Parent Perspectives on Rehabilitation Services for Their Children with Disabilities: A Mixed Methods Approach

REFERENCES

• Bjerre, I., Larsson, M., Franzon, A., Nilsson, M., Stromberg, G., & Westbom, L. (2003). Measure of Processes of care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child: Care, Health, and Development, 30(2), 123–130.
   Google Scholar
• Carrigan, N., Rodger, S., & Copley, J. (2001). Parent satisfaction with a paediatric occupational therapy service: A pilot investigation. Physical and Occupational Therapy in Pediatrics, 21(1), 51–76.
   PubMedGoogle Scholar
• Cohn, E. (2001a). Parent perspectives of occupational therapy using a sensory integration approach. American Journal of Occupational Therapy, 55(3), 285–294.
   PubMed Web of Science ®Google Scholar
• Cohn, E. (2001b). Parents’ experiences in the waiting room of an occupational therapy clinic. American Journal of Occupational Therapy, 55, 167–174.
   PubMed Web of Science ®Google Scholar
• Coulter, A., & Elwyn, G. (2002). What do patients want from high quality general practice and how do we involve them in improvement. British Journal of General Practice, 52, 822–826.
   Google Scholar
• Coulter, A., Entwistle, V., & Gilbert, D. (1999). Sharing decisions with patients: Is the information good enough? British Medical Journal, 318, 318–322.
   PubMed Web of Science ®Google Scholar
• Deber, R. (1994). Physicians in health care management 7. The physician–patient partnership: Changing roles and the desire for information. Canadian Medical Association Journal, 151, 171–177.
   PubMed Web of Science ®Google Scholar
• Donabedian, A. (1988). The quality of care: How can it be assessed? Journal of the American Medical Association, 260, 1743–1748.
   PubMed Web of Science ®Google Scholar
• Dyke, P., Buttigieg, P., Blackmore, A., & Ghose, A. (2006). Use of the measures of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child: Care, Health, and Development, 32(2), 167–176.
   PubMed Web of Science ®Google Scholar
• Fisher, H. (2001). The needs of parents with chronically sick children: A literature review. Journal of Advanced Nursing, 36, 600–607.
   PubMed Web of Science ®Google Scholar
• Hummelinck, A., & Pollock, K. (2006). Parents’ information needs about the treatment of their chronically ill child: A qualitative study. Patient Education and Counseling, 62, 228–234.
   PubMed Web of Science ®Google Scholar
• King, G., Cathers, T., King, S., & Rosenbaum, P. (2001). Major elements of parents’ satisfaction and dissatisfaction with pediatric rehabilitation services. Children's Heath Care, 30(2), 111–134.
   Web of Science ®Google Scholar
• King, G., King, S., & Rosenbaum, P. (1996). Interpersonal aspects of care-giving and client outcomes: A review of the literature. Ambulatory Child Health, 2, 151–160.
   Google Scholar
• King, G., King, S., & Rosenbaum, P. (2004). Evaluating health service delivery to children with chronic disabilities and their families: Development of a refined measure of processes of care (MPOC-20). Children's Heath Care, 33, 35–57.
   Web of Science ®Google Scholar
• King, G., King, S., Rosenbaum, P., & Goffin, R. (1999). Family-centred care-giving and well-being of parents of children with disabilities: Linking process with outcomes. Journal of Pediatric Psychology, 24, 41–53.
   Web of Science ®Google Scholar
• King, G., Law, M., King, S., & Rosenbaum, P. (1998). Parents’ and service providers’ perceptions of the family-centredness of children's rehabilitation services. Physical and Occupational Therapy in Pediatrics, 18(1), 21–40.
   Google Scholar
• King, G., Rosenbaum, P., & King, S. (1996). Parents’ perceptions of caregiving: Development and validation of a measure of processes. Developmental Medicine & Child Neurology, 38, 757–772.
   PubMed Web of Science ®Google Scholar
• King, G., Rosenbaum, P., & King, S. (1997). Evaluating family-centred service using a measure of parents’ perceptions. Child: Care, Health, and Development, 23, 47–62.
   PubMed Web of Science ®Google Scholar
• King, G., Tucker, M., Alambets, P., Gritzen, J., McDougall, J., Ogilvie, A., (1998). The evaluation of functional, school-based therapy services for children with special needs. Physical and Occupational Therapy in Pediatrics, 18(2), 1–27.
   Google Scholar
• Larsen, D., Attkisson, C., Hargreaves, W., & Nguyen, T. (1979). Assessment of client/patient satisfaction: Development of a general scale. Evaluation and Program Planning, 2, 197–207.
   PubMedGoogle Scholar
• Larsson, M. (2000). Organizing habilitation services: Team structures and family participation. Child: Care, Health, and Development, 26, 501–514.
   PubMed Web of Science ®Google Scholar
• Law, M., Teplicky, R., King, S., King, G., Kertoy, M., & Moning, T. (2005). Family-centered service: Moving ideas into practice. Child: Care, Health, and Development, 31, 633–642.
   PubMed Web of Science ®Google Scholar
• Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. Thousand Oaks, CA: Sage.
   Google Scholar
• McConachie, H., & Logan, S. (2003). Validation of the measure of processes of care for use when there is no child development centre. Child: Care, Health, and Development, 29, 35–45.
   PubMed Web of Science ®Google Scholar
• Ngui, E., & Fores, G. (2006). Satisfaction with care and ease of using health care services among parents of children with special health care needs: The roles of race/ethnicity, insurance, language, and adequacy of family-centered care. Pediatrics, 117(4), 1184–1196.
   PubMed Web of Science ®Google Scholar
• Patton, M. (2002). Qualitative research & evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Raghavendra, P., Murchland, S., Bentley, M., Wake-Dyster, W., & Lyons, T. (2007). Parents’ and service providers’ perceptions of family-centred practice in a community-based paediatric disability service in Australia. Child: Care, Health, and Development, 33(5), 586–592.
   PubMed Web of Science ®Google Scholar
• Rauscher, L., & Greenfield, B. (2009). Advancements in contemporary physical therapy research: Use of mixed methods designs. Physical Therapy, 89(1), 91–100.
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centered service: A conceptual framework and research review. Physical and Occupational Therapy in Pediatrics, 18(1), 1–20.
   Google Scholar
• Starke, M., & Moller, A. (2002). Parents’ need for knowledge concerning the medical diagnosis of their children. Journal of Child Health Care, 6, 245–257.
   PubMedGoogle Scholar
• Strauss, A., & Corbin, J. (1998). Basics of qualitative research: techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Swain, B., Pless, I., Friedman, D., & Montes, J. (1999). Using the measure of processes of care with parents of children hospitalized for head injury. American Journal of Physical Medicine and Rehabilitation, 78, 323–329.
   PubMedGoogle Scholar
• van Schie, P., Siebes, R., Ketelaar, M., & Vermeer, A. (2004). The measure of processes of care (MPOC): Validation of the Dutch translation. Child: Care, Health, and Development, 30, 529–539.
   PubMed Web of Science ®Google Scholar