The potential benefits of applying a narrative analytic approach for understanding the experience of fibromyalgia: a review

References

• Wentz KA, Lindberg C, Hallberg LR. Psychological functioning in women with fibromyalgia: a grounded theory study. Health Care Women Int 2004;25:702–729.
   PubMedGoogle Scholar
• Wolfe F, Anderson J, Harkness D, Bennett RM, Caro XJ, Goldenberg DL, Russell IJ, Yunus MB. Health status and disease severity in fibromyalgia: results of a six-center longitudinal study. Arthritis Rheum 1997;40:1571–1579.
   PubMed Web of Science ®Google Scholar
• Friedberg F. Chronic fatigue syndrome, fibromyalgia, and related illnesses: a clinical model of assessment and intervention. J Clin Psychol 2010;66:641–665.
   PubMed Web of Science ®Google Scholar
• Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, Tugwell P, et al. The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis Rheum 1990;33:160–172.
   PubMed Web of Science ®Google Scholar
• Wolfe F, Ross K, Anderson J, Russell IJ, Hebert L. The prevalence and characteristics of fibromyalgia in the general population. Arthritis Rheum 1995;38:19–28.
   PubMed Web of Science ®Google Scholar
• McBeth J, Jones K. Epidemiology of chronic musculoskeletal pain. Best Pract Res Clin Rheumatol 2007;21:403–425.
   PubMed Web of Science ®Google Scholar
• Yanus MB. The role of gender in fibromyalgia syndrome. Curr Rheumatol Rep 2001;3:128–134.
   PubMedGoogle Scholar
• Adams N, Sim J. Rehabilitation approaches in fibromyalgia. Disabil Rehabil 2005;27:711–723.
   PubMed Web of Science ®Google Scholar
• Häuser W, Thieme K, Turk DC. Guidelines on the management of fibromyalgia syndrome - a systematic review. Eur J Pain 2010;14:5–10.
   PubMed Web of Science ®Google Scholar
• Natelson BH. Fibromyalgia: What it is and how it relates to other unexplained illnesses. Adv Studies Pharm 2009;6:134–138.
   Google Scholar
• McCain GA. A clinical overview of the fibromyalgia syndrome. J Musculoskeletal Pain 1996;4:9–34.
   Google Scholar
• Kool MB, van Middendorp H, Boeije HR, Geenen R. Understanding the lack of understanding: invalidation from the perspective of the patient with fibromyalgia. Arthritis Rheum 2009;61:1650–1656.
   PubMed Web of Science ®Google Scholar
• Hughes G, Martinez C, Myon E, Taïeb C, Wessely S. The impact of a diagnosis of fibromyalgia on health care resource use by primary care patients in the UK: an observational study based on clinical practice. Arthritis Rheum 2006;54:177–183.
   PubMed Web of Science ®Google Scholar
• Brown RJ. Introduction to the special issue on medically unexplained symptoms: background and future directions. Clin Psychol Rev 2007;27:769–780.
   PubMed Web of Science ®Google Scholar
• Abeles AM, Pillinger MH, Solitar BM, Abeles M. Narrative review: the pathophysiology of fibromyalgia. Ann Intern Med 2007;146:726–734.
   PubMed Web of Science ®Google Scholar
• McKay PG, Duffy T, Martin CR. Are chronic fatigue syndrome and fibromyalgia the same? Implications for the provision of appropriate mental health intervention. J Psychiatr Ment Health Nurs 2009;16:884–894.
   PubMed Web of Science ®Google Scholar
• Asbring P, Närvänen AL. Women’s experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qual Health Res 2002;12:148–160.
   PubMed Web of Science ®Google Scholar
• Werner A, Malterud K. “The pain isn’t as disabling as it used to be”: how can the patient experience empowerment instead of vulnerability in the consultation? Scand J Public Health Suppl 2005;66:41–46.
   PubMedGoogle Scholar
• Egeli NA, Crooks VA, Matheson D, Ursa M, Marchant E. Patients’ views: Improving care for people with fibromyalgia. J Nurs Healthcare Chronic Illness 2008;17:362–369.
   Google Scholar
• Govender C, Cassimjee N, Schoeman J, Meyer H. Psychological characteristics of FMS patients. Scand J Caring Sci 2009;23:76–83.
   PubMed Web of Science ®Google Scholar
• Friedberg F, Jason LA. Chronic fatigue syndrome and fibromyalgia: clinical assessment and treatment. J Clin Psychol 2001;57:433–455.
   PubMed Web of Science ®Google Scholar
• Blumer D, Heilbronn M. The pain-prone disorder: a clinical and psychological profile. Psychosomatics 1981;22:395–7, 401.
   PubMed Web of Science ®Google Scholar
• Van Houdenhove B, Egle UT. Fibromyalgia: a stress disorder? Piecing the biopsychosocial puzzle together. Psychother Psychosom 2004;73:267–275.
   PubMed Web of Science ®Google Scholar
• Deary V, Chalder T, Sharpe M. The cognitive behavioural model of medically unexplained symptoms: a theoretical and empirical review. Clin Psychol Rev 2007;27:781–797.
   PubMed Web of Science ®Google Scholar
• Lyons A. Shaping health psychology: Qualitative research, evaluation and representation. In: Murray M, Chamberlain K, editors. Qualitative health psychology: Theories and methods. London: Sage; 1999. pp 241–255.
   Google Scholar
• Murray M. Narrative psychology. In Smith JA, editor. Qualitative psychology: A practical guide to research methods. London: Sage; 2008. p 111–132.
   Google Scholar
• Elliott J. Using narrative in social research: Qualitative and quantitative approaches. London: Sage; 2005.
   Google Scholar
• Crossley M. Narrative analysis. In Lyons E, Coyle A, editors. Analysing qualitative data in psychology. London: Sage; 2007. p 131–144.
   Google Scholar
• Bury M. Chronic illness as biographical disruption. Sociol Health Illn 1982;4:167–182.
   PubMedGoogle Scholar
• Charmaz K. Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press; 1991.
   Google Scholar
• Frank AF. The wounded story teller: body, illness and ethics. Chicago: University of Chicago Press; 1995.
   Google Scholar
• Hyden L. Illness and narrative. Sociol Health & Illness 1997;19:48–69.
   Web of Science ®Google Scholar
• Murray M. The storied nature of health and illness. In Murray M, Chamberlain K, editors. Qualitative health psychology: Theories and methods. London: Sage; 1999. p 47–63.
   Google Scholar
• Nilsen G, Elstad I. Temporal experiences of persistent pain: Patients’ narratives from meetings with health care providers. Int J Qual Studies on Health & Well-being 2009;4:51–61.
   Web of Science ®Google Scholar
• Steihaug S, Malterud K. Stories about bodies: a narrative study on self-understanding and chronic pain. Scand J Prim Health Care 2008;26:188–192.
   PubMed Web of Science ®Google Scholar
• Werner A, Isaksen LW, Malterud K. ‘I am not the kind of woman who complains of everything’: illness stories on self and shame in women with chronic pain. Soc Sci Med 2004;59:1035–1045.
   PubMed Web of Science ®Google Scholar
• Sim J, Madden S. Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies. Soc Sci Med 2008;67:57–67.
   PubMed Web of Science ®Google Scholar
• Murray M. Levels of narrative analysis in health psychology. J Health Psychol 2000;5:337–347.
   PubMedGoogle Scholar
• Arnold LM, Crofford LJ, Mease PJ, Burgess SM, Palmer SC, Abetz L, Martin SA. Patient perspectives on the impact of fibromyalgia. Patient Educ Couns 2008;73:114–120.
   PubMed Web of Science ®Google Scholar
• Undeland M, Malterud K. The fibromyalgia diagnosis: hardly helpful for the patients? A qualitative focus group study. Scand J Prim Health Care 2007;25:250–255.
   PubMed Web of Science ®Google Scholar
• Löfgren M, Ekholm J, Ohman A. ‘A constant struggle’: successful strategies of women in work despite fibromyalgia. Disabil Rehabil 2006;28:447–455.
   PubMed Web of Science ®Google Scholar
• Schaefer KM. Health patterns of women with fibromyalgia. J Adv Nurs 1997;26:565–571.
   PubMed Web of Science ®Google Scholar
• Larkin M, Watts S, Clifton E. Giving voice and making sense in interpretive phenomenological analysis. Qual Res Psychol 2006;3:102–120.
   Google Scholar
• Hellström O, Bullington J, Karlsson G, Lindqvist P, Mattsson B. A phenomenological study of fibromyalgia. Patient perspectives. Scand J Prim Health Care 1999;17:11–16.
   PubMed Web of Science ®Google Scholar
• Paulson M, Danielson E, Söderberg S. Struggling for a tolerable existence: the meaning of men’s lived experiences of living with pain of fibromyalgia type. Qual Health Res 2002;12:238–249.
   PubMed Web of Science ®Google Scholar
• Råheim M, Håland W. Lived experience of chronic pain and fibromyalgia: women’s stories from daily life. Qual Health Res 2006;16:741–761.
   PubMed Web of Science ®Google Scholar
• Söderberg S, Lundman B, Norberg A. Struggling for dignity: the meaning of women’s experiences of living with fibromyalgia. Qual Health Res 1999;9:575–587.
   PubMed Web of Science ®Google Scholar
• Söderberg S, Lundman B, Norberg A. The meaning of fatigue and tiredness as narrated by women with fibromyalgia and healthy women. J Clin Nurs 2002;11:247–255.
   PubMed Web of Science ®Google Scholar
• Glaser BG, Strauss AL. The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing Company; 1967.
   Google Scholar
• Asbring P. Chronic illness − a disruption in life: identity-transformation among women with chronic fatigue syndrome and fibromyalgia. J Adv Nurs 2001;34:312–319.
   PubMed Web of Science ®Google Scholar
• Asbring P, Närvänen AL. Ideal versus reality: physicians perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia. Soc Sci Med 2003;57:711–720.
   PubMed Web of Science ®Google Scholar
• Hallberg LR, Carlsson SG. Psychosocial vulnerability and maintaining forces related to fibromyalgia. In-depth interviews with twenty-two female patients. Scand J Caring Sci 1998;12:95–103.
   PubMed Web of Science ®Google Scholar
• Hallberg LR, Carlsson SG. Coping with fibromyalgia. A qualitative study. Scand J Caring Sci 2000;14:29–36.
   PubMed Web of Science ®Google Scholar
• Liedberg GM, Henriksson CM. Factors of importance for work disability in women with fibromyalgia: an interview study. Arthritis Rheum 2002;47:266–274.
   PubMed Web of Science ®Google Scholar
• Madden S, Sim J. Creating meaning in fibromyalgia syndrome. Soc Sci Med 2006;63:2962–2973.
   PubMed Web of Science ®Google Scholar
• Cunningham MM, Jillings C. Individuals’ descriptions of living with fibromyalgia. Clin Nurs Res 2006;15:258–273.
   PubMedGoogle Scholar
• Mengshoel AM, Heggen K. Recovery from fibromyalgia - previous patients’ own experiences. Disabil Rehabil 2004;26:46–53.
   PubMed Web of Science ®Google Scholar
• Lempp HK, Hatch SL, Carville SF, Choy EH. Patients’ experiences of living with and receiving treatment for fibromyalgia syndrome: a qualitative study. BMC Musculoskelet Disord 2009;10:124.
   PubMed Web of Science ®Google Scholar
• Paulson M, Norberg A, Danielson E. Men living with fibromyalgia-type pain: experiences as patients in the Swedish health care system. J Adv Nurs 2002;40:87–95.
   PubMed Web of Science ®Google Scholar
• Yardley L. Understanding embodied experience: beyond mind-body dualism in health research. In: Murray M, Chamberlain K, editors. Qual Health Res London: Sage; 1999. p 31–46.
   Google Scholar
• Lieblich A, Tuval-Mashiach R, Zilber T. Narrative research: reading analysis and interpretation. London: Sage; 1998.
   Google Scholar
• McAdams DP. The stories we live by: Personal myths and the making of the self. New York: The Guildford Press; 1993.
   Google Scholar
• Riessman CK. Narrative analysis: Qualitative research methods Series, Vol. 30. Newberry Park: Sage; 1993.
   Google Scholar
• Crossley M. Introducing narrative psychology: Self, trauma and the construction of meaning. Buckingham: Open University Press; 2000.
   Google Scholar
• Paulson M, Norberg A, Söderberg S. Living in the shadow of fibromyalgic pain: the meaning of female partners’ experiences. J Clin Nurs 2003;12:235–243.
   PubMed Web of Science ®Google Scholar
• Söderberg S, Strand M, Haapala M, Lundman B. Living with a woman with fibromyalgia from the perspective of the husband. J Adv Nurs 2003;42:143–150.
   PubMed Web of Science ®Google Scholar
• Riessman CK. Strategic uses of narrative in the presentation of self and illness: a research note. Soc Sci Med 1990;30:1195–1200.
   PubMed Web of Science ®Google Scholar
• Goffman E. The presentation of self in everyday life. London: Penguin: 1959.
   Google Scholar
• Mishler EG. The discourse of medicine. Dialectics of medical interviews. Norwood NJ: Ablex Publishing Company; 1984.
   Google Scholar
• Barker K. Self help literature and the making of an illness identity: The case of fibromyalgia syndrome (FMS). Social Problems 2002;49:279– 300.
   Web of Science ®Google Scholar
• Gergen KL, Gergen MM. The social construction of narrative accounts. In Gergen KJ, Gergen MM, editors. Historical social psychology. Hillsdale, NJ: Lawrence Erlbaum; 1984. p 173–190.
   Google Scholar
• Frank AW. The rhetoric of self change: Illness experience as narrative. Soc Quart 1993;34:39–52.
   Web of Science ®Google Scholar
• Robinson I. Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis. Soc Sci Med 1990;30:1173–1186.
   PubMed Web of Science ®Google Scholar
• Ezzy D. Illness narratives: time, hope and HIV. Soc Sci Med 2000;50:605–617.
   PubMed Web of Science ®Google Scholar