Parental Adjustment to Having a Child with Cerebral Palsy and Participation in Home Therapy Programs

References

• Anderson J., Hinojosa J. Parents and therapists in a professional partnership. The American Journal of Occupational Therapy 1984; 38(7)452–461
   PubMedGoogle Scholar
• Appleton P. L. Models of parent partnership and child development centres. Child: Care, health, and development 1991; 17: 27–38
   PubMed Web of Science ®Google Scholar
• Bazyk S. Changes in attitudes and beliefs regarding parent participation and home programs: An update. The American Journal of Occupational Therapy 1989; 43(11)723–728
   PubMed Web of Science ®Google Scholar
• Blacher J. Sequential stages of parental adjustment to the birth of a child with handicaps: Facts or artefact. Mental Retardation 1984; 22(2)55–68
   PubMedGoogle Scholar
• Bowlby J. A secure base: Clinical applications of attachment theory. Routledge, London 1988
   Google Scholar
• Brinker R. P. Family involvement in early intervention: Accepting the unchangeable, changing the changeable, and knowing the difference. Topics in Early Childhood Special Education 1992; 12(3)307–332
   Google Scholar
• Bronfenbrenner U. Ecology of the family as a context for human development: Research perspectives. Developmental Psychology 1986; 22(6)723–742
   Web of Science ®Google Scholar
• Brown S. M., Humphry R., Taylor E. A model of the nature of family-therapist relationships: Implications for education. The American Journal of Occupational Therapy 1996; 51(7)597–603
   Google Scholar
• Case-Smith J., Nastro M. A. The effect of occupational therapy intervention on mothers of children with cerebral palsy. The American Journal of Occupational Therapy 1993; 47(9)811–817
   PubMed Web of Science ®Google Scholar
• Chase L., Elkins J.-A., Readinger J., Shepard K. F. Perceptions of physical therapists toward patient education. Physical Therapy 1993; 73(11)787–796
   PubMedGoogle Scholar
• DeGangi G. A., Royeen C. B. Current practice among neurodevelopmental treatment association members. The American Journal of Occupational Therapy 1994; 48(9)803–809
   PubMedGoogle Scholar
• Getting on board: Training activities to promote the practice of family centred care, L. Edelman. Association for the Care of Children's Health, Bethesda, MD 1991
   Google Scholar
• Eicher P. S., Batshaw M. L. Cerebral palsy. Pediatric Clinics of North America 1993; 40(3)537–551
   PubMedGoogle Scholar
• Gadjosik C. G. Issues of parent compliance: What the clinician and researcher should know. Physical & Occupational Therapy in Pediatrics 1991; 11(3)73–87
   Google Scholar
• Gadjosik C. G., Campbell S. K. Effects of weekly review, socioeconomic status and maternal belief on mother's compliance with their disabled children's home program. Physical & Occupational Therapy in Pediatrics 1991; 11(2)47–65
   Google Scholar
• Galil A., Carmel S., Lubetzky H., Vered S., Heiman N. Compliance with home rehabilitation therapy by parents of children with disabilities in Jews and Bedoin in Israel. Developmental Medicine and Child Neurology 2001; 43: 261–268
   PubMedGoogle Scholar
• Gallimore R., Weisner T., Bernheimer L., Guthrie D., Nihira K. Family responses to young children with developmental delays: Accommodation activity in ecological and cultural context. American Journal of Mental Retardation 1993; 98(2)185–206
   PubMedGoogle Scholar
• Hanft B. The changing environment of early intervention services: Implications for practice. The American Journal of Occupational Therapy 1988; 42(11)724–731
   PubMedGoogle Scholar
• Haynes R. B. Improving patient compliance, an empirical view. Adherence, compliance and generalisation in behavioural medicine, R. B. Stuart. Brunner/Mazel Publishers, New York 1982; 56–78
   Google Scholar
• Hedges K. The postgraduate and continuing education of paediatric physiotherapists. University of Auckland, Auckland, NZ 1997, Unpublished Masters thesis
   Google Scholar
• Hewson D. Coping with loss of ability: “Good grief” or episodic stress responses. Social Science Medicine 1997; 44(8)1129–1139
   PubMedGoogle Scholar
• Hinojosa J. How mothers of preschool children with cerebral palsy perceive occupational and physical therapists and their influence on family life. The American Journal of Occupational Therapy 1990; 10(3)144–162
   Google Scholar
• Hinojosa J., Anderson J., Ranum G. W. Relationships between therapists and parents of preschool children with cerebral palsy: A survey. The Occupational Therapy Journal of Research 1988; 8(5)285–297
   Google Scholar
• Humphrey R., Gonzalez S., Taylor E. Family involvement in practise: Issues and attitudes. The American Journal of Occupational Therapy 1993; 45(3)587–593
   Google Scholar
• Humphry R., Case-Smith J. Working with families. Occupational therapy for children, 3rd ed., J. Case-Smith, A. S. Allen, P. N. Pratt. Mosby, St Louis 1996; 67–98
   Google Scholar
• King G. A., King S. M., Rosenbaum P. L. How mothers and fathers view professional caregiving for children with disabilities. Developmental Medicine and Child Neurology 1996; 38: 397–407
   PubMedGoogle Scholar
• Kübler E. Ross. On death and dying. Tavistock, London 1969
   Google Scholar
• Law M., Cadman D., Rosenbaum P., Walter S., Russell D., DeMatteo C. Neurodevelopmental therapy and upper-extremity inhibitive casting for children with cerebral palsy. Developmental Medicine and Child Neurology 1991; 33: 379–387
   PubMed Web of Science ®Google Scholar
• Law M., Darrah J., Pollock N., King G., Rosenbaum P., Russell D., Palisano R., Harris S. R., A., Watt J. Family-centered functional therapy for children with cerebral palsy: An emerging practice model. Physical & Occupational Therapy in Pediatrics 1998; 18(1)83–102
   Google Scholar
• Law M., King G. Parent compliance with therapeutic interventions for children with cerebral palsy. Developmental Medicine and Child Neurology 1993; 35: 983–990
   PubMed Web of Science ®Google Scholar
• Law M., Russell D., Pollock N., Rosenbaum P., Walter S., King G. A comparison of intensive neurodevelopmental therapy plus casting and a regular occupational therapy program for children with cerebral palsy. Developmental Medicine and Child Neurology 1997; 30: 664–670
   Google Scholar
• Levitt S., Goldschmied E. As we teach, so we treat. Physiotherapy Theory and Practice 1990; 6: 227–237
   Google Scholar
• Litchfield R., MacDougall C. Professional issues for the physiotherapists in family-centred and community-based settings. Australian Journal of Physiotherapy 2002; 48: 105–112
   PubMed Web of Science ®Google Scholar
• Mayo N. E. The effect of a home visit on parental compliance with a home program. Physical Therapy 1981; 61(1)27–32
   PubMed Web of Science ®Google Scholar
• Mayo N. E. The effect of physical therapy for children with motor delay and cerebral palsy. Physical Therapy 1991; 70: 258–267
   Google Scholar
• McKenzie S. Parents of young children with disabilities: Their perceptions of generic children's services and service professionals. Australian Journal of Early Childhood 1994; 19(4)12–17
   Google Scholar
• Olney S. J., Wright M. J. Cerebral palsy. Physical Therapy for Children, S. Campbell. W.B. Saunders, Philadelphia 1994; 489–524
   Google Scholar
• Olshansky S. Chronic sorrow: A response to having a mentally defective child. Social Casework 1962; 43: 190–193
   Google Scholar
• Palmer F. B. Evaluation of developmental therapies in cerebral palsy. Mental Retardation and Developmental Disabilities Research Reviews 1997; 3: 145–152
   Google Scholar
• Parette H. P., Hourcade H. J. Parental participation in early therapeutic intervention programs for young children with cerebral palsy: An unresolved dilemma. Rehabilitation Literature 1985; 46(1–2)1–7
   Google Scholar
• Rosa S. A., Hasselkus B. R. Connecting with patients: The personal experience of professional helping. Occupational Therapy Journal of Research 1996; 16(4)
   Google Scholar
• Rosenbaum P. L., King S. M., Cadman D. T. Measuring processes of caregiving to physically disabled children and their families. Part I: Identifying relevant components of care. Developmental Medicine and Child Neurology 1992; 34: 103–114
   PubMed Web of Science ®Google Scholar
• Ross K., Thomson D. An evaluation of parents' involvement in the management of their cerebral palsy children. Physiotherapy 1993; 79(8)561–565
   Google Scholar
• Seideman R. Y., Kleine P. F. A theory of transformed parenting: Parenting a child with developmental delay/mental retardation. Nursing Research 1995; 44(1)38–44
   PubMed Web of Science ®Google Scholar
• Shepherd R. B. Physiotherapy in Paediatrics 3rd ed. Butterworth Heinemann, Oxford 1995
   Google Scholar
• Short D. L., Schkade J. K., Herring J. A. Parent involvement in physical therapy: A controversial issue. Journal of Pediatric Orthopaedics 1989; 9: 444–446
   PubMed Web of Science ®Google Scholar
• Shreiber J. M., Effgen S. K., Palisano R. J. Effectiveness of parental collaboration on compliance with a home program. Physical Therapy 1995; 7: 59–64
   Google Scholar
• Shumway-Cook A., Woollacott M. Motor Control Theory and Practical Applications, 2nd ed. Lippincott Williams & Wilkins: Australian & New Zealand Paediatric Societies, Philadelphia 2001
   Google Scholar
• The origins of cerebral palsy. Journal of Paediatric Child Health 1995; 31(4)284–289
   PubMedGoogle Scholar
• Solnit A. J., Stark M. H. Mourning the birth of a defective child. Psychoanalytic Study of the Child 1961; 16: 523–527
   Web of Science ®Google Scholar
• Strauss A., Corbin J. Basics of qualitative research. Grounded theory procedures and techniques. Sage Publications, Newbury Park 1990
   Google Scholar
• Tennant M. Disability in New Zealand: A historical survey. New Zealand Journal of Disability Studies 1996; 2: 3–33
   Google Scholar
• Tunnard J., Ryan M. What does the Children Act mean for family members. Children & Society 1991; 5(1)67–75
   Google Scholar
• Turnbull A. P., Turnbull H. R. Parent involvement in the education of handicapped children: A critique. Mental Retardation 1982; 20(3)115–122
   PubMedGoogle Scholar
• Turnbull J. D. Early intervention for children with or at risk of cerebral palsy. American Journal of Diseases of Children 1993; 147: 54–59
   PubMedGoogle Scholar
• Washington K., Schwartz I. S. Maternal perceptions of the effects of physical and occupational therapy services on caregiving competency. Physical & Occupational Therapy in Pediatrics 1996; 16(3)33–54
   Google Scholar