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Research Article

“If I Knew Then What I Know Now”: Parents’ Reflections on Raising a Child with Cerebral Palsy

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Pages 169-183 | Published online: 29 Dec 2010

REFERENCES

  • Ainbinder, J. G., Blanchard, L.W., Singer, G.H.S., Sullivan, M.E., Powers, L.K., Marquis, J.G., (1998). A qualitative study of parent-to-parent support for parents of children with special needs. Journal of Pediatric Psychology, 23(2), 99–109.
  • Braun, V., & Clarke V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
  • Brehaut, J.C., Kohen, D.E., Raina, P., Walter, S.D., Russell, D.J., Swinton, M., (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114(2), e182–e191. doi:10.1542/peds.114.2.e182.
  • Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
  • Dagenais, L., Hall, N., Majnemer, A., Birnbaum, R., Dumas, F., Gosselin, J., (2006). Communicating a diagnosis of cerebral palsy: Caregiver satisfaction and stress. Pediatric Neurology, 35(6), 408–414.
  • Fingerhut, P.E. (2009). Measuring outcomes of family-centered intervention: Development of the Life Participation for Parents (LPP). Physical and Occupational Therapy in Pediatrics, 29(2), 113–128.
  • Guba, E., & Lincoln, Y. (2004). Competing paradigms in qualitative research: Theories and issues. In S. Hesse-Biber & P. Leavy (Eds), Approaches to qualitative research: A reader on theory and practice (pp. 17–38). New York, NY: Oxford University Press.
  • Hanna, S.E., Rosenbaum, P.L., Bartlett, D.J, Palisano, R.J, Walter, S.D., Avery, L., (2009). Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Developmental Medicine and Child Neurology, 51(4), 295–302. doi:10.1111/j.1469–8749.2008.03196.x.
  • Hartman, A.F., Radin, M.B., & McConnell, B. (1992). Parent-to-parent support: A critical component of health care services for families. Issues in Comprehensive Pediatric Nursing, 15(1), 55–67.
  • Hummenlinck, A., & Pollock, K. (2006). Parents’ information needs about the treatment of their chronically ill child: A qualitative study. Patient Education and Counseling, 62(2), 228–234. doi:10.1016/j.pec.2005.07.006.
  • King, G., Law, M., King, S., & Rosenbaum, P. (1998). Parents’ and service providers’ perceptions of the family-centredness of children's rehabilitation services. In M. Law (Ed.), Family-centred assessment and intervention in pediatric rehabilitation (pp. 21–40). New York, NY: Haworth Press.
  • Mays, N., & Pope, C. (2000). Qualitative research in health care: Assessing quality in qualitative research. British Medical Journal, 320(7226), 50–52. doi:10.1136/bmj.320.7226.50.
  • McKay, M., & Hensey, O. (1990). From the other side: Parents’ views of their early contacts with health professionals. Child: Care, Health and Development, 16, 373–381. doi: 0.1111/j. 1365–2214.1990.tb00670.x.
  • Odding, E., Roebroeck, M., & Stam, H. (2006). The epidemiology of cerebral palsy: Incidence, impairments and risk factors. Disability & Rehabilitation, 28(4), 183–191. doi:10.1080/09638280500158422.
  • Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214–223. doi: 10.1111/j.1469–8749. 1997.tb07414.x.
  • Palit, A., & Chatterjee, A.R. (2006). Parent-to-parent counselling—a gateway for developing positive mental health for the parents of children that have cerebral palsy with multiple impairments. International Journal of Rehabilitation Research, 29(4), 281–288. doi: 10.1097/MRR.0b013e328010b9ad.
  • Raghavendra, P., Murchland, S., Bentley, M., Wake-Dyster, W., & Lyons, T. (2007). Parents’ and service providers’ perceptions of family-centred practice in a community-based paediatric disability service in Australia. Child: Care, Health and Development, 33(5), 586–592.
  • Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., & Bax, M. (2007). A report: The definition and classification of cerebral palsy. Developmental Medicine and Child Neurology, 49(109s), 8–14. doi: 10.1111/j.1469–8749.2007.tb12610.x.
  • Santelli, B., Turnbull, A., & Higgins, C. (1997). Parent-to-parent support and health care. Pediatric Nursing, 23(3), 303–306.
  • Statistics Canada (2004, September 13). The daily study: Health of primary caregivers of children with cerebral palsy. Retrieved October 20, 2008, from http://www.statcan. ca/Daily/English/040913/d040913b.htm
  • Sumsion, T., & Law, M. (2006). A review of evidence on the conceptual elements informing client-centred practice. Canadian Journal of Occupational Therapy, 73(3), 153–162.
  • World Health Organization (2001). International classification of functioning, disability and health: ICF. Geneva: WHO.

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