A systematic review of research undertaken in vocational rehabilitation for people with multiple sclerosis

References

• Compston A, Coles A. Multiple sclerosis. Lancet 2002;359:1221–1231.
   PubMed Web of Science ®Google Scholar
• O’Connor RJ, Cano SJ, Ramió i Torrentà L, Thompson AJ, Playford ED. Factors influencing work retention for people with multiple sclerosis: cross-sectional studies using qualitative and quantitative methods. J Neurol 2005;252:892–896.
   PubMed Web of Science ®Google Scholar
• Gordon PA, Lewis MD, Wong D. Multiple sclerosis: strategies for rehabilitation counsellors. J Rehabil 1994; (July/August/September):34–38.
   Web of Science ®Google Scholar
• Kornblith AB, La Rocca NG, Baum HM. Employment in individuals with multiple sclerosis. Int J Rehabil Res 1986;9:155–165.
   PubMed Web of Science ®Google Scholar
• Johnson KL, Klasner ER, Amtmann D, Kuehn CM, Yorkston KM. Medical, psychological, social and programatic barriers to employment for people with multiple sclerosis. J Rehabil 2004;70:38–49.
   Web of Science ®Google Scholar
• Busche KD, Fisk JD, Murray TJ, Metz LM. Short term predictors of unemployment in multiple sclerosis patients. Can J Neurol Sci 2003;30:137–142.
   PubMed Web of Science ®Google Scholar
• Miller A, Dishon S. Health-related quality of life in multiple sclerosis: The impact of disability, gender and employment status. Qual Life Res 2006;15:259–271.
   PubMed Web of Science ®Google Scholar
• Roessler RT, Rumrill PD Jr. Multiple sclerosis and employment barriers: a systemic perspective on diagnosis and intervention. Work 2003;21:17–23.
   PubMedGoogle Scholar
• Fraser RT, McMahon BT, Danczyk-Hawley C. Progression of disability benefits: a perspective on multiple sclerosis. J Vocat Rehabil 2003;19:173–179.
   Google Scholar
• Pfleger CC, Flachs EM, Koch-Henriksen N. Social consequences of multiple sclerosis (1): early pension and temporary unemployment–a historical prospective cohort study. Mult Scler 2010;16:121–126.
   PubMed Web of Science ®Google Scholar
• Ivanova JI, Birnbaum HG, Samuels S, Davis M, Phillips AL, Meletiche D. The cost of disability and medically related absenteeism among employees with multiple sclerosis in the US. Pharmacoeconomics 2009;27:681–691.
   PubMed Web of Science ®Google Scholar
• The Department of Health. The National Service Framework for Long Term Conditions. 2005.
   Google Scholar
• Aronson KJ. Quality of life among persons with multiple sclerosis and their caregivers. Neurology 1997;48:74–80.
   PubMed Web of Science ®Google Scholar
• Larocca N, Kalb R, Scheinberg L, Kendall P. Factors associated with unemployment of patients with multiple sclerosis. J Chronic Dis 1985;38:203–210.
   PubMedGoogle Scholar
• Unger D, Rumrill PD, Roessler RT, Stacklin R. A comparative analysis of employment discrimination complaints filed by people with multiple sclerosis and individuals with other disabilities. J Vocat Rehabil 2004;20:165–170.
   Google Scholar
• Rumrill PD, Tabor TL, Hennessey ML, Minton DL. Issues in employment and career development for people with multiple sclerosis: meeting the needs of an emerging vocational rehabilitation clientele. J Vocat Rehabil 2000;14:109–117.
   Google Scholar
• Roessler RT, Turner RC, Robertson JL, Rumrill PD. Gender and perceived illness severity: differential indicators of employment concerns for adults with multiple sclerosis. Rehabil Counsel Bull 2005;48:66–74.
   Web of Science ®Google Scholar
• Kobelt G, Berg J, Lindgren P, Kerrigan J, Russell N, Nixon R. Costs and quality of life of multiple sclerosis in the United Kingdom. Eur J Health Econ 2006;7 Suppl 2:S96–104.
   PubMedGoogle Scholar
• Gulick EE, Yam M, Touw MM. Work performance by persons with multiple sclerosis: conditions that impede or enable the performance of work. Int J Nurs Stud 1989;26:301–311.
   PubMed Web of Science ®Google Scholar
• Gregory RJ, Disler P, Firth S. Employment and multiple sclerosis in New Zealand. J Occup Rehabil 1993;3:113–117.
   PubMedGoogle Scholar
• Jackson MF, Quaal C, Reeves MA. Effects of multiple sclerosis on occupational and career patterns. Axone 1991;13:16–7, 20.
   PubMedGoogle Scholar
• Sundström P, Nyström L, Svenningsson A, Forsgren L. Sick leave and professional assistance for multiple sclerosis individuals in Västerbotten County, northern Sweden. Mult Scler 2003;9:515–520.
   PubMed Web of Science ®Google Scholar
• Khan F, Ng L, Turner-Stokes L. Effectiveness of vocational rehabilitation intervention on the return to work and employment of persons with multiple sclerosis. Cochrane Database Syst Rev 2009;1:CD007256. PMID: 19160331.
   PubMedGoogle Scholar
• Stucki G, Cieza A, Ewert T, Kostanjsek N, Chatterji S, Ustün TB.. Application of the international classification of functioning, disability and health (ICF) in clinical practice Disabil Rehabil 2002;20:24:281–282.
   Web of Science ®Google Scholar
• Bishop M, Frain M, Rumrill P, Rymond C. The relationship of self-management and disease modifying therapy use to employment status among adults with multiple sclerosis. J Vocat Rehabil 2009;31:119–127.
   Google Scholar
• Roessler RT, Rumrill PD, Fitzgerald SM. Predictors of employment status for people with multiple sclerosis. Rehabil Counsel Bull 2004;47:96–103.
   Web of Science ®Google Scholar
• Rumrill P. Challenges and opportunities related to employment of people with multiple sclerosis. J Vocat Rehabil 2009;31:83–90.
   Google Scholar
• O’Day B. Barriers for people with multiple sclerosis who want to work: a qualitative study. J Neuro Rehab 1998;12:139–146.
   Google Scholar
• Smith MM, Arnett PA. Factors related to employment status changes in individuals with multiple sclerosis. Mult Scler 2005;11:602–609.
   PubMed Web of Science ®Google Scholar
• McDonnell GV, Hawkins SA. An epidemiologic study of multiple sclerosis in Northern Ireland. Neurology 1998;50:423–428.
   PubMed Web of Science ®Google Scholar
• Roessler RT, Fitzgerald SM, Rumrill PD, Koch LC. Determinants of employment status among people with MS. Rehabil Counsel Bull 2001;45:31–40.
   Web of Science ®Google Scholar
• Hammond SR, McLeod JG, Macaskill P, English DR. Multiple sclerosis in Australia: socioeconomic factors. J Neurol Neurosurg Psychiatr 1996;61:311–313.
   PubMed Web of Science ®Google Scholar
• Rumrill PD Jr, Roessler RT, McMahon BT, Hennessey ML, Neath J. Gender as a differential indicator of the employment discrimination experiences of Americans with multiple sclerosis. Work 2007;29:303–311.
   PubMedGoogle Scholar
• Simmons RD, Tribe KL, McDonald EA. Living with multiple sclerosis: longitudinal changes in employment and the importance of symptom management. J Neurol 2010;257:926–936.
   PubMed Web of Science ®Google Scholar
• Yorkston KM, Johnson K, Klasner ER, Amtmann D, Kuehn CM, Dudgeon B. Getting the work done: a qualitative study of individuals with multiple sclerosis. Disabil Rehabil 2003;25:369–379.
   PubMed Web of Science ®Google Scholar
• Johnson KL, Yorkston KM, Klasner ER, Kuehn CM, Johnson E, Amtmann D. The cost and benefits of employment: a qualitative study of experiences of persons with multiple sclerosis. Arch Phys Med Rehabil 2004;85:201–209.
   PubMed Web of Science ®Google Scholar
• Dyck I, Jongbloed L. Women with multiple sclerosis and employment issues: a focus on social and institutional environments. Can J Occup Ther 2000;67:337–346.
   PubMedGoogle Scholar
• Gulick EE. Model for predicting work performance among persons with multiple sclerosis. Nurs Res 1992;41:266–272.
   PubMed Web of Science ®Google Scholar
• Genevie L, Kallos JE, Struening EL. Job retention among people with multiple sclerosis. J Neurol Rehabil 1987;1:131–135.
   Google Scholar
• La Rocca NG, Kalb R, Gregg K. A program to facilitate retention of employment among persons with multiple sclerosis. Work 1996;7:37–46.
   PubMedGoogle Scholar
• Sweetland J, Riazi A, Cano SJ, Playford ED. Vocational rehabilitation services for people with multiple sclerosis: what patients want from clinicians and employers. Mult Scler 2007;13:1183–1189.
   PubMed Web of Science ®Google Scholar
• Edgley K, Sullivan MJL, Dehoux E. A survey of multiple sclerosis. Part 2: determinants of employment status. Can J Rehabil 1991;4:127–132.
   Google Scholar
• Roessler RT, Rumrill PD. The relationship of perceived work site barriers to job mastery and job satisfaction for employed people with multiple sclerosis. Rehabil Counsel Bull 1995;39:2–14.
   Web of Science ®Google Scholar
• Johnson KL, Bamer A, Fraser RT. Disease and demographic characteristics associated with unemployment among working-age adults with multiple sclerosis. Inter J MS Care 2009;11:137–143.
   Google Scholar
• Rao SM, Leo GJ, Ellington L, Nauertz T, Bernardin L, Unverzagt F. Cognitive dysfunction in multiple sclerosis. II. Impact on employment and social functioning. Neurology 1991;41:692–696.
   PubMed Web of Science ®Google Scholar
• Beatty WW, Blanco CR, Wilbanks SL, Paul RH, Hames KA. Demographic, clinical, and cognitive characteristics of multiple sclerosis patients who continue to work. J Neurol Rehabil 1995;9:167–173.
   Google Scholar
• Fraser RT, Clemmons DC, Gibbons L, Koepnick D. Predictors of vocational stability in multiple sclerosis. J Vocat Rehabil 2009;31:129–135.
   Google Scholar
• Benedict RH, Wahlig E, Bakshi R, Fishman I, Munschauer F, Zivadinov R, Weinstock-Guttman B. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci 2005;231:29–34.
   PubMed Web of Science ®Google Scholar
• Clemmons DC, Fraser RT, Rosenbaum G, Getter A. An abbreviated neuropsychological battery in multiple sclerosis vocational rehabilitation: findings and implications. Rehabil Psychol 2004;49:100–105.
   Web of Science ®Google Scholar
• Julian LJ, Vella L, Vollmer T, Hadjimichael O, Mohr DC. Employment in multiple sclerosis. Exiting and re-entering the work force. J Neurol 2008;255:1354–1360.
   PubMed Web of Science ®Google Scholar
• Lage MJ, Castelli-Haley J, Oleen-Burkey MA. Effect of immunomodulatory therapy and other factors on employment loss time in multiple sclerosis. Work 2006;27:143–151.
   PubMedGoogle Scholar
• Grima DT, Torrance GW, Francis G, Rice G, Rosner AJ, Lafortune L. Cost and health related quality of life consequences of multiple sclerosis. Mult Scler 2000;6:91–98.
   PubMed Web of Science ®Google Scholar
• Salter AR, Cutter GR, Tyry T, Marrie RA, Vollmer T. Impact of loss of mobility on instrumental activities of daily living and socioeconomic status in patients with MS. Curr Med Res Opin 2010;26:493–500.
   PubMed Web of Science ®Google Scholar
• Pompeii LA, Moon SD, McCrory DC. Measures of physical and cognitive function and work status among individuals with multiple sclerosis: a review of the literature. J Occup Rehabil 2005;15:69–84.
   PubMed Web of Science ®Google Scholar
• Prodinger B, Weise AP, Shaw L, Stamm TA. A Delphi study on environmental factors that impact work and social life participation of individuals with multiple sclerosis in Austria and Switzerland. Disabil Rehabil 2010;32:183–195.
   PubMed Web of Science ®Google Scholar
• McCabe MP, Roberts C, Firth L. Work and recreational changes among people with neurological illness and their caregivers. Disabil Rehabil 2008;30:600–610.
   PubMed Web of Science ®Google Scholar
• Dyck I. Hidden geographies: the changing lifeworlds of women with multiple sclerosis. Soc Sci Med 1995;40:307–320.
   PubMed Web of Science ®Google Scholar
• LaRocca N, Kalb R, Kendall P, Scheinberg L. The role of disease and demographic factors in the employment of patients with multiple sclerosis. Arch Neurol 1982;39:256.
   PubMed Web of Science ®Google Scholar
• Green G, Todd J. ‘Restricting choices and limiting independence’: social and economic impact of multiple sclerosis upon households by level of disability. Chronic Illn 2008;4:160–172.
   PubMedGoogle Scholar
• Catanzaro M, Weinert C. Economic status of families living with multiple sclerosis. Int J Rehabil Res 1992;15:209–218.
   PubMedGoogle Scholar
• Iezzoni LI, Ngo L. Health, disability, and life insurance experiences of working-age persons with multiple sclerosis. Mult Scler 2007;13:534–546.
   PubMed Web of Science ®Google Scholar
• McCrone P, Heslin M, Knapp M, Bull P, Thompson A. Multiple sclerosis in the UK: service use, costs, quality of life and disability. Pharmacoeconomics 2008;26:847–860.
   PubMed Web of Science ®Google Scholar
• Rumrill PD, Roessler RT, Fitzgerald SM. Vocational rehabilitation-related predictors of quality of life among people with multiple sclerosis. J Vocat Rehabil 2004;20:155–163.
   Google Scholar
• Roessler RT, Rumrill PD Jr, Hennessey ML, Vierstra C, Pugsley E, Pittman A. Perceived strengths and weaknesses in employment policies and services among people with multiple sclerosis: results of a national survey. Work 2003;21:25–36.
   PubMedGoogle Scholar
• Neath J, Roessler RT, McMahon BT, Rumrill PD. Patterns in perceived employment discrimination for adults with multiple sclerosis. Work 2007;29:255–274.
   PubMedGoogle Scholar
• Rumrill PD, Roessler RT, Koch LC. Surveying the employment concerns of people with multiple sclerosis: a participatory action research proposal. J Vocat Rehabil 1999;12:75–82.
   Google Scholar
• Rumrill PD, Steffen JM, Kaleta DA, Holman CA. Job placement interventions for people with multiple sclerosis. Work 1996;6:167–175.
   PubMedGoogle Scholar
• Department for Work and Pensions. Pathways to work – helping people into employment. London: TSO (The Stationary Office); 2002.
   Google Scholar
• Rumrill PD, Roessler RT, Unger D, Vierstra C. Title I of the Americans with Disabilities Act and Equal Employment Opportunity Commission case resolution patterns involving people with multiple sclerosis. J Vocat Rehabil 2004;20:171–176.
   Google Scholar
• Grønning M, Hannisdal E, Mellgren SI. Multivariate analyses of factors associated with unemployment in people with multiple sclerosis. J Neurol Neurosurg Psychiatr 1990;53:388–390.
   PubMed Web of Science ®Google Scholar
• Verdier-Taillefer MH, Sazdovitch V, Borgel F, Césaro P, Kurtz A, Millet MF, Roullet E, Marteau R. Occupational environment as risk factor for unemployment in multiple sclerosis. Acta Neurol Scand 1995;92:59–62.
   PubMed Web of Science ®Google Scholar
• Roessler RT, Rumrill PD, Fitzgerald SM. Factors affecting the job satisfaction of employed adults with multiple sclerosis. J Rehabil 2004;70:42–50.
   Web of Science ®Google Scholar
• Patti F, Pozzilli C, Montanari E, Pappalardo A, Piazza L, Levi A, Onesti E, Pesci I; Italian Study Group On Quality Of Life In Ms. Effects of education level and employment status on HRQoL in early relapsing-remitting multiple sclerosis. Mult Scler 2007;13:783–791.
   PubMed Web of Science ®Google Scholar
• De Judicibus MA, McCabe MP. The impact of the financial costs of multiple sclerosis on quality of life. Int J Behav Med 2007;14:3–11.
   PubMed Web of Science ®Google Scholar
• Pack TG, Turner R, Roessler RT, Robertson JL. Prediction of turnover among employed adults with multiple sclerosis. J Rehabil 2007;73:26–35.
   Web of Science ®Google Scholar
• Gulick EE. Health status, work impediments, and coping related to work roles of women with multiple sclerosis. Work 1996;6:153–166.
   PubMedGoogle Scholar
• Roessler RT, Rumrill PD. Strategies for enhancing career maintenance self-efficacy of people with multiple sclerosis. J Rehabil 1994;60:54–59.
   Web of Science ®Google Scholar
• Salomone PR, O’Connell KR. The impact of disability on the career development of people with multiple sclerosis. J Career Dev 1998;25:65–81.
   Web of Science ®Google Scholar
• Townsend G. Supporting people with multiple sclerosis in employment: a United Kingdom survey of current practice and experience. Br J Occup Ther 2008;71:103–111.
   Google Scholar
• Rumrill PD, Roessler RT, Vierstra C, Hennessey M, Staples L. Workplace barriers and job satisfaction among employed people with multiple sclerosis: an empirical rational for early intervention. J Vocat Rehabil 2004;20:177–183.
   Google Scholar
• Rumrill PD. Factors associated with unemployment among persons with multiple sclerosis. Work 1996;6:177–184.
   PubMedGoogle Scholar
• Roessler RT. The role of assessment in enhancing the vocational success of people with multiple sclerosis. Work 1996;6:191–201.
   PubMedGoogle Scholar
• Rumrill PD, Steffan J, Sumner G. Job retention interventions for persons with multiple sclerosis. Work 1996;6:185–190.
   PubMedGoogle Scholar
• Govan L, Langhorne P, Weir CJ; Stroke Unit Trialists Collaboration. Does the prevention of complications explain the survival benefit of organized inpatient (stroke unit) care?: further analysis of a systematic review. Stroke 2007;38:2536–2540.
   PubMed Web of Science ®Google Scholar
• Black C. Working for a healthier tomorrow. London: TSO (The Stationary Office); 2008.
   Google Scholar
• Scheinberg L, Holland N, Larocca N, Laitin P, Bennett A, Hall H. Vocational disability and rehabilitation in multiple sclerosis. Int J Rehabil Res 1981;4:61–64.
   PubMed Web of Science ®Google Scholar
• Szymanski EM. Disability, job stress, the changing nature of careers, and the Career Resilience Portfolio. Rehabil Counsel Bull 1999;42:279–289.
   Web of Science ®Google Scholar
• Putzki N, Fischer J, Gottwald K, Reifschneider G, Ries S, Siever A, Hoffmann F, et al.; “Mensch im Mittelpunkt” Study Group. Quality of life in 1000 patients with early relapsing-remitting multiple sclerosis. Eur J Neurol 2009;16:713–720.
   PubMed Web of Science ®Google Scholar
• Rumrill PD. Employment and multiple sclerosis: policy, programming, and research recommendations. Work 1996;6:205–209.
   PubMedGoogle Scholar
• Bishop M, Frain M, Espinosa C, Stenhoff DM. Sources of information about multiple sclerosis: Information seeking and personal, demographic, and MS variables. J Vocat Rehabil 2009;31:107–117.
   Google Scholar
• Rumrill PD, Roessler RT, Cook BG. Improving career re-entry outcomes for people with multiple sclerosis: a comparison of two approaches. J Vocat Rehabil 1998;10:241–252.
   Google Scholar
• Fraser RT, Johnson EK, Clemmons DC, Getter A, Johnson KL, Gibbons L. Vocational rehabilitation in multiple sclerosis (MS): a profile of clients seeking services. Work 2003;21:69–76.
   PubMedGoogle Scholar
• Bishop M, Tschopp MK, Mulvihill M. Multiple sclerosis and epilepsy: Vocational aspects and the best rehabilitation practices. J Rehabil 2000;66:50–55.
   Web of Science ®Google Scholar
• Johnson KL, Fraser RT. Mitigating the impact of multiple sclerosis on employment. Phys Med Rehabil Clin N Am 2005;16:571–82, x.
   PubMedGoogle Scholar
• Fuchs K. Neuropsychologist. Inter J MS Care 2009;11:32–37.
   Google Scholar
• Phillips LJ, Stuifbergen AK. Predicting continued employment in persons with multiple sclerosis. J Rehabil 2006;72:35–43.
   Web of Science ®Google Scholar
• Messmer Uccelli M, Specchia C, Battaglia MA, Miller DM. Factors that influence the employment status of people with multiple sclerosis: a multi-national study. J Neurol 2009;256:1989–1996.
   PubMed Web of Science ®Google Scholar
• Roessler RT, Neath J, McMahon BT, Rumrill PD. Workplace discrimination outcomes and their predictive factors for adults with multiple sclerosis. Rehabil Counsel Bull 2007;50:139–152.
   Web of Science ®Google Scholar
• Rumrill PD, Roessler RT, McMahon BT, Fitzgerald SM. Multiple sclerosis and work place discrimination: the national EEOC ADA research project. J Vocat Rehabil 2005;23:179–187.
   Google Scholar
• Varekamp I, Verbeek JH, van Dijk FJ. How can we help employees with chronic diseases to stay at work? A review of interventions aimed at job retention and based on an empowerment perspective. Int Arch Occup Environ Health 2006;80:87–97.
   PubMed Web of Science ®Google Scholar
• Gordon PA, Feldman D, Shipley B, Weiss L. Employment issues and knowledge regarding ADA of persons with multiple sclerosis. J Rehabil 1997;63:52–58.
   Web of Science ®Google Scholar
• Crooks V, Stone S, Owen M. Multiple sclerosis and academic work: socio-spatial strategies adopted to maintain employment. J Occup Sci 2009;16:25–31.
   PubMedGoogle Scholar
• Pack TG, Szirony GM. Predicting readiness to return to work in a population with multiple sclerosis. J Vocat Rehabil 2009;31:91–105.
   Google Scholar
• British Society of Rehabilitation Medicine. Vocational assessment and rehabilitation for people with long term neurological conditions: Recommendations for best practice. London: BSRM; 2010.
   Google Scholar