Inaccessible Possibilities: experiences of using ICT to engage with services among young persons with disabilities

References

• Ali MA, Alam K, Taylor B. Determinants of ICT usage for healthcare among people with disabilities: the moderating role of technological and behavioural constraints. J Biomed Inform. 2020;108:103480.
   PubMed Web of Science ®Google Scholar
• Le C, Finbråten HS, Pettersen KS, et al. Befolkningens helsekompetanse, del 1 The International Health Literacy Population Survey 2019–2021. Oslo; 2021.
   Google Scholar
• Mouttham A, Kuziemsky C, Langayan D, et al. Interoperable support for collaborative, mobile and accessible health care. Inf Syst Front. 2012;14(1):73–85.
   Web of Science ®Google Scholar
• Wentink MM, Prieto E, de Kloet AJ, et al. The patiente perspective on the use of information and communication technologies and e-health in rehabilitation. Disabil Rehabil Assist Technol. 2018;13(7):620–625.
   PubMed Web of Science ®Google Scholar
• Helse- og omsorgsdepartementet. Meld. St. 13. Kvalitet og pasientsikkerhet 2015. In: omsorgsdepartementet H-o, editor; 2016.
   Google Scholar
• Kommunal- og moderniseringsdepartementet. Èn digital offentlig sektor. Digitaliseringsstrategi for offentlig sektor 2019–2025. In: moderniseringsdepartementet K-o, editor; 2019.
   Google Scholar
• Essèn A, Scandurra I, Gerrits R, et al. Patients access to electronic health records: differences across ten countries. Health Policy Technol. 2018;7(1):44–56.
   Web of Science ®Google Scholar
• Zonneveld M, PAtomella AH, Asaba E, et al. The use of information and communication technology in health care to improve participation in everyday life: a scoping review. Disabil Rehabil. 2020;42(23):3416–3423.
   PubMed Web of Science ®Google Scholar
• Andreassen H, Dyb K, May CR, et al. Digitized patient-provider interaction: How does it matter? A qualitative meta-synthesis. Soc Sci Med. 2018;215:36–44.
   PubMed Web of Science ®Google Scholar
• Egard H, Hansson K. The digital society comes sneaking in. An emerging field and its disabling barriers. Disabil Soc. 2021;2021:1–15.
   Google Scholar
• Birnbaum F, Lewis D, Rosen R, et al. Patient engagement and the design of digital health. Acad Emerg Med. 2015;22(6):754–758.
   PubMed Web of Science ®Google Scholar
• Moll J, Rexhepi H. The effect of patient accessible electronic health records on communicaiton and involvement in Care- A national patient survey in Sweden. Stud Health Technol Inform. 2020;270:1056–1060.
   PubMedGoogle Scholar
• Robards F, Kang M, Usherwood T, et al. How marginalized young people access, engage with, and navigate health-care systems in the digital age: systematic review. J Adolesc Health. 2018;62(4):365–381.
   PubMed Web of Science ®Google Scholar
• Johansson S, Gulliksen J, Gustavsson C. Disability digital divide: the use of internet, smartphones, computers and tablets among people with disabilities in Sweden. Univ Access Inf Soc. 2021;20(1):105–120.
   Web of Science ®Google Scholar
• Darcy S, Green J, Maxwell H. I’ve got a mobile phone too! Hard and soft assistive technology costumization and supportive call centres for people with disability. Disabil Rehabil: Assist Technol. 2017;12(4):341–351.
   PubMed Web of Science ®Google Scholar
• Hemmingsson H, Bolic-Baric V, Lidström H. E-inclusion: digital equality – young people with disabilities. Stud Health Technol Inform. 2015;217:685–688.
   PubMedGoogle Scholar
• Mainsah H, Steinnes KK, Teigen HF. En undersøkelse av det digitale hverdagslivet til ungdom med nedsatt funksjonsevne En: a study of the digital everyday life of youth with disabilities forbruksforskningsinstituttet SIFO. Oslo: Oslo Metropolitan University; 2019.
   Google Scholar
• Way AK, Redden SM. The study of youth online: a critical review and agenda. Review of Communication. 2017;17(2):119–136.
   Google Scholar
• Lindström H, Ahlsten G, Hemmingsson H. The influence of ICT on the activity patterns of children with physical disabilities outside school. Child: Care Health Devel. 2012;37(3):313–321.
   Web of Science ®Google Scholar
• Jones M, Morris J, Deruyter F. Mobile healthcare and people with disabilities: current state and future needs. Int J Environ Res Public Health. 2018;15(3):515.
   PubMed Web of Science ®Google Scholar
• Ravneberg B, Söderström S. Disability, society and assistive technology. London: Routledge; 2017.
   Google Scholar
• Ramstad K, Jahnsen RB, Diseth T. Ungdom med cerebral parese og deres kontakt med fastlege og habiliteringstjeneste. Tidsskriftet. 2015;135(5):429–433.
   Google Scholar
• Boyle P, Vuoskoski P, Stew G, et al. Transitioning from adolescence to adulthood for young people living with cerebral palsy: a meta-ethnography. Disabil Soc. 2020;2020:1–23.
   Google Scholar
• McClintock HF, Kurichi JE, Barg FK, et al. Health care access and quality for persons with disability: patient and provider recommendations. Disabil Health J. 2018;11(3):382–389.
   PubMed Web of Science ®Google Scholar
• Health NDo. Barn og unge med habiliteringsbehov samarbeid mellom helse- og omsorgssektoren og utdanningssektoren om barn og unge som trenger samordnet bistand. In: Health NDo, editor. Oslo: Norwegian Directory of Health; 2015.
   Google Scholar
• Söderström S. Digital differenciation in young people’s internet use- eliminating or reproducing disability stereotypes. Future Internet. 2013;5(2):190–204.
   Google Scholar
• Freeman JL, Caldwell PHY, Bennett PA, et al. How adolescents search for and appraise online health information: a systematic review. J Pediatr. 2018;195(195):244–255.
   PubMedGoogle Scholar
• Jackson MA. Models of disability and human rights: informing the improvement of built environment accessibility for people with disability at Neighborhood Scale. Laws. 2018. 7(1):10.
   Google Scholar
• Skarstad K. Funksjonshemmedes menneskerettigheter fra prinsipper til praksis. Oslo: Universitetsforlaget; 2019.
   Google Scholar
• Egilson ST, Traustadóttir R. Theoretical spectives and childhood participation. Scand J Disabil Res. 2009;11(1):51–63.
   Google Scholar
• Skjølsvold TM. Vitenskap, teknologi og samfunn En itroduksjon til STS. Oslo: Cappelen DAmm Akademisk; 2015.
   Google Scholar
• Latour B. Reassembling the social – an introduction to actor-network-theory. Oxford: Oxford University Press; 2005.
   Google Scholar
• Fisher AG, Marterella A. Powerful practice. A model for authentic occupational therapy. Colorado: Center for Innovative OT Solutions 2019.
   Google Scholar
• Barello S, Graffigna G, Vegni E, et al. The challenges of conceptualizing patient engagement in health care: a lexicographic literature review. J Participat Med. 2014;11(6):e9.
   Google Scholar
• Charmaz K. Constructing grounded theory, 2n ed. London: Sage Publications Ltd; 2014.
   Google Scholar
• Birks M, Mills J. Grounded theory a practical guide. London: Sage Publications Ltd; 2015.
   Google Scholar
• Parsons D, Wilson N, Vaz S, et al. Appropriateness of the TOBY application, an iPAd intervention for children with autism spectrum disorder: a thematic approach. J Autism Dev Disord. 2019;49(10):4053–4066.
   PubMed Web of Science ®Google Scholar
• Proctor E, Silmere H, Raghavan R, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011;38(2):65–76.
   PubMed Web of Science ®Google Scholar
• Brown A, Rice SM, Rickwood DJ, et al. Systematic review of barriers and fascilitators to accessing and engaging with mental health care among at-risk young people. Asia-Pacific Psyciatry. 2016;8(1):3–22.
   PubMed Web of Science ®Google Scholar
• (WAI) WAI. W3C Accessibility Standards Web Accessibility Initiative (WAI) 2021; [cited 2021] Available from: https://www.w3.org/WAI/standards-guidelines/.
   Google Scholar
• uutilsynet. Tilsynsrapport arbeids- og velferdsetaten (NAV). In: uutilsynet, editor.: uutilsynet; 2020.
   Google Scholar