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Research Papers

Validation of the extended ICF core set for stroke from the patient perspective using focus groups

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Pages 157-166 | Received 14 Mar 2011, Accepted 31 May 2011, Published online: 04 Oct 2011

References

  • World Health Organization. WHO Steps stroke manual: The WHO Stepwise approach to stroke surveillance. 2006.
  • Peoples H, Satink T, Steultjens E. Stroke survivors’ experiences of rehabilitation: A systematic review of qualitative studies. Scand J Occup Ther 2011;18:163–171.
  • Pellerin C, Rochette A, Racine E. Social participation of relatives post-stroke: The role of rehabilitation and related ethical issues. Disabil Rehabil 2011;33:1055–1064.
  • Royal College of Physicians. Intercollegiate stroke working party. National clinical guideline for stroke, 3rd edition. 2008.
  • O’Sullivan C, Chard G. An exploration of participation in leisure activities post-stroke. Aust Occup Ther J 2010;57:159–166.
  • WHO. WHO rehabilitation after cardiovascular diseases, with special emphasis on developing countries. Report of WHO expert committee. WHO, Geneva.
  • O’Donovan MA, Doyle A, Gallagher P. Barriers, activities and participation: Incorporating ICF into service planning datasets. Disabil Rehabil 2009;31:2073–2080.
  • Geyh S, Cieza A, Schouten J, Dickson H, Frommelt P, Omar Z, Kostanjsek N, Ring H, Stucki G. ICF core sets for stroke. J Rehabil Med 2004;(44 Suppl):135–41.
  • Grill E, Lipp B, Boldt C, Stucki G, Koenig E. Identification of relevant ICF categories by patients with neurological conditions in early post-acute rehabilitation facilities. Disabil Rehabil 2005;27:459–465.
  • Stier-Jarmer M, Grill E, Ewert T, Bartholomeyczik S, Finger M, Mokrusch T, Kostanjsek N, Stucki G. ICF Core Set for patients with neurological conditions in early post-acute rehabilitation facilities. Disabil Rehabil 2005;27:389–395.
  • Ewert T, Grill E, Bartholomeyczik S, Finger M, Mokrusch T, Kostanjsek N, Stucki G. ICF Core Set for patients with neurological conditions in the acute hospital. Disabil Rehabil 2005;27:367–373.
  • Glässel A, Kirchberger I, Kollerits B, Amann E, Cieza A. Content Validity of the Extended ICF Core Set for Stroke: An international delphi survey of physical therapists. Phys Ther 2011;91:1211–1222.
  • Glässel A, Kirchberger I, Linseisen E, Stamm T, Cieza A, Stucki G. Content validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for stroke: The perspective of occupational therapists. Can J Occup Ther 2010;77:289–302.
  • Lemberg I, Kirchberger I, Stucki G, Cieza A. The ICF Core Set for stroke from the perspective of physicians: A worldwide validation study using the Delphi technique. Eur J Phys Rehabil Med 2010;46:377–388.
  • Algurén B, Lundgren-Nilsson A, Sunnerhagen KS. Functioning of stroke survivors–A validation of the ICF core set for stroke in Sweden. Disabil Rehabil 2010;32:551–559.
  • Starrost K, Geyh S, Trautwein A, Grunow J, Ceballos-Baumann A, Prosiegel M, Stucki G, Cieza A. Interrater reliability of the extended ICF core set for stroke applied by physical therapists. Phys Ther 2008;88:841–851.
  • Ewert T, Fuessl M, Cieza A, Andersen C, Chatterji S, Kostanjsek N, Stucki G. Identification of the most common patient problems in patients with chronic conditions using the ICF checklist. J Rehabil Med 2004;(44 Suppl):22–29.
  • Mays N, Pope C. Qualitative research in health care. Assessing quality in qualitative research. BMJ 2000;320:50–52.
  • Giacomini MK, Cook DJ. Users’ guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? Evidence-Based Medicine Working Group. JAMA 2000;284:357–362.
  • Murphy E, Dingwall R, Greatbatch D, Parker S, Watson P. Qualitative research methods in health technology assessment: a review of the literature. Health Technol Assess 1998;2:1–274.
  • Sim J. Collecting and analysing qualitative data: Issues raised by the focus group. J Adv Nurs 1998;28:345–352.
  • Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. BMJ 2000;320:114–116.
  • Erikson A, Park M, Tham K. Belonging: A qualitative, longitudinal study of what matters for persons after stroke during the one year of rehabilitation. J Rehabil Med 2010;42:831–838.
  • Carr A, Hewlett S, Hughes R, Mitchell H, Ryan S, Carr M, Kirwan J. Rheumatology outcomes: The patient’s perspective. J Rheumatol 2003;30:880–883.
  • Kirwan J, Heiberg T, Hewlett S, Hughes R, Kvien T, Ahlmèn M, Boers M et al. Outcomes from the patient perspective workshop at OMERACT 6. J Rheumatol 2003;30:868–872.
  • Kirwan JR, Hewlett SE, Heiberg T, Hughes RA, Carr M, Hehir M, Kvien TK, et al. Incorporating the patient perspective into outcome assessment in rheumatoid arthritis–progress at OMERACT 7. J Rheumatol 2005;32:2250–2256.
  • Guise J, McKinlay A, Widdicombe S. The impact of early stroke on identity: A discourse analytic study. Health (London) 2010;14:75–90.
  • Guise J, McKinlay A, Widdicombe S. The impact of early stroke on identity: A discourse analytic study. Health (London) 2010;14:75–90.
  • Bäckström B, Sundin K. The experience of being a middle-aged close relative of a person who has suffered a stroke, 1 year after discharge from a rehabilitation clinic: A qualitative study. Int J Nurs Stud 2009;46:1475–1484.
  • Coenen M, Cieza A, Stamm TA, Amann E, Kollerits B, Stucki G. Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis from the patient perspective using focus groups. Arthritis Res Ther 2006;8:84.
  • Stamm TA, Cieza A, Coenen M, Machold KP, Nell VP, Smolen JS, Stucki G. Validating the International Classification of Functioning, Disability and Health Comprehensive Core Set for Rheumatoid Arthritis from the patient perspective: A qualitative study. Arthritis Rheum 2005;53:431–439.
  • Patton MQ. Qualitative evaluation and research methods. 2nd ed. Thousand Oaks: Sage Publications; 1990. English.
  • Glaser BG, Strauss, AL. Discovery of grounded theory. Strategies for qualitative research. Chicago: Aldine; 1967.
  • Krueger R, Casey M. Focus groups: A practical guide for applied research. Thousand Oaks: Sage; 2000.
  • Kirchberger I, Coenen M, Hierl FX, Dieterle C, Seissler J, Stucki G, Cieza A. Validation of the International Classification of Functioning, Disability and Health (ICF) core set for diabetes mellitus from the patient perspective using focus groups. Diabet Med 2009;26:700–707.
  • Karlsson G. Psychological qualitative research from a phenomenological perspective. Stockholm, Sweden: Almqvist & Wiksell International; 1993. English.
  • Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, Ustün TB, Stucki G. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002;34:205–210.
  • Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustün B, Stucki G. ICF linking rules: An update based on lessons learned. J Rehabil Med 2005;37:212–218.
  • Cohen J. A coefficient of agreement for nominal scales. Educ Psychol Meas 1960;20:37–46.
  • Vierkant R. A SAS macro for calculating bootstrapped confidence intervals about a κ coefficient. [cited 2011 Feb 20] Available from: http://www2.sas.com/proceedings/sugi22/STATS/PAPER295.PDF Accessed on 20 February 2011.
  • Hägg M, Anniko M. Lip muscle training in stroke patients with dysphagia. Acta Otolaryngol 2008;128:1027–1033.
  • Ryerson S, Byl NN, Brown DA, Wong RA, Hidler JM. Altered trunk position sense and its relation to balance functions in people post-stroke. J Neurol Phys Ther 2008;32:14–20.
  • Franceschini M, La Porta F, Agosti M, Massucci M. ICR2 group. Is health-related-quality of life of stroke patients influenced by neurological impairments at one year after stroke? Eur J Phys Rehabil Med 2010;46:389–399.
  • Lawrence M. Young adults’ experience of stroke: A qualitative review of the literature. Br J Nurs 2010;19:241–248.
  • Hacker VL, Stark D, Thomas S. Validation of the stroke aphasic depression questionnaire using the brief assessment schedule depression cards in an acute stroke sample. Br J Clin Psychol 2010;49:123–127.
  • Franzén-Dahlin A, Laska AC, Larson J, Wredling R, Billing E, Murray V. Predictors of life situation among significant others of depressed or aphasic stroke patients. J Clin Nurs 2008;17:1574–1580.
  • Naess H, Hammersvik L, Skeie GO. Aphasia among young patients with ischemic stroke on long-term follow-up. J Stroke Cerebrovasc Dis 2009;18:247–250.
  • Ponsford AS, Viitanen M, Lundberg C, Johansson K. Assessment of driving after stroke–a pluridisciplinary task. Accid Anal Prev 2008;40:452–460.
  • Logan PA, Dyas J, Gladman JR. Using an interview study of transport use by people who have had a stroke to inform rehabilitation. Clin Rehabil 2004;18:703–708.
  • Dalemans RJ, De Witte LP, Beurskens AJ, Van Den Heuvel WJ, Wade DT. An investigation into the social participation of stroke survivors with aphasia. Disabil Rehabil 2010;32:1678–1685.
  • Plante M, Demers L, Swaine B, Desrosiers J. Association between daily activities following stroke rehabilitation and social role functioning upon return to the community. Top Stroke Rehabil 2010;17:47–57.
  • Greenwood N, Mackenzie A, Cloud G, Wilson N. Loss of autonomy, control and independence when caring: A qualitative study of informal carers of stroke survivors in the first three months after discharge. Disabil Rehabil 2009;1:1–9.
  • Tjulin A, Maceachen E, Ekberg K. Exploring workplace actors experiences of the social organization of return-to-work. J Occup Rehabil 2010;20:311–321.
  • Tjulin A, Edvardsson Stiwne E, Ekberg K. Experience of the implementation of a multi-stakeholder return-to-work programme. J Occup Rehabil 2009;19:409–418.
  • O’Brien AN, Wolf TJ. Determining work outcomes in mild to moderate stroke survivors. Work 2010;36:441–447.
  • Amir Z, Wynn P, Chan F, Strauser D, Whitaker S, Luker K. Return-to-work after cancer in the UK: Attitudes and experiences of line managers. J Occup Rehabil 2009;20:435–442.
  • Young AE. Return-to-work following disabling occupational injury–facilitators of employment continuation. Scand J Work Environ Health 2010;36:473–483.
  • Gilworth G, Phil M, Cert A, Sansam KA, Kent RM. Personal experiences of returning to work following stroke: An exploratory study. Work 2009;34:95–103.
  • Tjulin A, Maceachen E, Ekberg K. Exploring the meaning of early contact in return-to-work from workplace actors’ perspective. Disabil Rehabil 2011;33:137–145.
  • Cieza A, Bickenbach J, Chatterji S. The ICF as a conceptual platform to specify and discuss health and health-related concepts. Gesundheitswesen 2008;70:e47–e56.
  • Krueger RA. The future of focus groups. Qualitative Health Research 1995;5:524–30.
  • Morgan DL. Focus groups as qualitative research. 2nd ed. Newbury Park: Sage Publications; 1997.
  • Carey A. The group effect in focus groups: Planning implementing, and interpreting focus group research. London: Sage;1994. pp 225-41.
  • Denzin N. The research act: A theoretical introduction to sociological methods. New York: McGraw-Hill; 1978.
  • Barbour RS. Checklists for improving rigour in qualitative research: A case of the tail wagging the dog? BMJ 2001;322:1115–1117.
  • Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159–174.
  • Hieblinger R, Coenen M, Stucki G, Winkelmann A, Cieza A. Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients. Arthritis Res Ther 2009;11:R67.
  • Peyrin-Biroulet L, Cieza A, Sandborn WJ, Coenen M, Chowers Y, Hibi T, Kostanjsek N et al. The International Programme to Develop New Indexes for Crohn’s Disease (IPNIC) group. Development of the first disability index for inflammatory bowel disease based on the international classification of functioning, disability and health. Gut 2011. In press

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