Family involvement in behaviour management following acquired brain injury (ABI) in community settings: A systematic review

References

• Gelber DA, Callahan CD. Neurologic examination of the patient with traumatic brain injury. In: Ashley MJ, editor. Traumatic brain injury: Rehabilitation, treatment, and case management. 3rd ed. Boca Raton, FL: CRC Press; 2010. pp 3–27
   Google Scholar
• Sabaz M, Simpson, GK, Walker AJ, Roger JM, Gillis I, Strettles B. Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: A multicenter study. Journal of Head Trauma Rehabilitation 2014;29:E19–E30
   PubMed Web of Science ®Google Scholar
• Ponsford JL, Downing MG, Olver J, Ponsford M, Acher R, Carty M, Spitz G. Longitudinal follow-up of patients with traumatic brain injury: Outcome at two, five, and ten years post-injury. Journal of Neurotrauma 2014;31:64–77
   PubMed Web of Science ®Google Scholar
• Ponsford J, Sloan S, Snow P, editors. Traumatic brain injury: Rehabilitation for everyday adaptive living. 2nd ed. Hove, East Sussex: Psychology Press; 2013
   Google Scholar
• Lombard LA, Zafonte RD. Agitation after traumatic brain injury: Considerations and treatment options. American Journal of Physical Medicine & Rehabilitation 2005;84:797–812
   PubMed Web of Science ®Google Scholar
• Kelly G, Brown S, Todd J, Kremer P. Challenging behaviour profiles of people with acquired brain injury living in community settings. Brain Injury 2008;22:457–470
   PubMed Web of Science ®Google Scholar
• Turner B, Fleming J, Cornwell P, Worrall L, Ownsworth T, Haines T, Kendall M, Chenoweth L. A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Injury 2007;21:1119–1130
   PubMed Web of Science ®Google Scholar
• Alderman N. Contemporary approaches to the management of irritability and aggression following traumatic brain injury. Neuropsychological Rehabilitation 2003;13:211–240
   PubMed Web of Science ®Google Scholar
• Dyer KW, Bell R, McCann J, Rauch R. Aggression after traumatic brain injury: Analysing socially desirable responses and the nature of aggressive traits. Brain Injury 2006;20:1163–1173
   PubMed Web of Science ®Google Scholar
• Giles GM, Scott K, Manchester D. Staff-reported antecedents to aggression in a post-acute brain injury treatment programme: What are they and what implications do they have for treatment? Neuropsychological Rehabilitation 2013;23:732–754
   PubMed Web of Science ®Google Scholar
• Medd J, Tate RL. Evaluation of an Anger Management Therapy Programme following acquired brain injury: A preliminary study. Neuropsychological Rehabilitaiton 2000;10:185–201
   Web of Science ®Google Scholar
• Tateno A, Jorge RE, Robinson RG. Clinical correlates of aggressive behavior after traumatic brain injury. The Journal of Neuropsychiatry and Clinical Neurosciences 2003;15:155–160
   PubMed Web of Science ®Google Scholar
• Willis TJ, LaVigna GW. The safe management of physical aggression using multi-element positive practices in community settings. Journal of Head Trauma Rehabilitation 2003;18:75–87
   PubMed Web of Science ®Google Scholar
• Alderman N, Knight C, Brooks J. Rehabilitation approaches to the management of aggressive behaviour disorders after acquired brain injury. Brain Impairment 2013;14:5–20
   Web of Science ®Google Scholar
• Feeney TJ, Ylvisaker M, Rosen BH, Greene P. Community supports for individuals with challenging behavior after brain injury: An analysis of the New York State Behavioral Resource Project. Journal of Head Trauma Rehabilitation 2001;16:61–75
   PubMed Web of Science ®Google Scholar
• Simpson G, Blaszczynski A, Hodgkinson A. Sex offending as a psychosocial sequela of traumatic brain injury. Journal of Head Trauma Rehabilitation 1999;14:567–580
   PubMed Web of Science ®Google Scholar
• Simpson GK, Sabaz M, Daher M. Prevalence, clinical features, and correlates of inappropriate sexual behavior after traumatic brain injury: A multicenter study. Journal of Head Trauma Rehabilitation 2013;28:202–210
   PubMed Web of Science ®Google Scholar
• Manchester D, Hodgkinson A, Pfaff A, Nguyen G. A non-aversive approach to reducing hospital absconding in a head-injured adolescent boy. Brain Injury 1997;11:271–277
   PubMed Web of Science ®Google Scholar
• Johnson R, Balleny H. Behaviour problems after brain injury: Incidence and need for treatment. Clinical Rehabilitation 1996;10:173–181
   Google Scholar
• Kant R, Duffy JD, Pivovarnik A. Prevalence of apathy following head injury. Brain Injury 1998;12:87–92
   PubMed Web of Science ®Google Scholar
• Kersel DA, Marsh NV, Havill JH, Sleigh JW. Psychosocial functioning during the year following severe traumatic brain injury. Brain Injury 2001;15:683–696
   PubMed Web of Science ®Google Scholar
• Starkstein S, Robinson R. Mechanism of disinhibition after brain lesions. The Journal of Nervous & Mental Disease 1997;185:108–114
   PubMed Web of Science ®Google Scholar
• Hinkeldey NS, Corrigan JD. The structure of head-injured patients’ neurobehavioural complaints: A preliminary study. Brain Injury 1990;4:115–133
   PubMedGoogle Scholar
• Mathias JL, Coats JL. Emotional and cognitive sequelae to mild traumatic brain injury. Journal of Clinical and Experimental Neuropsychology 1999;21:200–215
   PubMed Web of Science ®Google Scholar
• Gould KR, Ponsford JL, Spitz G. Association between cognitive impairments and anxiety disorders following traumatic brain injury. Journal of Clinical and Experimental Neuropsychology 2014;36:1–14
   PubMed Web of Science ®Google Scholar
• Oddy M, Herbert C. Intervention with families following brain injury: Evidence-based practice. Neuropsychological Rehabilitation 2003;13:259–273
   PubMed Web of Science ®Google Scholar
• Nalder E, Fleming J, Cornwell P, Foster M. Linked lives: The experiences of family caregivers during the transition from hospital to home following traumatic brain injury. Brain Impairment 2012;13:108–122
   Web of Science ®Google Scholar
• Turner B, Fleming J, Ownsworth T, Cornwell P. Perceived service and support needs during transition from hospital to home following acquired brain injury. Disability and Rehabilitation 2011;33:818–829
   PubMed Web of Science ®Google Scholar
• Jones L, Morris R. Experiences of adult stroke survivors and their parent carers: A qualitative study. Clinical Rehabilitation 2013;27:272–280
   PubMed Web of Science ®Google Scholar
• Hawley CA, Ward AB, Magnay AR, Long J. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Injury 2003;17:1–23
   PubMed Web of Science ®Google Scholar
• Jumisko E, Lexell J, Soederberg S. Living with moderate or severe traumatic brain injury: The meaning of family members' experiences. Journal of Family Nursing 2007;13:353–369
   PubMed Web of Science ®Google Scholar
• Murray HM, Maslany GW, Jeffery B. Assessment of family needs following acquired brain injury in Saskatchewan. Brain Injury 2006;20:575–585
   PubMed Web of Science ®Google Scholar
• Watanabe Y, Shiel A, McLellan DL, Kurihara M, Hayashi K. The impact of traumatic brain injury on family members living with patients: A preliminary study in Japan and the UK. Disability and Rehabilitation 2001;23:370–378
   PubMed Web of Science ®Google Scholar
• Kelly G, Parry A. Managing challenging behaviour of people with acquired brain injury in community settings: The first 7 years of a specialist clinical service. Brain Impairment 2008;9:293–304
   Web of Science ®Google Scholar
• Kelly G, Todd J, Simpson G, Kremer P, Martin C. The overt behaviour scale (OBS): A tool for measuring challenging behaviours following ABI in community settings. Brain Injury 2006;20:307–319
   PubMed Web of Science ®Google Scholar
• Rothwell NA, LaVigna GW, Willis TJ. A non-aversive rehabilitation approach for people with severe behavioural problems resulting from brain injury. Brain Injury 1999;13:521–533
   PubMed Web of Science ®Google Scholar
• Feeney T, Ylvisaker M. Choice and routine: Antecedent behavioural interventions for adolescents with severe traumatic brain injury. Journal of Head Trauma Rehabilitation 1995;10:71–86
   Web of Science ®Google Scholar
• Pace GM, Dunn EK, Luiselli JK, Cochran CR, Skowron J. Antecedent interventions in the management of maladaptive behaviours in a child with brain injury. Brain Injury 2005;19:365–369
   PubMed Web of Science ®Google Scholar
• Kelly G, Simpson G. Remediating serious inappopriate sexual behavior in a male with severe acquired brain injury. Sex Disability 2011;29:313–327
   Web of Science ®Google Scholar
• Carnevale GJ, Anselmi V, Johnston MV, Busichio K, Walsh V. A natural setting behavior management program for persons with acquired brain injury: A randomized controlled trial. Archives of Physical Medicine and Rehabilitation 2006;87:1289–1297
   PubMed Web of Science ®Google Scholar
• Moher D, Liberati A, Tetzlaff J, Altman DG, The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA Statement. Journal of Clinical Epidemiology 2009;62:1006–1012
   PubMed Web of Science ®Google Scholar
• Law M, Stewart D, Pollock N, Letts L, Bosch J, Westmorland M. Critical review form: Quantitative studies. Ontario, Canada: McMasters University; 1998. Available online at: http://www.srsmcmaster.ca/Portals/20/pdf/ebp/qualreview_version2.0.pdf, accessed 29 January 2014
   Google Scholar
• Letts L, Wilkins S, Law M, Stewart D, Bosch J, Westmorland M. Critical review form: Qualitative studies. Ontario, Canada: McMasters University; 2007. Available online at: http://www.srsmcmaster.ca/Portals/20/pdf/ebp/qualreview_version2.0.pdf%3E, accessed 29 January 2014
   Google Scholar
• Maher CG, Sherrington C, Herbert TD, Moseley AM, Elkins M. Reliability of the PEDro scale for rating quality of randomised controlled trials. Physical Therapy 2003;83:713–721
   PubMed Web of Science ®Google Scholar
• Tate RL, Perdices M, McDonald S, Togher L, Moseley A, Winders K, Kangas M, Schultz R, Smith K. Development of a database of rehabilitation therapies for the psychological consequences of acquired brain impairment. Neuropsychological Rehabilitation 2004;14:517–534
   Web of Science ®Google Scholar
• NHMRC. National Health and Medical Research Council. Levels of evidence and grades for recommendations for guideline developers. Canberra: National Health and Medical Research Council; 2009. Available online at: http://www.nhmrc.gov.au/_files_nhmrc/file/guidelines/developers/nhmrc_levels_grades_evidence_120423.pdf, accessed 15 February 2014
   Google Scholar
• NHMRC. 2014 24/10/14. NHMRC research funding datasets 1990-2013. Canberra: National Health and Medical Research Council; 2014. Available online at: http://www.nhmrc.gov.au/grants/research-funding-statistics-and-data/nhmrc-research-funding-datasets-1990-2013%3E, accessed 14 October 2014
   Google Scholar
• Sander M, Clark AN, Atchison TB, Rueda M. A web-based videoconferencing approach to training caregivers in rural areas to compensate for problems related to traumatic brain injury. Journal of Head Trauma Rehabilitation 2009;24:248–261
   PubMed Web of Science ®Google Scholar
• Wade SL, Walz NC, Carey JC, Williams KM. Brief report: Description of feasibility and satisfaction findings from an innovative online family problem-solving intervention for adolescents following traumatic brain injury. Journal of Pediatric Psychology 2009;34:517–522
   PubMed Web of Science ®Google Scholar
• Wade SL, Walz NC, Carey JC, Williams KM. Preliminary efficacy of a web-based family problem-solving treatment program for adolescents with traumatic brain injury. Journal of Head Trauma Rehabilitation 2008;23:370–378
   Web of Science ®Google Scholar
• Carnevale GJ, Anselmi V, Busichio K, Millis SR. Changes in ratings of caregiver burden following a community-based behavior management program for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation 2002;17:83–95
   PubMed Web of Science ®Google Scholar
• Palmisano B, Arco L. Changes in functional behaviour of adults with brain injury and spouse-caregiver burden with in-home neurobehavioural intervention. Behaviour Change 2007;24:36–49
   Web of Science ®Google Scholar
• Arco L, Bishop J. Single participant studies in positive behaviour support for parents of individuals with brain injuries. Brain Impairment 2009;10:307–319
   Web of Science ®Google Scholar
• Whiting DL, Simpson GK, Koh E-S, Wright KM, Simpson T, Firth R. A multi-tiered intervention to address behavioural and cognitive changes after diagnosis of primary brain tumour: A feasibility study. Brain Injury 2012;26:950–961
   PubMed Web of Science ®Google Scholar
• Carnevale GJ. Natural-setting behavior management for individuals with traumatic brain injury: Results of a three-year caregiver training program. Journal of Head Trauma Rehabilitation 1996;11:27–38
   Web of Science ®Google Scholar
• McKinlay WW, Hickox A. How can families help in the rehabilitation of the head injured? Journal of Head Trauma Rehabilitation 1988;3:64–72
   Google Scholar
• Holroyd J. Manual for the questionnaire on resources and stress for families with chronically ill or handicapped members. Brandon, VT: Clinical Psychology; 1987
   Google Scholar
• Maslach C, Jackson S, Leiter M, editor. Maslach Burnout Inventory manual. 3rd ed. Palo Alto, CA: Consulting Psychologists; 1996
   Google Scholar
• Baddeley A, Meade T, Newcombe F. Design problems in research on rehabilitation after brain damage. International Rehabilitation Medicine 1980;2:138–142
   PubMedGoogle Scholar
• Smith LM, Godfrey HPD. family support programs and rehabilitation: A cognitive-behavioral approach to traumatic brain injury. New York: Plenum Press; 1995
   Google Scholar
• Comper P, Bisschop SM, Carnide N, Tricco A. A systematic review of treatments for mild traumatic brain injury. Brain Injury 2005;19:863–880
   PubMed Web of Science ®Google Scholar
• Drubach DA, Kelly MP, Winslow MM, Flynn JP. Substance abuse as a factor in the causality, severity, and recurrence rate of traumatic brain injury. Maryland Medical Journal 1993;42:989–993
   PubMedGoogle Scholar
• Rutter M. Psychological sequelae of brain damage in children. The American Journal of Psychiatry 1981;138:1533–1981
   PubMed Web of Science ®Google Scholar
• Yody BB, Schaub C, Conway J, Peters S, Strauss D, Helsinger S. Applied behavior management and acquired brain injury: Approaches and assessment. Journal of Head Trauma Rehabilitation 2000;15:1041–1060
   PubMed Web of Science ®Google Scholar
• Prigatano GP. Personality disturbances associated with traumatic brain injury. Journal of Consulting and Clinical Psychology 1992;60:360–368
   PubMed Web of Science ®Google Scholar
• Ylvisaker M, Turkstra LS, Coelho C. Behavioral and social interventions for individuals with traumatic brain injury: A summary of the research with clinical implications. Behavioral and Social Intervention 2005;26:256–267
   Google Scholar
• Wells R, Dywan J, Dumas J. Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injury. Brain Injury 2005;19:1105–1115
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden at 1 year following severe traumatic brain injury. Brain Injury 1998;12:1045–1059
   PubMed Web of Science ®Google Scholar
• Cattelani R, Zettin M, Zoccolotti P. Rehabilitation treatments for adults with behavioral and psychosocial disorders following acquired brain injury: A systematic review. Neuropsychological Review 2010;20:52–85
   PubMed Web of Science ®Google Scholar