Being in- or out-of-sync: Couples' adaptation to change in multiple sclerosis

References

• Keegan BM, Noseworthy JH. Multiple sclerosis. Annu Rev Med 2002;53:285–302.
   PubMed Web of Science ®Google Scholar
• Kalb R. The emotional and psychological impact of multiple sclerosis relapses. J Neurol Sci 2007;256 (Suppl 1):S29–S33.
   PubMed Web of Science ®Google Scholar
• Joy JE, Johnston RB, editors. Multiple sclerosis: current status and strategies for the future. Washington, D.C.: National Academy Press; 2001.
   Google Scholar
• McKeown LP, Porter-Armstrong AP, Baxter GD. The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clin Rehabil 2003;17:234–248.
   PubMed Web of Science ®Google Scholar
• Figved N, Myhr KM, Larsen JP, Aarsland D. Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms. J Neurol Neurosurg Psychiatry 2007;78:1097–1102.
   PubMed Web of Science ®Google Scholar
• Cheung J, Hocking P. Caring as worrying: the experience of spousal carers. J Adv Nurs 2004;47:475–482.
   PubMed Web of Science ®Google Scholar
• Cheung J, Hocking P. The experience of spousal carers of people with multiple sclerosis. Qual Health Res 2004;14:153–166.
   PubMed Web of Science ®Google Scholar
• Chipchase SY, Lincoln NB. Factors associated with carer strain in carers of people with multiple sclerosis. Disabil Rehabil 2001;23:768–776.
   PubMed Web of Science ®Google Scholar
• McKeown LP, Porter-Armstrong AP, Baxter GD. Caregivers of people with multiple sclerosis: experiences of support. Mult Scler 2004;10:219–230.
   PubMed Web of Science ®Google Scholar
• Pakenham KI. The positive impact of multiple sclerosis (MS) on carers: associations between carer benefit finding and positive and negative adjustment domains. Disabil Rehabil 2005;27:985–997.
   PubMed Web of Science ®Google Scholar
• Johnson KL, Bamer AM, Yorkston KM, Amtmann D. Use of cognitive aids and other assistive technology by individuals with multiple sclerosis. Disabil Rehabil, in press.
   Google Scholar
• Bowen J, Gibbons L, Gianas A, Kraft GH. Self-administered Expanded Disability Status Scale with Functional System Scores correlates well with a physician-administered test. Multiple Scler 2001;7:201–206.
   PubMed Web of Science ®Google Scholar
• Ware JE, Kosinski M, Dewey JE, Gandek B. How to score and interpret single-item health status measures: a manual for users of the SF-8™ Health Survey. Lincoln, RI: Quality-Metric; 2001.
   Google Scholar
• Unutzer J, Patrick DL, Marmon T, Simon GE, Katon WJ. Depressive symptoms and mortality in a prospective study of 2,558 older adults. Am J Geriatric Psychiatry 2002;10:521–530.
   PubMed Web of Science ®Google Scholar
• Zimet GD, Dahlem NW, Zimet SG, Farley GK. The multidimensional scale of perceived social support. J Personal Assess 1988;52:30–41.
   Web of Science ®Google Scholar
• Hunsley J, Best M, Lefebvre M, Vito D. The seven-item short form of the Dyadic Adjustment Scale: further evidence for construct validity. Am J Family Ther 2001;29:325–335.
   Web of Science ®Google Scholar
• Morse JM. Principles of mixed methods and multimethod research design. In: Tashakkori A, Teddle C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks: Sage Publications; 2003;189–209.
   Google Scholar
• Creswell JW, Plano Clark VL, Gutmann ML, Hanson WE. Advanced mixed methods research designs. In: Tashakkori A, Teddle C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks: Sage Publications; 2003;209–240.
   Google Scholar
• Ayres L, Kavanaugh K, Knafl KA. Within-case and across-case approaches to qualitative data analysis. Qual Health Res 2003;13:871–883.
   PubMed Web of Science ®Google Scholar
• Patterson JM. Families experiencing stress: the family adjustment and adaptation response model. Fam Syst Med 1988;6:202–237.
   Google Scholar
• Rolland JS. Parental illness and disability: a family systems framework. J Fam Ther 1999;21:242–266.
   Web of Science ®Google Scholar
• Rolland JS. In sickness and in health – the impact of illness on couples relationships. J Marital Fam Ther 1994;20:327–347.
   Web of Science ®Google Scholar
• Rolland JS. Chronic illness and the life cycle: a conceptual framework. Fam Process. 1987;26:203–221.
   PubMed Web of Science ®Google Scholar
• Sabourin S, Valois P, Lussier Y. Development and validation of a brief version of the Dyadic Adjustment Scale with a nonparametric item analysis model. Psychol Assess 2005;17:15–27.
   PubMed Web of Science ®Google Scholar
• Kraft GH, Johnson KL, Yorkston K, Amtmann D, Bamer A, Bombardier C, Ehde D, Fraser R, Starks H. Setting the agenda for multiple sclerosis rehabilitation research. Mult Scler 2008;14:1292–1297.
   PubMed Web of Science ®Google Scholar
• Ennis M, Thain J, Boggild M, Baker GA, Young CA. A randomized controlled trial of a health promotion education programme for people with multiple sclerosis. Clin Rehabil 2006;20:783–792.
   PubMed Web of Science ®Google Scholar
• Stuifbergen AK, Becker H, Blozis S, Timmerman G, Kullberg V. A randomized clinical trial of a wellness intervention for women with multiple sclerosis. Arch Physi Med Rehabil 2003;84:467–476.
   PubMed Web of Science ®Google Scholar
• Finlayson M, Garcia JD, Preissner K. Development of an educational programme for caregivers of people aging with multiple sclerosis. Occup Ther Int 2008;15:4–17.
   PubMedGoogle Scholar
• Blank CW, Finlayson M. Exploring the impact of multiple sclerosis on couples: a pilot study. Can J Occup Ther 2007;74:134–142.
   PubMedGoogle Scholar
• Boeije HR, Duijnstee MS, Grypdonck MH. Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health Soc Care Commun 2003;11:242–252.
   PubMed Web of Science ®Google Scholar
• Boeije HR, van Doorne-Huiskes A. Fulfilling a sense of duty: how men and women giving care to spouses with multiple sclerosis interpret this role. Commun Work Fam 2004;6:223–244.
   Google Scholar
• Courts NF, Buchanan EM, Werstlein PO. Focus groups: the lived experience of participants with multiple sclerosis. J Neurosci Nurs 2004;36:42–47.
   PubMedGoogle Scholar
• O'Brien MT. Multiple sclerosis: stressors and coping strategies in spousal caregivers. J Community Health Nurs 1993;10:123–135.
   PubMedGoogle Scholar
• Good DM, Bower DA, Einsporn RL. Social support: gender differences in multiple sclerosis spousal caregivers. J Neurosci Nurs 1995;27:305–311.
   PubMedGoogle Scholar
• Courts NF, Newton AN, McNeal LJ. Husbands and wives living with multiple sclerosis. J Neurosci Nurs 2005;37:20–27.
   PubMedGoogle Scholar
• Koopman WJ, Benbow CL, Vandervoort M. Top 10 needs of people with multiple sclerosis and their significant others. J Neurosci Nurs 2006;38:369–373.
   PubMedGoogle Scholar
• The Heuga Center. Can Do Program. 2009; Available at: http://www.heuga.org/programs/can_do#programflyer. Last accessed 3 January 2009.
   Google Scholar
• National Multiple Sclerosis Society. Relationship Matters. 2009; Available at:http://www.nationalmssociety.org/living-with-multiple-sclerosis/relationships/relationship-matters/index.aspx. Last accessed 3 January 2009.
   Google Scholar