546
Views
19
CrossRef citations to date
0
Altmetric
Research Article

Children's longing for everydayness: Life following traumatic brain injury in the USA

, PhD, , &
Pages 882-894 | Received 03 May 2010, Accepted 07 Apr 2011, Published online: 01 Jun 2011

References

  • Bronfenbrenner U. Toward an experimental ecology of human development. American Psychologist 1977; 32: 513–531
  • Thomasgard M, Metz WP. Promoting child social-emotional growth in primary care settings: Using a developmental approach. Clinical Pediatrics 2004; 43: 119–127
  • Griffin J. Well-being: Its meaning, measurement, and moral importance. Oxford University Press, New York 1986
  • Ravens-Sieberer U, Patrick PD, Benz B, Calaminus G, Flechtner H, Melchers P, Patrick P, Schäfer B, Suhr L, Schrod L, et al. Quality of life in children with traumatic brain injury–basic issues, assessment, and recommendations. Restorative Neurology and Neuroscience 2002; 20: 151–159
  • Health Organization World. Measurement of quality of life in children. Division of Mental Health, World Health Organization, GenevaSwitzerland 1993
  • Haley SM, Graham RJ, Dumas HM. Outcome rating scales for pediatric head injury. Journal of Intensive Care Medicine 2004; 19: 205–219
  • Chisholm J, Bruce B. Unintentional traumatic brain injury in children: The lived experience. Axone 2001; 23: 12–17
  • Hawley CA. Saint or sinner? Teacher perceptions of a child with traumatic brain injury. Pediatric Rehabilitation 2005; 8: 117–129
  • Kao HF, Stuifbergen AK. Love and load–the lived experience of the mother-child relationship among young adult traumatic brain-injured survivors. Journal of Neuroscience Nursing 2004; 36: 73–81
  • Morris PG, Prior L, Deb S, Lewis G, Mayle W, Burrow CE, Bryant E. Patients’ views on outcome following head injury: A qualitative study. BMC Family Practice 2005; 6: 30
  • Pierce CA, Hanks RA. Life satisfaction after traumatic brain injury and the World Health Organization model of disability. American Journal of Physical Medicine and Rehabilitation 2006; 85: 889–898
  • Prigatano GP, Gupta S. Friends after traumatic brain injury in children. Journal of Head Trauma Rehabilitation 2006; 21: 505–513
  • Patton MQ. Stategic themes in qualitative inquiry. Qualitative research and evaluation methods3rd, MQ Patton. Sage Publications, Thousand Oaks, CA 2002; 37–73
  • Husserl E. Phenomenology and the crisis of philosophy: Philosophy as a rigorous science, and philosophy and the crisis of European man. Harper & Row, New York 1965
  • Lincoln YS, Guba EG. Naturalistic inquiry. Sage, Beverly Hills, CA 1985
  • Colaizzi PF. Psychological research as the phenomenologist views it. Existential-phenomenological alternatives for psychology, R Valle, M King. Oxford University Press, New York 1978; 48–71
  • Gracey F, Palmer S, Rous B, Psaila K, Shaw K, O'Dell J, Cope J, Mohamed S. “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation 2008; 18: 627–650
  • Marris P. Loss and change. Garden City, NJ: Anchor Press/Doubleday; 1975.
  • Simpson G, Tate R. Suicidality after traumatic brain injury: Demographic, injury and clinical correlates. Psychological Medicine 2002; 32: 687–697
  • Simpson G, Tate R. Suicidality in people surviving a traumatic brain injury: Prevalence, risk factors and implications for clinical management. Brain Injury 2007; 21: 1335–1351
  • Dunn DS, Brody C. Defining the good life following acquired physical disability. Rehabilitation Psychology 2008; 53: 413–425
  • Wright BA. Physical disability: A psychological approach. Harper & Row, New York 1960
  • Albrecht GL, Devlieger PJ. The disability paradox: High quality of life against all odds. Social Science and Medicine 1999; 48: 977–988
  • Wright BA. Attitudes and the fundamental negative bias: Conditions and corrections. Attitudes towards persons with disabilities, HE Yuker. Springer Publishing Company, Inc., New York 1988; 3–21
  • Fox RC. Cultural competence and the culture of medicine. New England Journal of Medicine 2005; 353: 1316–1319
  • Longmore PK. Medical decision making and people with disabilities: A clash of cultures. Journal of Law, Medicine and Ethics 1995; 23: 82–87
  • Bach JR, Tilton MC. Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia. Archives of Physical Medicine and Rehabilitation 1994; 75: 626–632
  • Blaymore Bier JA, Liebling JA, Morales Y, Carlucci M. Parents’ and pediatricians’ views of individuals with meningomyelocele. Clinical Pediatrics 1996; 35: 113–117
  • Cooley WC, Graham ES, Moeschler JB, Graham Jr JM. Reactions of mothers and medical professionals to a film about Down syndrome. American Journal of Diseases of Children 1990; 144: 1112–1116
  • Cushman LA, Dijkers MP. Depressed mood in spinal cord injured patients: Staff perceptions and patient realities. Archives of Physical Medicine and Rehabilitation 1990; 71: 191–196
  • Gerhart KA, Koziol-McLain J, Lowenstein SR, Whiteneck GG. Quality of life following spinal cord injury: Knowledge and attitudes of emergency care providers. Annals of Emergency Medicine 1994; 23: 807–812
  • Goode D, Holm P, Holst J, Perlt B. Quality of life for persons with disabilities international perspectives and issues. Brookline Books, Cambridge, MA 1994
  • Janvier A, Leblanc I, Barrington KJ. Nobody likes premies: The relative value of patients’ lives. Journal of Perinatology 2008; 28: 821–826
  • Siperstein GN, Wolraich ML, Reed D. Professionals’ prognoses for individuals with mental retardation: Search for consensus within interdisciplinary settings. American Journal of Mental Retardation 1994; 98: 519–526
  • Siperstein GN, Wolraich ML, Reed D, O'Keefe P. Medical decisions and prognostications of pediatricians for infants with meningomyelocele. Journal of Pediatrics 1988; 113: 835–840
  • Wolraich ML, Siperstein GN, O'Keefe P. Pediatricians' perceptions of mentally retarded individuals. Pediatrics 1987; 80: 643–649
  • Wolraich ML, Siperstein GN, Reed D. Doctors' decisions and prognostications for infants with Down syndrome. Developmental Medicine and Child Neurology 1991; 33: 336–342
  • Adams N. Positive outcomes in families following traumatic brain injury. The Australian & New Zealand Journal of Family Therapy 1996; 17: 75–84
  • Hawley CA, Joseph S. Predictors of positive growth after traumatic brain injury: A longitudinal study. Brain Injury 2008; 22: 427–435
  • McGrath J. Beyond restoration to transformation: Positive outcomes in the rehabilitation of acquired brain injury. Clinical Rehabilitation 2004; 18: 767–775
  • Thomsen IV. Late outcome of very severe blunt head trauma: A 10–15 year second follow-up. Journal of Neurology, Neurosurgery and Psychiatry 1984; 47: 260–268
  • Thomsen IV. Late psychosocial outcome in severe traumatic brain injury. Preliminary results of a third follow-up study after 20 years. Scandinavian Journal of Rehabilitation Medicine Supplement 1992; 26: 142–152
  • Wood RL, Rutteford NA. Psychosocial adjustment 17 years after severe brain injury. Journal of Neurology, Neurosurgery and Psychiatry 2006; 77: 71–73
  • Cremeens J, Eiser C, Blades M. A qualitative investigation of school-aged children's answers to items from a generic quality of life measure. Child: Care, Health and Development 2007; 33: 83–89

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.