Children's reports of activity and participation after sustaining a spinal cord injury: A cognitive interviewing study

References

• Davis E, Nicolas C, Waters E, Cook K, Gibbs L, Gosch A, Ravens-Sieberer U. Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain discordance. Quality of Life Research 2007; 16: 863–871
   Google Scholar
• DeLisa JA. Quality of life: Lets keep up the good work. Spinal Cord 2005; 25: 11–22
   Google Scholar
• Hall KM, Cohen ME, Wright J, Call M, Werener P. Characteristics of the functional independence measure in traumatic spinal cord injury. Archives of Physical Medicine and Rehabilitation 2002; 80: 1471–1476
   Google Scholar
• Garcia RA, Gaebler-Spira D, Sisung C, Heinemann AW. Functional improvement after pediatric spinal cord injury. American Journal of Physical Medicine and Rehabilitation 2002; 81: 458–463
   Google Scholar
• Mulcahey MJ, Betz RR, Smith BT, Weiss AA. A prospective study of the outcomes of tendon transfers with children with tetraplegia. Journal of Pediatric Orthopedics 2002; 19: 319–328
   Google Scholar
• Catz A, Iztkovich M, Agranov E, Ring H, Tamir A. SCIM-spinal cord independence measure: A new disability scale for patients with spinal cord lesions. Spinal Cord 1997; 25: 850–856
   Google Scholar
• King GA, Law M, King S, Hurley P, Hanna S, Kertoy M, Rosenbaum P. Measuring children's participation in recreation and leisure activities: Construct validation of the CAPE and PAC. Child: Care, Health and Development 2000; 33: 28–39
   Google Scholar
• Whitenenck G, Tate D, Charlifue S. Predicting community reintegration after spinal cord injury from demographic and injury characteristics. Archives of Physical Medicine and Rehabiliation 1999; 80: 1485–1491
   Google Scholar
• Cardol M, Beelen A, van den Bos GA, de Jong BA, de Groot IJ, de Haan RJ. Responsiveness of the impact on participation and autonomy questionnaire. Archives of Physical Medicine and Rehabilitation 2002; 83: 1524–1529
   Google Scholar
• Cardol M, de Haan RJ, de Jong BA, van den Bos GA, de Groot IJ. Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Archives of Physical Medicine and Rehabilitation 2001; 82: 210–216
   Google Scholar
• Cardol M, de Haan RJ, van den Bos GA, de Jong BA, de Groot IJ. The development of a handicap assessment questionnaire: The Impact on Participation and Autonomy (IPA). Clinical Rehabilitation 1999; 13: 411–419
   Google Scholar
• Hall KM, Bushnik T, Lakisic-Kazazic B, Wright J, Cantagallo A. Assessing traumatic brain injury outcome measures for long-term follow up of community-based individuals. Archives of Physical Medicine and Rehabilitation 2001; 82: 367–374
   Google Scholar
• Davis E, Waters E, Mackinnon A, Reddihough D, Graham H, Mehmet-Radji O, Boyd R. Paediatric quality of life instruments: A review of the impact of the conceptual framework on outcomes. Developmental Medicine and Child Neurology 2006; 48: 311–318
   Google Scholar
• Solans M, Pane S, Estrada MD, Serra-Sutton V, Berra S, Herdman M, Alonso J, Rajmil L. Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease specific instruments. Value Health 2008; 11: 724–764
   Google Scholar
• Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQL family impact module: Preliminary reliability and validity. Health and Quality of Life Outcomes 2004; 2: 1–6
   Google Scholar
• Oladeji O, Johnston TE, Smith BT, Mulcahey MJ, Betz RR, Lauer RT. Quality of life in children with spinal cord injury. Pediatric Physical Therapy 2007; 19: 296–300
   Google Scholar
• Eiser C, Morse R. Can parents rate their child's health related QOL?: Results of a systematic review. Quality of Life Research 2001; 10: 347–357
   Google Scholar
• Majnemer A, Sherell M, Law M, Poulin C, Rosenbaum P. Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy. Quality of Life Research 2008; 17: 1163–1171
   Google Scholar
• Magaziner J, Simonsick E, Kashner M, Hebel JR. Patient-proxy response comparability on measures of patient health and functional status. Journal of Clinical Epidemiology 1988; 41: 1065–1074
   Google Scholar
• Forrest C, Riley A, Vivier P, Gordon N, Starfield B. Predictors of children's healthcare use. The value of child versus parental perspectives on healthcare needs. Medical Care 2004; 42: 232–238
   Google Scholar
• Riley A. Evidence that school-age children can self-report on their health. Ambulatory Pediatrics 2004; 4: 21–26
   Google Scholar
• Revicki DA, Cella DF. Health status assessment for the twenty-first century: Item response theory, item banking and computer adaptive testing. Quality of Life Research 1997; 6: 595–600
   Google Scholar
• Lai J-S, Cella D, Chang C-H, Bode RK, Heinemann AW. Item banking to improve, shorten and computerize self-reported fatigue: An illustration of steps to create a core item bank from the FACIT-Fatigue Scale. Quality of Life Research 2003; 12: 485–501
   Google Scholar
• Haley S, Ni P, Fragala-Pinkham M, Skrinar A, Corzo D. A computer adaptive testing approach for assessing physical function in children and adolescents. Developmental Medicine and Child Neurology 2005; 47: 113–120
   Google Scholar
• Tucker CA, Haley SM, Dumas HM, Fragala-Pinkham MA, Watson K, Gorton GE, Montpetit K, Bilodeau N. Physical function for children and youth with cerebral palsy: Item bank development for computer adaptive testing. Journal of Pediatric Rehabilitation Medicine 2008; 1: 237–244
   Google Scholar
• Mulcahey MJ, Haley S, Duffy T, Pengsheng N, Betz R. Measuring physical functioning in children with spinal impairments with computerized adaptive testing. Journal of Pediatrics Orthopedics 2008; 28: 330–335
   Google Scholar
• Drennan J. Cognitive interviewing: Verbal data in the design and pretesting of questionnaires. Journal of Advanced Nursing 2003; 42: 57–63
   Google Scholar
• Van Someren M, Barnard YF, Sandberg JA. The think aloud method: A practical guide to modelling cognitive processes. Academic Press, San Diego, CA 1994
   Google Scholar