REFERENCES
- Access Economics. (2010). The economic value of informal care in 2010, Report for carers Australia. Retrieved from http://carersaustralia.com.au/ storage/Economic-Value-Informal-Care-Oct-2010.pdf
- Australian Institute of Health and Welfare (AIHW). (2014). Mental health services in brief 2014. Cat. no. HSE 154. Canberra: AIHW. Retrieved from http://www.aihw.gov.au/publication-detail/?id = 60129549463
- Australian Institute of Health and Welfare (AIHW). (2015). Informal Carer: AIHW. Retrieved from http://www.aihw.gov.au/informal-care-ageing/
- Brink, P. J., & Wood, M. J. (2001). Advanced design in nursing research. London, UK: Sage.
- Burns, T., Catty, J., Harvey, K., White, S., Jones, I. R., McLaren, S., & Wykes, T. (2012). Continuity of care for carers of people with severe mental illness: results of a longitudinal study. International Journal of Social Psychiatry, 59(1), 18–27.
- Chambers, M., Ryan, A. A., & Connor, S. L. (2001). Exploring the emotional needs and coping strategies of family carers. Journal of Psychiatric and Mental Health Nursing. 8, 99–106.
- Cleary, A., Walsh, F., & Dowling, M. (2014). Family carers: Lived experience of caring for relatives with an SMI. British Journal of Mental Health Nursing, 3(4), 51–156. http://dx.doi.org/10.12968/bjmh.2014.3.4.151
- Commonwealth of Australia. (2009). Fourth National Mental Health Plan: An agenda for collaborative government action in mental health 2009–2014. Canberra, Australia: Author.
- Corcoran, C., Gerson, R., Sills-Shahar, R., Nickou, C., McGlashan, T., Malaspina, D., & Davidson, L (2007). Trajectory to a first episode of psychosis: A qualitative research study with families. Early Intervention in Psychiatry, 1(4): 308–315.
- Corrigan, P. W., Watson, A. C., & Miller, F. E. (2006). Blame, shame, and contamination: The impact of mental illness and drug dependence stigma on family members. Journal of Family Psychology, 20(2), 239.
- Ewertzon, M., Cronqvist, A., Lützén, K., & Andershed, B. (2012). A lonely life journey bordered with struggle: Being a sibling of an individual with psychosis. Issues in Mental Health Nursing, 33(3), 157–164.
- Flyckt, L., Löthman, A., Jörgensen, L., Rylander, A., & Koernig, T. (2011). Burden of informal care giving to patients with psychoses: A descriptive and methodological study. International Journal of Social Psychiatry, 61(7), 684–692.
- Fortinash, K. M., & Holoday-Worret, P. (2011). Psychiatric mental health nursing (5th ed.). St. Louis, MO: Mosby.
- Foster, K., O'Brien, L., & Korhonen, T. (2012). Developing resilient children and families when parents have mental illness: A family‐focused approach. International Journal of Mental Health Nursing, 21(1), 3–11.
- Hasson-Ohayon, I., Levy, I., Kravetz, S., Vollanski, A., & Roe, D. (2011). Insight into mental illness, self-stigma, and the family burden of parents of persons with a severe mental illness. Comprehensive Psychiatry, 52, 75–80. doi:10.1016/j.comppsych.2010.04.008
- Highet, N. J., McNair, B. G., Thompson, M., Davenport, T. A., & Hickie, I. B. (2004). Experience with treatment services for people with bipolar disorder. Medical Journal of Australia, 181(7), 47–51.
- Highet, N., Thompson, M., & McNair, B. (2005). Identifying depression in a family member: The carers’ experience. Journal of Affective Disorders, 87, 25–33.
- Johansson, A., Andershed, B., & Anderzen‐Carlsson, A. (2014). Conceptions of mental health care–from the perspective of parents’ of adult children suffering from mental illness. Scandinavian Journal of Caring Sciences, 28(3), 496–504.
- Johansson, A., Anderzen-Carlsson, A., Åhlin, A., & Andershed, B. (2010). Mothers’ everyday experiences of having an adult child who suffers from long-term mental illness. Issues in Mental Health Nursing, 31(11), 692–699.
- Johansson, A., Anderzen-Carlsson, A., Åhlin, A., & Andershed, B. (2012). Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness. Issues in Mental Health Nursing, 33(2), 109–117.
- Johnsson, P. D., Skarsater, I., Wijk, H., & Danielson, E. (2011). Experience of living with a family member with bipolar disorder. International Journal of Mental Health Nursing, 20, 29–37. doi:10.1111/j.1447-0349.2010.00704.x
- Judge, A., Estroff, S., Perkins, D., & Penn D (2008). Recognizing and responding to early psychosis: a qualitative analysis of individual narratives. Psychiatric Services, 59(1): 96–99.
- Karnieli-Miller, O., Perlick, D. A., Nelson, A., Mattias, K., Corrigan, P., & Roe, D. (2013). Family members’ of persons living with a serious mental illness: Experiences and efforts to cope with stigma. Journal of Mental Health, 22(3), 254–262.
- Karp, D., & Tanarugsachock, V. (2005). Mental illness, caregiving and emotion. Qualitative Health Research, 10(1), 6–25.
- Knapp, M., Beecham, J., McDaid, D., Matosevic, T., & Smith, M. (2011). The economic consequences of deinstitutionalisation of mental health services: Lessons from a systematic review of European experience. Health & Social Care in the Community, 19(2), 113–125.
- Lawn, S., & McMahon, J. (2015). Experiences of family carers of people diagnosed with borderline personality disorder. Journal of Psychiatric and Mental Health Nursing, 22(4), 234–243.
- Levine, I. S., & Ligenza, L. R. (2002). In their own voices: families in crisis: A Focus group study of families of persons with serious mental illness. Journal of Psychiatric Practices, 8(6), 344–353.
- McGorry, P., Yung, A., Philips, L., Yuen, H., Francey, S., Cosgrave, E., Germano, D., Bravin, J., McDonald, T., Blair, A., Adlard, S., & Jackson, H. (2002). Randomized controlled trial of interventions designed to reduce the risk of progression to first episode psychosis in a clinical sample with subthreshold symptoms. Archives of General Psychiatry, 59, 921–928.
- McInerney, S. J., Finnerty, S., Avalos, G., & Walsh, E. (2010). Better off in the community? A 5-year follow up study of long-term psychiatric patients discharged into the community. Social Psychiatry and Psychiatric Epidemiology, 45(4), 469–473.
- Nordby, K., Kjonsberg, K., & Hummelvoll, J. K. (2010). Relatives of persons with recently discovered serious mental illness: In need of support to become resource persons in treatment and recovery. Journal of Psychiatric and Mental Health Nursing, 17, 304–311. doi:10.1111/j.1365-2850.2009.01531.x
- Parahoo, K. (2006). Nursing research: Principles process and issues. Basingstoke, UK: Palgrave MacMillan.
- Polit, D. F., Beck, C. T., & Hungler, B. F. (2001). Essentials of nursing research. Philadelphia, PA: Lippincott.
- Rowe, J. (2010). Information disclosure to family caregivers: Applying Thiroux's framework. Nursing Ethics, 17, 435–444.
- Sandelowski, M., & Barroso. (2000). Finding the findings in qualitative studies. Journal of Nursing Scholarship, 34(3), 213–219.
- Schneider, Z., Elliott, D., LoBiondo-Wood, G., & Haber, J. (2003). Nursing research: Methods, critical appraisal and utilisation (2nd ed.). Marrickville, Australia: Mosby.
- Schulze, B., & Angermeyer, M. (2003). Subjective experiences of stigma: A focus group study of Schizophrenic patients, their relatives and mental health professionals. Social Science and Medicine, 52(2), 293–312.
- Schulze, B., & Rossler, W. (2005). Caregiver burden in mental illness: Review of measurement, findings and interventions in 2004–2005. Current Opinion in Psychiatry, 18, 684–691.
- Skundberg-Kletthagen, H., Hedelin, B., Wangensteen, S., & Hall-Lord, M. L. (2015). Burden, health and sense of coherence among relatives of depressed inpatients. Open Journal of Nursing, 5(03), 163.
- Skundberg‐Kletthagen, H., Wangensteen, S., Hall‐Lord, M. L., & Hedelin, B. (2014). Relatives of patients with depression: experiences of everyday life. Scandinavian Journal of Caring Sciences, 28(3), 564–571.
- Stengler‐Wenzke, K.Trosbach, J., Dietrich, S., & Angermeyer, M. C. (2004). Coping strategies used by the relatives of people with obsessive–compulsive disorder. Journal of Advanced Nursing, 48(1), 35–42.
- Tsang, H., Phidias, T., Fong, C. & Chang, V (2003). Sources of burdens on families of individuals with mental illness. International Journal of Rehabilitation Research, 26(2), 123–130.
- Van-Manen, M. (1997). Researching lived experience: Human science for an action sensitive pedagogy. London, UK: Althouse Press.
- Vella, S., & Pai, N. (2015). The measurement of burden of care in serious mental illness: A qualitative review. Australian & New Zealand Journal of Psychiatry, 47(3), 222–234. doi:10.1177/0004867412468494.
- Ward-Griffin, C., Schofield, R., Vos, S., & Coarsworth-Puspoky, R (2005). Canadian families caring for members with mental illness: A vicious cycle. Journal of Family Nursing, 11, 140–161.
- Weimand, B. M., Hall‐Lord, M. L., Sällström, C., & Hedelin, B. (2013). Life‐sharing experiences of relatives of persons with severe mental illness–a phenomenographic study. Scandinavian Journal of Caring Sciences, 27(1), 99–107.
- Weimand, B. M., Hedelin, B., Hall-Lord, M. L., & Sällström, C. (2011). “Left alone with straining but inescapable responsibilities:” Relatives’ experiences with mental health services. Issues in Mental Health Nursing, 32(11), 703–710.
- Winstanley, S., Thompson, B., Harper, A., & Hudson, E. (2004). Users and carers views about health services. Journal of Community Nursing, 18, 5–12.