Parents’ Experiences with Services and Treatment for Their Children Diagnosed with Cerebral Palsy

REFERENCES

• Bogdan, R. C., & Biklen, S. K. (1998). Qualitative research for education: An introduction to theory and methods (3rd ed.). Boston, MA: Allyn and Bacon.
   Google Scholar
• Bonnier, B., Eliasson, A. C., & Krumlinde-Sundholm, L. (2006). Effects of constraint-induced movement therapy in adolescents with hemiplegic cerebral palsy: A day camp model. Scandinavian Journal of Occupational Therapy, 13, 13–22.
   PubMedGoogle Scholar
• Bridge, G. (1999). Parents as care managers: The experiences of those caring for young children with cerebral palsy. Brookfield, VT: Ashgate.
   Google Scholar
• Charles, J., Lavinder, G., & Gordon, A. M. (2001). Effects of constraint-induced therapy on hand function in children with hemiplegic cerebral palsy. Pediatric Physical Therapy, 13(2), 68–76.
   PubMedGoogle Scholar
• Crocker, M., Mackay-Lyons, M., & McDonnell, E. (1997). Forced use of the upper extremity in cerebral palsy: Single case design. American Journal of Occupational Therapy, 51, 824–833.
   PubMed Web of Science ®Google Scholar
• Darrah, J., Magil-Evans, J., & Adkins, R. (2002). How well are we doing? Families of adolescents or young adults with cerebral palsy share their perceptions of service delivery. Disability and Rehabilitation, 24(10), 542–549.
   PubMed Web of Science ®Google Scholar
• DeLuca, S. C., Echols, K., Ramey, S. L., & Taub, E. (2003). Pediatric constraint-induced movement therapy for a young child with cerebral palsy: Two episodes of care. Physical Therapy, 86(11), 1003–1014.
   Google Scholar
• Depoy, E., & Gitlin, L. (2005). Introduction to research. Understanding and applying multiple strategies (3rd ed.). St. Louis, MO: Elsevier Mosby.
   Google Scholar
• Ely, M., Anzul, M., Friedman, T., Garner, D., & Steinmetz, A. M. (1991). Doing qualitative research: Circles within circles. New York: The Falmer Press.
   Google Scholar
• Ely, M., Vinz, R., Downing, M., & Anzul, M. (1997). On writing qualitative research: Living by words. New York: The Falmer Press.
   Google Scholar
• Flinn, N. A., Schamburg, S., Fetrow, J. M., & Flanigan, J. (2005). The effect of constraint-induced movement treatment on occupational performance and satisfaction in stroke survivors. Occupational Therapy Journal of Rehabilitation, 25(3), 119–127.
   Google Scholar
• Gordon, A. M., Charles, J., & Wolf, S. L. (2006). Efficacy of constraint-induced movement therapy on involved upper-extremity use in children with hemiplegic cerebral palsy is not age-dependent. Pediatrics, 117(3), 363–373.
   Google Scholar
• Knis-Matthews, L., Dahan-Barasch, S., Jablonski, L. M., Friedman, A. S., & Whitfield, K. (2006). Facets of community-based group outings for individuals with brain injury: Perceptions of four therapists from different disciplines. American Journal of Recreation Therapy, 5, 18–26.
   Google Scholar
• Page, S. J. (2006). Modified constraint-induced therapy ties patients down to bring them up. Biomechanics, 22, 18–26.
   Google Scholar
• Pellegrino, L. (2002). Cerebral palsy. In M. Batshaw (Ed.), Children with disabilities (pp. 443–466). Baltimore, MD: Paul H. Brookes.
   Google Scholar
• Plummer, A. C. (2003). Constraint-induced therapy and the motor learning literature that underpins its practice. Physical Therapy Reviews, 8, 143–149.
   Google Scholar
• Sung, I. Y., Ryu, J. S., Pyun, S. B., Yoo, S. D., Song, W. H., & Park, M. J. (2005). Efficacy of forced-use therapy in hemiplegic cerebral palsy. Archives of Physical Medicine Rehabilitation, 86, 2195–2198.
   PubMed Web of Science ®Google Scholar
• Taub, E., & Crago, J. E. (1995). Behavioral plasticity following central nervous system damage in monkeys and man. In B. Julesz & I. Kovacs (Eds.), Maturational windows and adult cortical plasticity (pp. 201–215). Redwood City, CA: Addison-Wesley.
   Google Scholar
• Taub, E., Ramey, S. L., DeLuca, S., & Echols, K. (2004). Efficacy of constraint-induced movement therapy for children with cerebral palsy with symmetric motor impairment. Pediatrics, 113, 305–312.
   PubMed Web of Science ®Google Scholar
• Taub, E., & Uswatte, G. (2000). Constraint-induced movement therapy based on behavioral neuroscience. In R. Frank & T. Elliott (Eds.), Handbook of rehabilitation psychology (pp. 475–496). Washington, DC: American Psychological Association.
   Google Scholar
• Taub, E., Uswatte, G., & Pidikiti, R. (1999). Constraint-induced movement therapy: A new family of techniques with broad applications to physical rehabilitation—a clinical review. Journal of Rehabilitation Research and Development, 36(3), 237–251.
   PubMed Web of Science ®Google Scholar
• Taub, E., & Wolf, S. L. (1997). Constraint induced movement techniques to facilitate upper extremity use in stroke patients. Topics in Stroke Rehabilitation, 3, 38–61.
   PubMedGoogle Scholar
• Timmons, J. C., Whitney-Thomas, J., McIntyre, J. P., Butterworth, J., & Allen, D. (2004). Managing service delivery systems and the role of parents during their children's transitions. Journal of Rehabilitation, 70(2), 19–26.
   Web of Science ®Google Scholar
• Underwood, J., Clark, P. C., Blanton, S., Aycock, D. M., & Wolf, S. L. (2006). Pain, fatigue, and intensity of practice in people with stroke who are receiving constraint-induced movement therapy. Physical Therapy, 86(9), 1241–1250.
   PubMedGoogle Scholar
• Whitaker, A. H., Feldman, J. F., Lorenz, J. M., Breslau, N., & Paneth, N. (2006). Prematurity and cerebral palsy. In C. Coffey & R. Brumback (Eds.), Pediatric neuropsychiatry (pp. 481–505). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Willis, J. K., Morello, A., Rice, J. C., & Bennet, J. T. (2002). Forced use treatment of childhood hemiparesis. Pediatrics, 110, 94–96.
   PubMed Web of Science ®Google Scholar
• Yamamoto, M. S. (2007). Cerebral palsy. In B. Atchison & D. Dirette (Eds.), Conditions in occupational therapy (pp. 9–22). Baltimore, MD: Lippincott Williams & Wilkins.
   Google Scholar
• Young, B., Moffett, J. K., Jackson, D., & McNulty, A. (2006). Decision-making in community-based pediatric physiotherapy: A qualitative study of children, parents, and practitioners. Health & Social Care in the Community, 14(2), 116–124.
   PubMed Web of Science ®Google Scholar