Information Sharing During Diagnostic Assessments: What Is Relevant for Parents?

REFERENCES

• Beresford, B. A. (1994). Resources and strategies: How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35, 171–209.
   PubMed Web of Science ®Google Scholar
• Boyd, J. R. (2001). A process for delivering bad news: Supporting families when a child is diagnosed. Journal of Neuroscience Nursing, 33, 14–20.
   PubMedGoogle Scholar
• Bruder, M. B. (2000). Family-centered early intervention: Clarifying our values for the new millennium. Topics in Early Childhood Special Education, 20, 105–115.
   Web of Science ®Google Scholar
• Cohn, E. S. (2001). Parent perspectives of occupational therapy using a sensory integration approach. American Journal of Occupational Therapy, 55, 285–294.
   PubMed Web of Science ®Google Scholar
• Dunst, C. J., & Trivette, C. M. (1996). Empowerment, effective helpgiving practices and family-centered care. Pediatric Nursing, 22, 334–338.
   PubMedGoogle Scholar
• Franck, L. S., & Callery, P. (2004). Re-thinking family-centred care across the continuum of children's healthcare. Child: Care, Health & Development, 30, 265–277.
   PubMed Web of Science ®Google Scholar
• Hasnat, M. J., & Graves, P. (2000). Disclosure of developmental disability: A study of parent satisfaction and the determinants of satisfaction. Journal of Paediatrics & Child Health, 36, 32–35.
   PubMed Web of Science ®Google Scholar
• Hildebrandt, C., McNeil, D., Macdonald, T., Popp, J., & Stephenson, F. (May, 2009). Exploration of patient- and family-centred care beliefs and practices among staff, physicians, and volunteers. Paper presented at Family Centred Care in Context Conference, Edmonton, Alberta, Canada.
   Google Scholar
• Institute for Family-Centered Care. (2009). Frequently asked questions. Retrieved February 2nd, 2009, from http://www.familycenteredcare.org/faq.html
   Google Scholar
• Kearney, M. H. (2001). Focus on research methods: Levels and applications of qualitative research evidence. Research in Nursing & Health, 24, 145–153.
   PubMed Web of Science ®Google Scholar
• King, G. A., King, S. M., & Rosenbaum, P. L. (1996). Interpersonal aspects of care-giving and client outcomes: A review of the literature. Ambulatory Child Health, 2, 151–160.
   Google Scholar
• King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bates, A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down's syndrome. Child: Care, Health & Development, 32, 353–369.
   PubMed Web of Science ®Google Scholar
• Kirshbaum, M. (1994, Fall). Family context and disability culture reframing: Through the looking glass. The Family Psychologist, 10(4), 8–12.
   Google Scholar
• Kvale, S. (1996). Interviews. Thousand Oaks, CA: Sage.
   Google Scholar
• MacKean, G. L., Thurston, W. E., & Scott, C. M. (2005). Bridging the divide between families and health professionals’ perspectives on family-centred care. Health Expectations, 8, 74–85.
   PubMed Web of Science ®Google Scholar
• Piggot, J., Hocking, C., & Paterson, J. (2003). Parental adjustment to having a child with cerebral palsy and participation in home therapy programs. Physical & Occupational Therapy in Pediatrics, 23, 5–29.
   PubMedGoogle Scholar
• Poehlmann, J., Clements, M., Abbeduto, L., & Farsad, V. (2005). Family experiences associated with a child's diagnosis of Fragile X or Down Syndrome: Evidence for disruption and resilience. Mental Retardation, 43, 255–267.
   PubMedGoogle Scholar
• Prelock, P. A., Beatson, J., Bitner, B., Broder, C., & Ducker, A. (2003). Interdisciplinary assessment of young children with autism spectrum disorder. Language, Speech, and Hearing in Schools, 34, 194–202.
   PubMed Web of Science ®Google Scholar
• Prelock, P. A., Beatson, J., Contompasis, S. H., & Bishop, K. K. (1999). A model for family-centered interdisciplinary practice in the community. Topics in Language Disorders, 19, 36–51.
   Web of Science ®Google Scholar
• Quinne, L., & Rutter, D. R. (1994). First diagnosis of severe mental and physical disability: A study of doctor-parent communication. Journal of Child Psychiatry, 35, 1273–1287.
   Google Scholar
• Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centred service: A conceptual framework and research review. Physical and Occupational Therapy in Pediatrics, 18, 1–20.
   Google Scholar
• Seideman, R. Y., & Kleine, P. F. (1995). A theory of transformed parenting: Parenting a child with developmental delay/mental retardation. Nursing Research, 44, 38–44.
   PubMed Web of Science ®Google Scholar
• Tobin, G. A., & Begley, C. M. (2004). Methodological issues in nursing research: Methodological rigour within a qualitative framework. Journal of Advanced Nursing, 48, 388–396.
   PubMed Web of Science ®Google Scholar