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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 25, 2024 - Issue 3-4
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Research Article

What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions

Marion Sommers-Spijkerman1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-0648-8708View further author information
ORCID Icon,
Anna Stukker1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The NetherlandsView further author information
,
Melinda S. Kavanaugh3 Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI, USAORCID Iconhttps://orcid.org/0000-0001-7858-9909View further author information
ORCID Icon,
Marjolijn Ketelaar1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andORCID Iconhttps://orcid.org/0000-0002-8324-518XView further author information
ORCID Icon,
Johanna M. A. Visser-Meily1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andORCID Iconhttps://orcid.org/0000-0002-5955-8012View further author information
ORCID Icon &
Anita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andORCID Iconhttps://orcid.org/0000-0002-1269-0710View further author information
ORCID Icon
Pages 256-263 | Received 25 Aug 2023, Accepted 27 Nov 2023, Published online: 09 Dec 2023

References

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