3,984
Views
28
CrossRef citations to date
0
Altmetric
Intervention Note

Caregiver Perceptions of Children who have Complex Communication Needs Following a Home-based Intervention Using Augmentative and Alternative Communication in Rural Kenya: An Intervention Note

, , &
Pages 344-356 | Received 15 Jul 2013, Accepted 30 Aug 2014, Published online: 07 Nov 2014

References

  • Alant, E. (2005). AAC technology for development. In E. Alant & L. Lloyd (Eds.), Augmentative and alternative communication and severe disabilities: Beyond poverty (pp. 192–220). London: Whurr Publishers.
  • Alant, E., Kolatsis, A., & Lilienfeld, M. (2010). The effect of sequential exposure of color conditions on time and accuracy of graphic symbol location. Augmentative and Alternative Communication, 26, 41–47. doi: 10.3109/07434610903585422
  • Alant, E., & Moolman, E. (2001). Blissymbol learning as a tool for facilitating language and literacy development. South African Journal of Education, 21, 339–343.
  • Ambikile, J. S., & Outwater, A. (2012). Challenges of caring for children with mental disorders: Experiences and views of caregivers attending the outpatient clinic at Muhimbili National Hospital, Dar es Salam, Tanzania. Child Adolescent Psychiatry Mental Health, 6, 6. Retrieved from http://www.capmh.com/content/6/1/16
  • Baker, H., & Hartley, S. (1998). Designing a communication ability outcome measuring tool. (Unpublished master's thesis). London: UCL.
  • Baker, H., & Hartley, S. (1999). Piloting a communication ability outcome measuring tool in Uganda. Department for International Development (DIFID, UK), Report, School-aged Child Health Programme. London: Centre for International Child Health, Institute of Child Health.
  • Basson, M., & Alant, E. (2005). The iconicity and ease of learning of Picture Communication Symbols: A study with Afrikaans-speaking children. The South African Journal of Communication Disorders, 52, 5–12.
  • Bondy, A. S., & Frost, L. A. (1994). The picture exchange system. Focus on Autistic Behaviour, 9, 1–19.
  • Bornman, J., Alant, E., & Du Preez, A. (2009). Translucency and learnability of Blissymbols in Setswana-speaking children: An exploration. Augmentative and Alternative Communication, 25, 287–298. doi: 10.3109/07434610903392456
  • Bornman, J., Nelson Bryen, D., Kershaw, P., & Ledwaba G. (2011). Reducing the risk of being a victim of crime in South Africa: You can tell and be heard. Augmentative and Alternative Communication, 27, 117–130. doi: 10.3109/07434618.2011.566696
  • Bunning, K., Gona, J., Buell, S., Newton, C., & Hartley, S. (2013). Investigation of practices to support the complex communication needs of children with hearing impairment and cerebral palsy in a rural district of Kenya. International Journal of Language & Communication Disorders, 48, 689–702. doi: 10.1111/1460-6984.12042.
  • Cameron, D., & Markowicz, L. (2013). Augmentative and alternative communication: International perspectives. Occupational Therapy Now, 11, 12–14.
  • Chang, M-Y., & McConkey, R. (2008). The perceptions and experiences of Taiwanese parents who have children with an intellectual disability. International Journal of Disability, Development and Education, 55, 27–41. doi: 0.1016/j.ijnurstu.2006.08.007
  • Crowley, C., & Baigorri, M. (2012). AAC Market Cards in Ghana, West Africa for students with autism and intellectual disabilities. Retrieved from http://www.youtube.com/watch?v = uJG2K0fFBoQ
  • Ensor, T., & Cooper, S. (2004). Overcoming barriers to health service access: Influencing the demand side. Health Policy and Planning, 19, 69–79. doi: 10.1093/heapol/czh009
  • Ferm, U., Ahlsén, E., & Björck-Åkesson, E. (2012). Patterns of communicative interaction between a child with severe speech and physical impairments and her caregiver during mealtime activity. Journal of Intellectual and Developmental Disability, 37, 11–26.
  • Ferm, U., Andersson, M., Broberg, M., Liljegren, T., & Thunberg, G. (2011). Parents and course leaders’ experiences of the ComAlong augmentative and alternative communication early intervention course. Disability Studies Quarterly, 31, 1–25.
  • Geere, J. L., Gona, J., Omondi, F. O., Kifalu, M. K., Newton, C. R., & Hartley, S. (2012). Caring for children with physical disability in Kenya: Potential links between caregiving and carer's physical health. Child: Care, Health and Development, 39, 381–392. doi:10.1111/j.1365-2214.2012.01398.x
  • Girolametto, L., Sussman, F., & Weitzman, E. (2007). Using case study methods to investigate the effects of interactive intervention for children with autistic spectrum disorders. Journal of Communication Disorders, 40, 470–492. doi: 0.1016/j.jcomdis.2006.11.001
  • Gona, J. K., Mung'ala-Odera, V., Newton, C. R., & Hartley, S. (2010). Caring for children with disabilities in Kilifi, Kenya: What is the carer's experience? Child: Care, Health and Development, 37, 175–183. doi: 10.1111/j.1365-2214.2010.01124.x.
  • Gona, J. K., Newton, C. R., Hartley, S., & Bunning, K. (2013). A home-based intervention using Augmentative and Alternative Communication (AAC) techniques in rural Kenya: What are the carers’ experiences? Child: Care, Health, and Development. Advance online publication. doi:10.1111/cch.12031
  • Granlund, M., Björck-Åkesson, E., Wilder, J., & Ylvén, R. (2008). AAC interventions for children in a family environment: Implementing evidence in practice. Augmentative and Alternative Communication, 24, 207–219. doi:10.1080/08990220802387935
  • Hamzat, T. K., & Mordi, E. L. (2007). Impact of caring for children with cerebral palsy on the general health of their caregivers in the African community. International Journal of Rehabilitation Research, 30, 191–194.
  • Hartley, S. (1997). Development of a communication disability model and its application to service delivery in less developed countries. (Unpublished doctoral thesis). London: Centre for International Child Health, Institute of Child Health.
  • Hartley, S. (1998). Children with verbal communication disabilities in Eastern Uganda. African Journal of Special Needs Education, 1, 11–18.
  • Hartley, S., & Wirz, S. (2002). Development of a ‘communication disability model’ and its implication on service delivery in low-income countries. Social Science & Medicine 54, 1543–1557. Retrieved from http://dx.doi.org/10.1016/S0277-9536(01)00136-8.
  • Hastings, R., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behaviouralbehavioural intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327–336.
  • Haupt, L., & Alant, E. (2002). The iconicity of selected picture communication symbols for rural Zulu-speaking children. South African Journal of Communication Disorders, 49, 40–49.
  • Jochmann, A. (2006). Speech and language treatment in East Africa. The ASHA Leader. Retrieved from: Retrieved from http://www.asha.org/Publications/leader/2006/060207/f060207b.htm
  • Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child: Care, Health and Development, 28, 123–129. doi: j.1365-2214.2002.00251.x
  • Kent-Walsh, J., Binger, C., & Hasham, Z. (2010). Effects of parent instruction on the symbolic communication of children using Augmentative and Alternative Communication during storybook reading. American Journal of Speech-Language Pathology, 19, 97–107. doi: 10.1044/1058-0360(2010/09-0014)
  • Kenya National Bureau for Statistics (KNBS). (2005/2006). Kenya Integrated Household Budget Survey (KIHBS) 2005 and 2006. Retrieved from http://www.knbs.or.ke/pdf/Basic%20Report%20(Revised%20Edition).pdf
  • Kim, J. M., & Mahoney, G. (2005). The effects of relationship focused intervention on Korean parents and their young children with disabilities. Research in Developmental Disabilities, 26, 117–130. doi: 101.1016/j.ridd.2004.08.001
  • Latham, C. (2005). Developing and using a communication book. Headington: Ace Centre Advisory Trust.
  • Light, J., & Drager, K. (2010). Early intervention for young children with autism, cerebral palsy, Down syndrome and other disabilities website. Retrieved from http://aackids.psu.edu/index.php/page/show/id/
  • Makinen, M., Waters, H., Rauch, M., Almagambetova, N., Bitran, R., Gilson, L., … & Ram, S., (2000). Inequalities in health care use and expenditures: Empirical data from eight developing countries and countries in transition. Bulletin of the World Health Organization, 78, 55–65.
  • Marshall, J., & Goldbart, J. (2008). ‘Communication is everything I think.’ Parenting a child who needs Augmentative and Alternative Communication (AAC). International Journal of Language & Communication Disorders, 43, 77–98. doi: 10.1080/13682820701267444
  • Mayer, P., & Lowenbraun, S. (1990). Total communication use among elementary teachers of hearing impaired children. American Annals of the Deaf, 135, 257–263.
  • Mayer-Johnson (1981–2008). Picture Communication Symbols. Boardmaker Plus v.6. www.mayer-johnson.co.uk
  • McIntyre, L. L., & Abbeduto, L. (2008). Parent training for young children with developmental disabilities: Randomised controlled trial. American Journal on Mental Retardation, 113, 356–368. doi: 10.1352/2008.113:356-368
  • Moïsi, J. C., Nokes, J. D., Gatakaa, H., Williams, T. N., Bauni, E., Levine, O. S., & Scott, A. G. (2011). Sensitivity of hospital-based surveillance for severe disease: A geographic information system analysis of access to care in Kilifi district, Kenya. Bulletin of the World Health Organization, 89, 102–111. Retrieved from http://dx.doi.org/10.1590/S0042-96862011000200009
  • Mukhopadhyay, S., & Nwaogu, P. (2009). Barriers to teaching non-speaking learners with intellectual disabilities and their impact on the provision of augmentative and alternative communication. International Journal of Disability, Development and Education, 56, 349–362. doi:10.1080/10349120903306590
  • Mung'ala-Odera, V., Meehan, R., Njuguna, P., Mturi, N., Alcock, K. J., & Newton, C. R. (2006). Prevalence and risk factors of neurological disability and impairment in children living in rural Kenya. International Journal of Epidemiology, 35, 683–688. doi: 10.1093/ije/dyl023
  • Nakajima, H. (1985). WHO response to global change. World Health Forum International Journal of Health Development, 16, 212–214.
  • Nind, M., & Hewett, D. (1994). Access to communication. London: David Fulton.
  • Nunes, D., & Hanline, M. F. (2007). Enhancing the alternative and augmentative communication use of a child with autism through a parent-implemented naturalistic intervention. International Journal of Disability, Development & Education, 4, 177–197. doi:10.1080/10349120701330495
  • Ockleford, A. (1994). Objects of reference. London: RNIB.
  • Park, K. (1997). How do objects become objects of reference. British Journal of Special Education, 24, 108–114. doi: 10.1111/1467-8527.00025
  • Pennington, L., Miller, N., & Robson, S. (2010). Speech therapy for children with dysarthria acquired before three years of age (Review). The Cochrane Collaboration. The Cochrane Library, Issue 1. London: Wiley. Retrieved from http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD006937.pub2/pdf/standard
  • Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., King, G., Walter, S.D.,. & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Paediatrics, 115, 626–e636. doi: 10.1542/peds.2004-1689
  • Raina, P., O’Donnell, M., Schwqellnus, H., Rosenbaum, P., King, G., Brehaut, J.,… & Wood, E. (2004). Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics, 4, 1–13. Retrieved from http://www.biomedcentral.com/1471-2431/4/1
  • Roberts, M. Y., & Kaiser, A. P. (2012). Assessing the effects of a parent-implemented language intervention for children with language impairments using empirical benchmarks: A pilot study. American Journal of Speech, Language, and Hearing Research, 55, 1655–1670. doi: 10.1044/1092-4388(2012/ 11-0236)
  • Romski, M., Sevcik, R. A., Adamson, L. B., Smith, A., Cheslock, M., & Bakeman, R. (2011). Parent perceptions of the language development of toddlers with developmental delays before and after participation in parent-coached language interventions. American Journal of Speech-Language Pathology, 20, 111–118. doi: 10.1044/1058-0360(2011/09-0087)
  • Scott, J. A. G., Bauni, E., Moisi, J. C., Ojal, J., Gatakaa, H., Nyundo, C., Molyneux, C. S., & Kombi, F, (2012). Profile: The Kilifi Health and Demographic Surveillance System (KHDSS). International Journal of Epidemiology Advance Access, 1–8. doi:10.1093/ ije/dys062
  • Sen, R., & Goldbart, J. (2005). Partnership in action: Introducing family-based intervention for children with disability in urban slums of Kolkata, India. International Journal of Disability, Development and Education, 52, 275–311. doi: 10.1080/10349120500348623
  • Shin, J. Y., Nhan, N. V., Lee, S. B., Crittenden, K. S., Flory, M., & Hong, H. T. D. (2009). The effects of a home-based intervention for young children with intellectual disabilities in Vietnam. Journal of Intellectual Disability Research, 53, 339–352. doi: 10.1111/j.1365-2788.2008.01151.x
  • Simeonsson, R. J., Björck-Åkessön, E., & Lollar, D. J. (2012). Communication, disability, and the ICF-CY. Augmentative and Alternative Communication, 28, 3–10. doi: 10.3109/ 07434618.2011.653829
  • Staley, B. (2013, February), Speech language therapy in East Africa: Developments in the region. S & L World. Retrieved from http://bea-yellowhouse.blogspot.co.uk/2013/03/speech-language-therapy-in-east-africa.html
  • Wadnerkar, M., Pirinen, T., Haines-Bazrafshan, R., Rodgers, J., & James, D. (2011). A single case study of a family-centred intervention with a young girl with cerebral palsy who is a multimodal communicator. Child: Care, Health and Development, 38, 87–97. doi: 10.1111/j.1365-2214.2011.01214.x
  • WHO (1997). Let's communicate: A handbook for people working with children with communication difficulties. Geneva: World Health Organization.
  • World Bank (2011). Population total. Retrieved from http://data.worldbank.org/indicator/SP.POP.TOTL
  • World Health Organization (1999). ICIDH-2 International Classification of Functioning, Disability and Health . Beta 2 draft, full version. Geneva: Author.
  • World Health Organization (2001). International Classification of Functioning, Disability and Health (ICF) Retrieved from http://www.who.int/classifications/icf/en/
  • World Health Organization, Disability & Rehabilitation Team. (2004). Disability and rehabilitation status: Review of disability issues and rehabilitation services in 29 African countries. Geneva: Author.
  • World Health Organization (2010a). International Statistical Classification of Diseases and Related Health Problems - 10th Revision, Retrieved from http://apps.who.int/classifications/icd10/browse/2010/en
  • World Health Organization (2010b). Health component. In: Community-based rehabilitation guidelines (pp. 57–72). Geneva: World Health Organization, The World Bank.
  • World Health Organization and the World Bank (2011). Rehabilitation. In: World Report on Disability (pp. 93–123). Geneva: World Health Organization.
  • Wormnaes, S., & Malek, Y. A. (2004). Egyptian speech therapists want more knowledge about augmentative and alternative communication. Augmentative and Alternative Communication, 20, 30–41. doi: 10.1080/07434610310001629571
  • Wylie, K., McAllister, L., Davidson, B., & Marshall, J. (2013). Changing practice: Implications of the World Report on Disability for responding to communication disability in under-served populations. International Journal of Speech-Language Pathology, 15, 1–13. doi: 10.3109/17549507.2012.745164
  • Wylie, K., McAllister, L., Marshall, J., Wickenden, M., & Davidson, B. (2012, January).Overview of issues and needs for new SLP university programs in developing countries. Paper presented at the 4th East African Conference on Communication Disability, Kampala, Uganda.