Peer support and additional information in group medical consultations (GMCs) for BRCA1/2 mutation carriers: A randomized controlled trial

References

• King MC, Marks JH, Mandell JB, New York Breast Cancer Study G. Breast and ovarian cancer risks due to inherited mutations in BRCA1 and BRCA2. Science 2003;302: 643–6.
   PubMed Web of Science ®Google Scholar
• Kurian AW, Sigal BM, Plevritis SK. Survival analysis of cancer risk reduction strategies for BRCA1/2 mutation carriers. J Clin Oncol 2010;28:222–31.
   PubMed Web of Science ®Google Scholar
• Beran TM, Stanton AL, Kwan L, Seldon J, Bower JE, Vodermaier A, et al. The trajectory of psychological impact in BRCA1/2 genetic testing: Does time heal? Ann Behav Med 2008;36:107–16.
   PubMed Web of Science ®Google Scholar
• Fuller S, Anderson RC. Adjustment issues related to bilateral prophylactic mastectomy in women at elevated risk of developing breast cancer. Plast Surg Nurs 2009;29:33–8.
   PubMedGoogle Scholar
• Farrelly A, White V, Meiser B, Jefford M, Young MA, Ieropoli S, et al. Unmet support needs and distress among women with a BRCA1/2 mutation. Fam Cancer 2013;12:509–18.
   PubMed Web of Science ®Google Scholar
• den Heijer M, Seynaeve C, Vanheusden K, Timman R, Duivenvoorden HJ, Tilanus-Linthorst M, et al. Long-term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: A risk profile. Psychooncology 2013;22:598–604.
   PubMed Web of Science ®Google Scholar
• van Dooren S, Seynaeve C, Rijnsburger AJ, Duivenvoorden HJ, Essink-Bot ML, Tilanus-Linthorst MM, et al. Exploring the course of psychological distress around two successive control visits in women at hereditary risk of breast cancer. Eur J Cancer 2005;41:1416–25.
   PubMed Web of Science ®Google Scholar
• Bowen DJ, Burke W, McTiernan A, Yasui Y, Andersen MR. Breast cancer risk counseling improves women’s functioning. Patient Educ Couns 2004;53:79–86.
   PubMed Web of Science ®Google Scholar
• Calzone KA, Prindiville SA, Jourkiv O, Jenkins J, DeCarvalho M, Wallerstedt DB, et al. Randomized comparison of group versus individual genetic education and counseling for familial breast and/or ovarian cancer. J Clin Oncol 2005;23:3455–64.
   PubMed Web of Science ®Google Scholar
• McKinnon W, Naud S, Ashikaga T, Colletti R, Wood M. Results of an intervention for individuals and families with BRCA mutations: A model for providing medical updates and psychosocial support following genetic testing. J Genet Couns 2007;16:433–56.
   PubMedGoogle Scholar
• Esplen MJ, Hunter J, Leszcz M, Warner E, Narod S, Metcalfe K, et al. A multicenter study of supportive-expressive group therapy for women with BRCA1/BRCA2 mutations. Cancer 2004;101:2327–40.
   PubMed Web of Science ®Google Scholar
• Landsbergen KM, Prins JB, Kamm YJ, Brunner HG, Hoogerbrugge N. Female BRCA mutation carriers with a preference for prophylactic mastectomy are more likely to participate an educational-support group and to proceed with the preferred intervention within 2 years. Fam Cancer 2010;9:213–20.
   PubMed Web of Science ®Google Scholar
• White VM, Young MA, Farrelly A, Meiser B, Jefford M, Williamson E, et al. Randomized controlled trial of a telephone-based peer-support program for women carrying a BRCA1 or BRCA2 mutation: Impact on psychological distress. J Clin Oncol Epub 2014 Nov 17.
   Google Scholar
• Edelman D, McDuffie JR, Oddone E, Gierisch JM, Nagi A, Williams JW. Shared medical appointments for chronic medical conditions: A systematic review. VA Evidence-based Synthesis Program Reports. Washington, DC: Department of Veteran Affairs; 2012.
   Google Scholar
• Slyer JT, Ferrara LR. The effectiveness of group visits for patients with heart failure on knowledge, quality of life, self-care, and readmissions: A systematic review. JBI Database System Rev Implement Reports 2013;11:58–81.
   Google Scholar
• Visser A, Prins JB, Hoogerbrugge N, van Laarhoven HW. Group medical visits in the follow-up of women with a BRCA mutation: Design of a randomized controlled trial. BMC Womens Health 2011;11:39.
   PubMed Web of Science ®Google Scholar
• Trotter K, Schneider SM, Turner BS. Group appointments in a breast cancer survivorship clinic. J Adv Pract Oncol 2013;4:423–31.
   PubMedGoogle Scholar
• Visser A, van Laarhoven HW, Govaert PH, Schlooz MS, Jansen L, van Dalen T, et al. Group medical consultations in the follow-up of breast cancer: A randomized feasibility study. J Cancer Surviv Epub 2015 Jan 13.
   Google Scholar
• Seesing FM, Raats I. Gezamenlijk Medisch Consult. Een praktische handleiding. Houten: Bohn Stafleu; 2009.
   Google Scholar
• Arrindell WA, Ettema JHM. Symptom Checklist-90; Handleiding bij een multidimensionele psychopathologie-indicator. Lisse: Swets & Zeitlinger B.V.; 2003.
   Google Scholar
• van den Berg SW, van Amstel FK, Ottevanger PB, Gielissen MF, Prins JB. The cancer empowerment questionnaire: Psychological empowerment in breast cancer survivors. J Psychosoc Oncol 2013;31:565–83.
   PubMed Web of Science ®Google Scholar
• Custers JA, van den Berg SW, van Laarhoven HW, Bleiker EM, Gielissen MF, Prins JB. The Cancer Worry Scale: Detecting fear of recurrence in breast cancer survivors. Cancer Nurs 2014;37:E44–50.
   PubMed Web of Science ®Google Scholar
• Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: A quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993;85:365–76.
   PubMed Web of Science ®Google Scholar
• Sprangers MA, Groenvold M, Arraras JI, Franklin J, te Velde A, Muller M, et al. The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: First results from a three-country field study. J Clin Oncol 1996;14:2756–68.
   PubMed Web of Science ®Google Scholar
• Bowen DJ, Kreuter M, Spring B, Cofta-Woerpel L, Linnan L, Weiner D, et al. How we design feasibility studies. Am J Prev Med 2009;36:452–7.
   PubMed Web of Science ®Google Scholar
• Abraha I, Montedori A. Modified intention to treat reporting in randomised controlled trials: Systematic review. Br Med J 2010;340:c2697.
   PubMed Web of Science ®Google Scholar
• Seesing FM, Drost G, Groenewoud J, van der Wilt GJ, van Engelen BG. Shared medical appointments improve QOL in neuromuscular patients: A randomized controlled trial. Neurology 2014;83:240–6.
   PubMed Web of Science ®Google Scholar
• Lammens CR, Aaronson NK, Wagner A, Sijmons RH, Ausems MG, Vriends AH, et al. Genetic testing in Li-Fraumeni syndrome: Uptake and psychosocial consequences. J Clin Oncol 2010;28:3008–14.
   PubMed Web of Science ®Google Scholar