REFERENCES
- American Academy of Pediatrics. (2002). A consensus statement on health care transitions for young adults with special health care needs. Pediatrics, 110(6 Pt 2), 1304–1306.
- Anonymous. (2003). NVivo® qualitative data analysis program (Version 2). Melbourne, Australia: QSR International Pty Ltd.
- Binks, J. A., Barden, W. S., Burke, T., & Young, N. L. (2007). What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Archives of Physical Medicine and Rehabilitation, 88(8), 1064–1073.
- Blum, R. W., Garell, D., Hodgman, C. H., Jorissen, T. W., Okinow, N. A., Orr, D. P., (1993). Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. The Journal of Adolescent Health, 14(7), 570–576.
- Bowman, R. M., McLone, D. G., Grant, J. A., Tomita, T., & Ito, J. A. (2001). Spina bifida outcome: A 25-year prospective. Pediatric Neurosurgery, 34(3), 114–120.
- Buran, C. F., Sawin, K. J., Brei, T. J., & Fastenau, P. S. (2004). Adolescents with myelomeningocele: Activities, beliefs, expectations, and perceptions. Developmental Medicine and Child Neurology, 46, 244–252
- Cooley, C. W. (2004). Providing a primary care medical home for children and youth with cerebral palsy. Pediatrics, 114(4), 1106–1113.
- Diekelmann, N. L. (1992). Learning-as-testing: A Heideggerian hermeneutical analysis of the lived experiences of students and teachers in nursing. Advances in Nursing Science, 14(3), 72–83.
- Dillon, C. M., Davis, B. E., Duguay, S., Seidel, K. D., & Shurtleff, D. B. (2000). Longevity of patients born with myelomeningocele. European Journal of Pediatric Surgery, 10(Suppl 1), 33–34.
- Hutton, J. L., Colver, A. F., & Mackie, P. C. (2000). Effect of severity of disability on survival in North East England cerebral palsy cohort. Archives of Disease in Childhood, 83(6), 468–474.
- Hutton, J. L., Cooke, T., & Pharoah, P. O. (1994). Life expectancy in children with cerebral palsy. BMJ, 309(6952), 431–435.
- Kelly, A. M., Kratz, B., Bielski, M., & Rinehart, P. M. (2002). Implementing transitions for youth with complex chronic conditions using the medical home model. Pediatrics, 110(6), 1322–1327.
- Kemp, B. J., & Mosqueda, L., (Eds.). (2004). Aging with a disability: What the clinician needs to know. Baltimore: Johns Hopkins University Press.
- Kuban, K. C., & Leviton, A. (1994). Cerebral palsy. The New England Journal of Medicine, 330(3), 188–195.
- Lotstein, D. S., McPherson, M., Strickland, B., & Newacheck, P. W. (2005). Transition planning for youth with special health care needs: Results from the National Survey of Children with Special Health Care Needs. Pediatrics, 115(6), 1562–1568.
- O'Connell, B., Bailey, S., & Pearce, J. (2003). Straddling the pathway from paediatrician to mainstream health care: Transition issues experienced in disability care. The Australian Journal of Rural Health, 11, 57–63
- Por, J., Golberg, B., Lennox, V., Burr, P., Barrow, J., & Dennard, L. (2004). Transition of care: Health care professionals' view. Journal of Nursing Management, 12(5), 354–361.
- Reiss, J. G., & Gibson, R. (2002). Health care transition: Destinations unknown. Pediatrics, 110(6 Pt 2), 1307–1314.
- Reiss, J. G., Gibson, R. W., & Walker, L. R. (2005). Health care transition: Youth, family, and provider perspectives. Pediatrics, 115(1), 112–120.
- Scal, P. (2002). Transition for youth with chronic conditions: Primary care physicians' approaches. Pediatrics, 110(6), 1315–1321.
- Scal, P., & Ireland, M. (2005). Addressing transition to adult health care for adolescents with special health care needs. Pediatrics, 115(6), 1607–1612.
- Stewart, D. A., Law, M. C., Rosenbaum, P., & Willms, D. G. (2001). A qualitative study of the transition to adulthood for youth with physical disabilities. Physical & Occupational Therapy in Pediatrics, 21(4), 3–21.
- Strauss, D., & Shavelle, R. (2001). Life expectancy in cerebral palsy. Archives of Disease in Childhood, 85(5), 442a–442a.
- Strauss, D., Shavelle, R., & Anderson, T. (1998). Long-term survival of children and adolescents after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 79(9), 1095–1100.
- The Canada Health Act, Government of Canada (1984).
- White, P. (2002). Access to health care: Health insurance considerations for young adults with special health care needs/disabilities. Pediatrics, 110(6), 1328–1335.
- Young, N. L., McCormick, A., Mills, W. A., Barden, W. S., Boydell, K., Law, M., (2006). The transition study: A look at youth and adults with cerebral palsy, spina bifida and acquired brain injury. Physical & Occupational Therapy in Pediatrics, 26(4), 25–46.