A comparison of challenges faced by parents of children with ABI with and without access to third party funding

References

• Cope DN. The effectiveness of traumatic brain injury rehabilitation: A review. Brain Injury 1995; 9: 649–670
   Google Scholar
• Sherk Consulting Group. A study of the need for acquired brain injury services for adults and children in Southeastern Ontario. ON: Southeastern Ontario Acquired Brain Injury Network;. 2002
   Google Scholar
• Campbell CGN, Kuehn SM, Richards PMP, Ventureyra E, Hutchison JS. Medical and cognitive outcome in children with traumatic brain injury. Canadian Journal of Neurological Sciences 2004; 31: 213–219
   Google Scholar
• Gill AM. Neurocognitive outcome following pediatric brain injury: A developmental approach. Journal of School Psychology 2002; 4: 337–353
   Google Scholar
• Taylor HG, Yeates KO, Wade SL, Drotar, Stancin T, Minich N. A prospective study of short-and long-term outcomes after traumatic brain injury in children behavior and achievement. Neuropsychology 2002; 16: 15–27
   Google Scholar
• Beaulieu CL. Rehabilitation and outcome following pediatric traumatic brain injury. Surgical Clinics of North America 2002; 82: 393–408
   Google Scholar
• Carnes SL, Quinn WH. Family adaptation to brain injury: Coping and psychological distress. Families, Systems, and Health 2005; 23: 186–203
   Google Scholar
• Anderson Parmenter TR, Mok M. The relationship between neurobehavioral problems of severe traumatic brain injury (TBI), family functioning and the psychological well-being of the spouse/caregiver: Path model analysis. Brain Injury 2002; 16: 743–757
   Google Scholar
• Nabors N, Seacat J, Rosenthal M. Predictors of caregiver burden following traumatic brain injury. Brain Injury 2002; 16: 1039–1050
   Google Scholar
• Ergh TC, Rapport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress. The Journal of Head Trauma Rehabilitation 2002; 17: 155–174
   Google Scholar
• Sander A, Kreutzer J. A holistic approach to family assessment after brain injury. Rehabilitation of the adult and child with traumatic brain injury, M Rosenthal. F.A. Davis Company, Philadelphia, PA 1999; 199–215
   Google Scholar
• Guerriere D, McKevver P. Mothering children who survive brain injuries: Playing the hand you’re dealt. Pediatric Nurses 1997; 2: 105–115
   Google Scholar
• Greenfield P, Yan Z. Children, adolescents and the Internet: A new field of inquiry in developmental psychology. Developmental Psychology 2006; 42: 391–394
   Google Scholar
• Kinsella G, Ong B, Murtagh D. The role of the family for behavioural outcome in children and adolescents following traumatic brain injury. Journal of Consulting and Clinical Psychology 1999; 67: 116–123
   Google Scholar
• Benz B, Ritz A, Kiesow S. Influence of age-related factors on long-term outcome after traumatic brain injury (TBI) in children: A review of recent literature and some preliminary findings. Restorative Neurology and Neuroscience 1999; 14: 135–141
   Google Scholar
• Financial Services Commission of Ontario (FSCO). Superintendent's and Commissioner's Guidelines—Auto Insurance SABS. Revised Professional Services Guidelines;. 2006, Available online at: http://www.fsco.gov.on.ca/english/pubs/guidelines/default.asp (accessed 28 November 2007)
   Google Scholar
• Gluckenstein CE. Practical strategies under Bill 198: The threshold and new deductibles. Ontario Trial Lawyers’ Association, Fall Conference. Toronto, ON 2004
   Google Scholar
• Achenbach TM. Manual for the Child Behaviour Checklist. University of Vermont Department of Psychiatry, Burlington 1992
   Google Scholar
• Hayman-Abello SE, Rourke B, Fuerst DR. Psychosocial status after pediatric traumatic brain injury: A subtype analysis using the Child Behavior Checklist. Journal of the International Neuropsychological Society 2003; 9: 887–898
   Google Scholar
• Woodford L. Well-being in parents of adults with developmental disabilities. Unpublished MA thesis. Department of Psychology, Queen's University, Kingston Canada 1998
   Google Scholar
• Heller T, Factor A. Aging family caregivers: Support resources and changes in burden and placement desire. American Journal on Mental Retardation 1993; 98: 417–426
   Google Scholar
• McColl MA, Skinner H. Assessing inter- and intra-personal resources: Social support and coping among adults with a disability. Disability and Rehabilitation 1995; 17: 24–32
   Google Scholar
• Moos RH, Moos BS. Manual for the Family Environment Scale. Consulting Psychologists Press, Palo Alto, CA 1981
   Google Scholar
• Perry A, Harris K, Minnes P. Family environments and family harmony: An exploration across severity, age, and type of developmental disability. Journal of Developmental Disability 2004; 11: 15–24
   Google Scholar
• Solish A, Minnes P, Kupferschmidt A. Integration of children with developmental disabilities in social activities. Journal on Developmental Disabilities 2003; 10: 15–121
   Google Scholar
• Minnes P, Buell K, Feldman M, McColl MA, McCreary B. Community integration as acculturation: preliminary validation of the AIMS interview. Journal of Applied Research in Intellectual Disabilities 2002; 15: 377–387
   Google Scholar
• Willer B, Corrigan JD. Whatever it takes: A model for community-based services. Brain Injury 1994; 8: 647–659
   Google Scholar
• Minnes P, Buell K, Nolte ML, McColl MA, Carlson P, Johnston J. Defining community integration of persons with brain injuries as acculturation: A Canadian pespective. NeuroRehabilitation 2001; 16: 3–10
   Google Scholar
• Nachsen JS, Woodford L, Minnes P. The Family Stress and Coping Interview for families of individuals with developmental disabilities: A lifespan perspective on family adjustment. Journal of Intellectual Disability Research 2003; 47: 285–290
   Google Scholar
• Radloff LS. The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement 1977; 1: 385–401
   Google Scholar
• Goldberg D. Manual of the General Health Questionnaire. Nfer-Nelson Publishing Co., Windsor, UK 1978
   Google Scholar
• Luis CA, Mittenberg W. Mood and anxiety disorders following pediatric traumatic brain injury: A prospective study. Journal of Clinical and Experimental Neuropsychology 2002; 24: 270–279
   Google Scholar
• Leith KH, Phillips L, Sample P. Exploring the service needs and experiences of persons with TBI and their families: The South Carolina Experience. Brain Injury 2004; 18: 1191–1208
   Google Scholar
• Hodgkinson A, Veerabangsa A, Drane D, McCluskey A. Service utilization following traumatic brain injury. Journal of Head Trauma Rehabilitation 2000; 15: 1208–1226
   Google Scholar
• Armstrong K, Kerns KA. The assessment of parent needs following paediatric traumatic brain injury. Pediatric Rehabilitation 2002; 5: 149–160
   Google Scholar
• Johnson K, Davies PK. A supported relationships intervention to increase the social integration of persons with traumatic brain injuries. Behavior Modification 1998; 22: 502–528
   Google Scholar
• Brown M, Gordon WA, Spielman L. Participation in social and recreational activity in the community by individuals with traumatic brain injury. Rehabilitation Psychology 2003; 48: 266–274
   Google Scholar
• Lawton MP, Winter L, Kleban MH, Ruckdesche K. Affect and quality of life: Objective and subjective. Journal of Aging and Health 1999; 11: 169–198
   Google Scholar
• Bedell GM, Dumas HM. Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury 2004; 18: 65–82
   Google Scholar
• Douglas JM, Spellacy FJ. Indicators of long-term family functioning following severe traumatic brain injury in adults. Brain Injury 1996; 10: 819–839
   Google Scholar
• Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich M. Interpersonal stressors and resources as predictors of parental adaptation following pediatric traumatic injury. Journal of Consulting and Clinical Psychology 2004; 72: 776–784
   Google Scholar
• Sokol DK, Ferguson CF, Pitcher GA, Huster GA, Fitzhugh-Bell K, Luerssen TG. Behavioural adjustment and parental stress associated with closed head injury in children. Brain Injury 1996; 10: 439–451
   Google Scholar
• O’Rourke N. Reliabililty generalization of responses by care providers to the Center for Epidemiologic Studies Depression Scale. Educational and Psychological Measurement 2004; 64: 973–990
   Google Scholar
• Brown G, Chadwick O, Shaffer P, Rutter M, Traub M. A prospective study of children with head injuries: III. Psychiatric sequelae. Psychological Medicine 1981; 11: 63–78
   Google Scholar