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Research Article

Measures of Self-Care Independence for Children with Osteochondrodysplasia: A Clinimetric Review

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Pages 80-96 | Received 29 Jul 2010, Accepted 31 May 2011, Published online: 06 Jul 2011

REFERENCES

  • Amako, M., Fassier, F., Hamdy, R. C., Aarabi, M., Montpetit, K., & Glorieux, F. H. (2004). Functional analysis of upper limb deformities in osteogenesis imperfecta. Journal of Pediatric Orthopaedics, 24(6), 689–694.
  • Apajasalo, M., Sintonen, H., Rautonen, J., & Kaitila, I. (1998). Health-related quality of life of patients with genetic skeletal dysplasias. European Journal of Pediatrics, 157(2), 114–121.
  • Baitner, A. C., Maurer, S. G., Gruen, M. B., & Di Cesare, P. E. (2000). The genetic basis of the osteochondrodysplasias. Journal of Pediatric Orthopaedics, 20(5), 594–605.
  • Berg, M., Jahnsen, R., Froslie, K. F., & Hussain, A. (2004). Reliability of the Pediatric Evaluation of Disability Inventory (PEDI). Physical and Occupational Therapy in Pediatrics, 24(3), 61–77.
  • Braun, S., Msall, M. E., & Granger, C. V. (1991). Manual for the Functional Independence Measure for Children (WeeFIM). Version 1.4. Buffalo, NY: Centre for Functional Assessment Research, Uniform Data System for Medical Rehabilitation, State University of New York.
  • Chen, C. C., Bode, R. K., Granger, C. V., & Heinemann, A. W. (2005). Psychometric properties and developmental differences in children's ADL item hierarchy: A study of the WeeFIM instrument. American Journal of Physical Medicine & Rehabilitation, 84(9), 671–679.
  • Collins, M. T., Kushner, H., Reynolds, J. C., Chebli, C., Kelly, M. H., Gupta, A., et al. (2005). An instrument to measure skeletal burden and predict functional outcome in fibrous dysplasia of bone. Journal of Bone and Mineral Research, 20(2), 219–226.
  • Damignani, R., Young, N. L., Cole, W. G., Anthony, A. M., & Badley, E. M. (2004). Impairment and activity limitation associated with epiphyseal dysplasia in children. Archives of Physical Medicine and Rehabilitation, 85(10), 1647–1652.
  • Dawson, B., & Trapp, R. (2004). Basic and clinical biostatistics (4th ed.). New York: Macraw Hills.
  • Engelbert, R. H., Uiterwaal, C. S., Gerver, W. J., van der Net, J. J., Pruijs, H. E., & Helders, P. J. (2004). Osteogenesis imperfecta in childhood: Impairment and disability. A prospective study with 4-year follow-up. Archives of Physical Medicine and Rehabilitation, 85(5), 772–778.
  • Engelbert, R. H. H., Custers, J. W. H., van der Net, J., van der Graff, Y., Beemer, F. A., & Helders, P. J. M. (1997a). Functional outcomes in osteogenesis imperfecta: Disability profiles using the PEDI. Pediatric Physical Therapy, 9, 18–22.
  • Engelbert, R. H., van der Graaf, Y., van Empelen, R., Beemer, F. A., & Helders, P. J. (1997b). Osteogenesis imperfecta in childhood: Impairment and disability. Pediatrics, 99(2), E3.
  • Feldman, A. B., Haley, S. M., & Coryell, J. (1990). Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Physical Therapy, 70(10), 602–610.
  • Furlong, W., Barr, R. D., Feeny, D., & Yandow, S. (2005). Patient-focussed measures of functional health care status and health-related quality of life in pediatric orthopedics: A case study in measurement selection. Health and Quality of Life Outcomes, 3(3), 1–15.
  • Guyatt, G., Walter, S., & Norman, G. (1987). Measuring change over time: Assessing the usefulness of evaluative instruments. Journal of Chronic Diseases, 40(2), 171–178.
  • Haley, S. M., Costner, W. J., Ludlow, L. H., Haltiwanger, J. T., & Andrellos, P. J. (1992). Pediatric Evaluation of Disability Inventory (PEDI). Development, Standardisation and Administration Manual (version 1). Boston: New England Medical Center Hospitals.
  • Harvey, A., Robin, J., Morris, M. E., Graham, H. K., & Baker, R. (2008). A systematic review of measures of activity limitation for children with cerebral palsy. Developmental Medicine and Child Neurology, 50(3), 190–198.
  • Holsbeeke, L., Ketelaar, M., Schoemaker, M. M., & Gorter, J. W. (2009). Capacity, capability, and performance: Different constructs or three of a kind? Archives of Physical Medicine and Rehabilitation, 90(5), 849–855.
  • Horton, W. A., Hall, J. G., & Hecht, J. T. (2007). Achondroplasia. Lancet, 370(9582), 162–172.
  • Huang, R. P., Ambrose, C. G., Sullivan, E., & Haynes, R. J. (2006). Functional significance of bone density measurements in children with osteogenesis imperfecta. Journal of Bone and Joint Surgery—American Volume, 88(6), 1324–1330.
  • Jessen, E. C., Colver, A. F., Mackie, P. C., & Jarvis, S. N. (2003). Development and validation of a tool to measure the impact of childhood disabilities on the lives of children and their families. Child Care, Health and Development, 29(1), 21–34.
  • Jongjit, J., Komsopapong, L., Saikaew, T., Wanich, U., Chewapanich, S., Udomsubpayakul, U., et al. (2006). Reliability of the functional independence measure for children in normal Thai children. Pediatrics International, 48(2), 132–137.
  • Kelly, M. H., Brillante, B., Kushner, H., Gehron Robey, P., & Collins, M. T. (2005). Physical function is impaired but quality of life preserved in patients with fibrous dysplasia of bone. Bone, 37(3), 388–394.
  • Land, C., Rauch, F., Montpetit, K., Ruck-Gibis, J., & Glorieux, F. H. (2006). Effect of intravenous pamidronate therapy on functional abilities and level of ambulation in children with osteogenesis imperfecta. Journal of Pediatric, 148(4), 456–460.
  • Law, M. (2004). Outcome measures rating form. Ontario, Canada: Canchild Centre for Disability Research.
  • Leet, A. I., Wientroub, S., Kushner, H., Brillante, B., Kelly, M. H., Robey, P. G., et al. (2006). The correlation of specific orthopaedic features of polyostotic fibrous dysplasia with functional outcome scores in children. Journal of Bone and Joint Surgery—American Volume, 88(4), 818–823.
  • Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., & Knol, D. L. (2009). The COSMIN checklist manual. Retrieved 30 October 2010, from http://www.cosmin.nl
  • Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., et al. (2010). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international Delphi study. Quality of Life Research, 19(4), 539–549.
  • Nichols, D. S., & Case-Smith, J. (1996). Reliability and validity of the Paediatric Evaluation of Disability Inventory. Pediatric Physical Therapy, 8, 15–24.
  • Ottenbacher, K. J., Msall, M. E., Lyon, N., Duffy, L. C., Granger, C. V., & Braun, S. (1999). Measuring developmental and functional status in children with disabilities. Developmental Medicine and Child Neurology, 41(3), 186–194.
  • Ottenbacher, K. J., Msall, M. E., Lyon, N., Duffy, L. C., Ziviani, J., Granger, C. V., et al. (2000). The WeeFIM instrument: Its utility in detecting change in children with developmental disabilities. Archives of Physical Medicine and Rehabilitation, 81(10), 1317–1326.
  • Ottenbacher, K. J., Msall, M. E., Lyon, N. R., Duffy, L. C., Granger, C. V., & Braun, S. (1997). Interrater agreement and stability of the Functional Independence Measure for Children (WeeFIM): Use in children with developmental disabilities. Archives of Physical Medicine and Rehabilitation, 78(12), 1309–1315.
  • Ottenbacher, K. J., Taylor, E. T., Msall, M. E., Braun, S., Lane, S. J., Granger, C. V., et al. (1996). The stability and equivalence reliability of the functional independence measure for children (WeeFIM). Developmental Medicine and Child Neurology, 38(10), 907–916.
  • Pencharz, J., Young, N. L., Owen, J. L., & Wright, J. G. (2001). Comparison of three outcomes instruments in children. Journal of Pediatric Orthopaedics, 21(4), 425–432.
  • Sakkers, R., Kok, D., Engelbert, R., van Dongen, A., Jansen, M., Pruijs, H., et al. (2004). Skeletal effects and functional outcome with olpadronate in children with osteogenesis imperfecta: A 2-year randomised placebo-controlled study. Lancet, 363(9419), 1427–1431.
  • Sakzewski, L., Boyd, R., & Ziviani, J. (2007). Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 49(3), 232–240.
  • Seikaly, M. G., Kopanati, S., Salhab, N., Waber, P., Patterson, D., Browne, R., et al. (2005). Impact of alendronate on quality of life in children with osteogenesis imperfecta. Journal of Pediatric Orthopaedics, 25(6), 786–791.
  • Sperle, P. A., Ottenbacher, K. J., Braun, S. L., Lane, S. J., & Nochajski, S. (1997). Equivalence reliability of the functional independence measure for children (WeeFIM) administration methods. American Journal of Occupational Therapy, 51(1), 35–41.
  • Tuysuz, B. (2004). A new concept of skeletal dysplasias. Turkish Journal of Pediatrics, 46(3), 197–203.
  • Uniform Data System for Medical Rehabilitation. (2006). The WeeFIM II clinical guide, version 6.0. Buffalo, NY: Author.
  • Wassenberg-Severijnen, J. E., Custers, J. W., Hox, J. J., Vermeer, A., & Helders, P. J. (2003). Reliability of the Dutch Pediatric Evaluation of Disability Inventory (PEDI). Clinical Rehabilitation, 17(4), 457–462.
  • Wong, V., Wong, S., Chan, K., & Wong, W. (2002). Functional Independence Measure (WeeFIM) for Chinese children: Hong Kong cohort. Pediatrics, 109(2), E36.
  • World Health Organization. (2007). International classification of functioning, disability and health—Children and youth version. Switzerland: Geneva.
  • Young, N. L., Williams, J. I., Yoshida, K. K., & Wright, J. G. (2000). Measurement properties of the activities scale for kids. Journal of Clinical Epidemiology, 53(2), 125–137.
  • Young, N. L., Yoshida, K. K., Williams, J. I., Bombardier, C., & Wright, J. G. (1995). The role of children in reporting their physical disability. Archives of Physical Medicine and Rehabilitation, 76(10), 913–918.
  • Ziviani, J., Ottenbacher, K. J., Shephard, K., Foreman, S., Astbury, W., & Ireland, P. (2001). Concurrent validity of the functional independence measure for children (WeeFIM) and the pediatric evaluation of disabilities inventory in children with developmental disabilities and acquired brain injuries. Physical and Occupational Therapy in Pediatrics, 21(2–3), 91–101.

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