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Research Papers

Mothers of children with cerebral palsy with or without epilepsy: a quality of life perspective

, , , , , , & show all
Pages 384-388 | Accepted 01 Jan 2010, Published online: 30 Jul 2011

References

  • Diament A. Encefalopatia crônica da infância (paralisia cerebral). In: Neurologia infantilDiament A, Cypel S, editors. São Paulo: Manole; 1996.
  • Coulter DL. Comprehensive management of epilepsy in persons with mental retardation. Epilepsia 1997;38 (Suppl 4):S24–S31.
  • Ones K, Yilmaz E, Cetinkaya B, Caglar, N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehab Neural Repair 2005;19:232–237.
  • World Health Organization. The first ten years of the WHO. Geneva: WHO; 1958.
  • Widerstrom AH. Living with a handicapped child: myth and reality. Childhood Educ 1986;62:361–367.
  • Murphy CC, Yeargin-Allsopp M, Decoufle P, Drews CD. Prevalence of cerebral palsy among ten-year-old children in metropolitan Atlanta. J Pediatr 1993;123:13–20.
  • Wallander LJ, Varni JW. Adjustment in children with chronic physical disorders: programmatic research on a disability-stress-coping model. In: La Greca AM, Siegal L, Wallander JL, Walker CE, editors. Stress and coping with pediatric conditions. New York: Guilford Press; 1992. pp 279–298.
  • Manuel J, Naughton MJ, Balkrishnan R, Smith BP, Koman LA. Stress and adaptation in mothers of children with cerebral palsy. J Pediatr Psychol 2003;28:197–201.
  • Glasscock R. A phenomenological study of the experience of being a mother of a child with cerebral palsy. Pediatr Nurs 2000;26:407–410.
  • Commission on Classification and Terminology of the International League Against Epilepsy. Proposal for revised classification of epilepsies and epileptic syndromes. Epilepsia 1989;30:389–399.
  • Pruitt DW, Tsai T. Common medical comorbidities associated with cerebral palsy. Phys Med Rehab Clin N Am 2008;20:453–467.
  • Lv R, Wu L, Jin L, Lu Q, Wang M, Qu Y, Liu H. Depression, anxiety and quality of life in parents of children with epilepsy. Acta Neurol Scand 2009;120:335–341.
  • Sabaz M, Lawson JA, Cairns DR, Duchowny MS, Resnick TJ, Dean PM, Bleasel AF, Bye AM. The impact of epilepsy surgery on quality of life in children. Neurology 2006;66:557–561.
  • Li Y, Ji CY, Qin J, Zhang ZX. Parental anxiety and quality of life of epileptic children. Biomed Environ Sci 2008;21:228–232.
  • Commission on Classification and Terminology of the International League against Epilepsy. Proposal for revised clinical and electroencephalographic classification of epileptic seizures. Epilepsia 1981;22:489–501.
  • Ware JE Jr, Sherbourne CD. The MOS 36 – item short form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473–483.
  • Neto JFR, Ferraz MB, Cendoroglo S, Draibe L, Sesso R. Quality of life at the initiation of maintenance dialysis treatment – a comparison between he SF-36 and KDQ questionnaires. Qual Life Res 2000;9:101–107.
  • Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 healthy survey: manual and interpretation guide. Boston: The Health Institute, New England Medical Center; 1993.
  • Leidy NK, Elixhauser A, Vickrey B, Means E, Willian MK. Seizure frequency and the health-related quality of life of adults with epilepsy. Neurology 1999;53:162–166.
  • Vickrey B, Hays RD, Rausch R, Sutherling WW, Engel J Jr, Brook RH. Quality of life of epilepsy surgery patients as compared with outpatients with hypertension, diabetes, heart disease, and/or depressive symptoms. Epilepsia 1994;35:597–607.
  • Magill-Evans J, Darrah J, Pain K, Adkins R, Kratochvil M. Are the families with adolescents and young adults with cerebral palsy the same as other families? Dev Med Child Neurol 2001;43:466–472.
  • Hodkinson I, D'Anjou MC, Dazord A, Berard C. Quality of life of a population of 54 ambulatory children with cerebral palsy. A cross-sectional study. Ann Readap Med Phys 2002;45:154–158.
  • Westphal-Guitti AC, Alonso NB, Migliorini RC, da Silva TI, Azevedo AM, Caboclo LO, Sakamoto AC, Yacubian EM. Quality of life and burden in caregivers of patients with epilepsy. J Neurosci Nurs 2007;39:354–360.
  • Cramer JA. Quality of life assessment in clinical practice. Neurology 1999;53 (Suppl.2):S49–S52.
  • Miller V, Palermo TM, Grewe SD. Quality of life in pediatric epilepsy: demographic and disease-related predictors and comparison with healthy controls. Epilepsy Behav 2003;4:36–42.
  • Levi R, Drotar D. Critical issues and needs in healthy-related quality of life assessment of children and adolescents with chronic health conditions. In: Drotar D, editor. Measuring health-related quality of life in children and adolescents: implications for research and practiceMahwah, NJ: Lawrence Erlbaum; 1998. pp 3–24.

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