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Original Article

The Health-Related Quality of Life in Long-Term Colorectal Cancer Survivors Study: objectives, methods and patient sample

, , , , , & show all
Pages 2059-2070 | Accepted 10 Apr 2008, Published online: 09 Jun 2008

References

  • Ries LAG, Harkins D, Krapcho M, et al. (2006). http://seer.cancer.gov/csr/1975_2003/, based on November 2005 SEER data submission, posted to the SEÈR web site 2006). SEER Cancer Statistics Review, 1975–2003, National Cancer Institute. Bethesda, MD. Retrieved December 6, 2006
  • Platell CF, Semmens JB. Review of survival curves for colorectal cancer. Dis Colon Rectum 2004; 47:2070–5
  • Mariotto AB, Yabroff KR, Feuer EJ, . Projecting the number of patients with colorectal carcinoma by phases of care in the US: 2000–2020. Cancer Causes Control 2006; 17:1215–26
  • Solomon MJ, Pager CK, Keshava A, . What do patients want? Patient preferences and surrogate decision making in the treatment of colorectal cancer. Dis Colon Rectum 2003; 46:1351–7
  • Pachler J, Wille-JørgensenJorgensen P. Quality of life after rectal resection for cancer, with or without permanent colostomy. The Cochrane Database of Systematic Reviews 2005, Issue 2. Art. No.: Sys Rev. 2004; (3):CD004323.pub3. DOI: 10.1002/14651858.CD004323.pub3
  • Sutherland AM, Orbach CE, Dyk RB, Bard M. The psychological impact of cancer and cancer surgery: I. Adaptation to the dry colostomy: preliminary report and summary of findings. Cancer 1952; 5:857–72
  • Wirsching M, Druner HU, Herrmann G. Results of psychosocial adjustment to long-term colostomy. Psychother Psychosom 1975; 26:245–56
  • Fazio VW, Fletcher J, Montague D. Prospective study of the effect of resection of the rectum on male sexual function. World J Surg 1980; 4:149–51
  • Hurny C, Holland JC. Psychosocial sequelae of ostomies in cancer patients. CA Cancer J Clin 1985; 36:170–83
  • Grunberg KJ. Sexual rehabilitation of the cancer patient undergoing ostomy surgery. J Enterostomal Ther 1986; 13:148–52
  • Thomas C, Madden F, Jehu D. Psychological effects of stomas – I. Psychosocial morbidity one year after surgery. J Psychosom Res 1987; 31:311–6
  • Keyes K, Bisno B, Richardson J, Marston A. Age differences in coping, behavioral dysfunction and depression following colostomy surgery. Gerontologist 1987; 27:182–4
  • Klopp AL. Body image and self-concept among individuals with stomas. J Enterostomal Ther 1990; 17:98–105
  • Hojo K, Vernava AM III, Sugihara K, Katumata K. Preservation of urine voiding and sexual function after rectal cancer surgery. Dis Colon Rectum 1991; 34:532–9
  • Sprangers MAG, Taal BG, Aaronson NK, te Velde A. Quality of life in colorectal cancer: stoma vs. non-stoma patients. Dis Colon Rectum 1995; 38:361–9
  • Nugent KP, Daniels P, Stewart B, . Quality of life in stoma patients. Dis Colon Rectum 1999; 42:1569–74
  • Grant M. Quality of life issues in colorectal cancer. Dev Support Cancer Care 1999; 3:4–9
  • Grant M, Ferrell B, Dean G, . Revision and psychometric testing of the City of Hope Quality of Life-Ostomy Questionnaire. Qual Life Res 2004; 13:1445–57
  • Krouse R, Grant M, Ferrell B, . Quality of life outcomes in 599 cancer and non-cancer patients with colostomies. J Surg Res 2007; 138:79–87
  • Krouse RS, Mohler MJ, Wendel CS, . The VA Ostomy Health-Related Quality of Life Study: objectives, methods, and patient sample. Curr Med Res Opin 2006; 22:781–91
  • Krouse RS, Grant M, Wendel CS, . A mixed-methods evaluation of health-related quality of life for male veterans with and without intestinal stomas. Dis Colon Rectum 2007; 50:2054–66
  • Mitchell KA, Rawl SM, Schmidt CM, . Demographic, clinical, and quality of life variables related to embarrassment in veterans living with an intestinal stoma. J Wound Ostomy Continence Nurs 2007; 34:524–32
  • Jain S, McGory ML, Ko CY, . Comorbidities play a larger role in predicting quality of life compared to having an ostomy. Am J Surg 2007; 194:774–9
  • Coons SJ, Chongpison Y, Wendel CS, . Overall quality of life and difficulty paying for ostomy supplies in the VA Ostomy Health-Related Quality of Life Study: an exploratory analysis. Med Care 2007; 45:891–5
  • Symms MR, Rawl SM, Grant M, . Sexual health and quality of life among male veterans with intestinal ostomies. Clin Nurs Spec 2008; 22:30–40
  • Ware JE, Kosinski M, Dewey JE. How to score version two of the SF-36 health survey. Lincoln (RI): QualityMetric Incorporated; 2000
  • Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30:473–83
  • Ware JE. SF-36 health survey update. The use of psychological testing for treatment planning and outcomes assessment, 3rd ed. Maruish ME. Mahwah (NJ): Lawrence Erlbaum Associates, 2004; 3:693–718
  • Andresen EM, Meyers AR. Health-related quality of life outcomes measures. Arch Phys Med Rehabil 2000; 81 (Suppl 2) S30–S45
  • Deyo RA, Cherkin DC, Ciol MA. Adapting a clinical comorbidity index for use with ICD-9-CM administrative databases. J Clin Epidemiol 1992; 45:613–9
  • Needham DM, Scales DC, Laupacis A, Pronovost PJ. A systematic review of the Charlson comorbidity index using Canadian administrative databases: a perspective on risk adjustment in critical care research. J Crit Care 2005; 20:12–9
  • Nuttall M, van der Meulen J, Emberton M. Charlson scores based on ICD-10 administrative data were valid in assessing comorbidity in patients undergoing urological cancer surgery. J Clin Epidemiol 2006; 59:265–73
  • Quan H, Sundararajan V, Halfon P, . Coding algorithms for defining comorbidities in ICD-9-CM and ICD-10 administrative data. Med Care 2005; 43:1130–9
  • Miles MB, Huberman AM. Qualitative data analysisThousand Oaks (CA): Sage Publications, 1994
  • Krippendorf K. Content analysis: an introduction to its methodologyBeverly Hills: Sage Publications, 1980
  • Nunnally JC, Bernstein IH. Psychometric theory, 3rd ed. New York: McGraw-Hill, 1994
  • Lertsithichai P, Rattanapichart P. Temporary ileostomy versus temporary colostomy: a meta-analysis of complications. Asian J Surg 2004; 27:202–10. [discussion 211–2]
  • Brown H, Randle J. Living with a stoma: a review of the literature. J Clin Nurs 2005; 14:74–81
  • Burch J. Psychological problems and stomas: a rough guide for community nurses. Br J Community Nurs 2005; 10:224–7
  • Colwell JC. Dealing with ostomies: good care, good devices, good quality of life. J Support Oncol 2005; 3:72–4
  • McKenzie F, White CA, Kendall S, . Psychological impact of colostomy pouch change and disposal. Br J Nurs 2006; 15:308–16
  • O'Brien B, Baddi L, Benson A 3rd. Ostomy care: the added considerations for cancer patients. J Support Oncol 2005; 3:71–2
  • Wasserberg N, Kaiser AM, Nunoo-Mensah JW, . Preservation of bowel and urinary continence in the management of locally recurrent rectal cancer. J Surg Oncol 2005; 92:76–81
  • Black PK. Psychological, sexual and cultural issues for patients with a stoma. Br J Nurs 2004; 13:692–7
  • Borwell B. The psychosexual needs of stoma patients. Prof Nurse 1997; 12:250–5
  • Caldwell K. Homosexuality: a neglected issue in stoma care. Br J Nurs 1995; 4:1009–12
  • de Freitas MR, Pela NT. Contribution to the understanding of the sexuality of partners of people with permanent colostomy. Rev Lat Am Enfermagem 2000; 8:28–33
  • Golis AM. Sexual issues for the person with an ostomy. J Wound Ostomy Continence Nurs 1996; 23:33–7
  • Junkin J, Beitz JM. Sexuality and the person with a stoma: implications for comprehensive WOC nursing practice. J Wound Ostomy Continence Nurs 2005; 32:121–8
  • Schover LR. Counseling cancer patients about changes in sexual function. Oncology (Williston Park) 1999; 13:1585–91
  • Sprunk E, Alteneder RR. The impact of an ostomy on sexuality. Clin J Oncol Nurs 2000; 4:85–8
  • Tseng HC, Wang HH, Hsu YY, Weng WC. Factors related to stress in outpatients with permanent colostomies. Kaohsiung J Med Sci 2004; 20:70–7
  • Norgaard M, Iversen LH, Sorensen HT. Colorectal cancer. Incidence and risk factors. Ugeskr Laeger 2005; 167:4157–9
  • Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in transitionWashington (DC): National Academies Press, 2005
  • Aziz NM. Cancer survivorship research: state of knowledge, challenges and opportunities. Acta Oncol 2007; 46:417–32
  • Aday L. Designing and conducting health surveys, 2nd ed. San Francisco: Jossey-Bass, 1996
  • Trilling JS. Selections from current literature: focus group technique in chronic illness. Fam Pract 1999; 16:539–41
  • Yancey AK, Ortega AN, Kumanyika SK. Effective recruitment and retention of minority research participants. Annu Rev Public Health 2006; 27:1–28

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