COPD-Related Anxiety: A Systematic Review of Patient Perspectives

References

• Willgoss TG, Yohannes AM. Anxiety disorders in patients with COPD: a systematic review. Respir Care. 2013;58(5):858–866. doi:10.4187/respcare.01862
   PubMed Web of Science ®Google Scholar
• Pumar MI, Gray CR, Walsh JR, Yang IA, Rolls TA, Ward DL. Anxiety and depression: important psychological comorbidities of COPD. J Thorac Dis. 2014;6(11):1615–1631. doi:10.3978/j.issn.2072-1439.2014.09.28
   PubMed Web of Science ®Google Scholar
• Triest FJJ, Franssen FME, Reynaert N, et al. Disease-specific comorbidity clusters in COPD and accelerated aging. J Clin Med. 2019;8(4). doi:10.3390/jcm8040511
   PubMed Web of Science ®Google Scholar
• Yohannes AM, Lavoie KL. Overseeing anxiety and depression in patients with physical illness. Chest. 2013;144(3):726–728. doi:10.1378/chest.13-0511
   PubMed Web of Science ®Google Scholar
• Yohannes AM, Willgoss TG, Baldwin RC, Connolly MJ. Depression and anxiety in chronic heart failure and chronic obstructive pulmonary disease: prevalence, relevance, clinical implications and management principles. Int J Geriatr Psychiatry. 2010;25(12):1209–1221. doi:10.1002/gps.2463
   PubMed Web of Science ®Google Scholar
• Larsen CH, Bendstrup E, Neergaard MA. Screening tools for depression and anxiety in patients with chronic obstructive pulmonary disease–a systematic review. COPD J Chronic Obstr Pulm Dis. 2021;18(6):683–689. doi:10.1080/15412555.2021.1972091
   PubMed Web of Science ®Google Scholar
• Gutiérrez-García AG, Contreras CM. Anxiety: an adaptive Emotion. In: Durbano F, editor. New Insights into Anxiety Disorders. InTech; 2013.
   Google Scholar
• Dowson C, Kuijer R, Mulder R. Anxiety and self-management behaviour in chronic obstructive pulmonary disease: what has been learned? Chron Respir Dis. 2004;1(4):213–220. doi:10.1191/1479972304cd032rs
   PubMedGoogle Scholar
• Hanania NA, O’Donnell DE. Activity-related dyspnea in chronic obstructive pulmonary disease: physical and psychological consequences, unmet needs, and future directions. Int J COPD. 2019;14:1127–1138. doi:10.2147/COPD.S188141
   Google Scholar
• Stoeckel MC, Esser RW, Gamer M, Büchel C, von Leupoldt A. Dyspnea catastrophizing and neural activations during the anticipation and perception of dyspnea. Psychophysiology. 2018;55(4):e13004. doi:10.1111/psyp.13004
   Web of Science ®Google Scholar
• Willgoss T, Yohannes A, Goldbart J, Fatoye F. COPD and anxiety: its impact on patients’ lives. Nurs Times. 2011;107(15–16):16–19.
   PubMedGoogle Scholar
• Gershon AS, Dolmage TE, Stephenson A, Jackson B. Chronic obstructive pulmonary disease and socioeconomic status: a systematic review. COPD J Chronic Obstr Pulm Dis. 2012;9(3):216–226. doi:10.3109/15412555.2011.648030
   Web of Science ®Google Scholar
• GOLD Global Initiative for Chronic Obstructive Pulmonary Disease. Global strategy for the diagnosis, management and prevention of chronic obstructive pulmonary disease; 2023.
   Google Scholar
• von Leupoldt A, Janssens T. Could targeting disease specific fear and anxiety improve COPD outcomes? Expert Rev Respir Med. 2016;10(8):835–837. doi:10.1080/1747634820161198697
   PubMed Web of Science ®Google Scholar
• Page MJ, McKenzie JE, Bossuyt PM, et al. Updating guidance for reporting systematic reviews: development of the PRISMA 2020 statement. J Clin Epidemiol. 2021;134:103–112. doi:10.1016/j.jclinepi.2021.02.003
   PubMed Web of Science ®Google Scholar
• Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45. doi:10.1186/1471-2288-8-45
   PubMed Web of Science ®Google Scholar
• Munthe-Kaas H, Bohren MA, Glenton C, et al. Applying GRADE-CERQual to qualitative evidence synthesis findings—paper 3: how to assess methodological limitations. Implement Sci. 2018;13(S1):9. doi:10.1186/s13012-017-0690-9
   PubMedGoogle Scholar
• Kessler R, Ståhl E, Vogelmeier C, et al. Patient understanding, detection, and experience of COPD exacerbations: an observational, interview-based study. Chest. 2006;130:133–142.
   PubMed Web of Science ®Google Scholar
• Ekdahl A, Söderberg S, Rising-Holmström M. Living with an ever-present breathlessness: women’s experiences of living with chronic obstructive pulmonary disease stage III or IV. Scand J Caring Sci. 2022;36:1064–1073. doi:10.1111/scs.12998
   PubMed Web of Science ®Google Scholar
• Panos RJ, Krywkowski-Mohn SM, Sherman SN, Lach LA. Patient reported determinants of health: a qualitative analysis of veterans with chronic obstructive pulmonary disease. COPD J Chronic Obstr Pulm Dis. 2013;10(3):333–347. doi:10.3109/15412555.2012.752805
   Web of Science ®Google Scholar
• Bakthavatsalu B, Walshe C, Simpson J. The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: a qualitative, phenomenological study. Chronic Illn. 2023;19(2):339–353. doi:10.1177/17423953211073580
   PubMed Web of Science ®Google Scholar
• Skär L, Borg C, Emtner M, Ekström M. Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease: a qualitative interview study. Nurs Open. 2023;10:2158–2164. doi:10.1002/nop2.1463
   PubMed Web of Science ®Google Scholar
• Zanolari D, Händler-Schuster D, Clarenbach C, Schmid-Mohler G. A qualitative study of the sources of chronic obstructive pulmonary disease-related emotional distress. Chron Respir Dis. 2023;20:1–10. doi:10.1177/14799731231163873
   Web of Science ®Google Scholar
• Lin T, Shune S. The mind–body–breath link during oral intake in chronic obstructive pulmonary disease: a grounded theory analysis. Dysphagia. 2023;38:367–378. doi:10.1007/s00455-022-10473-x
   PubMed Web of Science ®Google Scholar
• Gilliam EA, Kilgore KL, Liu Y, et al. Managing the experience of breathlessness with Tai Chi: a qualitative analysis from a randomized controlled trial in COPD. Respir Med. 2021;184:106463.
   PubMed Web of Science ®Google Scholar
• Jørgensen L, Eikhof KD, Jensen MH, Størkersen ML, Andreasen J. Patients’ experiences following acute admission due to COPD exacerbation. A qualitative interview study. Int Emerg Nurs. 2021;58(July):10–14. doi:10.1016/j.ienj.2021.101054
   Google Scholar
• Askey-Jones R, Hailes K. Exploring the benefits of a psychoeducation session for patients with chronic obstructive pulmonary disease (COPD) and co-morbid depression and/or anxiety. Ment Heal Pract. 2020;4:21–29. doi:10.7748/mhp.2020.e1435
   Google Scholar
• Lundell S, Wadell K, Wiklund M, Tistad M. Enhancing confidence and coping with stigma in an ambiguous interaction with primary care: a qualitative study of people with COPD. J Chronic Obstr Pulm Dis. 2020;17(5):533–542. doi:10.1080/15412555.2020.1824217
   PubMed Web of Science ®Google Scholar
• Rubio M. Patient perceptions of life-limiting chronic obstructive pulmonary disease. J Nurse Pract. 2019;15(2):183–188. doi:10.1016/j.nurpra.2018.10.005
   Google Scholar
• Sigurgeirsdottir J, Halldorsdottir S, Arnardottir RH, Gudmundsson G, Bjornsson EH. COPD patients’ experiences, self-reported needs, and needs-driven strategies to cope with self-management. Int J COPD. 2019;14:1033–1043. doi:10.2147/COPD.S201068
   Google Scholar
• Slevin P, Kessie T, Cullen J, Butler MW, Donnelly SC, Caulfield B. Exploring the potential benefits of digital health technology for the management of COPD: a qualitative study of patient perceptions. ERJ Open Res. 2019;5(2):00239–02018. doi:10.1183/23120541.00239-2018
   PubMedGoogle Scholar
• Wu RC, Ginsburg S, Son T, Gershon AS. Using wearables and self-management apps in patients with COPD: a qualitative study. ERJ Open Res. 2019;5:0036–2019. doi:10.1183/23120541.00036-2019
   Google Scholar
• Jarab A, Alefishat E, Mukattash T, Alzoubi K, Pinto S. Patients’ perspective of the impact of COPD on quality of life: a focus group study for patients with COPD. Int J Clin Pharm. 2018;40(3):573–579. doi:10.1007/s11096-018-0614-z
   PubMed Web of Science ®Google Scholar
• Østergaard EB, Sritharan SS, Kristiansen AD, Thomsen PM, Løkke A. Barriers and motivational factors towards physical activity in daily life living with COPD–an interview based pilot study. Eur Clin Respir J. 2018;5(1):1484654. doi:10.1080/20018525.2018.1484654
   PubMed Web of Science ®Google Scholar
• Luckett T, Phillips J, Johnson M, et al. Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department “near miss” for breathlessness: a strengths-based qualitative study. BMJ Open. 2017;7(12):1–10. doi:10.1136/bmjopen-2017-017536
   Web of Science ®Google Scholar
• Bove DG, Midtgaard J, Kaldan G, Overgaard D, Lomborg K. Home-based COPD psychoeducation: a qualitative study of the patients’ experiences. J Psychosom Res. 2017;98:71–77. doi:10.1016/j.jpsychores.2017.05.013
   PubMed Web of Science ®Google Scholar
• Korpershoek Y, Vervoort SC, Nijssen LI, Trappenburg JC, Schuurmans MJ. Factors influencing exacerbation-related self-management in patients with COPD: a qualitative study. COPD. 2016;11:2977–2990.
   Google Scholar
• Halpin D, Hyland M, Blake S, et al. Understanding fear and anxiety in patients at the time of an exacerbation of chronic obstructive pulmonary disease: a qualitative study. JRSM Open. 2015;6(12):205427041561454. doi:10.1177/2054270415614543
   Google Scholar
• Nordvall Strömberg P, Fjellman-Wiklund A, Wadell K. Enhanced information regarding exercise training as treatment is needed. An interview study in patients with chronic obstructive pulmonary disease. Disabil Rehabil. 2015;37(16):1424–1430. doi:10.3109/09638288.2014.972584
   PubMed Web of Science ®Google Scholar
• Gabriel R, Figueiredo D, Jácome C, Cruz J, Margues A. Day-to-day living with severe chronic obstructive pulmonary disease: towards a family-based approach to the illness impacts. Psychol Health. 2014;29(8):967–983.
   PubMed Web of Science ®Google Scholar
• Kauffman KS, Doede M, Diaz-Abad M, et al. Experience of insomnia, symptom attribution and treatment preferences in individuals with moderate to severe COPD: a qualitative study. Patient Prefer Adherence. 2014;8:1699–1704. doi:10.2147/PPA.S71666
   PubMed Web of Science ®Google Scholar
• Schroedl CJ, Yount SE, Szmuilowicz E, Hutchison PJ, Rosenberg SR, Kalhan R. A qualitative study of unmet healthcare needs in chronic obstructive pulmonary disease: a potential role for specialist palliative care? Ann Am Thorac Soc. 2014;11(9):1433–1438. doi:10.1513/AnnalsATS.201404-155BC
   PubMedGoogle Scholar
• Strang S, Ekberg-Jansson A, Henoch I. Experience of anxiety among patients with severe COPD: a qualitative, in-depth interview study. Palliat Support Care. 2014;12(6):465–472. doi:10.1017/S1478951513000369
   PubMed Web of Science ®Google Scholar
• Hayle C, Coventry PA, Gomm S, Caress AL. Understanding the experience of patients with chronic obstructive pulmonary disease who access specialist palliative care: a qualitative study. Palliat Med. 2013;27(9):861–868. doi:10.1177/0269216313486719
   PubMed Web of Science ®Google Scholar
• Ellison L, Gask L, Bakerly ND, Roberts J. Meeting the mental health needs of people with chronic obstructive pulmonary disease: a qualitative study. Chronic Illn. 2012;8(4):308–320. doi:10.1177/1742395312449754
   PubMedGoogle Scholar
• Willgoss TG, Yohannes AM, Goldbart J, Fatoye F. “Everything was spiraling out of control”: experiences of anxiety in people with chronic obstructive pulmonary disease. Hear Lung J Acute Crit Care. 2012;41(6):562–571. doi:10.1016/j.hrtlng.2012.07.003
   PubMed Web of Science ®Google Scholar
• Wortz K, Cade A, Menard JR, et al. A qualitative study of patients’ goals and expectations for self-management of COPD. Prim Care Respir J. 2012;21(4):384–391. doi:10.4104/pcrj.2012.00070
   PubMedGoogle Scholar
• Sossai K, Gray M, Tanner B. Living with chronic obstructive pulmonary disease: experiences in northern regional Australia. Int J Ther Rehabil. 2011;18(11):631–641. doi:10.12968/ijtr.2011.18.11.631
   Google Scholar
• Lewis R, Cramp F. Facilitators and barriers to exercise maintenance in chronic obstructive pulmonary disease: patient views. Physiother Irel. 2010;31:19–24.
   Google Scholar
• Lohne V, Heer HCD, Andersen M, Miaskowski C, Kongerud J, Rustøen T. Qualitative study of pain of patients with chronic obstructive pulmonary disease. Hear Lung J Acute Crit Care. 2010;39(3):226–234. doi:10.1016/j.hrtlng.2009.08.002
   PubMed Web of Science ®Google Scholar
• Torheim H, Gjengedal E. How to cope with the mask? Experiences of mask treatment in patients with acute chronic obstructive pulmonary disease-exacerbations. Scand J Caring Sci. 2010;24(3):499–506. doi:10.1111/j.1471-6712.2009.00740.x
   PubMed Web of Science ®Google Scholar
• Clancy K, Hallet C, Caress A. The meaning of living with chronic obstructive pulmonary disease. J Nurs Healthc Chronic Illn. 2009;1(1):78–86. doi:10.1111/J.1365-2702.2008.01005.X
   Google Scholar
• Gardiner C, Gott M, Small N, et al. Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying. Palliat Med. 2009;23(8):691–697. doi:10.1177/0269216309107003
   PubMed Web of Science ®Google Scholar
• Harris D, Hayter M, Allender S. Improving the uptake of pulmonary rehabilitation in patients with COPD: qualitative study of experiences and attitudes. Br J Gen Pract. 2008;58:703–710. doi:10.3399/bjgp08X342363
   PubMed Web of Science ®Google Scholar
• Barnett M. Chronic obstructive pulmonary disease: a phenomenological study of patients’ experiences. J Clin Nurs. 2005;14(7):805–812. doi:10.1111/j.1365-2702.2005.01125.x
   PubMed Web of Science ®Google Scholar
• Jones RCM, Hyland ME, Hanney K, Erwin J. A qualitative study of compliance with medication and lifestyle modification in Chronic Obstructive Pulmonary Disease (COPD). Prim Care Respir J. 2004;13:149–154. doi:10.1016/j.pcrj.2004.05.006
   PubMedGoogle Scholar
• Jeng C, Tsao L, Chiung-Hua H, Chang P. Experiences of daily activities within two weeks after hospital discharge among Taiwanese elderly patients with chronic obstructive pulmonary disease. J Nurs Res. 2002;10(3):168–176.
   PubMedGoogle Scholar
• Turner J, Kelly B. Emotional dimensions of chronic disease. West J Med. 2000;172:124–128.
   PubMedGoogle Scholar
• Benkel I, Arnby M, Molander U. Living with a chronic disease: a quantitative study of the views of patients with a chronic disease on the change in their life situation. SAGE Open Med. 2020;8:1–7. doi:10.1177/2050312120910350
   Web of Science ®Google Scholar
• Wan M, Luo X, Wang J, et al. The impact on quality of life from informing diagnosis in patients with cancer: a systematic review and meta-analysis. BMC Cancer. 2020;20:618. doi:10.1186/s12885-020-07096-6
   PubMed Web of Science ®Google Scholar
• Lastrucci V, D’Arienzo S, Collini F, et al. Diagnosis-related differences in the quality of end-of-life care: a comparison between cancer and non-cancer patients. PLoS One. 2018;13(9):e0204458. doi:10.1371/journal.pone.0204458
   PubMed Web of Science ®Google Scholar
• Plaufcan MR, Wamboldt FS, Holm KE. Behavioral and characterological self-blame in chronic obstructive pulmonary disease. J Psychosom Res. 2012;72(1):78–83. doi:10.1016/j.jpsychores.2011.10.004
   PubMed Web of Science ®Google Scholar
• Løkke A, Hilberg O, Tønnesen P, Ibsen R, Kjellberg J, Jennum P. Direct and indirect economic and health consequences of COPD in Denmark: a national register-based study: 1998–2010. BMJ Open. 2014;4(1):e004069. doi:10.1136/bmjopen-2013-004069
   PubMed Web of Science ®Google Scholar
• Livermore N, Sharpe L, McKenzie D. Catastrophic interpretations and anxiety sensitivity as predictors of panic-spectrum psychopathology in chronic obstructive pulmonary disease. J Psychosom Res. 2012;72(5):388–392. doi:10.1016/j.jpsychores.2012.02.001
   PubMed Web of Science ®Google Scholar
• Von Leupoldt A, Mertz C, Kegat S, Burmester S, Dahme B. The impact of emotions on the sensory and affective dimension of perceived dyspnea. Psychophysiology. 2006;43(4):382–386. doi:10.1111/j.1469-8986.2006.00415.x
   PubMed Web of Science ®Google Scholar
• Solomon BK, Wilson KG, Henderson PR, Poulin PA, Kowal J, McKim DA. A breathlessness catastrophizing scale for chronic obstructive pulmonary disease. J Psychosom Res. 2015;79(1):62–68. doi:10.1016/j.jpsychores.2014.11.020
   PubMed Web of Science ®Google Scholar
• Sutton K, Cooper M, Pimm J, Wallace L. Anxiety in chronic obstructive pulmonary disease: the role of illness specific catastrophic thoughts. Cognit Ther Res. 1999;23(6):573–585.
   Web of Science ®Google Scholar
• Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients’ perspectives on physician skill in end-of-life care: differences between patients With COPD, cancer, and AIDS. Chest. 2002;122:356–362.
   PubMed Web of Science ®Google Scholar
• Spathis A, Booth S. End of life care in chronic obstructive pulmonary disease: in search of a good death. Int J COPD. 2008;3:11–29. doi:10.2147/copd.s698
   Google Scholar
• Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ. 2005;330:1007–1011. doi:10.1136/bmj.330.7498.1007
   PubMed Web of Science ®Google Scholar
• Curtis JR. Palliative and end-of-life care for patients with severe COPD. Eur Respir J. 2008;32(3):796–803. doi:10.1183/09031936.00126107
   PubMed Web of Science ®Google Scholar
• Ouellette DR, Lavoie KL. Recognition, diagnosis, and treatment of cognitive and psychiatric disorders in patients with COPD. Int J COPD. 2017;12:639–650.
   Google Scholar
• Coventry PA, Hind D. Comprehensive pulmonary rehabilitation for anxiety and depression in adults with chronic obstructive pulmonary disease: systematic review and meta-analysis. J Psychosom Res. 2007;63(5):551–565. doi:10.1016/j.jpsychores.2007.08.002
   PubMed Web of Science ®Google Scholar
• McCarthy B, Casey D, Devane D, Murphy K, Murphy E, Lacasse Y. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2015;2015(2):1–209.
   Google Scholar
• Farver-Vestergaard I, Johannesen G, Ter BL. Occupational therapy, nutritional modulation and psychological support. In: Holland A, Dal Corso S, Spruit M, editors. Pulmonary Rehabilitation. European Respiratory Society; 2021:83–98.
   Google Scholar
• Keating A, Lee A, Holland AE. What prevents people with chronic obstructive pulmonary disease from attending pulmonary rehabilitation? A systematic review. Chron Respir Dis. 2011;8(2):89–99. doi:10.1177/1479972310393756
   PubMed Web of Science ®Google Scholar
• McCarron EP, Bailey M, Leonard B, McManus TE. Improving the uptake: barriers and facilitators to pulmonary rehabilitation. Clin Respir J. 2019;13(10):624–629. doi:10.1111/crj.13068
   PubMed Web of Science ®Google Scholar
• Heslop-Marshall K, Burns G. The role of cognitive behavioural therapy in living well with COPD. Breathe. 2019;15(2):95–97. doi:10.1183/20734735.0119-2019
   Web of Science ®Google Scholar
• Hardy S, Smart D, Scanlan M, Rogers S. Integrating psychological screening into reviews of patients with COPD. Br J Nurs. 2014;23(15):832–836. doi:10.12968/bjon.2014.23.15.832
   PubMedGoogle Scholar
• Zigmond AS, Snaith RP. The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand. 1983;67:361–370.
   PubMed Web of Science ®Google Scholar
• Thompson E. Hamilton rating scale for anxiety (HAM-A). Occup Med. 2015;65(7):601. doi:10.1093/occmed/kqv054
   Google Scholar
• Kühl K, Kuhn C, Kenn K, Rief W. Der COPD-Angst-Fragebogen (CAF): ein neues Instrument zur Erfassung krankheitsspezifi scher Ä ngste bei COPD-Patienten [The COPD-Anxiety-Questionnaire (CAF): a new instrument to assess illness specific anxiety in COPD patients]. Psychother Psychosom Med Psychol. 2011;61(1):e1–e9.
   PubMedGoogle Scholar
• Willgoss TG, Goldbart J, Fatoye F, Yohannes AM. The development and validation of the anxiety inventory for respiratory disease. Chest. 2013;144(5):1587–1596. doi:10.1378/chest.13-0168
   PubMed Web of Science ®Google Scholar
• Volpato E, Farver-Vestergaard I, Brighton LJ, et al. Nonpharmacological management of psychological distress in people with COPD. Eur Respir Rev. 2023;32:220170. doi:10.1183/16000617.0170-2022
   PubMed Web of Science ®Google Scholar