References
- Abrams, A.N., Hazen, E.P. & Penson, R.T. (2007). Psychosocial issues in adolescents with cancer. Cancer Treatment Reviews, 33(7), 622–630.
- Abrams, A. & Rauch, P. (2008). Child psychiatry consultation. In M. Rutter & E. Taylor (Eds), Rutter's Textbook of Child and Adolescent Psychiatry (5th ed., pp. 23(5) 1143–1155). Oxford: Blackwell.
- Alderfer, M.A., Navsaria, N. & Kazak, A.E. (2009). Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer. Journal of Family Psychology, 23(5), 717–725.
- Askins, M. & Moore, B. (2008). Psychosocial support of the pediatric cancer patient: Lessons learned over the past 50 years. Current Oncology Reports, 10(6), 469–476.
- Dunn, L. (2010). The importance of touch in the development of attachment. Advances in Neonatal Care, 10, 294–300.
- Eapen, V., Mabrouk, A.A. & Bin-Othman, S. (2008). Attitudes, perceptions, and family coping in pediatric cancer and childhood diabetes. Annals of the New York Academy of Sciences, 1138, 47–49.
- FDA (2013). Food and Drug Administration web page. Retrieved from http://www.fda.gov/Drugs/default.htm (accessed 29 August 2013).
- Giedd, J.N. (2008). The teen brain: Insights from neuroimaging. Journal of Adolescent Health, 42, 335–343.
- Halpern-Felsher, B. (2009). Adolescent decision-making: An overview. Prevention Researcher, 16, 3–7.
- Hewitt, M., Weiner, S.L. & Simone, J.V. for the National Cancer Policy Board. (2003). Childhood cancer survivorship: Improving care and quality of life. Washington, DC: National Academies Press.
- Hudson, M.M., Mulrooney, D.A., Bowers, D.C., Sklar, C.A., Green, D.M., Donaldson, S.S., … Robinson, L.L. (2009). High-risk populations identified in Childhood Cancer Survivor Study Investigations: Implications for risk-based surveillance. Journal of Clinical Oncology, 27, 2405–2414.
- Izraeli, S. & Rechavi, G. (2012). Cancer in children: An overview. In S. Kreitler, M.W. Ben-Arush & A. Martin (Eds), Pediatric Psycho-Oncology Psychosocial Aspects and Clinical Interventions (pp. 3–6). Oxford: Wiley-Blackwell.
- Janssen, N.J., Tan, E.Y., Staal, M., Janssen, E.P., Leroy, P.L., Lousberg, R., … Schieveld, J.N. (2011). On the utility of diagnostic instruments for pediatric delirium in critical illness: An evaluation of the Pediatric Anesthesia Emergence Delirium Scale, the Delirium Rating Scale 88, and the Delirium Rating Scale-Revised R-98. Intensive Care Medicine, 37, 1331–1337.
- Kazak, A.E., DeRosa, B.W., Schwartz, L.A., Hobbie, W., Carlson, C., Ittenbach, R.F., … Ginsberg, J.P. (2010). Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls. Journal of Clinical Oncology, 28, 2002–2007.
- Kersun, L.S. & Elia, J. (2007). Depressive symptoms and SSRI use in pediatric oncology patients. Pediatric Blood and Cancer, 49, 881–887.
- Kersun, L.S., Rourke, M.T., Mickley, M. & Kazak, A.E. (2009). Screening for depression and anxiety in adolescent cancer patients. Journal of Pediatric Hematology Oncology, 31, 836–839.
- Knapp, C.A., Quinn, G.P. & Murphy, D. (2011). Assessing the reproductive concerns of children and adolescents with cancer: Challenges and potential solutions. Journal of Adolescent and Young Adult Oncology, 1, 31–35.
- Kurtz, B. & Abrams, A. (2010). Psychiatric aspects of pediatric cancer. Child and Adolescent Psychiatric Clinics of North America, 19(2), 401–421.
- Lyon, M.E., Jacobs, S., Briggs, L., Cheng, Y.I. & Wang, J. (2013). Family-centered advance care planning for teens with cancer. Journal of the American Medical Association Pediatrics, 176, 460–467.
- Oosterhuis, B.E., Goodwin, T., Kiernan, M., Hudson, M.M. & Dahl, G.V. (2008). Concerns about infertility risks among pediatric oncology patients and their parents. Pediatric Blood and Cancer, 50, 85–89.
- Palmer, S., Mitchell, A., Thompson, K. & Sexton, M. (2007). Unmet needs among adolescent cancer patients: A pilot study. Palliative and Supportive Care, 5(2), 127–134.
- Pao, M., Ballard, E.D., Rosenstein, D.L., Wiener, L. & Wayne, A.S. (2006). Psychotropic medication use in pediatric patients with cancer. Archives of Pediatric Adolescent Medicine, 160, 818–822.
- Pao, M., Ballard, E.D. & Rosenstein, D.L. (2007). Growing up in the hospital. Journal of American Medical Association, 277, 2752–2755.
- Patenaude, A. & Kupst, M.J. (2005). Psychosocial functioning in pediatric cancer. Journal of Pediatric Psychology, 30, 9–27.
- Patenaude, A.F., Grootenhuis, M. & Noll, R. (2011). Pediatric psycho-oncology comes of age: SIOP 2010. Pediatric Blood and Cancer, 56(7), 1154.
- Patino-Fernandez, A.M., Pai, A.L., Alderfer, M., Hwang, W.T., Reilly, A. & Kazak, A.E. (2008). Acute stress in parents of children newly diagnosed with cancer. Pediatric Blood and Cancer, 289–292.
- Phipps, S., Buckholdt, K.E., Fernandez, L., Wiener, L., Kupst, M.J., Madan-Swain, A., … Noll, R.B. (2012). Pediatric oncologists’ practices of prescribing selective serotonin reuptake inhibitors (SSRIs) for children and adolescents with cancer: A multi-site study. Pediatric Blood and Cancer, 58, 210–215.
- Poder, W., Ljungman, G. & von Essen, L. (2008). Post-traumatic stress disorder among parents of children on cancer treatment: A longitudinal study. Psycho-Oncology, 17, 430–437.
- Portteus, A., Ahmad, N., Tobey, D. & Leavey, P. (2006). Prevalence and use of antidepressant medication in pediatric cancer patients. Journal of Child and Adolescent Psychopharmacology, 16, 467–473.
- Quinn, G.P., Murphy, D., Knapp, C., Stearsman, D.K., Bradley-Klug, K.L., Sawczyn, K. & Clayman, M.L. (2011). Who decides? Decision making and fertility preservation in teens with cancer: A review of the literature. Journal of Adolescent Health, 49, 337–346.
- Ris, M.D., Beebe, D.W., Armstrong, F.D., Fontanesi, J., Holmes, E., Sanford, R.A., … Children's Oncology Group. (2008). Cognitive and adaptive outcome in extracerebellar low-grade brain tumors in children: A report from the Children's Oncology Group. Journal of Clinical Oncology, 26, 4765–4770.
- Rivero-Vergne, A., Berrios, R. & Romero, I. (2011). The return to the community after cancer treatment: From safety to reality check. Journal of Psychosocial Oncology, 29, 67–82.
- Robinson, K.E., Gerhardt, C.A., Vannatta, K. & Noll, R.B. (2007). Parent and family factors associated with child adjustment to pediatric cancer. Journal of Pediatric Psychology, 32, 400–410.
- Rosenberg, A.R., Dussel, V., Kang, T., Geyer, J.R., Gerhardt, C.A., Deudtner, C. & Wolfe, J. (2013). Psychological distress in parents of children with advanced cancer. Journal of the American Medical Association of Pediatrics, 167, 537–543.
- Ruland, C.M., Hamilton, G.A. & Schjodt-Osmo, B. (2009). The complexity of symptoms and problems experienced in children with cancer: A review of the literature. Journal of Pain and Symptom Management, 37, 403–418.
- Schover, L.R. (2009). Patient attitudes toward fertility preservation. Pediatric Blood Cancer, 53, 281–284.
- Shemesh, E., Yehuda, R., Rockmore, L., Shneider, B.L., Emre, S., Bartell, A.S., … Newcorn, J.H. (2005). Assessment of depression in medically ill children presenting to pediatric subspecialty clinics. Journal of the American Academy of Child and Adolescent Psychiatry, 44, 1249–1257.
- Silver, G., Traube, C., Kearney, J., Kelly, D., Yoon, M.J., Moyal, W.N., … Ward, M.J. (2012). Detecting pediatric delirium: Development of a rapid observational assessment tool. Intensive Care Medicine, 38, 1025–1031.
- Smith, H.A.B., Boyd, J., Fuchs, C., Melvin, K., Berry, P., Shintani, A., … Ely, E.W. (2011). Diagnosing delirium in critically ill children: Validity and reliability of the Pediatric Confusion Assessment Method for the intensive care unit. Critical Care Medicine, 39, 150–157.
- Stuber, M. (2013). Psychiatry impact of childhood cancer. In S. Kreitler, M.W. Ben-Arush & Martin, A. (Eds), Pediatric Psycho-Oncology Psychosocial Aspects and Clinical Interventions(pp. 43–51). Oxford: Wiley-Blackwell.
- Stuber, M. & Strom, E. (2012). Pediatric psycho-oncology. In L. Glassi & M. Riba (Eds), Clinical Psycho-Oncology: An International Perspective (pp. 139–153). Oxford: Wiley Blackwell.
- Stuber, M., Meeske, K., Krull, K., Leisenring, W., Stratton, K., Kazak, A., .. Zeltzer, L. (2010). Prevalence and predictors of posttraumatic stress disorder in adult survivors of childhood cancer. Pediatrics, 125, 1124–1134.
- Stuber, M.L., Schneider, S., Kassam-Adams, N., Kazak, A.E. & Saxe, G. (2006). The medical traumatic stress toolkit. CNS Spectrums, 11, 137–142.
- Tates, K., Zwaanswijk, M., Otten, R., van Dulmen, S., Hoogerbrugge, P.M., Kamps, W.A. & Bensing, J.M. (2009). Online focus groups as a tool to collect data in hard-to-include populations: Examples from paediatric oncology. BMC Medical Research Methodology, 9, 9–1.
- Turkel, S.B., Trzepacz, P.T. & Tavaré, C.J. (2006). Comparing symptoms of delirium in adults and children. Psychosomatics, 47, 320–324.
- Turkel, S.B., Jacobson, J., Munzig, E. & Tavare, C.J. (2012). Atypical antipsychotic medications to control symptoms of delirium in children and adolescents. Journal of Child and Adolescent Psychopharmacology, 22, 126–130.
- Tyc, V.L., Mulhern, R.K., Barclay, D.R., Smith, B.F. & Bieberich, A.A. (1997). Variables associated with anticipatory nausea and vomiting in pediatric cancer patients receiving ondansetron antiemetic therapy. Journal of Pediatric Psychology, 22, 45–58.
- US Cancer Statistics Working Group. (2010). United States Cancer Statistics: 1999–2007 Cancer Incidence and Mortality Data, Web-based Report. Atlanta, GA: US Department of Health and Human Services, Center for Disease Control and Prevention and National Cancer Institute. Retrieved from http://apps.nccd.cdc.gov/uscu/
- Varni, J.W., Katz, E.R., Colegrove, R. Jr & Dolgin, M. (1996). Family functioning predictors of adjustment in children with newly diagnosed cancer: A prospective analysis. Journal of Child Psychology and Psychiatry, 37, 321–328.
- Wakefield, C.E., McLoone, J., Goodenough, B., Lenthen, K., Cairns, D.R. & Cohn, R.J. (2010). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology, 33, 262–274.
- Walter, J.K., Rosenberg, A.R. & Feudtner, C. (2013). Tackling taboo topics – How to have effective advanced care planning discussions with adolescents and young adults with cancer. Journal of the American Medical Association of Pediatrics, 167, 489–490.
- Wiener, L., Ballard, E., Brennan. T., Battles, H., Martinez, P. & Pao, M. (2008). How I wish to be remembered: The use of an advance care planning document in adolescent and young adult populations. Journal of Palliative Medicine, 11, 1309–1313.
- Wiener, L. & Pao, M. (2012). Comprehensive and family centered psychosocial care in pediatric oncology: Integration of clinical practice and research. In S. Kreitler, M.W. Ben-Arush & A. Martin (Eds), Pediatric Psycho-Oncology Psychosocial Aspects and Clinical Interventions (pp. 7–16). Oxford: Wiley-Blackwell.
- Wiener, L., Zadeh, S., Battles, H., Baird, K., Ballard. E., Osherow, J. & Pao, M. (2012). Allowing adolescents and young adults to plan their end-of-life care. Pediatrics, 130, 897–905.
- Zebrack, B.J., Casillas, J., Nohr, L., Adams, H. & Zeltzer, L.K. (2004). Fertility issues for young adult survivors of childhood cancer. Psycho-Oncology, 13(10), 689–699.
- Zeltzer, L.K., Recklittis, C., Buchbinder, D., Zebrack, B., Casillas, J., Tsao, J.C.I., … Krull, K. (2009). Psychological status in childhood cancer survivors: A report from the childhood cancer survivor study. Journal of Clinical Oncology, 27, 2396–2400.