Establishing an Evaluation Scale for the Perception of Quality of Life Related to Relapsing-Remitting Forms of Multiple Sclerosis and Feasibility Study

REFERENCES

• Bardin, L. (2003). L'analyse de contenu. Paris: PUF.
   Google Scholar
• Baroin, A., Chopard, G., Mokadym, H., Lavier, A., Berger, E., Rumbach, L., (2010, April). Establishing a quality of life scale related to relapses in multiple sclerosis. Poster session presented at the 62nd American Academy of Neurology Annual Meeting, Toronto, ON.
   Google Scholar
• Benbow, C. L., & Koopman, W. J. (2003). Clinic-based needs assessment of individuals with multiple sclerosis and significant others: Implications for program planning—Psychological needs. Rehabilitation Nursing, 28(4), 109–116.
   PubMedGoogle Scholar
• Béthoux, F. (2005). Évaluation et sclérose en plaques. Annales de Réadaptation et de Médecine Physique, 48, 369–375.
   PubMedGoogle Scholar
• Cousson-Gelie, F., Raherisson, C., Bruchon-Schweitzer, M., & Taytard, A. (1999). Relationship between coping style and quality of life. Psychologie et Psychométrie, 20(1), 25–36.
   Google Scholar
• Falissard, B. (2008). Mesurer la subjectivité en santé. Perspective méthodologique et statistique. Masson ed. Abrégés, 40–41 .
   Google Scholar
• Gandek, B., Ware, J. E., Aaronson, N. K., Apolone, G., Bjorner, J. B., Brazier, J. E., (1998). Cross-validation of item selection and scoring for the SF-12 health survey in nine countries: Results from the IQOLA project. Journal of Clinical Epidemiology, 51(11), 1171–1178.
   PubMed Web of Science ®Google Scholar
• Halper, J. (2007). The psychosocial effect of multiple sclerosis: The impact of relapses. Journal of Neurological Sciences, 256, S34–S38.
   PubMedGoogle Scholar
• Isaksson, A. K., & Ahlström, G. (2006). From symptom to diagnosis: Illness experiences of multiple sclerosis patients. Journal of Neuroscience and Nursing, 38(4), 229–237.
   PubMedGoogle Scholar
• Kalb, R. (2007). The emotional and psychological impact of multiple sclerosis relapses. Journal of Neuroscience and Nursing, 256, S29–S33.
   Google Scholar
• Kitzinger, J. (1995). Introducing focus groups. British Medical Journal, 311, 299–302.
   PubMed Web of Science ®Google Scholar
• Kurtzke, J. F. (1983). Rating neurologic impairment in multiple sclerosis: An expanded disability status scale (EDSS). Neurology, 33(11), 1444–1452.
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York, NY: Springer.
   Google Scholar
• Leplège, A., Rude, N., Ecosse, E., Ceinos, R., Dohin, E., & Pouchot, J. (1997). Measuring quality of life from the point of view of HIV-positive subjects: The HIV-QL31. Quality of Life Research, 6(6), 585–594.
   PubMed Web of Science ®Google Scholar
• McDonald, W. I., Compston, A., Edan, G., Goodkin, D., Hartung, H. P., Lublin, F. D., (2001). Recommended diagnostic criteria for multiple sclerosis: Guidelines from the international panel on the diagnosis of multiple sclerosis. Annals of Neurology, 50, 121–127.
   PubMed Web of Science ®Google Scholar
• Mitchell, A. J., Benito-Leon, J., Gonzalez, J. M., & Rivera-Navarro, J. (2005). Quality of life and its assessment in multiple sclerosis: Integrating physical and psychological components of wellbeing. Lancet Neurology, 4, 556–566.
   PubMed Web of Science ®Google Scholar
• Mohr, D. C., Hart, S. L., Julian, L., & Tasch, E. S. (2007). Screening for depression among patients with multiple sclerosis: Two questions may be enough. Multiple Sclerosis, 13, 215–219.
   PubMed Web of Science ®Google Scholar
• Montel, S., & Bungener, C. (2007). Coping and quality of life in one hundred and thirty five subjects with multiple sclerosis. Multiple Sclerosis, 13(3), 393–401.
   PubMed Web of Science ®Google Scholar
• Montel, S., & Bungener, C. (2010). Coping and quality of life in neurological disorders: A clinical reflection. Annals of Medical Psychology, 168(3), 191–196.
   Google Scholar
• Ozakbas, S., Cagiran, I., Ormeci, B., & Idiman, E. (2004). Correlations between multiple sclerosis functional composite, expanded disability status scale and health-related quality of life during and after treatment of relapses in patients with multiple sclerosis. Journal of Neurological Sciences, 218, 3–7.
   PubMed Web of Science ®Google Scholar
• Paz-Rodríguez, F., Andrade-Palos, P., & Llanos-Del Pilar, A. M. (2005). Emotional consequences of providing care to amyotrophic lateral sclerosis patients. Revue Neurologique, 40(8), 459–464.
   Google Scholar
• Polman, C. H., Reingold, S. C., Edan, G., Filippi, M., Hartung, H. P., Kappos, L., (2005). Diagnostic criteria for multiple sclerosis: 2005 revisions to the “McDonald Criteria”. Annals of Neurology, 58, 840–846.
   PubMed Web of Science ®Google Scholar
• Potagas, C., Mitsonis, C., Watier, L., Dellatolas, G., Retziou, A., Mitropoulos, P. A., et al. (2008). Influence of anxiety and reported stressful life events on relapses in multiple sclerosis: A prospective study. Multiple Sclerosis, 14, 1262–1268.
   PubMedGoogle Scholar
• Radat, F., Lafittau, M., Ouallet, J. C., Brochet, B., & Jouvent, R. (2007). Validation of EHD self-questionnaire in multiple sclerosis. L'Encéphale, 33(1), 49–57.
   PubMedGoogle Scholar
• Rat, A. C., Pouchot, J., Guillemin, F., Baumann, M., Retel-Rude, N., Spitz, E., (2007). Content of quality of life instruments is affected by item generation methods. International Journal for Quality in Health Care, 19(6), 390–398.
   PubMed Web of Science ®Google Scholar
• Simeoni, M.-C., Auquier, P., Fernandez, O., Flachenecker, P., Stecchi, S., Constantinescu, C. S., (2008). Validation of the Multiple Sclerosis International Quality of Life questionnaire. Multiple Sclerosis, 14(2), 219–230.
   PubMed Web of Science ®Google Scholar
• Thiébaut, E. (1998). La perspective temporelle, un concept à la recherche d'une définition opérationnelle. L'Année Psychologique, 98, 101–125.
   Google Scholar
• Vernay, D., Gerbaud, L., Biolay, S., Coste, J., Debourse, J., Aufauvre, D., (2000). Qualité de vie et sclérose en plaques: Validation de la version francophone d'un auto-questionnaire, le SEP-59. Revue Neurologique (Paris), 156(3), 247–263.
   PubMedGoogle Scholar
• Weinshenker, B. G. (1996). Epidemiology of multiple sclerosis. Neurologic Clinics, 14, 291–308.
   PubMed Web of Science ®Google Scholar
• Zimbardo, P. G., & Boyd, J. N. (1999). Putting time in perspective: A valid, reliable individual-differences metric. Journal of Personality and Social Psychology, 77(6), 1271–1288.
   Web of Science ®Google Scholar