Exploring engagement in telepractice early intervention for young children with developmental disability and their families: a qualitative systematic review

References

• Meisels SJ, Shonkoff JP. Early childhood intervention: a continuing evolution. In: Shonkoff JP, Meisels SJ, editors. Handbook of early childhood intervention. 2nd ed. Cambridge: Cambridge University Press; 2000. p. 3–32.
   Google Scholar
• Dunst C, Trivette C. Capacity-building family-systems intervention practices. J Fam Soc Work. 2009;12(2):119–143.
   Google Scholar
• Bruder MB. Family-centered early intervention: Clarifying our values for the new millennium. Top Early Childhood Spec Educ. 2000;20(2):105–115.
   Web of Science ®Google Scholar
• Epley P, Summers JA, Turnbull A. Characteristics and trends in family-centered conceptualizations. J Fam Soc Work. 2010;13(3):269–285.
   Google Scholar
• Division for Early Childhood. DEC recommended practices in early intervention/early childhood special education. 2014. http://www.dec-sped.org/recommendedpractices.
   Google Scholar
• Meisels SJ, Atkins-Burnett S. The elements of early childhood assessment. In: Shonkoff JP, Meisels SJ, editors. Handbook of early childhood intervention. 2nd ed. Cambridge: Cambridge University Press; 2000. p. 231–257.
   Google Scholar
• Gavidia-Payne S, Meddis K, Mahar N. Correlates of child and family outcomes in an Australian community-based early childhood intervention program. J Intellect Dev Disabil. 2015;40(1):57–67.
   Web of Science ®Google Scholar
• King G, Currie M, Petersen P. Child and parent engagement in the mental health intervention process: a motivational framework. Child Adolesc Ment Health. 2014;19(1):2–8.
   PubMed Web of Science ®Google Scholar
• D'Arrigo R, Ziviani J, Poulsen AA, et al. Measures of parent engagement for children receiving developmental or rehabilitation interventions: a systematic review. Phys Occup Ther Pediatr. 2018;38(1):18–38.
   PubMed Web of Science ®Google Scholar
• Melvin K, Meyer C, Scarinci N. What does “engagement” mean in early speech pathology intervention? A qualitative systematised review. Disabil Rehabil. 2020;42(18):2665–2678.
   PubMed Web of Science ®Google Scholar
• Guralnick MJ. Early intervention for young children with developmental delays: contributions of the developmental systems approach. In: Sukkar H, Dunst CJ, Kirkby J, editors. Early childhood intervention: working with families of young children with special needs. Oxon, UK: Routledge; 2017. p. 17–35.
   Google Scholar
• Khan F, Owolabi MO, Amatya B, et al. Challenges and barriers for implementation of the world health organization global disability action plan in low- and middle- income countries. J Rehabil Med. 2018;50(4):367–376.
   PubMed Web of Science ®Google Scholar
• Cole B, Pickard K, Stredler-Brown A. Report on the use of telehealth in early intervention in Colorado: strengths and challenges with telehealth as a service delivery method. Int J Telerehabil. 2019;11(1):33–40.
   PubMed Web of Science ®Google Scholar
• Arefadib N, Moore TG. Reporting the health and development of children in rural and remote Australia. Victoria: The Centre for Community Child Health at the Royal Children’s Hospital and the Murdoch Children’s Research Institute; 2017.
   Google Scholar
• Cole B, Stredler-Brown A, Cohill B, et al. The development of statewide policies and procedures to implement telehealth for part C service delivery. Int J Telerehabil. 2016;8(2):77–82.
   PubMedGoogle Scholar
• Cason J, Behl D, Ringwalt S. Overview of states' use of telehealth for the delivery of early intervention (IDEA part C) services. Int J Telerehabil. 2012;4(2):39–46.
   PubMedGoogle Scholar
• Senate Community Affairs References Committee. Hear us: inquiry into hearing health in Australia. Canberra, Australia: Commonwealth of Australia; 2010.
   Google Scholar
• U.S. Department of Education. Questions and answers: providing services to children with disabilities during the coronavirus disease 2019 outbreak (March 2020). In: Programs OoSE, editor. Washington, DC: Centers for Disease Control and Prevention; 2020.
   Google Scholar
• Dew A, Bulkeley K, Veitch C, et al. Addressing the barriers to accessing therapy services in rural and remote areas. Disabil Rehabil. 2013; 2013/08/0135(18):1564–1570.
   PubMed Web of Science ®Google Scholar
• Olsen S, Fiechtl B, Rule S. An evaluation of virtual home visits in early intervention: feasibility of "virtual intervention". TVR. 2012;112(3):267–281.
   Google Scholar
• Camden C, Pratte G, Fallon F, et al. Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review. Disabil Rehabil. 2020;42(24):3424–3436.
   PubMed Web of Science ®Google Scholar
• Akemoglu Y, Muharib R, Meadan H. A systematic and quality review of parent-implemented language and communication interventions conducted via telepractice. J Behav Educ. 2020;29(2):282–316.
   Web of Science ®Google Scholar
• Ferguson J, Craig EA, Dounavi K. Telehealth as a model for providing behaviour analytic interventions to individuals with autism spectrum disorder: a systematic review. J Autism Dev Disord. 2019; 2019/02/0149(2):582–616.
   PubMed Web of Science ®Google Scholar
• Boisvert M, Lang R, Andrianopoulos M, et al. Telepractice in the assessment and treatment of individuals with autism spectrum disorders: a systematic review. Dev Neurorehabil. 2010;13(6):423–432.
   PubMed Web of Science ®Google Scholar
• Ingersoll B, Wainer A, Berger N, et al. Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: a pilot RCT. J Autism Dev Disord. 2016;46(7):2275–2284.
   PubMed Web of Science ®Google Scholar
• Ferre CL, Brandão M, Surana B, et al. Caregiver-directed home-based intensive bimanual training in young children with unilateral spastic cerebral palsy: a randomized trial. Dev Med Child Neurol. 2017;59(5):497–504.
   PubMed Web of Science ®Google Scholar
• Hinton S, Sheffield J, Sanders MR, et al. A randomized controlled trial of a telehealth parenting intervention: a mixed-disability trial. Res Dev Disabil. 2017;65:74–85.
   PubMed Web of Science ®Google Scholar
• Aiello CP, Ferrari DV. Teleaudiology: efficacy assessment of an online social network as a support tool for parents of children candidates for cochlear implant. Codas. 2015;27(5):411–418.
   PubMedGoogle Scholar
• Bridgman K, Onslow M, O'Brian S, et al. Lidcombe program webcam treatment for early stuttering: a randomized controlled trial. J Speech Lang Hear Res. 2016;59(5):932–939.
   PubMed Web of Science ®Google Scholar
• Little LM, Pope E, Wallisch A, et al. Occupation-based coaching by means of telehealth for families of young children with autism spectrum disorder. Am J Occup Therapy. 2018;72(2):7202205020p1–7202205020p7.
   PubMed Web of Science ®Google Scholar
• McCarthy M, Leigh G, Arthur-Kelly M. Telepractice delivery of family-centred early intervention for children who are deaf or hard of hearing: a scoping review. J Telemed Telecare. 2019;25(4):249–260.
   PubMed Web of Science ®Google Scholar
• Vismara LA, McCormick C, Young GS, et al. Preliminary findings of a telehealth approach to parent training in autism. J Autism Dev Disord. 2013;43(12):2953–2969.
   PubMed Web of Science ®Google Scholar
• Hamren K, Quigley S. Implementing coaching in a natural environment through distance technologies. Volta Rev. 2012;112(3):403–407.
   Web of Science ®Google Scholar
• Peterson CA, Luze GJ, Eshbaugh EM, et al. Enhancing parent-child interactions through home visiting: promising practice or unfulfilled promise? J Early Intervention. 2007;29(2):119–140.
   Web of Science ®Google Scholar
• Sawyer BE, Campbell PH. Teaching caregivers in early intervention. Infants Young Children. 2017;30(3):175–189.
   Web of Science ®Google Scholar
• Douglas SN, Meadan H, Kammes R. Early interventionists’ caregiver coaching: a mixed methods approach exploring experiences and practices. Top Early Childhood Spec Educ. 2020;40(2):84–96.
   Web of Science ®Google Scholar
• Hines M, Lincoln M, Ramsden R, et al. Speech pathologists' perspectives on transitioning to telepractice: what factors promote acceptance? J Telemed Telecare. 2015;21(8):469–473.
   PubMed Web of Science ®Google Scholar
• Akamoglu Y, Meadan H, Pearson JN, et al. Getting connected: speech and language pathologists’ perceptions of building rapport via telepractice. J Dev Phys Disabil. 2018;30(4):569–585.
   Web of Science ®Google Scholar
• Yoo J, Yoon M-S, Lee CK, et al. An exploratory survey of priorities in establishing telepractice system for SLPs and caregivers in Korea. Commun Disord Q. 2021;42(4):230–237.
   Web of Science ®Google Scholar
• Freckmann A, Hines M, Lincoln M. Clinicians' perspectives of therapeutic alliance in face-to-face and telepractice speech-language pathology sessions. Int J Speech Lang Pathol. 2017;19(3):287–296.
   PubMed Web of Science ®Google Scholar
• Tucker J. Perspectives of speech-language pathologists on the use of telepractice in schools: the qualitative view. Int J Telerehabil. 2012;4(2):47–60.
   PubMedGoogle Scholar
• Behl DD, Blaiser K, Cook G, et al. A multisite study evaluating the benefits of early intervention via telepractice. Infants Young Children. 2017;30(2):147–161.
   Web of Science ®Google Scholar
• McCarthy M, Leigh G, Arthur-Kelly M. Comparison of caregiver engagement in telepractice and in-person family-centered early intervention. J Deaf Stud Deaf Educ. 2020;25(1):33–42.
   PubMed Web of Science ®Google Scholar
• Hines M, Bulkeley K, Dudley S, et al. Delivering quality allied health services to children with complex disability via telepractice: Lessons learned from four case studies. J Dev Phys Disabil. 2019;31(5):593–609.
   Web of Science ®Google Scholar
• Blaiser KM, Behl D. Telepractice training for early intervention with children who are deaf/hard-of-hearing. Perspect ASHA Sigs. 2016;1(9):60–67.
   Google Scholar
• Schulz T, Long K, Kanhutu K, et al. Telehealth during the coronavirus disease 2019 pandemic: rapid expansion of telehealth outpatient use during a pandemic is possible if the programme is previously established. J Telemed Telecare. 2020;0(0):1–7.
   Google Scholar
• Smith AC, Thomas E, Snoswell CL, et al. Telehealth for global emergencies: implications for coronavirus disease 2019 (COVID-19). J Telemed Telecare. 2020;26(5):309–313.
   PubMed Web of Science ®Google Scholar
• Koterba CH, Baum KT, Hamner T, et al. COVID-19 issues related to pediatric neuropsychology and inpatient rehabilitation – challenges to usual care and solutions during the pandemic. Clin Neuropsychol. 2020;34(7–8):1380–1394.
   PubMed Web of Science ®Google Scholar
• Elliott R, Timulak L. Descriptive and interpretive approaches to qualitative research. In: Miles J, editor. A handbook of research methods for clinical and health psychology. New York: Oxford University Press; 2005. p. 147–159.
   Google Scholar
• Butler A, Hall H, Copnell B. A guide to writing a qualitative systematic review protocol to enhance evidence-based practice in nursing and health care. Worldviews Evid Based Nurs. 2016;13(3):241–249.
   PubMed Web of Science ®Google Scholar
• US Department of Education. Individuals with Disabilities Education Improvement Act, PL 108-446, 20 U.S.C §§ 1400 et seq. 2004.
   Google Scholar
• Australian Government. National Disability Insurance Scheme Act 2013. In: Treasury SS, editor. Canberra: Australian Government; 2013.
   Google Scholar
• Shribman S, Billingham K. Healthy child programme: pregnancy and the first five years of life. London: Department of Health; 2009.
   Google Scholar
• Critical Appraisal Skills Programme. CASP (Qualitative Checklist) [online]. 2017. Available from: https://casp-uk.net/casp-tools-checklists/.
   Google Scholar
• Harden A, Thomas J. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8(1):45.
   PubMedGoogle Scholar
• Ashburner J, Vickerstaff S, Beetge J, et al. Remote versus face-to-face delivery of early intervention programs for children with autism spectrum disorders: perceptions of rural families and service providers. Res Autism Spectr Disord. 2016;23:1–14.
   Web of Science ®Google Scholar
• Pickard KE, Wainer AL, Bailey KM, et al. A mixed-method evaluation of the feasibility and acceptability of a telehealth-based parent-mediated intervention for children with autism spectrum disorder. Autism. 2016;20(7):845–855.
   PubMed Web of Science ®Google Scholar
• Wallisch A, Little L, Pope E, et al. Parent perspectives of an occupational therapy telehealth intervention. Int J Telerehabil. 2019;11(1):15–22.
   PubMed Web of Science ®Google Scholar
• Johnsson G, Kerslake R, Crook S. Delivering allied health services to regional and remote participants on the autism spectrum via video-conferencing technology: lessons learned. Rural Remote Health. 2019;19(3):5358–5358.
   PubMedGoogle Scholar
• Ekberg S, Danby S, Theobald M, et al. Using physical objects with young children in 'face-to-face' and telehealth speech and language therapy. Disabil Rehabil. 2019;41(14):1664–1675.
   PubMed Web of Science ®Google Scholar
• Iacono T, Dissanayake C, Trembath D, et al. Family and practitioner perspectives on telehealth for services to young children with autism. In: Maeder AJ, Ho K, Marcelo A, Warren J, editors. The promise of new technologies in an age of new health challenges. Amsterdam: IOS Press; 2016. p. 63.
   Google Scholar
• Wade SL, Raj SP, Moscato EL, et al. Clinician perspectives delivering telehealth interventions to children/families impacted by pediatric traumatic brain injury. Rehabil Psychol. 2019;64(3):298–306.
   PubMed Web of Science ®Google Scholar
• Fairweather G, Lincoln M, Ramsden R. Speech–language pathology telehealth in rural and remote schools: the experience of school executive and therapy assistants. Rural Remote Health. 2017;17(3):4225.
   PubMed Web of Science ®Google Scholar
• Fairweather G, Lincoln M, Ramsden R. Speech-language pathology teletherapy in rural and remote educational settings: decreasing service inequities. Int J Speech Lang Pathol. 2016;18(6):592–602.
   PubMed Web of Science ®Google Scholar
• King G, Strachan D, Tucker M, et al. The application of a transdisciplinary model for early intervention services. Infants Young Children. 2009;22(3):211–223.
   Web of Science ®Google Scholar
• Cason J. Telerehabilitation: an adjunct service delivery model for early intervention services. Int J Telerehab. 2011;3(1):19–30.
   PubMedGoogle Scholar
• Tucker J. Perspectives of speech-language pathologists on the use of telepractice in schools: quantitative survey results. Int J Telerehabil. 2012;4(2):61–72.
   PubMedGoogle Scholar
• Romano M, Schnurr M. Mind the gap: strategies to bridge the research-to-practice divide in early intervention caregiver coaching practices. Top Early Childhood Spec Educ. 2020:1–13.DOI:10.1177/0271121419899163
   Web of Science ®Google Scholar
• Richmond T, Peterson C, Cason J, et al. American telemedicine association's principles for delivering telerehabilitation services. Int J Telerehabil. 2017;9(2):63–68.
   PubMed Web of Science ®Google Scholar
• Speech Pathology Association of Australia. Telepractice in speech pathology position statement. 2014. [1–38 p.]. https://www.speechpathologyaustralia.org.au/SPAweb/Members/Position_Statements/spaweb/Members/Position_Statements/Position_Statements.aspx.
   Google Scholar
• Joint Committee on Infant Hearing. Year 2019 position statement: principles and guidelines for early hearing detection and intervention programs. J Early Hear Detect Intervention. 2019;4(2):1–44.
   Google Scholar
• U.S. Department of Education. Part C use of funds in the covid-19 environment Q&A document (June 25, 2020). In: Programs OoSE, editor. Washington, DC: Centers for Disease Control and Prevention; 2020.
   Google Scholar
• U.S. Department of Education. Individualized family service plan [IFSP] meetings - service provision part C Q&A document. In: Programs OoSE, editor. Washington, DC: Centers for Disease Control and Prevention; 2020.
   Google Scholar
• Afshar Ali M, Alam K, Taylor B. Do social exclusion and remoteness explain the digital divide in Australia? Evidence from a panel data estimation approach. Econ Innov New Technol. 2020;29(6):643–659.
   Web of Science ®Google Scholar