Prevalence of amyotrophic lateral sclerosis in the United States, 2018

References

• Hardiman O, Al-Chalabi A, Chio A, Corr EM, Logroscino G, Robberecht W, et al. Amyotrophic lateral sclerosis. Nat Rev Dis Primers. 2017;3:17071.
   PubMed Web of Science ®Google Scholar
• FDA Approves New Treatment Option for Patients with ALS, 2022. Available at: https://www.fda.gov/news-events/press-announcements/fda-approves-new-treatment-option-patients-als
   Google Scholar
• Andrew AS, Bradley WG, Peipert D, Butt T, Amoako K, Pioro EP, et al. Risk factors for amyotrophic lateral sclerosis: a regional United States case-control study. Muscle Nerve. 2021;63:52–9.
   PubMed Web of Science ®Google Scholar
• Su FC, Goutman SA, Chernyak S, Mukherjee B, Callaghan BC, Batterman S, et al. Association of environmental toxins with amyotrophic lateral sclerosis. JAMA Neurol. 2016;73:803–11.
   PubMed Web of Science ®Google Scholar
• Yu Y, Su FC, Callaghan BC, Goutman SA, Batterman SA, Feldman EL. Environmental risk factors and amyotrophic lateral sclerosis (ALS): a case-control study of ALS in Michigan. PLoS One. 2014;9:e101186.
   PubMed Web of Science ®Google Scholar
• Goutman SA, Boss J, Godwin C, Mukherjee B, Feldman EL, Batterman SA. Associations of self-reported occupational exposures and settings to ALS: a case-control study. Int Arch Occup Environ Health. 2022;95:1567–86.
   PubMed Web of Science ®Google Scholar
• Cox PA, Kostrzewa RM, Guillemin GJ. BMAA and neurodegenerative illness. Neurotox Res. 2018;33:178–83.
   PubMed Web of Science ®Google Scholar
• Dunlop RA, Banack SA, Cox PA. L1CAM immunocapture generates a unique extracellular vesicle population with a reproducible miRNA fingerprint. RNA Biol. 2023;20:140–8.
   PubMed Web of Science ®Google Scholar
• Meyer T. [Amyotrophic lateral sclerosis (ALS) – diagnosis, course of disease and treatment options]. Dtsch Med Wochenschr 2021;146:1613–8.
   PubMed Web of Science ®Google Scholar
• US Public Health Service. ALS registry act. Washington, DC: 110th Congress; 2008.
   Google Scholar
• Mehta P, Raymond J, Punjani R, Han M, Larson T, Kaye W, et al. Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017. Amyotroph Lateral Scler Frontotemporal Degener. 2023;24:108–16.
   PubMed Web of Science ®Google Scholar
• Mehta P, Raymond J, Punjani R, Larson T, Han M, Bove F, et al. Incidence of amyotrophic lateral sclerosis in the United States, 2014-2016. Amyotroph Lateral Scler Frontotemporal Degener. 2022;23:378–82.
   PubMed Web of Science ®Google Scholar
• Raymond J, Mehta P, Larson T, Factor-Litvak P, Davis B, Horton K. History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010-2018. Amyotroph Lateral Scler Frontotemporal Degener. 2021;22:535–44.
   PubMed Web of Science ®Google Scholar
• Rechtman L, Brenner S, Wright M, Ritsick M, Rahman F, Han M, et al. Impact of the national amyotrophic lateral sclerosis registry: analysis of registry-funded research. Ann Clin Transl Neurol. 2022;9:1692–701.
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention, National ALS Registry Disease Estimates, 2022. Available at: https://www.cdc.gov/als/National_disease_estimates.html
   Google Scholar
• Mehta P, Raymond J, Han M, Punjani R, Larson T, Berry JD, et al. A revision to the United States national ALS registry’s algorithm to improve Case-Ascertainment. Amyotroph Lateral Scler Frontotemporal Degener 2023; 24:230–6.
   PubMed Web of Science ®Google Scholar
• Nelson LM, Topol B, Kaye W, Raymond J, Horton DK, Mehta P, et al. Evaluation of the completeness of ALS Case Ascertainment in the US National ALS Registry: application of the capture-recapture method. Neuroepidemiology 2022;56:104–14.
   PubMed Web of Science ®Google Scholar
• Kaye WE, Sanchez M, Wu J. Feasibility of creating a National ALS Registry using administrative data in the United States. Amyotroph Lateral Scler Frontotemporal Degener. 2014;15:433–9.
   PubMed Web of Science ®Google Scholar
• Mehta P, Raymond J, Punjani R, Larson T, Bove F, Kaye W, et al. Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016. Amyotroph Lateral Scler Frontotemporal Degener. 2022;23:220–5.
   PubMed Web of Science ®Google Scholar
• United States Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics. Bridged-race population estimates, United States July 1st resident population by state, county, age, sex, bridged-race, and Hispanic origin.: CDC WONDER Online Database. Available at: http://wonder.cdc.gov/bridged-race-v2020.htm
   Google Scholar
• Chao A, Tsay P, Lin SH, Shau WY, Chao DY. The applications of capture‐recapture models to epidemiological data. Stat Med. 2001;20:3123–57.
   PubMed Web of Science ®Google Scholar
• Akaike H. A new look at the statistical model identification. IEEE Trans Automat Contr. 1974;19:716–23.
   Web of Science ®Google Scholar
• Agresti A. Categorical data analysis. New Jersey: John Wiley & Sons; 2012.
   Google Scholar
• R Core Team. R: a language and environment for statistical computing. Vienna, Austria: R Foundation for Statistical Computing; 2023.
   Google Scholar
• Fletcher K, Prigerson H, Paulk E, Temel J, Finlay E, Marr L, et al. Gender differences in the evolution of illness understanding among patients with advanced cancer. J Support Oncol. 2013;11:126–32.
   PubMedGoogle Scholar
• Vogel B, Acevedo M, Appelman Y, Bairey Merz CN, Chieffo A, Figtree GA, et al. The Lancet women and cardiovascular disease Commission: reducing the global burden by 2030. The Lancet. 2021;397:2385–438.
   PubMed Web of Science ®Google Scholar
• Coull BA, Agresti A. The use of mixed logit models to reflect heterogeneity in capture‐recapture studies. Biometrics 1999;55:294–301.
   PubMed Web of Science ®Google Scholar
• Jones HE, Hickman M, Welton NJ, De Angelis D, Harris RJ, Ades A. Recapture or precapture? Fallibility of standard capture-recapture methods in the presence of referrals between sources. Am J Epidemiol. 2014;179:1383–93.
   PubMed Web of Science ®Google Scholar