Hand Function in Young Children with Cerebral Palsy: Current Practice and Parent-Reported Benefits

REFERENCES

• Andersen, G. L., Irgens, L. M., Haagaas, I., Skranes, J. S., Meberg, A. E., & Vik, T. (2008). Cerebral palsy in Norway: Prevalence, subtypes and severity. European Journal of Paediatric Neurology, 12(1), 4–13.S1090-3798(07)00095-5 [pii] doi:10.1016/j.ejpn.2007.05.001
   PubMed Web of Science ®Google Scholar
• Arner, M., Eliasson, A. C., Nicklasson, S., Sommerstein, K., & Hagglund, G. (2008). Hand function in cerebral palsy. Report of 367 children in a population-based longitudinal health care program. Journal of Hand Surgery (American Volume), 33(8), 1337–1347. S0363-5023(08)00252-9 [pii] doi:10.1016/j.jhsa.2008.02.032
   PubMed Web of Science ®Google Scholar
• Cha, E. S., Kim, K. H., & Erlen, J. A. (2007). Translation of scales in cross-cultural research: Issues and techniques. Journal of Advanced Nursing, 58(4), 386–395.doi:10.1111/j.1365-2648.2007.04242.x
   PubMed Web of Science ®Google Scholar
• Dong, V. A., Tung, I. H., Siu, H. W., & Fong, K. N. (2013). Studies comparing the efficacy of constraint-induced movement therapy and bimanual training in children with unilateral cerebral palsy: A systematic review. Developmental Neurorehabilitation, 16(2), 133–143.doi:10.3109/17518423.2012.702136
   PubMed Web of Science ®Google Scholar
• Duff, S. V., Shumway-Cook, A., & Wollacott, M. (2012). Clinical management of the patient with reach, grasp, and manipulation disorders. In A. Shumway-Cook & M. Wollacott (Eds.), Motor control translating research into clinical practice (4th ed., pp. 552–594). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Dunst, C. J., Bruder, M. B., Trivette, C. M., & Hamby, D. W. (2005). Young children's natural learning environments: Contrasting approaches to early childhood intervention indicate differential learning opportunities. Psychological Reports, 96(1), 231–234.doi:10.2466/pr0.96.1.231-234
   PubMed Web of Science ®Google Scholar
• Dunst, C. J., Bruder, M. B., Trivette, C. M., & Hamby, D. W. (2006). Everyday activity settings, natural learning environments, and early intervention practices. Journal of Policy and Practice in Intellectual Disabilities, 3(1), 3–10.doi:10.1111/j.1741-1130.2006.00047.x
   Google Scholar
• Dunst, C. J., Hamby, D., Trivette, C. M., Raab, M., & Bruder, M. B. (2000). Everyday family and community life and children's naturally occurring learning opportunities. Journal of Early Intervention, 23(3), 151–164.doi:10.1177/10538151000230030501
   Google Scholar
• Dunst, C. J., Hamby, D., Trivette, C. M., Raab, M., and Bruder, M. B. (2002). Young children's participation in everyday family and community activity. Psychological Reports, 91(3 Pt 1), 875–897.
   PubMed Web of Science ®Google Scholar
• Dunst, C. J., & Trivette, C. M. (2009). Capacity-building family-systems intervention practices. Journal of Family Social Work, 12(2), 119–143.doi:10.1080/10522150802713322
   Google Scholar
• Eliasson, A. C. (2005). Improving the use of hands in daily activities: Aspects of the treatment of children with cerebral palsy. Physical & Occupational Therapy Pediatrics, 25(3), 37–60.
   PubMedGoogle Scholar
• Eliasson, A. C., Krumlinde-Sundholm, L., Rosblad, B., Beckung, E., Arner, M., Ohrvall, A. M., & Rosenbaum, P. (2006). The manual ability classification system (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine Child Neurology, 48(7), 549–554. S0012162206001162 [pii] doi:10.1017/S0012162206001162
   PubMed Web of Science ®Google Scholar
• Eliasson, A. C., Krumlinde-Sundholm, L., Shaw, K., & Wang, C. (2005). Effects of constraint-induced movement therapy in young children with hemiplegic cerebral palsy: An adapted model. Developmental Medicine Child Neurology, 47(4), 266–275.
   PubMed Web of Science ®Google Scholar
• Eliasson, A. C., Ullenhag, A., Wahlström, U., & Krumlinde-Sundholm, L. (in press). Mini-MACS; Development of the manual ability classification system for children with CP below 4 years of age. Personal communication.
   Google Scholar
• Gordon, A. M. (2011). To constrain or not to constrain, and other stories of intensive upper extremity training for children with unilateral cerebral palsy. Developmental Medicine Child Neurology, 53(Suppl 4), 56–61.doi:10.1111/j.1469-8749.2011.04066.x
   PubMed Web of Science ®Google Scholar
• Gordon, A. M., Schneider, J. A., Chinnan, A., & Charles, J.R. (2007). Efficacy of a hand-arm bimanual intensive therapy (HABIT) in children with hemiplegic cerebral palsy: A randomized control trial. Developmental Medicine and Child Neurology, 49(11), 830–838.doi:10.1111/j.1469-8749.2007.00830.x
   PubMed Web of Science ®Google Scholar
• Imms, C., Reilly, S., Carlin, J., & Dodd, K. J. (2009). Characteristics influencing participation of australian children with cerebral palsy. Disability and Rehabilitation, 31(26), 2204–2215.doi:10.3109/09638280902971406
   PubMed Web of Science ®Google Scholar
• King, G., & Chiarello, L. (2014). Family-centered care for children with cerebral palsy: Conceptual and practical considerations to advance care and practice. Journal of Child Neurology, 29(8), 1046–1054.doi:10.1177/0883073814533009
   PubMed Web of Science ®Google Scholar
• Law, M., & Darrah, J. (2014). Emerging therapy approaches: An emphasis on function. Journal of Child Neurology, 53(7), 621–629. doi:10.1177/0883073814533151
   Web of Science ®Google Scholar
• McConnell, K., Johnston, L., & Kerr, C. (2012). Therapy management of the upper limb in children with cerebral palsy: A cross-sectional survey. Developmental Neurorehabilitation, 15(5), 343–350.doi:10.3109/17518423.2012.692124
   PubMed Web of Science ®Google Scholar
• Myrhaug, H. T., & Ostensjo, S. (2014). Motor training and physical activity among preschoolers with cerebral palsy: A survey of parents’ experiences. Physical & Occupational Therapy in Pediatrics, 34(2), 153–167.doi:10.3109/01942638.2013.810185
   PubMed Web of Science ®Google Scholar
• Myrhaug, H. T., Ostensjo, S., Larun, L., Odgaard-Jensen, J., & Jahnsen, R. (2014). Intensive training of motor function and functional skills among young children with cerebral palsy: A systematic review and meta-analysis. BMC Pediatrics, 14(1), 292.
   PubMed Web of Science ®Google Scholar
• Novak, I. (2014). Evidence to practice commentary new evidence in coaching interventions. Physical & Occupational Therapy in Pediatrics, 34(2), 132–137.doi:10.3109/01942638.2014.903060
   PubMed Web of Science ®Google Scholar
• Novak, I., & Berry, J. (2014). Home program intervention effectiveness evidence. Physical & Occupational Therapy in Pediatrics, 34(4), 384–389.doi:10.3109/01942638.2014.964020
   PubMed Web of Science ®Google Scholar
• Novak, I., Cusick, A., & Lannin, N. (2009). Occupational therapy home programs for cerebral palsy: Double-blind, randomized, controlled trial. Pediatrics, 124(4), e606–614.doi:10.1542/peds.2009-0288
   PubMed Web of Science ®Google Scholar
• Novak, I., McIntyre, S., Morgan, C., Campbell, L., Dark, L., Morton, N., … Goldsmith, S. (2013). A systematic review of interventions for children with cerebral palsy: State of the evidence. Developmental Medicine and Child Neurology, 55(10), 885–910.doi:10.1111/dmcn.12246
   PubMed Web of Science ®Google Scholar
• Ohrvall, A. M., Eliasson, A. C., Lowing, K., Odman, P., & Krumlinde-Sundholm, L. (2010). Self-care and mobility skills in children with cerebral palsy, related to their manual ability and gross motor function classifications. Developmental Medicine Child Neurology, 52(11), 1048–1055. DMCN3764 [pii] doi:10.1111/j.1469-8749.2010.03764.x
   PubMed Web of Science ®Google Scholar
• Oien, I., Fallang, B., & Ostensjo, S. (2010). Goal-setting in paediatric rehabilitation: Perceptions of parents and professional. Child: Care, Health and Development, 36(4), 558–565.doi:10.1111/j.1365-2214.2009.01038.x
   PubMed Web of Science ®Google Scholar
• Ostensjo, S., Oien, I., & Fallang, B. (2008). Goal-oriented rehabilitation of preschoolers with cerebral palsy—a multi-case study of combined use of the Canadian occupational performance measure (COPM) and the goal attainment scaling (GAS). Developmental Neurorehabilitation, 11(4), 252–259.doi:10.1080/17518420802525500
   PubMed Web of Science ®Google Scholar
• Palisano, R. J., Chiarello, L. A., King, G. A., Novak, I., Stoner, T., & Fiss, A. (2012). Participation-based therapy for children with physical disabilities. Disability and Rehabilitation, 34(12), 1041–1052.doi:10.3109/09638288.2011.628740
   PubMed Web of Science ®Google Scholar
• Palisano, R. J., & Murr, S. (2009). Intensity of therapy services: What are the considerations? Physical & Occupational Therapy in Pediatrics, 29(2), 107–112.doi:10.1080/01942630902805186
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., & Gorter, J. W. (2012). The ‘F-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457–463.doi:10.1111/j.1365-2214.2011.01338.x
   PubMed Web of Science ®Google Scholar
• Sakzewski, L., Gordon, A., & Eliasson, A. C. (2014a). The state of the evidence for intensive upper limb therapy approaches for children with unilateral cerebral palsy. Journal of Child Neurology.doi:10.1177/0883073814533150
   PubMed Web of Science ®Google Scholar
• Sakzewski, L., Provan, K., Ziviani, J., & Boyd, R. N. (2015). Comparison of dosage of intensive upper limb therapy for children with unilateral cerebral palsy: How big should the therapy pill be? Research in Developmental Disabilities, 37, 9–16.doi:10.1016/j.ridd.2014.10.050
   PubMed Web of Science ®Google Scholar
• Sakzewski, L., Ziviani, J., & Boyd, R. N. (2014b). Efficacy of upper limb therapies for unilateral cerebral palsy: A meta-analysis. Pediatrics, 133(1), e175–204.doi:10.1542/peds.2013-0675
   PubMed Web of Science ®Google Scholar
• SCPE. (2000). Surveillance of cerebral palsy in Europe: A collaboration of cerebral palsy surveys and registers. Surveillance of cerebral palsy in Europe (SCPE). Developmental Medicine and Child Neurology, 42(12), 816–824.
   PubMed Web of Science ®Google Scholar
• Taylor, E., Schachar, R., Thorley, G., & Wieselberg, M. (1986). Parental account of children's symptoms. British Journal of Psychiatry, 146, 760–767.
   Web of Science ®Google Scholar
• Valvano, J. (2004). Activity-focused motor interventions for children with neurological conditions. Physical & Occupational Therapy in Pediatrics, 24(1-2), 79–107.
   PubMedGoogle Scholar
• van Eck, M., Dallmeijer, A. J., van Lith, I. S., Voorman, J. M., & Becher, J. (2010). Manual ability and its relationship with daily activities in adolescents with cerebral palsy. Journal of Rehabilitation Medicine, 42(5), 493–498.doi:10.2340/16501977-0543
   PubMed Web of Science ®Google Scholar
• van Meeteren, J., Roebroeck, M. E., Celen, E., Donkervoort, M., & Stam, H. J. (2008). Functional activities of the upper extremity of young adults with cerebral palsy: A limiting factor for participation? Disability and Rehabilitation, 30(5), 387–395.doi:10.1080/09638280701355504
   PubMed Web of Science ®Google Scholar