1,078
Views
5
CrossRef citations to date
0
Altmetric
Research Article

Under-reporting of major birth defects in Northwest Russia: a registry-based study

, , , , &
Article: 1366785 | Received 02 May 2017, Accepted 08 Aug 2017, Published online: 30 Aug 2017

References

  • EUROCAT Annual Surveillance. Report 2012. [ cited 2017 Jul 10]. Available from: http://www.eurocat-network.eu/content/EUROCAT-Annual-Surveillance-Report.pdf
  • Bhutta ZA, Yakoob MY, Lawn JE, et al. Lancet’s Stillbirths Series steering committee: stillbirths: what difference can we make and at what cost? Lancet. 2011;377:1–10.
  • Office of the Director. National center on birth defects and developmental disabilities: birth defects and developmental disabilities, annual report. Atlanta: Centers for Disease Control; 2012. p. 12–16. Available from: https://www.cdc.gov/ncbddd/aboutus/annualreport2012/documents/ncbdddannualrepor2012-full-report.pdf
  • Dai L, Zhu J, Liang J, et al. Birth defects surveillance in China. World J Pediatr. 2011;7:302–310.
  • Lee NC, Chien YH, Hwu WL. Integrated care for Down syndrome. Congenit Anom (Kyoto). 2016;56(3):104–106.
  • Ferreira FR, Russo Akiba HR, Araujo Junior E, et al. Prevention of birth defects in the pre-conception period: knowledge and practice of health care professionals (nurses and doctors) in a city of Southern Brazil. Iran J Reprod Med. 2015;13(10):657–664.
  • Zhu Z, Cheng Y, Yang W, et al. Who should be targeted for the prevention of birth defects? A latent class analysis based on a large, population-based, cross-sectional study in Shaanxi province, Western China. PLoS One. 2016;11:5.
  • Christianson A, Howson CP, Modell B. March of Dimes global report on birth defects: the hidden toll of dying and disabled children. White Plains: March of Dimes Birth Defects Foundation; 2006.
  • Rozendaal AM, Luijsterburg AJ, Ongkosuwito EM, et al. Delayed diagnosis and underreporting of congenital anomalies associated with oral clefts in the Netherlands: a national validation study. J Plast Reconstr Aesthet Surg. 2012;65:780–790.
  • Anda EE, Nieboer E, Voitov AV, et al. Implementation, quality control and selected pregnancy outcomes of the Murmansk County birth registry in Russia. Int J Circumpolar Health. 2008;67:318–334.
  • Research Clinical Institute of Pediatrics. Federal monitoring. Monitoring of birth defects. Report 2011. [ cited 2017 Mar 8]. Available from: http://old.pedklin.ru/Defects/Results/report2011.html
  • Demikova NS, Vydrych YV, Podolnaya MA, et al. Prevalence and descriptive epidemiology of esophageal atresia in the Russian Federation. Birth Defects Res A Clin Mol Teratol. 2016;106(10):854–859.
  • Petrova JG, Vaktskjold A. The incidence and maternal age distribution of abdominal wall defects in Norway and Arkhangelskaja Oblast in Russia. Int J Circumpolar Health. 2009;68:75–83.
  • Irvine KA, Moore EA. Linkage of routinely collected data in practice: the Centre for Health Record Linkage. Public Health Res Pract. 2015;25(4):e2541548.
  • Penberthy L, McClish D, Pugh A, et al. Using hospital discharge files to enhance cancer surveillance. Am J Epidemiol. 2003;158:27–34.
  • Murmansk statistical office. Official Population Statistics. [ cited 2017 Jan 5]. Available from: http://murmanskstat.gks.ru/wps/wcm/connect/rosstat_ts/murmanskstat/ru/statistics/population/
  • Federal state Statistical Service. Demography Data. [ cited 2017 Jan]. Available from: http://www.gks.ru/wps/wcm/connect/rosstat_main/rosstat/ru/statistics/population/demography/#
  • The Arkhangelsk Regional Congenital Defects Registry (ARCDR), Регистр врожденных пороков Архангельской области. Available from: http://old.pedklin.ru/Defects/Results/report2006.html
  • The Arkhangelsk Regional Congenital Defects Registry (ARCDR), Регистр врожденных пороков Архангельской области. Available from: http://old.pedklin.ru/Defects/Results/report2007.html
  • The Arkhangelsk Regional Congenital Defects Registry (ARCDR), Регистрврожденных пороков Архангельской области. Available from: http://old.pedklin.ru/Defects/Results/report2008.html
  • The Arkhangelsk Regional Congenital Defects Registry (ARCDR), Регистр врожденных пороков Архангельской области. Available from: http://old.pedklin.ru/Defects/Results/report2009.html
  • Norwegian Birth Registry, Årstabeller for Medisinsk fødselsregister 2005-2006. Nasjonalt folkehelseinstitutt, Divisjon for epidemiologi, Avdeling for Medisinsk fødselsregister. 2009 Dec. Available from: https://www.fhi.no/globalassets/migrering/dokumenter/pdf/arkiv-2005-2006-arstabeller-fra-mfr.pdf
  • Norwegian Birth Registry, Årstabeller for Medisinsk fødselsregister 2007. Nasjonalt folkehelseinstitutt, Divisjon for epidemiologi, Avdeling for Medisinsk fødselsregister. 2009 Dec. Available from: https://www.fhi.no/globalassets/migrering/dokumenter/pdf/2007-arstabeller-fra-mfr.pdf
  • Norwegian Birth Registry, Årstabeller for Medisinsk fødselsregister 2008. Nasjonalt folkehelseinstitutt, Divisjon for epidemiologi, Avdeling for Medisinsk fødselsregister. 2010 Mar. Available from: https://www.fhi.no/globalassets/migrering/dokumenter/pdf/fodsler-i-norge-2008-pdf.pdf
  • Norwegian Birth Registry, Årsrapport for Medisinsk fødselsregister 2009. Nasjonalt folkehelseinstitutt, Divisjon for epidemiologi, Avdeling for Medisinsk fødselsregister, 2011 Sep. Available from: https://www.fhi.no/globalassets/migrering/dokumenter/pdf/2009-fodsler-i-norge-pdf.pdf
  • Wang Z, Li L, Lei XY, et al. [Effect of advanced maternal age on birth defects and postnatal complications of neonates]. Zhongguo Dang Dai Er Ke Za Zhi. 2016;18(11):1084–1089. Chinese.
  • Luo YL, Cheng YL, Gao XH, et al. Maternal age, parity and isolated birth defects: a population-based case-control study in Shenzhen, China. PLoS One. 2013;8(11):e81369.
  • Prue CE, Hamner HC, Flores AL. Effects of folic acid awareness on knowledge and consumption for the prevention of birth defects among Hispanic women in several U.S. Communities. J Womens Health (Larchmt). 2010;19:689–698.
  • Taruscio D, Carbone P, Granata O, et al. Folic acid and primary prevention of birth defects. Biofactors. 2011;37:280–284.
  • Khodr ZG, Lupo PJ, Agopian AJ, et al. Preconceptional folic acid-containing supplement use in the national birth defects prevention study. Birth Defects Res A Clin Mol Teratol. 2014;100(6):472–482.
  • He Y, Pan A, Hu FB, et al. Folic acid supplementation, birth defects, and adverse pregnancy outcomes in Chinese women: a population-based mega- cohort study. Lancet. 2016;388(Suppl 1):S91.
  • Petrova JG, Vaktskjold A. The incidence of neural tube defects in Norway and the Arkhangelskaja Oblast in Russia and the association with maternal age. Acta Obstet Gynecol Scand. 2009;88(6):667–672.
  • Federal Order № 572 from the Ministry of Health Care of the Russian Federation (last updated November 2012). Available from: https://www.rosminzdrav.ru/documents/5828-prikazminzdrava-rossii-ot-12-noyabrya-2012g-572n
  • Xuan Z, Zhongpeng Y, Yanjun G, et al. Maternal active smoking and risk of oral clefts: a meta-analysis. Oral Surg Oral Med Oral Pathol Oral Radiol. 2016;122(6):680–690.
  • Lie RT, Wilcox AJ, Taylor J, et al. Maternal smoking and oral clefts: the role of detoxification pathway genes. Epidemiology. 2008;19:606–615.
  • Luquetti DV. Koifman RJ. Quality of reporting on birth defects in birth certificates: case study from a Brazilian reference hospital. Cad Saude Publica. 2009;25:1721–1731.
  • Rozendaal AM, Luijsterburg AJ, Ongkosuwito EM, et al. Delayed diagnosis and underreporting of congenital anomalies associated with oral clefts in the Netherlands: a national validation study. J Plast Reconstr Aesthet Surg. 2012;65(6):780–790.