond A., Snaith P. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983; 67: 361–70
   PubMed Web of Science ®Google Scholar
• Bromberg M., Forshew D., Iaderosa S., McDonald E. Ventilator dependency in ALS: management, disease progression, and issues of coping. J Neurol Rehabil 1996; 10: 195–216
   Google Scholar
• Houpt J., Gould B., Norris F. Psychological characteristics of patients with amyotrophic lateral sclerosis. Psychosom Med 1977; 39: 299–303
   PubMed Web of Science ®Google Scholar
• McDonald E., Wiedenfeld S., Hillel A., Carpenter C., Walter R. Survival in amyotrophic lateral sclerosis: the role of psychological factors. Arch Neurol 1994; 51: 17–23
   PubMed Web of Science ®Google Scholar
• Moore M., Moore P., Shaw P. Mood disturbances in motor neuron disease. J Neurol Sci 1998; 160((Suppl 1))S53–6
   Web of Science ®Google Scholar
• Trail M., Nelson N., Van J., Appel S., Lai E. A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options. J Neurol Sci 2003; 209: 79–85
   PubMed Web of Science ®Google Scholar
• Clarke S., Hickey A., O'Boyle C., Hardiman O. Assessing individual quality of life in amyotrophic lateral sclerosis. Qual Life Res 2001; 10: 149–58
   PubMed Web of Science ®Google Scholar
• Earll L., Johnston M., Mitchell E. Coping with motor neuron disease: an analysis using self‐regulation theory. Palliat Med 1993; 7: 21–30
   PubMedGoogle Scholar
• Goldstein L., Adamson M., Jeffrey L., Down K., Barby T., Wilson C., et al. The psychological impact of MND on patients and carers. J Neurol Sci 1998; 160: 114–21
   PubMed Web of Science ®Google Scholar
• Johnston M., Earll L., Giles M., McClenahan R., Stevens D., Morrison V. Mood as a predictor of disability and survival in patients newly diagnosed with ALS‐MND. Br J Health Psychol 1999; 4: 127–36
   Web of Science ®Google Scholar
• Hogg K., Goldstein L., Leigh P. The psychological impact of motor neuron disease. Psychol Med 1994; 24: 625–32
   PubMed Web of Science ®Google Scholar
• Bungener C., Piquard A., Pradat P., Salachas F., Meininger V., Lacomblez L. Psychopathology in amyotrophic lateral sclerosis: a preliminary study with 27 ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2005; 6: 221–5
   PubMed Web of Science ®Google Scholar
• Kilani M., Micallef J., Soubrouillard C., Rey‐Lardiller D., Demattei C., Dib M., et al. A longitudinal study of the evolution of cognitive function and affective state in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2004; 5: 46–54
   PubMed Web of Science ®Google Scholar
• Ganzini L., Johnston W., McFarland B., Tolle S., Lee M. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med 1998; 339: 967–73
   PubMed Web of Science ®Google Scholar
• Newrick P., Langton‐Hewer R. Motor neuron disease: can we do better?. Br Med J. (Clin Res Ed) 1984; 289: 539–42
   PubMed Web of Science ®Google Scholar
• Schiffer R., Babigian H. Behavioral disorders in multiple sclerosis, temporal lobe epilepsy, and amyotrophic lateral sclerosis: an epidemiologic study. Arch Neurol 1984; 41: 1067–9
   PubMed Web of Science ®Google Scholar
• Trail M., Nelson N., Van J., Appel S., Lai E. Major stressors facing patients with amyotrophic lateral sclerosis (ALS): a survey to identify their concerns and to compare with those of their caregivers. Amyotroph Lateral Scler Other Motor Neuron Disord 2004; 5: 40–5
   PubMed Web of Science ®Google Scholar
• Chio A., Gauthier A., Montuschi A., Calvo A., DiVito N., Ghiglione P., et al. A cross‐sectional study on determinants of quality of life in ALS. J Neurol Neurosurg Psychiatr 2004; 75: 1597–601
   PubMed Web of Science ®Google Scholar
• Kiebert G., Green C., Murphy C., Mitchell J., O'Brien M., Burrell A., et al. Patients' health‐related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis. J Neurol Sci 2001; 191: 87–93
   PubMed Web of Science ®Google Scholar
• Lou J., Reeves A., Benice T., Sexton G. Fatigue and depression are associated with poor quality of life in ALS. Neurol 2003; 60: 122–3
   PubMed Web of Science ®Google Scholar
• Plahuta J., McCulloch B., Kasarskis E., Ross M., Walter R., McDonald E. Amyotrophic lateral sclerosis and hopelessness: psychosocial factors. Soc Sci Med 2002; 55: 2131–40
   PubMed Web of Science ®Google Scholar
• Hillemacher T., Graebel E., Tigges S., Bleich S., Neundorfer B., Kornhuber J., et al. Depression and bulbar involvement in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2004; 5: 245–9
   PubMed Web of Science ®Google Scholar
• Ganzini L., Johnston W., Hoffman W. Correlates of suffering in amyotrophic lateral sclerosis. Neurol 1999; 52: 1434–40
   PubMed Web of Science ®Google Scholar
• Gallagher J. Pathologic laughter and crying in ALS: a search for their origin. Acta Neurol Scand 1989; 80: 114–7
   PubMed Web of Science ®Google Scholar
• Abrahams S., Goldstein L., Al‐Chalabi A., Pickering A., Morris R., Passingham R., et al. Relation between cognitive dysfunction and pseudobulbar palsy in amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatr 1997; 62: 464–72
   PubMed Web of Science ®Google Scholar
• Frank B., Haas J., Heinze H. ‐J., Stark E., Munte T. Relation of neuropsychological and magnetic resonance findings in amyotrophic lateral sclerosis: evidence for subgroups. Clin Neurol Neurosurg 1997; 99: 79–86
   PubMed Web of Science ®Google Scholar
• Massman P., Sims J., Cooke N., Haverkamp L., Appel V., Appel S. Prevalence and correlates of neuropsychological deficits in amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatr 1996; 61: 450–5
   PubMed Web of Science ®Google Scholar
• Lomen‐Hoerth C., Anderson T., Miller B. The overlap of amyotrophic lateral sclerosis and frontotemporal dementia. Neurol 2002; 59: 1077–9
   PubMed Web of Science ®Google Scholar
• Lomen‐Hoerth C., Murphy J., Langmore S., Kramer J., Olney R., Miller B. Are amyotrophic lateral sclerosis patients cognitively normal?. Neurol 2003; 60: 1094–7
   PubMed Web of Science ®Google Scholar
• Lomen‐Hoerth C. Characterization of amyotrophic lateral sclerosis and frontotemporal dementia. Dement Geriatr Cogn Disord 2004; 17: 337–41
   PubMed Web of Science ®Google Scholar
• Grossman A., Bradley W. Psychosocial factors and cognition in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2003; 4: 217–24
   PubMed Web of Science ®Google Scholar
• Strong M., Grace G., Orange J., Leeper H., Menon R., Aere C. A prospective study of cognitive impairment in ALS. Neurol 1999; 53: 1665–70
   PubMed Web of Science ®Google Scholar
• Kazdin A. Methodological issues and strategies in clinical research. 2nd edn. American Psychological Association, Washington, D.C. 1998
   Google Scholar
• Karg R., Wiens A. Improving diagnostic and clinical interviewing. Psychologists desk reference, 2nd edn, G Koocher, J Norcross, S Hill. Oxford University Press, New York 2004
   Google Scholar
• Kubler A., Winter S., Ludolph A., Hautzinger M., Birbaumer N. Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis. Neurorehabil Neural Repair 2005; 19: 182–93
   PubMed Web of Science ®Google Scholar
• Rowland L., Schneider N. Amyotrophic lateral sclerosis. N Engl J Med 2001; 344: 1688–700
   PubMed Web of Science ®Google Scholar
• American Psychiatric Association. Diagnostic and statistical manual of mental disorders, 4th edn., Text Revision. American Psychiatric Association, Washington, D.C. 2000
   Google Scholar
• Spitzer R., Kroenke K., Williams J. Validation and utility of a self‐report version of PRIME‐MD: The PHQ primary care study. JAMA 1999; 282: 1737–44
   PubMed Web of Science ®Google Scholar
• Narrow W., Rae D., Robins L., Regier D. Revised prevalence estimates of mental disorders in the United States. Arch Gen Psychiatr 2002; 59: 115–23
   PubMed Web of Science ®Google Scholar
• McDonald E., Hillel A., Wiedenfeld S. Evaluation of the psychological status of ventilatory‐supported patients with ALS/MND. Palliat Med 1996; 10: 35–41
   PubMed Web of Science ®Google Scholar
• Ganzini L., Block S. Physician‐assisted death: a last resort?. N Engl J Med 2002; 346: 1663–5
   PubMed Web of Science ®Google Scholar
• Beck A., Kovacs M., Weissman A. Hopelessness and suicidal behavior: an overview. JAMA 1975; 234: 1146–9
   PubMed Web of Science ®Google Scholar
• Sullivan A., Hedberg K., Hopkins D. Legalized physician‐assisted suicide in Oregon, 1998–2000. N Engl J Med 2001; 344: 605–7
   PubMed Web of Science ®Google Scholar
• Veldink J., Wokke J., van der Wal G., Vianney de Jong J., van den Berg L. Euthanasia and physician‐assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002; 346: 1638–44
   PubMed Web of Science ®Google Scholar
• Olney R., Lomen‐Hoerth C. Exit strategies in ALS: an influence of depression or despair?. Neurol 2005; 65: 9–10
   PubMed Web of Science ®Google Scholar
• Quill T. ALS, depression, and desire for hastened death: (how) are they related?. Neurol 2005; 65: 1
   Web of Science ®Google Scholar
• Ganzini L., Dobscha S., Heintz R., Press N. Oregon physicians' perceptions of patients who request assisted suicide and their families. J Palliat Med 2003; 6: 381–90
   PubMedGoogle Scholar
• Montgomery G., Erickson L. Neuropsychological perspectives in amyotrophic lateral sclerosis. Neurol Clin 1987; 1097: 61–81
   Google Scholar
• Robbins R., Simmons Z., Bremer B., Walsh S., Fischer S. Quality of life in ALS is maintained as physical function declines. Neurol 2001; 56: 442–4
   PubMed Web of Science ®Google Scholar
• Simmons Z., Bremer B., Robbins R., Walsh S., Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurol 2000; 55: 388–92
   PubMed Web of Science ®Google Scholar
• Tedman B., Young C., Williams I. Assessment of depression in patients with motor neuron disease and other neurologically disabling illness. J Neurol Sci 1997; 152: 75–9
   PubMed Web of Science ®Google Scholar
• McDonald E. Psycho‐spiritual overview. Amyotrophic lateral sclerosis: a comprehensive guide to treatment and management. Demos, New York 1994; 205–27
   Google Scholar
• Cohen S., Wills T. Stress, social support, and the buffering hypothesis. Psychol Bull 1985; 98: 310–57
   PubMed Web of Science ®Google Scholar
• Pakenham K., Dadds R., Terry D. Carers' burden and adjustment to HIV. AIDS Care 1995; 7: 189–203
   PubMed Web of Science ®Google Scholar
• Soskolne V., Kaplan De‐Nour A. The psychosocial adjustment of patients and spouses to dialysis treatment. Soc Sci Med 1989; 29: 497–502
   PubMed Web of Science ®Google Scholar
• Northouse L., Dorris G., Charron‐Moore C. Factors affecting couples' adjustment to recurrent breast cancer. Soc Sci Med 1995; 41: 69–76
   PubMed Web of Science ®Google Scholar
• Nelson N., Trail M., Van J., Appel S., Lai E. Quality of life in patients with amyotrophic lateral sclerosis: perceptions, coping resources, and illness characteristics. J Palliat Med 2003; 6: 417–24
   PubMedGoogle Scholar
• Tedeschi R., Calhoun L. The post‐traumatic growth inventory: measuring the positive legacy of trauma. J Trauma Stress 1996; 9: 455–77
   PubMed Web of Science ®Google Scholar
• Antoni M., Lehman J., Kilbourn K., Boyers A., Culver J., Alferi S., et al. Cognitive‐behavioral stress management intervention decreases the prevalence of depression and enhances benefit‐finding among women under treatment for early‐stage breast cancer. Health Psychol 2001; 20: 20–32
   PubMed Web of Science ®Google Scholar
• Kurtz M., Wyatt G., Kurtz J. Psychological and sexual well‐being, philosophical/spiritual views, and health habits of long‐term cancer survivors. Health Care Women Int 1995; 16: 253–62
   PubMedGoogle Scholar
• Manne S., Ostroff J., Winkel G., Goldstein L., Fox K., Grana G. Post‐traumatic growth after breast cancer: patient, partner, and couple perspectives. Psychosom Med 2004; 66: 442–54
   PubMed Web of Science ®Google Scholar
• Beck A., Weissman A., Lester D., Trexler L. The measurement of pessimism: the hopelessness scale. J Consult Clin Psychol 1974; 42: 861–5
   PubMed Web of Science ®Google Scholar
• Robins L., Helzer J., Croughan J., Ratcliff K. National institutes of mental health diagnostic interview schedule: its history, characteristics, and validity. Arch Gen Psychiatr 1981; 38: 381–9
   PubMed Web of Science ®Google Scholar
• Hardiman O., Hickey A., O'Donerty L. Physical decline and quality of life in amyotrophic lateral sclerosis. Amyotrophic Lateral Scler Other Motor Neuron Disord 2004; 5: 230–4
   PubMed Web of Science ®Google Scholar
• Jouvent R., Vindreau C., Montreuil M., Bungener C., Widlocher D. The multidimensional treatment of depressed mood: new version of the EHD scale. Psychiatr Psychobiol 1988; 3: 245–53
   Google Scholar
• Zerssen D. Klinische selbstbeurteilungsskalen aus dem munchner psychiatrischen informationssystem: paranoid‐depressivitatsskala, depressivitatsskala – manual. 1976, Weinheim – Belt Test Gesellschaft mbH
   Google Scholar
• American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 4th edn. American Psychiatric Association, Washington, D.C. 1994
   Google Scholar
• Kind P. The EuroQOL instrument: an index of health‐related quality of life. Quality of life and pharmacoeconomics in clinical trials, B Spiker. Lippincott‐Raven, Philadelphia 1996
   Google Scholar
• Yesavage J. Geriatric depression scale. Psychopharmacol Bull 1988; 24: 709–11
   PubMed Web of Science ®Google Scholar
• Zuckerman M., Lubin B. Manual for the Multiple Affect Adjective Checklist. Educational and Industrial Testing Service, San Diego 1965
   Google Scholar
• Montgomery S., Asberg M. A new depression scale designed to be sensitive to change. Br J Psychiatr 1979; 134: 382–9
   PubMed Web of Science ®Google Scholar
• McNair D., Lorr M., Droppleman L. Manual: profile of mood states. Educational and Industrial Testing Service, San Diego 1971
   Google Scholar
• Bergner M., Bobbitt R., Pollard W., Martin D., Gilson B. The sickness impact profile: validation of a health status measure. Med Care 1976; 14: 57–67
   PubMed Web of Science ®Google Scholar
• Folkman S., Lazarus R. If it changes it must be a process: study of emotion and coping during three stages of a college examination. J Pers Soc Psychol 1985; 48: 150–70
   PubMed Web of Science ®Google Scholar
• Zarit S., Reever K., Bach‐Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980; 20: 649–55
   PubMed Web of Science ®Google Scholar
• Zung W. A self‐rating depression scale. Archives of General Psychiatry 1965; 12: 63–70
   PubMed Web of Science ®Google Scholar