What Patients With Severe Mental Illness Transitioning From Hospital to Community Have to Say About Care and Shared Decision-Making

REFERENCES

• Adams, J. R., Drake, R. E., & Wolford, G. L. (2007). Shared decision-making preferences of people with severe mental illness. Psychiatric Services, 58, 1219–1221.
   PubMed Web of Science ®Google Scholar
• Appelbaum, P. S., & Redlich, A. (2006). Impact of decisional capacity on the use of leverage to encourage treatment adherence. Community Mental Health Journal, 42, 121–130.
   PubMed Web of Science ®Google Scholar
• Arora, N. K., & Mchorney, C. A. (2000). Patient preferences for medical decision making: Who really wants to participate? Medical Care, 38, 335–341.
   PubMed Web of Science ®Google Scholar
• Beisecker, A. E., & Beisecker, T. D. (1990). Patient information-seeking behaviors when communicating with doctors. Medical Care, 28(1), 19–28.
   PubMed Web of Science ®Google Scholar
• Berg, M. (1998). Patient care information systems and health care work: A sociotechnical approach. International Journal of Medical Informatics, 55(2), 87–101.
   Web of Science ®Google Scholar
• Bradley, E. H., Curry, L. A., & Devers, K. J. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42, 1758–1772. doi:10.1111/j.1475-6773.2006.00684.x
   Google Scholar
• Bunn, M. H., O'Connor, A. M., Tansey, M. S., Jones, B. D., & Stinson, L. E. (1997). Characteristics of clients with schizophrenia who express certainty or uncertainty about continuing treatment with depot neuroleptic medication. Archives of Psychiatric Nursing, 11(5), 238–248.
   PubMed Web of Science ®Google Scholar
• Carpenter, W. T. Jr., Gold, J. M., Lahti, A. C., Queern, C. A., Conley, R. R., Bartko, J. J., Kovnick, J., & Appelbaum, P. S. (2000). Decisional capacity for informed consent in schizophrenia research. Archives of General Psychiatry, 57(6), 533–538.
   PubMed Web of Science ®Google Scholar
• Charles, C., Gafni, A., & Whelan, T. (1997). Shared decision-making in the medical encounter: What does it mean? (Or it takes at least two to tango). Social Science & Medicine, 44(5), 681–692.
   PubMed Web of Science ®Google Scholar
• Corrigan, P. W., Angeli, B., Davidson, L., Marcus, S. C., Salzer, M. S., Kottsieper, P., … Stanhope V. (2012). From adherence to self-determination: Evolution of a paradigm for people with serious mental illness. Psychiatric Services, 63(2), 169–173.
   PubMed Web of Science ®Google Scholar
• Curtis, L. C., Wells, S. M., Penney, D. J., Ghose, S. S., Mistler, L. A., Mahone, I. H., … Lesko, S. (2010). Pushing the envelope: Shared decision making in mental health. Psychiatric Rehabilitation Journal, 31(1), 14–22.
   Google Scholar
• Deegan, P. E., & Drake, R. E. (2006). Shared decision-making and medication management in the recovery process. Psychiatric Services, 57(11) 1636–1639.
   Google Scholar
• Deegan, P. E., Rapp, C., Holter, M., & Riefer, M. (2008). Best practices: A program to support shared decision making in an outpatient psychiatric medication clinic. Psychiatric Services. 59(6), 603–605.
   PubMed Web of Science ®Google Scholar
• De las Cuevas, C., Rivero, A., Perestelo-Perez, L., Gonzales, M., Perez, J., & Penate, W. (2001). Psychiatric patients’ attitudes towards concordance and shared decision making. Patient Education and Counseling. 85(3), 245–250.
   Web of Science ®Google Scholar
• Degner, L. F., Sloan, J. A., & Venkatesh, P. (1997). The control preferences scale. Canadian Journal of Nursing Research, 29(3), 21-43.
   PubMedGoogle Scholar
• Drake, R. E., Deegan, P. E., & Rapp, C. (2010). The promise of shared decision making in mental health. Psychiatric Rehabilitation Journal, 34(1), 7–13.
   PubMed Web of Science ®Google Scholar
• Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York, NY: Aldine De Gruyter.
   Google Scholar
• Greenfield, S., Kaplan, S. H., Ware, J. E. Jr., Yano, E. M., & Frank, H. J. (1988). Patients’ participation in medical care: Effects on blood sugar control and quality of life in diabetes. Journal of General Internal Medicine, 3(5), 448–457.
   PubMed Web of Science ®Google Scholar
• Guyatt, G., Haynes, B., & Jaseschke, R. (2001). The philosophy of evidence-based medicine. In G. Guyatt & D. Rennie (Eds.), User's guide to the medical literature: Essentials of evidence based clinical practice (pp. 3–47). New York, NY: McGraw-Hill Education.
   Google Scholar
• Hamann, J., Cohen, R., Leucht, S., Busch, R., & Kissling, W. (2007). Shared decision making and long-term outcome in schizophrenia treatment. Journal of Clinical Psychiatry, 68(7), 992–997.
   PubMed Web of Science ®Google Scholar
• Hamann, J., Cohen, R., Leucht, S., Busch, R., & Kissling, W. (2005). Do patients with schizophrenia wish to be involved in decisions about their medical treatment? American Journal of Psychiatry, 162, 2383–2384.
   Web of Science ®Google Scholar
• Hamann, J., Langer, B., Winkler, V.,Busch, R., Cohen, R., Leucht, S., & Kissling, W. (2006). Shared decision-making for in-patients with schizophrenia. Acta Psychiatrica Scandinavica, 11, 265–273.
   Web of Science ®Google Scholar
• Hamann, J., Leucht, S., & Kissling, W. (2003). Shared decision-making in psychiatry. Acta Psychiatrica Scandinavica, 107, 403–409.
   PubMed Web of Science ®Google Scholar
• Hamann, J., Mendel, R., Meier, A., Florm, A., Pausch, E., Leucht, S., & Kissling, W. (2011). “How to speak to your psychiatrist”: Shared Decision making training for inpatients with schizophrenia. Psychiatric Services, 62(10), 1218–1221.
   PubMed Web of Science ®Google Scholar
• Krueger, R. A. (1994). Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage.
   Google Scholar
• Joosten, E. A. G., Defuentes-Merillas, L., De Weert, G. H., Sensky, T., van der Staak, C. P. F., & De Johng, C. A. J. (2008). Systematic review of the effets of shared decision making on patient satisfaction, treatment adherence and health status. Psychotherapy and Psychosomatics, 77(4), 219–226.
   PubMed Web of Science ®Google Scholar
• Legare, F., Ratte, S., Gravel, K., & Graham, I. D. (2008). Barriers and facilitators to implementing shared decision-making in clinical practice: Update of a systematic review of health professionals’ perceptions. Patient Education and Counseling, 73, 526–535.
   PubMed Web of Science ®Google Scholar
• Moritz, S., & Woodward, T. S. (2006). A generalized bias against disconfirmatory evidence in schizophrenia. Psychiatry Research, 142(2-3), 157–165.
   PubMed Web of Science ®Google Scholar
• Najt, P., Glahn, D., Bearden, C.E., Hatch, J. P., Monkul, E. S., Kaur, S.,…Soares, J. C. (2005). Attention deficits in bipolar disorder: A comparison based on the Continuous Performance Test. Neuroscience Letters, 379(2), 122–126.
   PubMed Web of Science ®Google Scholar
• Peters, S. (2010). Qualitative research methods in mental health. Evidence Based Mental Health. 13(2), 35–40.
   PubMedGoogle Scholar
• Roe, D., Goldblatt, H., Baloush-Klienman, V., Swarbrick, M., & Davidson, L. (2009). Why and how people decide to stop taking prescribed psychiatric medication. Exploring the subjective process of choice. Psychiatric Rehabilitation Journal 33, 366–374.
   Web of Science ®Google Scholar
• Seeman, M., & Seeman, T. E. (1983). Health behavior and personal autonomy: A longitudinal study of the sense of control in illness. Journal of Health and Social Behavior, 24, 144–160.
   PubMed Web of Science ®Google Scholar
• Shumway, M., Saunders, T., Shern, D., Pines, E., Downs, A., Burbine, T., & Beller, J. (2003). Preferences for schizophrenia treatment outcomes among public policy makers, consumers, families, and providers. Psychiatric Services, 54(8), 1124–1128.
   PubMed Web of Science ®Google Scholar
• Stewart, M., & Brown, J. (2001). Patient-centredness in medicine. In G. Elwyn & A. Edwards (Eds.), Evidence-based patient choice: Inevitable or impossible? (pp. 97–120). New York, NY: Oxford University Press.
   Google Scholar
• Swartz, M. S., Swanson, J. W., Wagner, H. R., Hannon, M. J., Burns, B. J., & Shumway, M. (2003). Assessment of four stakeholder groups’ preferences concerning outpatient commitment for persons with schizophrenia. American Journal of Psychiatry, 160(6), 1139–1146.
   PubMed Web of Science ®Google Scholar
• Tanenbaum, S. J. (2008). Consumer perspectives on information and other inputs to decision making: Implications for evidence-based practice. Community Mental Health Journal, 44(5), 331–335.
   PubMed Web of Science ®Google Scholar
• Velligan, D. I., Mahurin, R. K., Diamond, P. L., Hazleton, B. C., Eckert, S. L., & Miller, A. L. (1997). Schizophrenia Research, 25(1), 21–31.
   PubMed Web of Science ®Google Scholar
• Velligan, D. I., Weiden, P. J., Sajatovic, M., Scott, J., Carpenter, D., Ross, R. & Docherty, J. P. (2009). The expert consensus guideline series: Adherence problems in patients with serious and persistent mental illness. Journal of Clinical Psychiatry, 70(suppl 4), 5–46.
   PubMed Web of Science ®Google Scholar