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Research Article

Parenting a child with a traumatic brain injury: Experiences of parents and health professionals

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Pages 1570-1582 | Received 14 Apr 2013, Accepted 03 Sep 2013, Published online: 10 Oct 2013

References

  • Anderson V, Brown S, Newitt H, Hoile H. Long-term outcome from childhood traumatic brain injury: intellectual ability, personality, and quality of life. Neuropsychology 2011;25:176–184
  • Anderson V, Godfrey C, Rosenfeld JV, Catroppa C. 10 years outcome from childhood traumatic brain injury. International Journal of Developmental Neuroscience 2012;30:217–224
  • Fay TB, Yeates KO, Wade SL, Drotar D, Stancin T, Taylor HG. Predicting longitudinal patterns of functional deficits in children with traumatic brain injury. Neuropsychology 2009;23:271–282
  • Catroppa C, Anderson VA, Morse SA, Haritou F, Rosenfeld JV. Outcome and predictors of functional recovery 5 years following pediatric traumatic brain injury. Journal of Pediatric Psychology 2008;33:707–718
  • Catroppa C, Anderson V. Traumatic brain injury in childhood: Rehabilitation considerations. Developmental Neurorehabilitation 2009;12:53–61
  • Ylvisaker M, Adelson P, Braga L, Burnett S, Glang A, Feeney T, Moore W, Rumney P, Todis B. Rehabilitation and ongoing support after pediatric TBI: Twenty years of progress. Journal of Head Trauma Rehabilitation 2005;20:95–109
  • Ross KA, Dorris L, McMillan T. A systematic review of psychological interventions to alleviate cognitive and psychosocial problems in children with acquired brain injury. Developmental Medicine and Child Neurology 2011;53:1–10
  • Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. Journal of Clinical Nursing 2005;14:1004–1012
  • Stancin T, Wade SL, Walz NC, Yeates KO, Taylor HG. Traumatic brain injuries in early childhood: Initial impact on the family. Journal of Developmental and Behavioral Pediatrics 2008;29:253–261
  • Aitken ME, McCarthy ML, Slomine BS, Ding R, Durbin DR, Jaffe KM, Paidas CN, Dorsch AM, Christensen JR, MacKenzie EJ. Family burden after traumatic brain injury in children. Pediatrics 2009;123:199–206
  • Yeates K, Taylor H, Woodrome S, Wade S, Stancin T, Drotar D. Race as a moderator of parent and family outcomes following pediatric traumatic brain injury. Journal of Pediatric Psychology 2002;27:393–403
  • Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich NM. Interpersonal stressors and resources as predictors of parental adaptation following pediatric traumatic injury. Journal of Consulting and Clinical Psychology 2004;72:776–784
  • Wade SL, Borawski EA, Taylor HG, Drotar D, Yeates KO, Stancin T. The relationship of caregiver coping to family outcomes during the initial year following pediatric traumatic injury. Journal of Consulting and Clinical Psychology 2001;69:406–415
  • Anderson VA, Catroppa C, Haritou F, Morse S, Pentland L, Rosenfeld J, Stargatt R. Predictors of acute child and family outcome following traumatic brain injury in children. Pediatric Neurosurgery 2001;34:138–148
  • Ganesalingam K, Yeates KO, Ginn MS, Taylor HG, Dietrich A, Nuss K, Wright M. Family burden and parental distress following mild traumatic brain injury in children and its relationship to post-concussive symptoms. Journal of Pediatric Psychology 2008;33:621–629
  • Anderson V, Catroppa C. Advances in postacute rehabilitation after childhood-acquired brain injury: A focus on cognitive, behavioral, and social domains. American Journal of Physical Medicine & Rehabilitation 2006;85:767–778
  • Kinsella G, Ong B, Murtagh D, Prior M, Sawyer M. The role of the family for behavioral outcome in children and adolescents following traumatic brain injury. Journal of Consulting and Clinical Psychology 1999;67:116–123
  • Taylor H, Yeates K, Wade S, Drotar D, Stancin T, Burant C. Bidirectional child and family influences on outcomes of traumatic brain injury in children. Journal of the International Neuropsychological Society 2001;7:755–767
  • Wade SL, Cassedy A, Walz NC, Taylor HG, Stancin T, Yeates KO. The relationship of parental warm responsiveness and negativity to emerging behavior problems following traumatic brain injury in young children. Developmental Psychology 2011;47:119–133
  • Gerrard-Morris A, Taylor HG, Yeates KO, Walz NC, Stancin T, Minich N, Wade SL. Cognitive development after traumatic brain injury in young children. Journal of the International Neuropsychological Society 2010;16:157–168
  • Micklewright JL, King TZ, O'Toole K, Henrich C, Floyd FJ. Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury. Journal of the International Neuropsychological Society 2012;18:343–350
  • Kurowski BG, Taylor HG, Yeates KO, Walz NC, Stancin T, Wade SL. Caregiver ratings of long-term executive dysfunction and attention problems after early childhood traumatic brain injury: family functioning is important. Physical Medicine and Rehabilitation 2011;3:836–845
  • Braga LW, Da Paz AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Injury 2005;19:819–831
  • Brown FL, Whittingham K, Boyd R, Sofronoff K. A systematic review of parenting interventions for traumatic brain injury: child and parent outcomes [published online ahead of print May 28, 2012]. The Journal of Head Trauma Rehabilitation 2012
  • Boschen K, Gargaro J, Gan C, Gerber G, Brandys C. Family interventions after acquired brain injury and other chronic conditions: a critical appraisal of the quality of the evidence. Neurorehabilitation 2007;22:19–41
  • Cole WR, Paulos SK, Cole CAS, Tankard C. A review of family intervention guidelines for pediatric acquired brain injuries. Developmental Disabilities Research Reviews 2009;15:159–166
  • Sanders MR, Kirby JN. Consumer engagement and the development, evaluation, and dissemination of evidence-based parenting programs. Behavior Therapy 2012;43:236–250
  • Clark A, Stedmon J, Margison S. An exploration of the experience of mothers whose children sustain traumatic brain injury (TBI) and their families. Clinical Child Psychology and Psychiatry 2008;13:565–583
  • Prigatano GP, Gray JA. Parental concerns and distress after paediatric traumatic brain injury: A qualitative study. Brain Injury 2007;21:721–729
  • Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods 2002;1:13–22
  • Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology 2006;3:77–101
  • Zinner ES, Ball JD, Stutts ML, Philput C. Grief reactions of mothers of adolescents and young adults with traumatic brain injury. Archives of Clinical Neuropsychology 1997;12:435–447
  • Eakes G, Burke M, Hainsworth M. Middle-range theory of chronic sorrow. Journal of Nursing Scholarship 1998;30:179–184
  • Wade SL, Walz NC, Cassedy A, Taylor HG, Stancin T, Yeates KO. Caregiver functioning following early childhood TBI: Do moms and dads respond differently? NeuroRehabilitation 2010;27:63–72
  • Hawley CA, Ward AB, Magnay AR, Long J. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Injury 2003;17:1–23
  • Rotondi AJ, Sinkule J, Balzer K, Harris J, Moldovan R. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. The Journal of Head Trauma Rehabilitation 2007;22:14–25
  • Glidden LM, Billings FJ, Jobe BM. Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research 2006;50:949–962
  • Samios C, Pakenham KI, Sofronoff K. The nature of benefit finding in parents of a child with Asperger syndrome. Research in Autism Spectrum Disorders 2009;3:358–374
  • Helgeson VS, Reynolds KA, Tomich PL. A meta-analytic review of benefit finding and growth. Journal of Consulting and Clinical Psychology 2006;74:797–816
  • Hayes S, Luoma J, Bond F, Masuda A, Lillis J. Acceptance and commitment therapy: Model, processes and outcomes. Behaviour Research and Therapy 2006;44:1–25
  • Whittingham K, Wee D, Sanders M, Boyd R. Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. Child: Care, Health and Development 2012;39:366–373
  • Lloyd T, Hastings RP. Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: Cross-sectional and longitudinal relationships. Journal of Intellectual Disability Research 2008;52:37–48
  • Greco LA, Heffner M, Poe S, Ritchie S, Polak M, Lynch SK. Maternal adjustment following preterm birth: contributions of experiential avoidance. Behavior Therapy 2005;36:177–184
  • Sanders M. Development, evaluation, and multinational dissemination of the triple p-positive parenting program. Annual Review of Clinical Psychology 2012;8:345–379
  • Webster-Stratton C, Hammond M. Predictors of treatment outcome in parent training for families with conduct problem children. Behavior Therapy 1990;21:319–337
  • Eyberg S. Parent-child interaction therapy. Child & Family Behavior Therapy 1988;10:33–46
  • Blackledge JT, Hayes SC. Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy 2006;28:1–18

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