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Liver and Biliary Disease

National centralization of biliary atresia care to an assigned multidisciplinary team provides high-quality outcomes

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Pages 99-107 | Received 07 Jul 2011, Accepted 15 Sep 2011, Published online: 16 Dec 2011

References

  • McKiernan PJ, Baker AJ, Kelly DA. The frequency and outcome of biliary atresia in the UK and Ireland. Lancet 2000;355:25–9.
  • Serinet MO, Broue P, Jacquemin E, Lachaux A, Sarles J, Gottrand F, Management of patients with biliary atresia in France: Results of a decentralized policy 1986–2002. Hepatology 2006;44:75–84.
  • Wildhaber BE, Majno P, Mayr J, Zachariou Z, Hohlfeld J, Schwoebel M, Biliary atresia: Swiss national study, 1994–2004. J Pediatr Gastroenterol Nutr 2008;46:299–307.
  • Fischler B, Haglund B, Hjern A. A population-based study on the incidence and possible pre- and perinatal etiologic risk factors of biliary atresia. J Pediatr 2002;141:217–22.
  • Hsiao CH, Chang MH, Chen HL, Lee HC, Wu TC, Lin CC, Universal screening for biliary atresia using an infant stool color card in Taiwan. Hepatology 2008;47:1233–40.
  • Nio M, Ohi R, Miyano T, Saeki M, Shiraki K, Tanaka K, Five- and 10-year survival rates after surgery for biliary atresia: A report from the japanese biliary atresia registry. J Pediatr Surg. 2003;38:997–1000.
  • Hartley JL, Davenport M, Kelly DA. Biliary atresia. Lancet 2009;374:1704–13.
  • Sokol RJ, Mack C, Narkewicz MR, Karrer FM. Pathogenesis and outcome of biliary atresia: Current concepts. J Pediatr Gastroenterol Nutr 2003;37:4–21.
  • Barshes NR, Lee TC, Balkrishnan R, Karpen SJ, Carter BA, Goss JA. Orthotopic liver transplantation for biliary atresia: he U.S. experience. Liver Transpl 2005;11:1193–200.
  • Jain A, Mazariegos G, Kashyap R, Kosmach-Park B, Starzl TE, Fung J, Pediatric liver transplantation. A single center experience spanning 20 years. Transplantation 2002;73:941–7.
  • Shneider BL, Mazariegos GV. Biliary atresia: a transplant perspective. Liver Transpl 2007;13:1482–95.
  • Utterson EC, Shepherd RW, Sokol RJ, Bucuvalas J, Magee JC, McDiarmid SV, Biliary atresia: Clinical profiles, risk factors, and outcomes of 755 patients listed for liver transplantation. J Pediatr 2005;147:180–5.
  • Lien T, Chang M, Wu J, Chen H, Lee H, Chen A, Effects of the infant stool color card screening program on 5-year outcome of biliary atresia in Taiwan. Hepatology 2010;53:202–208.
  • Mieli-Vergani G, Howard ER, Portman B, Mowat AP. Late referral for biliary atresia–missed opportunities for effective surgery. Lancet 1989;1:421–3.
  • Davenport M, De Ville de Goyet J, Stringer MD, Mieli-Vergani G, Kelly DA, McClean P, Seamless management of biliary atresia in England and Wales (1999–2002). Lancet 2004;363:1354–7.
  • Schreiber RA, Barker CC, Roberts EA, Martin SR. and the Canadian Pediatric Hepatology Research,Group. Biliary atresia in Canada: The effect of centre caseload experience on outcome. J Pediatr Gastroenterol Nutr 2010;51:61–5.
  • Official statistics of Finland (OSF): Births (e-publication). ISSN = 1798–2413. Helsinki: Statistics Finland. 2011. Available at http//www.tilastokeskus.fi/til/synt/index_en.html. [homepage on the Internet].
  • Pakkasjarvi N, Ritvanen A, Herva R, Peltonen L, Kestila M, Ignatius J. Lethal congenital contracture syndrome (LCCS) and other lethal arthrogryposes in Finland–an epidemiological study. Am J Med Genet A 2006;140A:1834–9.
  • Leoncini E, Botto LD, Cocchi G, Anneren G, Bower C, Halliday J, How valid are the rates of down syndrome internationally? Findings from the international clearinghouse for birth defects surveillance and research. Am J Med Genet A 2010;152A:1670–80.
  • National Institute for Health and Welfare THL. congenital anomalies 1993–2008. statistical report 7/2011. Helsinki: 2011 Available at http://www.thl.fi/statistics/congenitalmalformations.
  • Davenport M, Tizzard SA, Underhill J, Mieli-Vergani G, Portmann B, Hadžic N. The biliary atresia splenic malformation syndrome: A 28-year single-center retrospective study. J Pediatr 2006;149:393–400.
  • Sorva R, Tolppanen EM, Perheentupa J. Variation of growth in length and weight of children. I. years 1 and 2. Acta Paediatr Scand 1990;79:490–7.
  • Pakarinen MP, Rintala RJ. Surgery of biliary atresia. Scand J Surg 2011;100:49–53.
  • Stringer MD, Davison SM, Rajwal SR, McClean P. Kasai portoenterostomy: 12-year experience with a novel adjuvant therapy regimen. J Pediatr Surg 2007;42:1324–8.
  • Willot S, Uhlen S, Michaud L, Briand G, Bonnevalle M, Sfeir R, Effect of ursodeoxycholic acid on liver function in children after successful surgery for biliary atresia. Pediatrics 2008;122:e1236–41.
  • Davenport M, Stringer MD, Tizzard SA, McClean P, Mieli-Vergani G, Hadzic N. Randomized, double-blind, placebo-controlled trial of corticosteroids after Kasai portoenterostomy for biliary atresia. Hepatology 2007;46:1821–7.
  • Alonso EM. Growth and developmental considerations in pediatric liver transplantation. Liver Transpl 2008;14:585–91.
  • Baker A, Stevenson R, Dhawan A, Goncalves I, Socha P, Sokal E. Guidelines for nutritional care for infants with cholestatic liver disease before liver transplantation. Pediatr Transplant 2007;11:825–34.
  • Pakarinen MP, Lampela H, Gylling H, Miettinen TA, Koivusalo AI, Nissinen MJ. Surrogate markers of cholesterol metabolism in children with native liver after successful portoenterostomy for biliary atresia. J Pediatr Surg 2010;45:1659–64.
  • Altman RP, Lilly JR, Greenfeld J, Weinberg A, van Leeuwen K, Flanigan L. A multivariable risk factor analysis of the portoenterostomy (Kasai) procedure for biliary atresia: Twenty-five years of experience from two centers. Ann Surg 1997;226:348–53.
  • Howard ER, MacLean G, Nio M, Donaldson N, Singer J, Ohi R. Survival patterns in biliary atresia and comparison of quality of life of long-term survivors in Japan and England. J Pediatr Surg 2001;36:892–7.
  • Livesey E, Cortina Borja M, Sharif K, Alizai N, McClean P, Kelly D, Epidemiology of biliary atresia in England and Wales (1999–2006). Arch Dis Child Fetal Neonatal Ed 2009;94:F451–5.
  • Schreiber RA, Barker CC, Roberts EA, Martin SR, Alvarez F, Smith L, Biliary atresia: The Canadian experience. J Pediatr 2007;151:659–65.
  • Chardot C, Carton M, Spire-Bendelac N, Le Pommelet C, Golmard JL, Auvert B. Prognosis of biliary atresia in the era of liver transplantation: French national study from 1986 to 1996. Hepatology 1999;30:606–11.

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