277
Views
5
CrossRef citations to date
0
Altmetric
Original Article

Translation and Psychometric Evaluation of a Korean Version of the Amyotrophic Lateral Sclerosis-Specific Quality of Life – Revised

, , &
Pages 92-98 | Received 02 Jun 2016, Accepted 09 Oct 2016, Published online: 06 Dec 2016

References

  • Kim HY, Moon C, Kim KS, Oh KW, Oh S-i, Kim J, et al. Recombinant human erythropoietin in amyotrophic lateral sclerosis: a pilot study of safety and feasibility. J Clin Neurol 2014;10:342–7.
  • Stephens HE, Felgoise S, Young J, Simmons Z. Multidisciplinary ALS clinics in the USA: A comparison of those who attend and those who do not. Amyotroph Lateral Scler Frontotemporal Degener 2015;16:196–201.
  • Andersen PM, Abrahams S, Borasio GD, de Carvalho M, Chio A, Van Damme P, et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)–revised report of an EFNS task force. Eur J Neurol 2012;19:360–75.
  • Trail M, Nelson ND, Van JN, Appel SH, Lai EC. A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options. J Neurol Sci 2003;209:79–85.
  • Ilse B, Prell T, Walther M, Hartung V, Penzlin S, Tietz F, et al. Relationships between disease severity, social support and health-related quality of life in patients with amyotrophic lateral sclerosis. Soc Indic Res 2015;120:871–82.
  • Simmons Z. Patient-perceived outcomes and quality of life in ALS. Neurotherapeutics 2015;12:394–402.
  • Pagnini F. Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: a review. Int J Psychol 2013;48:194–205.
  • Simmons Z, Felgoise SH, Bremer BA, Walsh SM, Hufford D, Bromberg MB, et al. The ALSSQOL: balancing physical and nonphysical factors in assessing quality of life in ALS. Neurology 2006;67:1659–64.
  • Burns TM, Graham CD, Rose MR, Simmons Z. Quality of life and measures of quality of life in patients with neuromuscular disorders. Muscle Nerve 2012;46:9–25.
  • Felgoise S, Rodriguez J, Stephens H, Walsh S, Bremer B, Simmons Z. Validation of a shorter ALS-specific quality of life instrument: The ALSSQOL-R. Amyotroph Lateral Scler 2008;9(suppl 1):12–3.
  • Hwang C-S, Weng H-H, Wang L-F, Tsai C-H, Chang H-T. An eye-tracking assistive device improves the quality of life for ALS patients and reduces the caregivers’ burden. J Mot Behav 2014;46:233–8.
  • Zamietra K, Lehman EB, Felgoise SH, Walsh SM, Stephens HE, Simmons Z. Non-invasive ventilation and gastrostomy may not impact overall quality of life in patients with ALS. Amyotroph Lateral Scler 2012;13:55–8.
  • Kleinbub JR, Palmieri A, Broggio A, Pagnini F, Enrico B, Sambin M, et al. Hypnosis-based psychodynamic treatment in ALS: a longitudinal study on patients and their caregivers. Front Psychol 2015;6:624.
  • Pagnini F, Simmons Z. Italian validation of Amyotrophic Lateral Sclerosis Specific Quality of Life-Revised (ALSSQOL-R): a comparison between US and Italian samples. Amyotroph Lateral Scler 2010;11(Supp1):126–7.
  • Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2000;1:293–9.
  • Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci 1999;169:13–21.
  • Roche JC, Rojas-Garcia R, Scott KM, Scotton W, Ellis CE, Burman R, et al. A proposed staging system for amyotrophic lateral sclerosis. Brain: A Journal of Neurology 2012;135:847–52.
  • Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 1995;9:207–19.
  • Chio A, Gauthier A, Montuschi A, Calvo A, Di Vito N, Ghiglione P, et al. A cross sectional study on determinants of quality of life in ALS. Journal of Neurology, Neurosurgery, and Psychiatry 2004;75:1597–601.
  • The WHOQOL Group. Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine 1998;28:551–8.
  • Min SK, Kim K, Lee C, Jung YC, Suh SY, Kim DK. Development of the Korean versions of WHO Quality of Life scale and WHOQOL-BREF. Qual Life Res 2002;11:593–600.
  • World Health Organization. Programme on mental health WHOQOL user manual 1998 [cited 2016 6th July]. Available from: http://www.who.int/mental_health/evidence/who_qol_user_manual_98.pdf.
  • Kim HY, Park KH, Koh SH, Lee SC, Nam YH, Kim J, et al. Korean version of amyotrophic lateral sclerosis functional rating scale-revised: A pilot study on the reliability and validity. J Korean Neurol Assoc 2007;25:149–54.
  • Lynn MR. Determination and quantification of content validity. Nurs Res 1986;35:382–6.
  • Tavakol M, Dennick R. Making sense of Cronbach's alpha. Int J Med Educ 2011;2:53–5.
  • DeVellis RF, Scale development: Theory and applications: Thousand Oaks, CA: Sage publications; 2012.
  • Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007;60:34–42.
  • Nicolosi A, Glasser DB, Kim SC, Marumo K, Laumann EO. Sexual behaviour and dysfunction and help-seeking patterns in adults aged 40-80 years in the urban population of Asian countries . BJU Int 2005;95:609–14.
  • Organization for Economic Cooperation and Development 2015. Internet. [cited 2016 July 6]. Available from: http://www.oecdbetterlifeindex.org/.
  • Oh J, An JW, Oh S-I, Oh KW, Kim JA, Lee JS, et al. Socioeconomic costs of amyotrophic lateral sclerosis according to staging system. Amyotroph Lateral Scler Frontotemporal Degener 2015;16:22–8.
  • Felgoise SH, Zaccheo V, Duff J, Simmons Z. Verbal communication impacts quality of life in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler Frontotemporal Degener 2016;17:179–83.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.