Do radiation oncologists tailor information to patients needs? And, if so, does it affect patients?

References

• van Daal WA, Bos MA. Infrastructure for radiotherapy in The Netherlands: Development from 1970 to 2010. Int J Radiat Oncol Biol Phys 1997;37:411–5.
   PubMed Web of Science ®Google Scholar
• Halkett GK, Kristjanson LJ. Validity and reliability testing of two instruments to measure breast cancer patients’ concerns and information needs relating to radiation therapy. Radiat Oncol 2007;2:43.
   PubMed Web of Science ®Google Scholar
• Halkett GK, Kristjanson LJ, Lobb E, O'Driscoll C, Taylor M, Spry N. Meeting breast cancer patients’ information needs during radiotherapy: What can we do to improve the information and support that is currently provided? Eur J Cancer Care (Engl) 2010;19:538–47.
   PubMed Web of Science ®Google Scholar
• Ter Hoeven CL, Zandbelt LC, Fransen S, de HH, Oort F, Geijsen D, . Measuring cancer patients’ reasons for their information preference: Construction of the Considerations Concerning Cancer Information (CCCI) questionnaire. Psychooncology 2010;20:1228–35. DOI:10.1002/pon.1841.
   PubMed Web of Science ®Google Scholar
• Zeguers M, De Haes HC, Zandbelt LC, Ter Hoeven CL, Franssen SJ, Geijsen DD, . The information needs of new radiotherapy patients: How to measure? Do they want to know everything? And if not, why? Int J Radiat Oncol Biol Phys 2012;82:418–24. DOI:10.1016/j.ijrobp.2010.09.032.
   PubMed Web of Science ®Google Scholar
• Barnett GC, Charman SC, Sizer B, Murray PA. Information given to patients about adverse effects of radiotherapy: A survey of patients’ views. Clin Oncol (R Coll Radiol) 2004; 16:479–84.
   PubMed Web of Science ®Google Scholar
• Kiesler DJ, Auerbach SM. Optimal matches of patient preferences for information, decision-making and interpersonal behavior: Evidence, models and interventions. Patient Educ Couns 2006;61:319–41.
   PubMed Web of Science ®Google Scholar
• Leighl N, Gattellari M, Butow P, Brown R, Tattersall MH. Discussing adjuvant cancer therapy. J Clin Oncol 2001; 19:1768–78.
   PubMed Web of Science ®Google Scholar
• Spielberger CD. Manual for the State-Trait Anxiety Inventory STAI (From Y). Palo Alto, CA: Mind Garden; 1983.
   Google Scholar
• Chew LD, Bradley KA, Boyko EJ. Brief questions to identify patients with inadequate health literacy. Fam Med 2004; 36:588–94.
   PubMed Web of Science ®Google Scholar
• Ong LML, Visser MRM, Lammes FB, de Haes JCJM. Doctor-patient communication and cancer patients’ quality of life and satisfaction. Patient Educ Couns 2000;41:145–56.
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361–70.
   PubMed Web of Science ®Google Scholar
• Aaronson NK, Visser-Pol E, Leenhouts GH, Muller MJ, van der Schot AC, van Dam FS, . Telephone-based nursing intervention improves the effectiveness of the informed consent process in cancer clinical trials. J Clin Oncol 1996;14:984–96.
   PubMed Web of Science ®Google Scholar
• Zandbelt LC, Smets EM, Oort FJ, Godfried MH, de Haes JC. Satisfaction with the outpatient encounter. J Gen Intern Med 2004;19:1088–95.
   PubMed Web of Science ®Google Scholar
• Sepucha K, Ozanne EM. How to define and measure concordance between patients’ preferences and medical treatments: A systematic review of approaches and recommendations for standardization. Patient Educ Couns 2010;78:12–23.
   PubMed Web of Science ®Google Scholar
• Arora NK, Street RL, Jr., Epstein RM, Butow PN. Facilitating patient-centered cancer communication: A road map. Patient Educ Couns 2009;77:319–21.
   PubMed Web of Science ®Google Scholar
• D’ haese S, Vinh-Hung V, Bijdekerke P, Spinnoy M, De BM, Lochie N, . The effect of timing of the provision of information on anxiety and satisfaction of cancer patients receiving radiotherapy. J Cancer Educ 2000;15:223–7.
   PubMed Web of Science ®Google Scholar
• Lobb EA, Butow PN, Meiser B, Barratt A, Gaff C, Young MA, . Tailoring communication in consultations with women from high risk breast cancer families. Br J Cancer 2002;87:502–8.
   PubMed Web of Science ®Google Scholar
• Gamble K. Communication and information: The experience of radiotherapy patients. Eur J Cancer Care (Engl) 1998;7:153–61.
   PubMedGoogle Scholar
• Douma KF, Koning CC, Zandbelt LC, De Haes HC, Smets EM. Do patients’ information needs decrease over the course of radiotherapy? Support Care Cancer Epub 2011 Nov 13. DOI: 10.1007/s00520-011-1328-0.
   PubMed Web of Science ®Google Scholar
• Eggly S, Harper FW, Penner LA, Gleason MJ, Foster T, Albrecht TL. Variation in question asking during cancer clinical interactions: A potential source of disparities in access to information. Patient Educ Couns 2011;82:63–8.
   PubMed Web of Science ®Google Scholar
• Coleman T. Using video-recorded consultations for research in primary care: Advantages and limitations. Fam Pract 2000;17:422–7.
   PubMed Web of Science ®Google Scholar
• Themessl-Huber M, Humphris G, Dowell J, Macgillivray S, Rushmer R, Williams B. Audio-visual recording of patient-GP consultations for research purposes: A literature review on recruiting rates and strategies. Patient Educ Couns 2008;71:157–68.
   PubMed Web of Science ®Google Scholar