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Research Article

Long Term Participation Outcomes for Severe Acquired Brain Injury in Childhood – An Expanded Scoping Review

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Pages 379-387 | Received 26 Nov 2019, Accepted 02 Feb 2021, Published online: 20 Feb 2021

References

  • Hamilton C, Maw A, Gill A, Brahmbhatt M, Phaal R, Pickard J. Paediatric neurorehabilitation: finding and filling the gaps through the use of the Institute for Manufacturing strategic roadmapping method. BMJ Innovat. 2017;3(3):137–43. doi:10.1136/bmjinnov-2017-000202.
  • Hayes L, Shaw S, Pearce MS, Forsyth RJ. Requirements for and current provision of rehabilitation services for children after severe acquired brain injury in the UK: a population-based study. Arch Dis Child. 2017;102(9):813–20. doi:10.1136/archdischild-2016-312166.
  • Anaby D, Law M, Hanna S, DeMatteo C. Predictors of change in participation rates following acquired brain injury: results of a longitudinal study. Dev Med Child Neurol. 2012;54(4):339–46. doi:10.1111/j.1469-8749.2011.04204.x.
  • World Health Organization. (2007). ICF-CY, International Classification of Functioning, Disability, and Health: Children & Youth version. Geneva: World Health Organization.
  • Law M. Participation in the Occupations of Everyday Life. Am J Occupat Ther. 2002;56(6):640–49. doi:10.5014/ajot.56.6.640.
  • Imms C, Mats G, WP H, Bert S, Rp L, GA M. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25. doi:10.1111/dmcn.13237.
  • de Kloet AJ, Hilberink SR, Roebroeck ME, Catsman-Berrevoets CE, Peeters E, Lambregts SA, van Markus-doornbosch F, Vliet Vlieland TPM. Youth with acquired brain injury in The Netherlands: a multi-centre study. Brain Inj. 2013;27(7–8):843–49. doi:10.3109/02699052.2013.775496.
  • Kelly G, Dunford C, Forsyth R, Kavcic A. Using child- and family-centred goal setting as an outcome measure in residential rehabilitation for children and youth with acquired brain injuries: the challenge of predicting expected levels of achievement. Child Care Health Dev. 2019;45(2):286–291. doi:10.1111/cch.12636.
  • De Kloet AJ, Gijzen R, Braga LW, Meesters JJL, Schoones JW, Vliet Vlieland TPM. Determinants of participation of youth with acquired brain injury: A systematic review. Brain Injury. 2015;29(10):1135–45. doi:10.3109/02699052.2015.1034178.
  • Munn Z, Peters MDJ, Stern C, Tufanaru C, McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018;18(1):143. doi:10.1186/s12874-018-0611-x.
  • Davis K, Drey N, Gould D. What are scoping studies? A review of the nursing literature. Int J Nurs Stud. 2009;46(10):1386–400. doi:10.1016/j.ijnurstu.2009.02.010.
  • Arksey H, O’Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32. doi:10.1080/1364557032000119616.
  • Peters MD, Godfrey CM, Khalil H, McInerney P, Parker D, Soares CB. Guidance for conducting systematic scoping reviews. Int J Evid Based Healthc. 2015;13(3):141–46. doi:10.1097/XEB.0000000000000050.
  • Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, Moher D, Peters MDJ, Horsley T, Weeks L, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–73. doi:10.7326/M18-0850.
  • Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097. doi:10.1371/journal.pmed.1000097.
  • Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69. doi:10.1186/1748-5908-5-69.
  • Smits D, Klem M, Ketelaar M The Involvement Matrix Involvement of patients in projects and research 2019 [22 November 2019]. Available from: https://www.kcrutrecht.nl/wp-content/uploads/2019/05/Involvement-Matrix-Practical-guide.pdf
  • Wade SL, Zhang N, Yeates KO, Stancin T, Taylor HG. Social environmental moderators of long-term functional outcomes of early childhood brain injury. JAMA Pediatr. 2016;170(4):343–49. doi:10.1001/jamapediatrics.2015.4485.
  • Shaklai S, Peretz R, Spasser R, Simantov M, Groswasser Z. Long-term functional outcome after moderate-to-severe paediatric traumatic brain injury. Brain Inj. 2014;28(7):915–21. doi:10.3109/02699052.2013.862739.
  • Chevignard M, Francillette L, Toure H, Brugel D, Meyer P, Vannier AL, Opatowski M, Watier L. Academic outcome, participation and health-related quality of life following childhood severe traumatic brain injury: results of a prospective longitudinal study: the seven-year follow-up of the TGE cohort. Ann Phys Rehabil Med. 2016;59:e133. doi:10.1016/j.rehab.2016.07.298.
  • Willmott C, Spitz G, Ponsford JL. Predictors of productivity outcomes for secondary and tertiary students following traumatic brain injury. Brain Inj. 2015;29(7–8):929–36. doi:10.3109/02699052.2015.1022882.
  • Anderson V, Beauchamp MH, Yeates KO, Crossley L, Ryan N, Hearps SJC, Catroppa C. Social Competence at Two Years after Childhood Traumatic Brain Injury. J Neurotrauma. 2017;34(14):2261–71. doi:10.1089/neu.2016.4692.
  • Fougeyrollas P, Lepage C, Boissiere L, Deaudelin I, Dore L. Assessment of social participation in three measurement times in children with traumatic brain injuries (TBI) based on parental perceptions. Open J Ther Rehabilit. 2014;2(4):10. doi:10.4236/ojtr.2014.24021.
  • Turner-Stokes L, Nyein K, Turner-Stokes T, Gatehouse C. The UK FIM+FAM: development and evaluation. Fun Assess Meas, Clin Rehabil. 1999 Aug;13(4):277–87. doi:10.1191/026921599676896799.
  • Turner-Stokes L, Disler R, Williams H. The rehabilitation complexity scale: A simple, practical tool to identify “complex specialised” services in neurological rehabilitation. Clin Med. J Royal Coll Physicians London. 2007;7(6):593–99. doi:10.1109/WAINA.2018.00067.
  • Turner-Stokes L, Tonge P, Nyein K, Hunter M, Nielsona S, Robinson I. The northwick park dependency score (NPDS): a measure of nursing dependency in rehabilitation. Clin Rehabil. 1998;12(4):304–18. doi:10.1191/026921598669173600.
  • Wales L, Davis K, Kelly G Functional Outcomes after acquired brain injury: does the type and location of injury result in different outcomes? 10th World Congress for NeuroRehabilitation; Mumbai, India 2018.

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