1,185
Views
9
CrossRef citations to date
0
Altmetric
Research Article

Is genetic counseling a stressful event?

, , , , , & show all
Pages 1089-1097 | Received 20 Nov 2010, Accepted 07 Jul 2011, Published online: 24 Aug 2011

References

  • McKinnon W, Naud S, Ashikaga T, Colletti R, Wood M. Results of an intervention for individuals and families with BRCA mutations: A model for providing medical updates and psychosocial support following genetic testing. J Genet Couns 2007;16:433–56.
  • Braithwaite D, Emery J, Walter F, Prevost AT, Sutton S. Psychological impact of genetic counseling for familial cancer: A systematic review and meta-analysis. Fam Cancer 2006;5:61–75.
  • Broadstock M, Michie S, Marteau T. Psychological consequences of predictive genetic testing: A systematic review. Eur J Hum Genet 2000;8:731–8.
  • Meiser B, Halliday JL. What is the impact of genetic counselling in women at increased risk of developing hereditary breast cancer? A meta-analytic review. Soc Sci Med 2002;54:1463–70.
  • Katapodi MC, Facione NC, Humphreys JC, Dodd MJ. Perceived breast cancer risk: Heuristic reasoning and search for a dominance structure. Soc Sci Med 2005;60:421–32.
  • Schlich-Bakker KJ, ten Kroode HF, Ausems MG. A literature review of the psychological impact of genetic testing on breast cancer patients. Patient Educ Couns 2006;62: 13–20.
  • Arver B, Haegermark A, Platten U, Lindblom A, Brandberg Y. Evaluation of psychosocial effects of pre-symptomatic testing for breast/ovarian and colon cancer pre-disposing genes: A 12-month follow-up. Fam Cancer 2004;3:109–16.
  • Hayat Roshanai A, Rosenquist R, Lampic C, Nordin K. Cancer genetic counselees’ self-reported psychological distress, changes in life, and adherence to recommended surveillance programs 3–7 years post counseling. J Genet Couns 2009;18:185–94.
  • Roshanai AH, Rosenquist R, Lampic C, Nordin K. Does enhanced information at cancer genetic counseling improve counselees’ knowledge, risk perception, satisfaction and negotiation of information to at-risk relatives? – a randomized study. Acta Oncol 2009;48:999–1009.
  • Brain K, Gray J, Norman P, France E, Anglim C, Barton G, . Randomized trial of a specialist genetic assessment service for familial breast cancer. J Natl Cancer Inst 2000;92:1345–51.
  • Randall J, Butow P, Kirk J, Tucker K. Psychological impact of genetic counselling and testing in women previously diagnosed with breast cancer. Intern Med J 2001;31:397–405.
  • Claes E, Evers-Kiebooms G, Boogaerts A, Decruyenaere M, Denayer L, Legius E. Diagnostic genetic testing for hereditary breast and ovarian cancer in cancer patients: Women's looking back on the pre-test period and a psychological evaluation. Genet Test 2004;8:13–21.
  • Schwartz MD, Peshkin BN, Hughes C, Main D, Isaacs C, Lerman C. Impact of BRCA1/BRCA2 mutation testing on psychologic distress in a clinic-based sample. J Clin Oncol 2002;20:514–20.
  • Wood ME, Mullineaux L, Rahm AK, Fairclough D, Wenzel L. Impact of BRCA1 testing on women with cancer: A pilot study. Genet Test 2000;4:265–72.
  • Bish A, Sutton S, Jacobs C, Levene S, Ramirez A, Hodgson S. Changes in psychological distress after cancer genetic counselling: A comparison of affected and unaffected women. Br J Cancer 2002;86:43–50.
  • Hallowell N, Foster C, Ardern-Jones A, Eeles R, Murday V, Watson M. Genetic testing for women previously diagnosed with breast/ovarian cancer: Examining the impact of BRCA1 and BRCA2 mutation searching. Genet Test 2002;6:79–87.
  • Hallowell N, Foster C, Eeles R, Ardern-Jones A, Watson M. Accommodating risk: Responses to BRCA1/2 genetic testing of women who have had cancer. Soc Sci Med 2004;59: 553–65.
  • Claes E, Denayer L, Evers-Kiebooms G, Boogaerts A, Legius E. Predictive testing for hereditary non-polyposis colorectal cancer: Motivation, illness representations and short-term psychological impact. Patient Educ Couns 2004;55: 265–74.
  • Holmen J, Midthjell K, Krüger O, Langhammer A, Holmen TL, Bratberg G, . The Nord-Trøndelag Health Study 1995–97 (HUNT 2): Objectives, contents, methods and participation. Norsk Epidemiolog 2003;13:1932.
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361–70.
  • Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002;52:69–77.
  • Wolff K. Affective and cognitive attitudes, uncertainty avoidance and intensions to obtain genetic testing. Psychol Health 2010 (in press).
  • Lynch HT, Smyrk T. Hereditary nonpolyposis colorectal cancer (Lynch syndrome). An updated review. Cancer 1996;78:1149–67.
  • Shiloh S, Orgler-Shoob M. Monitoring: A dual-function coping style. J Pers 2006;74:457–78.
  • Pilnick A, Dingwall R. Research directions in genetic counselling: A review of the literature. Patient Educ Couns 2001;44:95–105.
  • Ponder B. Genetic testing for cancer risk. Science 1997;278:1050–4.
  • Tercyak KP, Lerman C, Peshkin BN, Hughes C, Main D, Isaacs C, . Effects of coping style and BRCA1 and BRCA2 test results on anxiety among women participating in genetic counseling and testing for breast and ovarian cancer risk. Health Psychol 2001;20:217–22.
  • Meiser B, Butow P, Friedlander M, Barratt A, Schnieden V, Watson M, . Psychological impact of genetic testing in women from high-risk breast cancer families. Eur J Cancer 2002;38:2025–31.
  • Cull A, Anderson ED, Campbell S, Mackay J, Smyth E, Steel M. The impact of genetic counselling about breast cancer risk on women's risk perceptions and levels of distress. Br J Cancer 1999;79:501–8.
  • Julian-Reynier C, Eisinger F, Chabal F, Aurran Y, Nogues C, Vennin P, . Cancer genetics clinics: Target population and consultees’ expectations. Eur J Cancer 1996;32A:398–403.
  • Audrain J, Schwartz MD, Lerman C, Hughes C, Peshkin BN, Biesecker B. Psychological distress in women seeking genetic counseling for breast-ovarian cancer risk: The contributions of personality and appraisal. Ann Behav Med 1997;19:370–7.
  • Lodder LN, Frets PG, Trijsburg RW, Meijers-Heijboer EJ, Klijn JG, Duivenvoorden HJ, . Presymptomatic testing for BRCA1 and BRCA2: How distressing are the pre-test weeks? Rotterdam/Leiden Genetics Working Group. J Med Genet 1999;36:906–13.