Parents' Priorities for AAC and Related Instruction for their Children with Angelman Syndrome

References

• Alvares, R., Downing, S. (1998). A survey of expressive communication skills in children with Angelman Syndrome. American Journal of Speech-Language Pathology, 7, 13–24.
   Google Scholar
• Anderson, W., Rasmussen, R., Stromme, P. (2001). Levels of cognitive and linguistic development in Angelman syndrome: A study of 20 children. Log Phon Vocol, 26, 2–9.
   PubMedGoogle Scholar
• Angelman Syndrome Foundation (2009). Facts about Angelman Syndrome (7th edn.). Aurora, Illinois.
   Google Scholar
• Aquino, N., Bastos, E., Fonseca, L., Llerana, J. (2002). Angelman syndrome methylation screening of 15q11-13 in institutionalized individuals with severe mental retardation. Genetic Testing, 6, 129–131.
   PubMedGoogle Scholar
• Attride-Stirling, J. (2001). Thematic networks: An analytic tool for qualitative research. Qualitative Research, 1, 385–405.
   Google Scholar
• Badcock, C., Crespi, B. (2006). Imbalanced genomic imprinting in brain development: An evolutionary basis for the aetiology of autism. European Society for Evolutionary Biology, 19, 1007–1032.
   PubMedGoogle Scholar
• Bailey, R., Parette, H., Stoner, J., Angell, M., Carroll, K. (2006). Family members' perceptions of augmentative and alternative communication device use. Language, Speech, and Hearing Services in Schools, 37, 50–60.
   PubMed Web of Science ®Google Scholar
• Beaudet, P., Madduri, A., Bacinno, C. (2004). Autism in Angelman's syndrome: Implications for autism research. Clinical Genetics, 66, 530–536.
   PubMedGoogle Scholar
• Blackstone, S., Hunt-Berg, P. (2003). Social networks: A communication inventory for individuals with complex communication needs and their communication partners. Monterey CA: Augmentative Communication, Inc.
   Google Scholar
• Braun, E. (2006, March 6). Angelman Syndrome foundation call for research proposals [electronic mailing list message]. Retrieved from http://[email protected]
   Google Scholar
• Buckley, R., Dinno, N., Weber, P. (1998). Angelman syndrome: Are the estimates too low? American Journal of Genetics, 80, 385–390.
   PubMed Web of Science ®Google Scholar
• Calculator, S. (2002). Use of enhanced natural gestures to foster interactions between children with Angelman Syndrome and their parents. American Journal of Speech-Language Pathology, 11, 340–355.
   Web of Science ®Google Scholar
• Calculator, S. (2009). Augmentative and alternative communication (AAC) and inclusive education for students with the most severe disabilities. International Journal of Inclusive Education, 13, 93–113.
   Web of Science ®Google Scholar
• Calculator, S., Black, T. (2009). Validation of a questionnaire of best practices in the provision of AAC services to students with severe disabilities in general education classrooms. American Journal of Speech-Language Pathology, 18, 329–342.
   PubMed Web of Science ®Google Scholar
• Clayton-Smith, J., Laan, L. (2003). Angelman syndrome: A review of the clinical and genetic aspects. Journal of Medical Genetics, 40, 87–95.
   PubMed Web of Science ®Google Scholar
• Cress, C. (2004). Augmentative and alternative communication and language: Understanding and responding to parents' perspectives. Topics in Language Disorders, 24, 51–61.
   Web of Science ®Google Scholar
• Cushing, L., Clark, N., Carter, E., Kennedy, C. (2005) Access to the general education curriculum for students with significant cognitive disabilities. Teaching Exceptional Children, 38, 6–13.
   Google Scholar
• Downing, J. (2002). Including students with severe and multiple disabilities in typical classrooms (2nd edn.). Baltimore: Paul H. Brookes.
   Google Scholar
• Downing, J. (2005) Inclusive education for high school students with severe intellectual disabilities: Supporting communication. Augmentative and Alternative Communication, 21, 132–148.
   Web of Science ®Google Scholar
• Downing, J., Eichinger, J. (2003). Creating learning opportunities for students with severe disabilities in inclusive classrooms. Teaching Exceptional Children, 36, 26–31.
   Google Scholar
• Goldbart, J., Marshall, J. (2004). “Pushes and pulls” on the parents of children who use AAC. Augmentative and Alternative Communication, 20, 194–208.
   Google Scholar
• Hammer, C. (1998). Toward a “thick description” of families: using ethnography to overcome the obstacles to providing family-centered early intervention services. American Journal of Speech-Language Pathology, 7, 5–22.
   Web of Science ®Google Scholar
• Huer, M., Lloyd, L. (1990). AAC users' perspectives on augmentative and alternative communication. Augmentative and Alternative Communication, 6, 242–249.
   Google Scholar
• Hunt-Berg, M. (2005). The Bridge School. Educational inclusion outcomes over 15 years. Augmentative and Alternative Communication, 21, 116–131.
   Web of Science ®Google Scholar
• Jackson, L., Ryndak, D., Billingsley, F. (2000). Useful practices in inclusive education:A preliminary view of what experts in moderate to severe disabilities are saying. Journal of the Association for Persons with Severe Handicaps, 25, 129–141.
   Web of Science ®Google Scholar
• Jorgensen, C., McSheehan, M., Sonnenmeier, R. (2006). Rating scale: Best practices that promote the learning of the general education curriculum by students with significant disabilities. Unpublished manuscript, University of New Hampshire, Durham.
   Google Scholar
• Kent-Walsh, J., Light, J. (2003). General education teachers' experiences with inclusion of students who use augmentative and alternative communication. Augmentative and Alternative Communication, 19, 104–124.
   Google Scholar
• Lieber, J., Hanson, M., Beckman, P., Odom, S., Sandall, S., Schwartz, I., Horn, E., Wolery, R. (2000). Key influences on the initiation and implementation of inclusive preschool programs. Exceptional Children, 67, 83–98.
   Web of Science ®Google Scholar
• Light, J., Parsons, A., Drager, K. (2002). There's more to life than cookies. Developing interactions for social closeness with beginning communicators who use AAC. In J. Reichle, D. Beukelman, J. Light (Eds.), Exemplary practices for beginning communicators ( pp. 187–218). Baltimore: Paul H. Brookes.
   Google Scholar
• McNaughton, D., Rackensberger, T., Benedek-Wood, E., Krezman, C., Williams, M., Light, J. (2008). “A child needs to be given a chance to succeed”: Parents of individuals who use AAC describe the benefits and challenges of learning AAC technologies. Augmentative and Alternative Communication, 24, 43–55.
   PubMed Web of Science ®Google Scholar
• Nochajski, S. (2001). Collaboration between team members in inclusive educational settings, Occupational Therapy in Health Care, 15, 101–112.
   Google Scholar
• Parette, H., Angelo, D. (1996). Augmentative and alternative communication impact on families: Trends and future directions. The Journal of Special Education, 30, 77–98.
   Web of Science ®Google Scholar
• Parette, H., Brotherson, M., Huer, M. (2000). Giving families a voice in augmentative and alternative communication decision-making. Education and Training of the Mentally Retarded, 35, 177–190.
   Google Scholar
• Sonnenmeier, R., McSheehan, M., Jorgensen, C. (2005). A case study of team supports for a student with autism's communication and engagement within the general education curriculum: Preliminary report of the Beyond Access model. Augmentative and Alternative Communication, 21, 101–115.
   Web of Science ®Google Scholar
• Soto, G., Muller, E., Hunt, P., Goetz, L. (2001). Critical issues in the inclusion of students who use Augmentative and Alternative Communication: An educational team perspective. Augmentative and Alternative Communication, 17, 62–72.
   Google Scholar
• Starble, A., Hutchins, T., Favro, M., Prelock, P., Bitner, B. (2005). Family-centered intervention and satisfaction with AAC device training. Communication Disorders Quarterly, 27, 47–54.
   Google Scholar
• Walz, N. (2007). Parent report of stereotyped behaviors, social interaction, and developmental disturbances in individuals with Angelman Syndrome. Journal of Autism and Developmental Disorders, 37, 940–947.
   PubMedGoogle Scholar
• Wilkerson, R., Northington, La Donna, Fisher, W. (2005). Angelman syndrome: An underdiagnosed disorder. The American Journal for Nurse Practitioners, 9, 55–62.
   Google Scholar
• Williams, C. (2005). Neurological aspects of Angelman syndrome. Brain and Development, 27, 88–94.
   PubMed Web of Science ®Google Scholar