Characteristics of children with autism and unspecified intellectual developmental disorder (intellectual disability) presenting with severe self-injurious behaviours

References

• American Psychiatric Association 2013. Diagnostic and statistical manual of mental disorders. 5th ed. Arlington, VA: American Psychiatric Association.
   Google Scholar
• Arron, K., Oliver, C., Moss, J., Berg, K. and Burbidge, C. 2011. The prevalence and phenomenology of self-injurious and aggressive behaviour in genetic syndromes. Journal of Intellectual Disability Research: JIDR, 55, 109–120. https://doi.org/10.1111/j.1365-2788.2010.01337.x.
   PubMed Web of Science ®Google Scholar
• Baghdadli, A., Pascal, C., Grisi, S. and Aussilloux, C. 2003. Risk factors for self-injurious behaviours among 222 young children with autistic disorders. Journal of Intellectual Disability Research: JIDR, 47, 622–627. https://doi.org/10.1046/j.1365-2788.2003.00507.x.
   PubMed Web of Science ®Google Scholar
• Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L.-C., Harrington, R., Lopez, M., Fitzgerald, R. T., Hewitt, A., Pettygrove, S., Constantino, J. N., Vehorn, A., Shenouda, J., Hall-Lande, J., Van, K. and Dowling, N. F. 2018. Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, united states, 2014. MMWR. Surveillance Summaries, 67, 1–23. https://doi.org/10.15585/mmwr.ss6706a1.
   PubMed Web of Science ®Google Scholar
• Bauman, M. L. 2010. Medical comorbidities in autism: Challenges to diagnosis and treatment. Neurotherapeutics: The Journal of the American Society for Experimental NeuroTherapeutics, 7, 320–327. https://doi.org/10.1016/j.nurt.2010.06.001.
   PubMed Web of Science ®Google Scholar
• Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., McAdam, D. B., Butter, E., Stillitano, C., Minshawi, N., Sukhodolsky, D. G., Mruzek, D. W., Turner, K., Neal, T., Hallett, V., Mulick, J. A., Green, B., Handen, B., Deng, Y., Dziura, J. and Scahill, L. 2015. Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. JAMA, 313, 1524–1533. https://doi.org/10.1001/jama.2015.3150.
   PubMed Web of Science ®Google Scholar
• Cooper, S., Smiley, E., Allan, L. M., Jackson, A., Finlayson, J., Mantry, D. and Morrison, J. 2009. Adults with intellectual disabilities: Prevalence, incidence and remission of self-injurious behaviour, and related factors. Journal of Intellectual Disability Research: JIDR, 53, 200–216. https://doi.org/10.1111/j.1365-2788.2008.01060.x.
   PubMed Web of Science ®Google Scholar
• Davies, L. E. and Oliver, C. 2016. Self-injury, aggression and destruction in children with severe intellectual disability: Incidence, persistence and novel, predictive behavioural risk markers. Research in Developmental Disabilities, 49-50, 291–301. https://doi.org/10.1016/j.ridd.2015.12.003.
   PubMed Web of Science ®Google Scholar
• Davies, L. E. and Oliver, C. 2014. The purported association between depression, aggression, and self-injury in people with intellectual disability: A critical review of the literature. American Journal on Intellectual and Developmental Disabilities, 119, 452–471. https://doi.org/10.1352/1944-7558-119.5.452.
   PubMedGoogle Scholar
• Flowers, J., Lantz, J., Hamlin, T. and Simeonsson, R. J. 2020. Associated factors of self-injury among adolescents with autism spectrum disorder in a community and residential treatment setting. Journal of Autism and Developmental Disorders, 50, 2987–3004. https://doi.org/10.1007/s10803-020-04389-4.
   PubMed Web of Science ®Google Scholar
• González-Romero, M. F., Avina-Galindo, A. M., Elbe, D., Friedlander, R. and Vila-Rodriguez, F. 2019. Lifesaving electroconvulsive therapy for a child with autism spectrum disorder, severe self-injurious behavior, and neuroleptic malignant syndrome. The Journal of ECT, 35, e55–e56. https://doi.org/10.1097/YCT.0000000000000598.
   PubMed Web of Science ®Google Scholar
• Guy, W. 1976. ECDEU assessment manual for psychopharmacology. US Department of Health, Education, and Welfare, Public Health Service, Alcohol, Drug Abuse, and Mental Health Administration, National Institute of Mental Health, Psychopharmacology Research Branch, Division of Extramural Research Programs.
   Google Scholar
• Hagopian, L. P., Rooker, G. W. and Zarcone, J. R. 2015. Delineating subtypes of self‐injurious behavior maintained by automatic reinforcement. Journal of Applied Behavior Analysis, 48, 523–543. https://doi.org/10.1002/jaba.236.
   PubMed Web of Science ®Google Scholar
• Handen, B., Mazefsky, C., Gabriels, R., Pedersen, K., Wallace, M. and Siegel, M, Autism and Developmental Disorders Inpatient Research Collaborative (ADDIRC) 2018. Risk factors for self-injurious behavior in an inpatient psychiatric sample of children with autism spectrum disorder: A naturalistic observation study. Journal of Autism and Developmental Disorders, 48, 3678–3688. https://doi.org/10.1007/s10803-017-3460-2.
   PubMed Web of Science ®Google Scholar
• Hausman, N., Kahng, S., Farrell, E. and Mongeon, C. 2009. Idiosyncratic functions: Severe problem behavior maintained by access to ritualistic behaviors. Education and Treatment of Children, 32, 77–87. https://www.jstor.org/stable/42900008
   Google Scholar
• Hofmann, S. G. 2007. Cognitive factors that maintain social anxiety disorder: A comprehensive model and its treatment implications. Cognitive Behaviour Therapy, 36, 193–209. https://doi.org/10.1080/16506070701421313.
   PubMedGoogle Scholar
• Huisman, S., Mulder, P., Kuijk, J., Kerstholt, M., van Eeghen, A., Leenders, A., van Balkom, I., Oliver, C., Piening, S. and Hennekam, R. 2018. Self-injurious behavior. Neuroscience and Biobehavioral Reviews, 84, 483–491. https://doi.org/10.1016/j.neubiorev.2017.02.027.
   PubMed Web of Science ®Google Scholar
• Hyman, S. L., Levy, S. E. and Myers, S. M. 2020. Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics, 145, e20193447. https://doi.org/10.1542/peds.2019-3447.
   PubMed Web of Science ®Google Scholar
• Johnson, C. P. and Myers, S. M. 2007. Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120, 1183–1215. https://doi.org/10.1542/peds.2007-2361.
   PubMed Web of Science ®Google Scholar
• Kaat, A. J., Lecavalier, L. and Aman, M. G. 2014. Validity of the aberrant behavior checklist in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1103–1116. https://doi.org/10.1007/s10803-013-1970-0.
   PubMed Web of Science ®Google Scholar
• Laverty, C., Oliver, C., Moss, J., Nelson, L. and Richards, C. 2020. Persistence and predictors of self-injurious behaviour in autism: A ten-year prospective cohort study. Molecular Autism, 11, 8. https://doi.org/10.1186/s13229-019-0307-z.
   PubMed Web of Science ®Google Scholar
• Lounds, J., Seltzer, M. M., Greenberg, J. S. and Shattuck, P. T. 2007. Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417. https://doi.org/10.1352/0895-8017(2007)112[401:TACIAA]2.0.CO;2.2.0.CO;2]
   PubMedGoogle Scholar
• Lundqvist, L. 2013. Prevalence and risk markers of behavior problems among adults with intellectual disabilities: A total population study in Örebro county, Sweden. Research in Developmental Disabilities, 34, 1346–1356. https://doi.org/10.1016/j.ridd.2013.01.010.
   PubMed Web of Science ®Google Scholar
• Mcclintock, K., Hall, S. and Oliver, C. 2003. Risk markers associated with challenging behaviours in people with intellectual disabilities: A meta-analytic study. Journal of Intellectual Disability Research: JIDR, 47, 405–416. https://doi.org/10.1046/j.1365-2788.2003.00517.x.
   PubMed Web of Science ®Google Scholar
• Minshawi, N. F., Hurwitz, S., Fodstad, J. C., Biebl, S., Morriss, D. H. and McDougle, C. J. 2014. The association between self-injurious behaviors and autism spectrum disorders. Psychology Research and Behavior Management, 7, 125–136. https://doi.org/10.2147/PRBM.S44635.
   PubMedGoogle Scholar
• Norman, G. 2010. Likert scales, levels of measurement and the “laws” of statistics. Advances in Health Sciences Education: Theory and Practice, 15, 625–632. https://doi.org/10.1007/s10459-010-9222-y.
   PubMed Web of Science ®Google Scholar
• Oliver, C., Murphy, G. H. and Corbett, J. A. 1987. Self-injurious behaviour in people with mental handicap: A total population study. Journal of Intellectual Disability Research, 31, 147–162. https://doi.org/10.1111/j.1365-2788.1987.tb01351.x.
   Google Scholar
• Oliver, C., Petty, J., Ruddick, L. and Bacarese-Hamilton, M. 2012. The association between repetitive, self-injurious and aggressive behavior in children with severe intellectual disability. Journal of Autism and Developmental Disorders, 42, 910–919.
   PubMed Web of Science ®Google Scholar
• Oliver, C. and Richards, C. 2015. Practitioner review: Self-injurious behaviour in children with developmental delay. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 56, 1042–1054. https://doi.org/10.1111/jcpp.12425.
   PubMed Web of Science ®Google Scholar
• Ono, E., Friedlander, R. and Salih, T. 2019. Falling through the cracks: How service gaps leave children with neurodevelopmental disorders and mental health difficulties without the care they need. British Columbia Medical Journal, 61, 114–124.
   Web of Science ®Google Scholar
• Powis, L. and Oliver, C. 2014. The prevalence of aggression in genetic syndromes: A review. Research in Developmental Disabilities, 35, 1051–1071. https://doi.org/10.1016/j.ridd.2014.01.033.
   PubMed Web of Science ®Google Scholar
• Rajaraman, A., Hanley, G.P., Gover, H.C., Ruppel, K.W. and Landra, R.K. 2022. On the reliability and treatment utility of the practical functional assessment process. Behavior Analysis in Practice, 1–23.
   Web of Science ®Google Scholar
• Reiss, S., Levitan, G. W. and Szyszko, J. 1982. Emotional disturbance and mental retardation: Diagnostic overshadowing. American Journal of Mental Deficiency, 86, 567–574.
   PubMedGoogle Scholar
• Richards, C., Davies, L. and Oliver, C. 2017. Predictors of self-injurious behavior and self-restraint in autism spectrum disorder: Towards a hypothesis of impaired behavioral control. Journal of Autism and Developmental Disorders, 47, 701–713. https://doi.org/10.1007/s10803-016-3000-5.
   PubMed Web of Science ®Google Scholar
• Richards, C., Moss, J., Nelson, L. and Oliver, C. 2016. Persistence of self-injurious behaviour in autism spectrum disorder over 3 years: A prospective cohort study of risk markers. Journal of Neurodevelopmental Disorders, 8, 21.
   PubMed Web of Science ®Google Scholar
• Richman, D. M., Barnard-Brak, L., Bosch, A., Thompson, S., Grubb, L. and Abby, L. 2013. Predictors of self-injurious behaviour exhibited by individuals with autism spectrum disorder. Journal of Intellectual Disability Research: JIDR, 57, 429–439. https://doi.org/10.1111/j.1365-2788.2012.01628.x.
   PubMed Web of Science ®Google Scholar
• Rojahn, J., Matson, J. L., Lott, D., Esbensen, A. J. and Smalls, Y. 2001. The behavior problems inventory: An instrument for the assessment of self-injury, stereotyped behavior, and aggression/destruction in individuals with developmental disabilities. Journal of Autism and Developmental Disorders, 31, 577–588. https://doi.org/10.1023/a:1013299028321.
   PubMed Web of Science ®Google Scholar
• Rojahn, J., Rowe, E. W., Sharber, A. C., Hastings, R., Matson, J. L., Didden, R., Kroes, D. B. H. and Dumont, E. L. M. 2012. The behavior problems inventory-short form for individuals with intellectual disabilities: Part II: Reliability and validity. Journal of Intellectual Disability Research: JIDR, 56, 546–565. https://doi.org/10.1111/j.1365-2788.2011.01506.x.
   PubMed Web of Science ®Google Scholar
• Soke, G. N., Rosenberg, S. A., Hamman, R. F., Fingerlin, T., Rosenberg, C. R., Carpenter, L., Lee, L. C., Giarelli, E., Wiggins, L. D., Durkin, M. S., Reynolds, A. and DiGuiseppi, C. 2017. Factors associated with self-injurious behaviors in children with autism spectrum disorder: Findings from two large national samples. Journal of Autism and Developmental Disorders, 47, 285–296. https://doi.org/10.1007/s10803-016-2951-x.
   PubMed Web of Science ®Google Scholar
• Steenfeldt-Kristensen, C., Jones, C. A. and Richards, C. 2020. The prevalence of self-injurious behaviour in autism: A meta-analytic study. Journal of Autism and Developmental Disorders, 50, 3857–3873. https://doi.org/10.1007/s10803-020-04443-1.
   PubMed Web of Science ®Google Scholar
• Vollmer, T.R. 1994. The concept of automatic reinforcement: Implications for behavioral research in developmental disabilities. Research in Developmental Disabilities), 15, 187–207. https://doi.org/10.1016/0891-4222(94)90011-6.
   PubMed Web of Science ®Google Scholar
• Wachtel, L. E. 2019. Treatment of catatonia in autism spectrum disorders. Acta Psychiatrica Scandinavica, 139, 46–55. https://doi.org/10.1111/acps.12980.
   PubMed Web of Science ®Google Scholar