A Dutch ICF Version of the Activity Inventory: Results from Focus Groups with Visually Impaired Persons and Experts

REFERENCES

• Congdon N, O’Colmain B, Klaver CC, Klein R, Munoz B, Friedman DS, Kempen J, Taylor HR, Mitchell P. Causes and prevalence of visual impairment among adults in the United States. Arch Ophthalmol 2004;122(4):477–485.
   PubMed Web of Science ®Google Scholar
• Limburg, H. Epidemiologie van visuele beperkingen en een demografische verkenning. [Epidemiology of visual disabilities and a demographic investigation]; 2007. Report commissioned by the Netherlands organization for health research and development (ZonMw) and the InSight Society.
   Google Scholar
• de Boer MR, Langelaan M, Jansonius NM, van Rens GHMB. Evidence-based guidelines on the referral of visually impaired persons to low vision services. Eur J Ophthalmol. 2005;15:400–406.
   PubMed Web of Science ®Google Scholar
• Lamoureux EL, Hassell JB, Keeffe JE. The determinants of participation in activities of daily living in people with impaired vision. Am J Ophthalmol 2004;137(2):265–270.
   Google Scholar
• de Boer, M. R. Quality of life of visually impaired elderly. 2005 [dissertation]. Optima Grafische Communicatie: Free University Amsterdam; 2005.
   Google Scholar
• WHO. International classification of functioning, disability and health. 2001;Geneva: World Health Organisation.
   Google Scholar
• Jelsma J. Use of the International Classification of Functioning, Disability and Health: a literature survey. J Rehabil Med 2009;41:1–12.
   PubMed Web of Science ®Google Scholar
• Massof RW, Hsu CT, Baker FH, Barnett GD, Park WL, Deremeik JT, Rainey C, Epstein C. Visual disability variables. II: The difficulty of tasks for a sample of low-vision patients. Arch Phys Med Rehabil 2005;86(5):954–967.
   PubMed Web of Science ®Google Scholar
• Massof RW, Hsu CT, Baker FH, Barnett GD, Park WL, Deremeik JT, Rainey C, Epstein C. Visual disability variables. I: the importance and difficulty of activity goals for a sample of low-vision patients. Arch Phys Med Rehabil 2005;86(5):946–953.
   PubMed Web of Science ®Google Scholar
• Massof RW. A systems model for low vision rehabilitation. I. Basic concepts. Optom Vis Sci 1995;72(10):725–736.
   Google Scholar
• Massof RW. A systems model for low vision rehabilitation. II. Measurement of vision disabilities. Optom Vis Sci 1998;75(5):349–373.
   Google Scholar
• Langelaan M, de Boer MR, van Nispen RM, Wouters B, Moll AC, van Rens GH. Change in quality of life after rehabilitation: prognostic factors for visually impaired adults. Int J Rehabil Res 2009;32(1):12–19.
   Google Scholar
• Langelaan M, de Boer MR, van Nispen RM, Wouters B, Moll AC, van Rens GH. Impact of visual impairment on quality of life: a comparison with quality of life in the general population and with other chronic conditions. Ophthalmic Epidemiol 2007;14(3):119–126.
   Google Scholar
• van Nispen RM, de Boer MR, van Rens GH. Additional psychometric information and vision-specific questionnaires are available for age-related macular degeneration. Qual Life Res 2009;18(1):65–69.
   Google Scholar
• van Nispen RMA, Knol DL, Neve HJ, van Rens GHMB. A multilevel item response theory model was investigated for longitudinal vision-related quality-of-life data. J Clin Epidemiol 2010;63(3):321–330.
   Google Scholar
• Cieza A, Chatterji S, Andersen C, Cantista P, Herceg M, Melvin J, Stucki G, de BR. ICF Core Sets for depression. J Rehabil Med 2004; 44 Suppl:128–134.
   PubMedGoogle Scholar
• Cieza A, Ewert T, Ustun TB, Chatterji S, Kostanjsek N, Stucki G. Development of ICF Core Sets for patients with chronic conditions. J Rehabil Med 2004; 44 Suppl: 9–11.
   PubMed Web of Science ®Google Scholar
• Vaughn S, Schumm JS, Sinagub JM. Focus Group Interviews in Education and Psychology. California: SAGE Publications, Inc., 1996.
   Google Scholar
• Burggraaff MC, van Nispen MA, de Boer MR, van Rens GHMB. Optometric and multidisciplinary approaches in prescribing low vision aids-revised. Visual Impairment Research 2006;8:17–24.
   Google Scholar
• Becker SW, Lambert RW, Schulz M, Wright BD, Burnet DL. An instrument to measure the activity level of the blind. Int J Rehabil Res 1985;8(4):415–424.
   Google Scholar
• Weih LM, Hassell JB, Keeffe J. Assessment of the impact of vision impairment. Invest Ophthalmol Vis Sci 2002;43(4):927–935.
   PubMedGoogle Scholar
• Frost NA, Sparrow JM, Durant JS, Donovan JL, Peters TJ, Brookes ST. Development of a questionnaire for measurement of vision-related quality of life. Ophthalmic Epidemiol 1998;5(4):185–210.
   Google Scholar
• Wolffsohn JS, Cochrane AL. Design of the low vision quality-of-life questionnaire (LVQOL) and measuring the outcome of low-vision rehabilitation. Am J Ophthalmol 2000;130(6):793–802.
   Google Scholar
• Mangione CM, Lee PP, Gutierrez PR, Spritzer K, Berry S, Hays RD. Development of the 25-item National Eye Institute Visual Function Questionnaire. Arch Ophthalmol 2001;119(7):1050–1058.
   PubMedGoogle Scholar
• Mangione CM, Berry S, Spritzer K, Janz NK, Klein R, Owsley C, Lee PP. Identifying the content area for the 51-item National Eye Institute Visual Function Questionnaire: results from focus groups with visually impaired persons. Arch Ophthalmol 1998;116(2):227–233.
   PubMedGoogle Scholar
• Hart PM, Chakravarthy U, Stevenson MR, Jamison JQ. A vision specific functional index for use in patients with age related macular degeneration. Br J Ophthalmol 1999;83(10):1115–1120.
   PubMed Web of Science ®Google Scholar
• Schulz E.M., Lambert R.W., Becker S.W., Wright B.D., Bezruczko M.A. An Assessment of the needs of rehabilitated veterans. J Visual Impair Blin 1985;79:301–305.
   Google Scholar
• Steinberg EP, Tielsch JM, Schein OD, Javitt JC, Sharkey P, Cassard SD, Legro MW, ener-West M, Bass EB, Damiano AM,. The VF-14. An index of functional impairment in patients with cataract. Arch Ophthalmol 1994;112(5):630–638.
   PubMedGoogle Scholar
• Stelmack JA, Szlyk JP, Stelmack TR, mers-Turco P, Williams RT, Moran D, Massof RW. Psychometric properties of the Veterans Affairs Low-Vision Visual Functioning Questionnaire. Invest Ophthalmol Vis Sci 2004;45(11):3919–3928.
   Google Scholar
• Horowitz A, Reinhardt JP. Development of the adaptation tot age-related vision loss scale. J Visual Impair Blin 1998;92:30–41.
   Web of Science ®Google Scholar
• Heerkens YF, van Ravensberg CD. Toepassingsmogelijkheden van de multiprofessionele International Classification of Functioning, Disability and Health (ICF) in de paramedische zorg. [Application of the multiprofessional International Classification of Functioning, Disability and Health (ICF) in paramedical care] Amersfoort: Nederlands Paramedisch Instituut (NPi), 2007.
   Google Scholar
• Stucki G, Ewert T, Cieza A. Value and application of the ICF in rehabilitation medicine. Disabil Rehabil 2003;25(11–12):932–938.
   Google Scholar
• Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37(4):212–218.
   PubMed Web of Science ®Google Scholar
• Rauch A, Cieza A, Stucki G. How to apply the International Classification of Functioning, Disability and Health (ICF) for rehabilitation management in clinical practice. Eur J Phys Rehabil Med 2008;44(3):329–342.
   PubMedGoogle Scholar
• Creswell J. Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage Publications, 1998.
   Google Scholar
• McDonagh-Philp D, Bruseberg A. The use of focus groups in design research: A literature review. In Scrivener SAR, Ball LJ, Woodcock A, editors. CoDesigning 2000 adjunct proceedings. Coventry: 2000:47–52.
   Google Scholar
• Vogt DS, King DW, King LA. Focus groups in psychological assessment: enhancing content validity by consulting members of the target population. Psychol Assess 2004;16(3):231–243.
   Google Scholar
• Erlandson DA, Harris EL, Skipper BL, Allen SD. Doing naturalistic inquiry: A guide to methods. London: Sage, 1993.
   Google Scholar
• Slavin M, Kisala P, Jette A, Tulsky D. Developing a contemporary functional outcome measure for spinal cord injury research. Spinal Cord 2009 Oct 20. [Epub ahead of print]
   Google Scholar
• Pesudovs K. Patient-centred measurement in ophthalmology—a paradigm shift. BMC Ophthalmol 2006;6:25.
   PubMedGoogle Scholar
• Reeve BB, Burke LB, Chiang YP, Clauser SB, Colpe LJ, et al. Enhancing measurement in health outcomes research supported by agencies within the US Department of Health and Human Services. Qual Life Res 2007;16 Suppl 1:175–186.
   Google Scholar