Hope and self-efficacy are associated with better satisfaction with life in people with ALS

References

• Hayashi H, Kato S. Total manifestations of amyotrophic lateral sclerosis: ALS in the totally locked-in state. J Neurol Sci. 1989;93:19–35.
   PubMed Web of Science ®Google Scholar
• Murphy J, Factor-Litvak P, Goetz R, Lomen-Hoerth C, Nagy PL, Hupf J, et al. Cognitive-behavioral screening reveals prevalent impairment in a large multicenter ALS cohort. Neurology 2016;86:813–20.
   PubMed Web of Science ®Google Scholar
• Kübler A, Winter S, Ludolph A, Hautzinger M, Birbaumer N. Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis. Neurorehabil Neural Repair. 2005;19:1–12.
   Web of Science ®Google Scholar
• McLeod JE, Clarke DM. A review of psychosocial aspects of motor neurone disease. J Neurol Sci. 2007;258:4–10.
   PubMed Web of Science ®Google Scholar
• Feinstein A. Multiple sclerosis and depression. Mult Scler. 2011;17:1276–81.
   PubMed Web of Science ®Google Scholar
• Patten SB, Beck CA, Williams JV, Barbui C, Metz LM. Major depression in multiple sclerosis: a population-based perspective. Neurology. 2003;61:1524–7.
   PubMed Web of Science ®Google Scholar
• Lieberman A. Depression in Parkinson's disease - a review. Acta Neurol Scand. 2006;113:1–8.
   PubMed Web of Science ®Google Scholar
• Norris L, Que G, Bayat E. Psychiatric aspects of amyotrophic lateral sclerosis (ALS). Curr Psychiatry Rep. 2010;12:239–45.
   PubMed Web of Science ®Google Scholar
• Kurt A, Nijboer F, Matuz T, Kübler A. Depression and anxiety in individuals with amyotrophic lateral sclerosis: epidemiology and management. CNS Drugs. 2007;21:279–91.
   PubMed Web of Science ®Google Scholar
• Ganzini L, Johnston WS, Hoffman WF. Correlates of suffering in amyotrophic lateral sclerosis. Neurology. 1999;52:1434–40.
   PubMed Web of Science ®Google Scholar
• Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurology. 2000;55:388–92.
   PubMed Web of Science ®Google Scholar
• Johnston M, Earll L, Giles M, McClenahan R, Stevens D, Morrison V. Mood as a predictor of disability and survival in patients newly diagnosed with ALS/MND. Br J Health Psychol. 1999;4:127–36.
   Web of Science ®Google Scholar
• McDonald ER, Wiedenfeld SA, Hillel A, Carpenter CL, Walter RA. Survival in amyotrophic lateral sclerosis. The role of psychological factors. Arch Neurol. 1994;51:17–23.
   PubMed Web of Science ®Google Scholar
• Aspinwall LG, Tedeschi RG. The value of positive psychology for health psychology: progress and pitfalls in examining the relation of positive phenomena to health. Ann Behav Med. 2010;39:4–15.
   PubMed Web of Science ®Google Scholar
• Snyder C, Tennen H, Affleck G, Cheavens J. Social, personality, clinical, and health psychology tributaries: the merging of a scholarly “river of dreams”. Pers Soc Psychol Rev. 2000;4:16–29.
   Web of Science ®Google Scholar
• Snyder CR, Irving LM, Anderson JR. In: Snyder CR, Forsyth DR., Eds. Hope and health: measuring the will and the ways. Elmsford, NY: Pergamon Press; 1991:285–307.
   Google Scholar
• Jerusalem M, Schwarzer R. Self-efficacy as a resource factor in stress appraisal processes. In: Schwarzer R, ed. Self-efficacy: thought control of action. Washington, DC: Hemisphere; 1992:195–213.
   Google Scholar
• Scheier MF, Carver CS. Optimism, coping, and health: assessment and implications of generalized outcome expectancies. Health Psychol. 1985;4:219.
   PubMed Web of Science ®Google Scholar
• Snyder C, Irving LM, Anderson JR. Handbook of social and clinical psychology: the health perspective. 1991:162–285.
   Google Scholar
• Snyder CR. Conceptualizing, measuring, and nurturing hope. J Couns Dev. 1995;73:355–60.
   Web of Science ®Google Scholar
• Schwarzer R, Fuchs R. Changing risk behaviors and adopting health behaviors: the role of self-efficacy beliefs. In: Bandura A, ed. Self-efficacy in changing societies. Cambridge, England: Cambridge University Press; 1995:259–88.
   Google Scholar
• Magaletta PR, Oliver J. The hope construct, will, and ways: Their relations with self-efficacy, optimism, and general well-being. J Clin Psychol. 1999;55:539–51.
   PubMed Web of Science ®Google Scholar
• Bailey TC, Eng W, Frisch MB, Snyder C. Hope and optimism as related to life satisfaction. J Posit Psychol. 2007;2:168–75.
   Google Scholar
• Chen RK, Crewe NM. Life satisfaction among people with progressive disabilities. J Rehabil. 2009;75:50.
   Web of Science ®Google Scholar
• Alarcon GM, Bowling NA, Khazon S. Great expectations: a meta-analytic examination of optimism and hope. Personal Individ Differ. 2013;54:821–7.
   Web of Science ®Google Scholar
• Gallagher MW, Lopez SJ. Positive expectancies and mental health: identifying the unique contributions of hope and optimism. J Posit Psychol. 2009;4:548–56.
   Web of Science ®Google Scholar
• Bryant FB, Cvengros JA. Distinguishing hope and optimism: two sides of a coin, or two separate coins? J Soc Clin Psychol. 2004;23:273–302.
   Web of Science ®Google Scholar
• Snyder CR, Harris C, Anderson JR, Holleran SA, Irving LM, Sigmon ST, et al. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol. 1991;60:570.
   PubMed Web of Science ®Google Scholar
• Carver CS, Scheier MF. Dispositional optimism. Trends Cogn Sci (Regul Ed). 2014;18:293–9.
   PubMed Web of Science ®Google Scholar
• Snyder CR. Handbook of hope: theory, measures, and applications. San Diego, CA: Academic Press; 2000.
   Google Scholar
• Bandura A. The explanatory and predictive scope of self-efficacy theory. J Soc Clin Psychol. 1986;4:359–73.
   Web of Science ®Google Scholar
• Bandura A. Self efficacy: the exercise of control. New York: W. H. Freeman and Co. publishing; 1997.
   Google Scholar
• Bandura A. Self-efficacy mechanism in human agency. Am Psychol. 1982;37:122.
   Web of Science ®Google Scholar
• Irving LM, Snyder C, Cheavens J, Gravel L, Hanke J, Hilberg P, et al. The relationships between hope and outcomes at the pretreatment, beginning, and later phases of psychotherapy. J Psychother Integr. 2004;14:419.
   Google Scholar
• Irving LM, Snyder C, Crowson JJ. Jr Hope and coping with cancer by college women. J Pers. 1998;66:195–214.
   PubMed Web of Science ®Google Scholar
• Snyder C, Feldman DB, Taylor JD, Schroeder LL, Adams VH. The roles of hopeful thinking in preventing problems and enhancing strengths. Appl Prev Psychol 2000;9:249–69.
   Web of Science ®Google Scholar
• Snyder CR, Michael ST, Cheavens JS. Hope as a psychotherapeutic foundation of common factors, placebos, and expectancies. In: Hubble MA, Duncan BL, Miller SD, eds. The heart and soul of change: what works in therapy. Washington, DC: American Psychological Association; 1999:179–200.
   Google Scholar
• Madan S, Pakenham KI. The stress-buffering effects of hope on adjustment to multiple sclerosis. Intj Behav Med. 2014;21:877–90.
   PubMed Web of Science ®Google Scholar
• Foote AW, Piazza D, Holcombe J, Paul P, Daffin P. Hope, self-esteem and social support in persons with multiple sclerosis. J Neurosci Nurs 1990;22:155–9.
   PubMedGoogle Scholar
• Lynch SG, Kroencke DC, Denney DR. The relationship between disability and depression in multiple sclerosis: the role of uncertainty, coping, and hope. Mult Scler. 2001;7:411–6.
   PubMed Web of Science ®Google Scholar
• Stanton AL, Danoff-Burg S, Cameron CL, Bishop M, Collins CA, Kirk SB, et al. Emotionally expressive coping predicts psychological and physical adjustment to breast cancer. J Consult Clin Psychol. 2000;68:875.
   PubMed Web of Science ®Google Scholar
• Stanton AL, Danoff-burg S, Huggins ME. The first year after breast cancer diagnosis: hope and coping strategies as predictors of adjustment. Psychooncology. 2002;11:93–102.
   PubMed Web of Science ®Google Scholar
• Barnum DD, Snyder C, Rapoff MA, MMM, Thompson R. Hope and social support in psychological adjustment of children who have survived burn injuries and their matched controls. J Child Health Care.1998;27:15–30.
   Web of Science ®Google Scholar
• Elliott TR, Witty TE, Herrick SM, Hoffman JT. Negotiating reality after physical loss: hope, depression, and disability. J Pers Soc Psychol. 1991;61:608.
   PubMed Web of Science ®Google Scholar
• Jackson WT, Taylor RE, Palmatier AD, Elliott TR, Elliott JL. Negotiating the reality of visual impairment: hope, coping, and functional ability. J Clin Psychol Med Settings. 1998;5:173–85.
   Web of Science ®Google Scholar
• Rasmussen HN, Scheier MF, Greenhouse JB. Optimism and physical health: a meta-analytic review. Ann Behav Med. 2009;37:239.
   PubMed Web of Science ®Google Scholar
• de Ridder D, Fournier M, Bensing J. Does optimism affect symptom report in chronic disease? What are its consequences for self-care behaviour and physical functioning? J Psychosom Res. 2004;56:341–50.
   PubMed Web of Science ®Google Scholar
• Fournier M, Ridder D, Bensing J. Optimism and adaptation to chronic disease: The role of optimism in relation to self‐care options of type 1 diabetes mellitus, rheumatoid arthritis and multiple sclerosis. Br J Health Psychol. 2002;7:409–32.
   PubMed Web of Science ®Google Scholar
• Carver CS, Pozo C, Harris SD, Noriega V, Scheier MF, Robinson DS, et al. How coping mediates the effect of optimism on distress: a study of women with early stage breast cancer. J Pers Soc Psychol. 1993;65:375.
   PubMed Web of Science ®Google Scholar
• Carver CS, Smith RG, Antoni MH, Petronis VM, Weiss S, Derhagopian RP. Optimistic personality and psychosocial well-being during treatment predict psychosocial well-being among long-term survivors of breast cancer. Health Psychol. 2005;24:508.
   PubMed Web of Science ®Google Scholar
• Johnson JE. Coping with radiation therapy: optimism and the effect of preparatory interventions. Res Nurs Health. 1996;19:3–12.
   PubMed Web of Science ®Google Scholar
• Trunzo JJ, Pinto BM. Social support as a mediator of optimism and distress in breast cancer survivors. J Consult Clin Psychol. 2003;71:805.
   PubMed Web of Science ®Google Scholar
• Scheier MF, Matthews KA, Owens JF, Magovern GJ, Lefebvre RC, Abbott RA, et al. Dispositional optimism and recovery from coronary artery bypass surgery: the beneficial effects on physical and psychological well-being. J Pers Soc Psychol. 1989;57:1024.
   PubMed Web of Science ®Google Scholar
• Scheier MF, Carver CS. Effects of optimism on psychological and physical well-being: Theoretical overview and empirical update. Cogn Ther Res. 1992;16:201–28.
   Web of Science ®Google Scholar
• Fitzgerald TE, Tennen H, Affleck G, Pransky GS. The relative importance of dispositional optimism and control appraisals in quality of life after coronary artery bypass surgery. J Behav Med. 1993;16:25–43.
   PubMed Web of Science ®Google Scholar
• King KB, Rowe MA, Kimble LP, Zerwic JJ. Optimism, coping and long-term recovery from coronary artery surgery in women. Res Nurs Health. 1998;21:15–26.
   PubMed Web of Science ®Google Scholar
• Mahler HI, Kulik J. Optimism, pessimism and recovery from coronary bypass surgery: prediction of affect, pain and functional status. Psychol Health Med. 2000;5:347–58.
   Google Scholar
• Matthews KA, Räikkönen K, Sutton-Tyrrell K, Kuller LH. Optimistic attitudes protect against progression of carotid atherosclerosis in healthy middle-aged women. Psychosom Med. 2004;66:640–4.
   PubMed Web of Science ®Google Scholar
• Taylor SE, Kemeny ME, Aspinwall LG, Schneider SG, Rodriguez R, Herbert M. Optimism, coping, psychological distress, and high-risk sexual behavior among men at risk for acquired immunodeficiency syndrome (AIDS). J Pers Soc Psychol. 1992;63:460.
   PubMed Web of Science ®Google Scholar
• Kuijer RG, De Ridder DT. Discrepancy in illness-related goals and quality of life in chronically ill patients: the role of self-efficacy. Psychol Health. 2003;18:313–30.
   Web of Science ®Google Scholar
• Heckman JE, Chamie K, Maliski SL, Fink A, Kwan L, Connor SE, et al. The role of self-efficacy in quality of life for disadvantaged men with prostate cancer. J Urol. 2011;186:1855–61.
   PubMed Web of Science ®Google Scholar
• Trojan DA, Arnold D, Collet J-P, Shapiro S, Bar-Or A, Robinson A, et al. Fatigue in multiple sclerosis: association with disease-related, behavioural and psychosocial factors. Mult Scler. 2007;13:985–95.
   PubMed Web of Science ®Google Scholar
• Diener E, Emmons RA, Larsen RJ, Griffin S. The satisfaction with life Scale. J Pers Assess. 1985;49:71–5.
   PubMed Web of Science ®Google Scholar
• Pavot W, Diener E. The satisfaction with life scale and the emerging construct of life satisfaction. J Posit Psychol. 2008;3:137–52.
   Google Scholar
• Moons P, Budts W, De Geest S. Critique on the conceptualisation of quality of life: a review and evaluation of different conceptual approaches. Int J Nurs Stud. 2006;43:891–901.
   PubMed Web of Science ®Google Scholar
• Pavot W, Diener E. Review of the satisfaction with life scale. Psychol Assess.1993;5:164.
   Google Scholar
• Putzke JD, Elliott TR, Richards JS. Marital status and adjustment 1 year post-spinal-cord-injury. J Clin Psychol Med Settings. 2001;8:101–7.
   Web of Science ®Google Scholar
• Barrett JJ, Putzke JD, Richards JS. Early versus late onset of spinal cord injury among the elderly. J Clin Psychol Med Settings. 2002;9:219–26.
   Web of Science ®Google Scholar
• Sherman J, DeVinney D, Sperling K. Social support and adjustment after spinal cord injury: influence of past peer-mentoring experiences and current live-in partner. Rehabilitation Psychology. 2004;49:140.
   Web of Science ®Google Scholar
• Heckman TG. The chronic illness quality of life (CIQOL) model: explaining life satisfaction in people living with HIV disease. Health Psychol. 2003;22:140.
   PubMed Web of Science ®Google Scholar
• Myers DG, Diener E. Who is happy? Psychol Sci. 1995;6:10–9.
   Web of Science ®Google Scholar
• Elliott TR, Uswatte G, Lewis L, Palmatier A. Goal instability and adjustment to physical disability. J Couns Psychol. 2000;47:251.
   Web of Science ®Google Scholar
• Babyak MA, Snyder CR, Yoshinobu L. Psychometric properties of the Hope scale: a confirmatory factor analysis. J Res Pers. 1993;27:154–69.
   Web of Science ®Google Scholar
• Drach-Zahavy A, Somech A. Coping with health problems: the distinctive relationships of Hope sub-scales with constructive thinking and resource allocation. Pers Individ Dif. 2002;33:103–17.
   Web of Science ®Google Scholar
• German T. The relationship between procastination and guilt as a basis for a typology of procrastinators and non-procrastinators. Dissertation Abstracts, Tel-Aviv University; 1990.
   Google Scholar
• Zeidner M, Schwarzer R, Jerusalem M. Hebrew adaptation of the general self-efficacy scale. Health Psychol. 1993;12:102–4.
   Google Scholar
• Shmotkin D. Declarative and differential aspects of subjective well-being and its implications for mental health in later life. In Lomranz J. Ed. Handbook of aging and mental health: an integrative approach New York: Plenum; 1998: 15–43.
   Google Scholar
• CNTF ALS Treatment Study Phase III Group. The amyotrophic lateral sclerosis functional rating scale. Assessment of activities of daily living in patients with amyotrophic lateral sclerosis. Arch Neurol. 1996;53:141–7.
   PubMedGoogle Scholar
• Matuz T, Birbaumer N, Hautzinger M, Kübler A. Coping with amyotrophic lateral sclerosis: an integrative view. J Neurol Neurosurg Psychiatry. 2010;81:893–8.
   PubMed Web of Science ®Google Scholar
• Nekolaichuk CL, Jevne RF, Maguire TO. Structuring the meaning of hope in health and illness. Soc Sci Med. 1999;48:591–605.
   PubMed Web of Science ®Google Scholar
• Arnold EM. Factors that influence consideration of hastening death among people with life-threatening illnesses. Health Soc Work. 2004;29:17–26.
   PubMed Web of Science ®Google Scholar
• Centers LC. Beyond denial and despair: ALS and our heroic potential for hope. J Palliat Care. 2001;17:259–64.
   PubMed Web of Science ®Google Scholar
• Fanos JH, Gelinas DF, Foster RS, Postone N, Miller RG. Hope in palliative care: from narcissism to self-transcendence in amyotrophic lateral sclerosis. J Palliat Med. 2008;11:470–5.
   PubMed Web of Science ®Google Scholar
• Jacoby R. The never ending story: a model for the work of hope In: Jacoby R, Keinan G, eds. Between stress and hope: from a disease-centered to a health-centered perspective. Westport, CT: Greenwood Publishing Group. 2003:299–320.
   Google Scholar
• Bandura A. Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977;84:191–215.
   PubMed Web of Science ®Google Scholar
• Shnek ZM, Foley FW, LaRocca NG, Gordon WA, DeLuca J, Schwartzman HG, et al. Helplessness, self-efficacy, cognitive distortions, and depression in multiple sclerosis and spinal cord injury. Ann Behav Med. 1997;19:287–94.
   PubMed Web of Science ®Google Scholar
• Barnwell AM, Kavanagh DJ. Prediction of psychological adjustment to multiple sclerosis. Soc Sci Med. 1997;45:411–8.
   PubMed Web of Science ®Google Scholar
• Mitchell AJ, Benito-León J, González J-MM, Rivera-Navarro J. Quality of life and its assessment in multiple sclerosis: integrating physical and psychological components of wellbeing. Lancet Neurol. 2005;4:556–66.
   PubMed Web of Science ®Google Scholar
• Fredrickson BL. The role of positive emotions in positive psychology: the broaden-and-build theory of positive emotions. Am Psychol. 2001;56:218–26.
   PubMed Web of Science ®Google Scholar
• Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984.
   Google Scholar
• Seligman ME, Abramson LY, Semmel A, Von Baeyer C. Depressive attributional style. J Abnorm Psychol. 1979;88:242.
   PubMed Web of Science ®Google Scholar
• Roth DL, Snyder CR, Pace LM. Dimensions of favorable self-presentation. J Pers Soc Psychol. 1986;51:867.
   Web of Science ®Google Scholar
• McCabe MP, Stokes M, McDonald E. Changes in quality of life and coping among people with multiple sclerosis over a 2 year period. Psychol Health Med. 2009;14:86–96.
   PubMed Web of Science ®Google Scholar
• Taylor SE, Collins RL, Skokan LA, Aspinwall LG. Maintaining positive illusions in the face of negative information: Getting the facts without letting them get to you. J Soc Clin Psychol. 1989;8:114–29.
   Web of Science ®Google Scholar
• Lopez SJ, Snyder CR, Magyar-Moe JL, Edwards LM, Pedrotti JT, Janowski K, et al. Strategies for Accentuating Hope. In: Linley PA, Joseph S, eds. Positive psychology in practice. Hoboken, NJ: John Wiley & Sons Inc. 2004:388–404
   Google Scholar