5,683
Views
73
CrossRef citations to date
0
Altmetric
Research Article

Encouraging family engagement in the rehabilitation process: a rehabilitation provider’s development of support strategies for family members of people with traumatic brain injury

, , , , , , , & show all
Pages 1855-1862 | Accepted 19 Jan 2012, Published online: 10 Apr 2012

References

  • Kim JJ, Gean AD. Imaging for the diagnosis and management of traumatic brain injury. Neurotherapeutics 2011;8:39–53.
  • Barker-Collo SL, Wilde NJ, Feigin VL. Trends in head injury incidence in New Zealand: a hospital-based study from 1997/1998 to 2003/2004. Neuroepidemiology 2009;32:32–39.
  • New Zealand Guidelines Group. Traumatic brain injury: diagnosis, acute management and rehabilitation. Evidence-based best practice guideline produced for ACC. Wellington: ACC, 2006.
  • Shaw LR, Chan F, Lam CS. Development and application of the Family Involvement Questionnaire in brain injury rehabilitation. Brain Inj 1997;11:219–231.
  • Kreutzer JS, Stejskal TM, Ketchum JM, Marwitz JH, Taylor LA, Menzel JC. A preliminary investigation of the brain injury family intervention: impact on family members. Brain Inj 2009;23:535–547.
  • Chua KS, Ng YS, Yap SG, Bok CW. A brief review of traumatic brain injury rehabilitation. Ann Acad Med Singap 2007;36:31–42.
  • Sherer M, Evans CC, Leverenz J, Stouter J, Irby JW Jr, Lee JE, Yablon SA. Therapeutic alliance in post-acute brain injury rehabilitation: predictors of strength of alliance and impact of alliance on outcome. Brain Inj 2007;21:663–672.
  • Braga LW, Da Paz AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj 2005;19:819–831.
  • Ergh TC, Rapport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil 2002;17:155–174.
  • Gillen R, Tennen H, Affleck G, Steinpreis R. Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury. J Head Trauma Rehabil 1998;13:31–43.
  • Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers’ distress and family functioning after traumatic brain injury. Brain Inj 1994;8:211–230.
  • Kreutzer JS, Gervasio AH, Camplair PS. Primary caregivers’ psychological status and family functioning after traumatic brain injury. Brain Inj 1994;8:197–210.
  • Minnes P, Graffi S, Nolte ML, Carlson P, Harrick L. Coping and stress in Canadian family caregivers of persons with traumatic brain injuries. Brain Inj 2000;14:737–748.
  • Perlesz A, Kinsella G, Crowe S. Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and tertiary carers. J Head Trauma Rehabil 2000;15:909–929.
  • Charles N, Butera-Prinzi F, Perlesz A. Families living with acquired brain injury: a multiple family group experience. NeuroRehabilitation 2007;22:61–76.
  • Panting A, Merry PH. The long term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patients’ family. Rehabilitation 1972;38:33–37.
  • Hoofien D, Gilboa A, Vakil E, Donovick PJ. Traumatic brain injury (TBI) 10-20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj 2001;15:189–209.
  • Kinsella G, Ong B, Murtagh D, Prior M, Sawyer M. The role of the family for behavioral outcome in children and adolescents following traumatic brain injury. J Consult Clin Psychol 1999;67:116–123.
  • Sander AM, Caroselli JS, High WM Jr, Becker C, Neese L, Scheibel R. Relationship of family functioning to progress in a post-acute rehabilitation programme following traumatic brain injury. Brain Inj 2002;16:649–657.
  • Leach LR, Frank RG, Bouman DE, Farmer J. Family functioning, social support and depression after traumatic brain injury. Brain Inj 1994;8:599–606.
  • Gan C, Gargaro J, Kreutzer JS, Boschen KA, Wright FV. Development and preliminary evaluation of a structured family system intervention for adolescents with brain injury and their families. Brain Inj 2010;24:651–663.
  • Campbell CH. Needs of relatives and helpfulness of support groups in severe head injury. Rehabil Nurs 1988;13:320–325.
  • Boschen K, Gargaro J, Gan C, Gerber G, Brandys C. Family interventions after acquired brain injury and other chronic conditions: a critical appraisal of the quality of the evidence. NeuroRehabilitation 2007;22:19–41.
  • Gauld S, Smith S, Kendall MB. Using participatory action research in community-based rehabilitation for people with acquired brain injury: from service provision to partnership with Aboriginal communities. Disabil Rehabil 2011;33:1901–1911.
  • Giuliano KK, Giuliano AJ, Bloniasz E, Quirk PA, Wood J. A quality-improvement approach to meeting the needs of critically ill patients and their families. Dimens Crit Care Nurs 2000;19:30–34.
  • Esselman PC, Dillman-Long J. Morbidity and management conference: an approach to quality improvement in brain injury rehabilitation. J Head Trauma Rehabil 2002;17:257–262.
  • Minkler M. Using Participatory Action Research to build Healthy Communities. Public Health Rep 2000;115:191–197.
  • Das-Gupta R, Turner-Stokes L. Traumatic brain injury. Disabil Rehabil 2002;24:654–665.
  • Harwood M. Rehabilitation and indigenous peoples: the Maori experience. Disabil Rehabil 2010;32:972–977.
  • Faleafa M. Community rehabilitation outcomes across cultures following traumatic brain injury. Pac Health Dialog 2009;15:28–34.
  • Ministry of Health. Guidelines for Cultural Assessment − Mäori Under the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003. Wellington: Ministry of Health, 2004.
  • Gzil F, Lefeve C, Cammelli M, Pachoud B, Ravaud JF, Leplege A. Why is rehabilitation not yet fully person-centred and should it be more person-centred? Disabil Rehabil 2007;29:1616–1624.
  • Jayadevappa R, Chhatre S. Patient centered care - a conceptual model and review of the state of the art. Open Health Services & Pol J 2011;4:15–25.
  • Thompson HJ. A critical analysis of measures of caregiver and family functioning following traumatic brain injury. J Neurosci Nurs 2009;41:148–158.
  • Siegert RJ, Ward T, Levack WM, McPherson KM. A Good Lives Model of clinical and community rehabilitation. Disabil Rehabil 2007;29:1604–1615.
  • Dausch BM, Saliman S. Use of family focused therapy in rehabilitation for veterans with traumatic brain injury. Rehabil Psychol 2009;54:279–287.
  • Larøi F. The family systems approach to treating families of persons with brain injury: a potential collaboration between family therapist and brain injury professional. Brain Inj 2003;17:175–187.
  • Hanks RA, Rapport LJ, Vangel S. Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support and family functioning. NeuroRehabilitation 2007;22:43–52.
  • Kayes NM, McPherson KM. Human technologies in rehabilitation: ‘Who’ and ‘How’ we are with our clients
  • Cloninger CR. Person-centred integrative care. J Eval Clin Pract 2011;17:371–372.
  • Bernat JL. Ethical issues in the treatment of severe brain injury: the impact of new technologies. Ann N Y Acad Sci 2009;1157:117–130.
  • White GW, Suchowierska M, Campbell M. Developing and systematically implementing participatory action research. Arch Phys Med Rehabil 2004;85:S3–12.
  • Turner-Stokes L, Williams H, Sephton K, Rose H, Harris S, Thu A. Engaging the hearts and minds of clinicians in outcome measurement − the UK Rehabilitation Outcomes Collaborative approach.
  • Kolakowsky-Hayner SA, Miner KD, Kreutzer JS. Long-term life quality and family needs after traumatic brain injury. J Head Trauma Rehabil 2001;16:374–385.
  • Australasian Rehabilitation Outcomes Centre. [Online] [Cited: 10 May 2011.]. Available at: http://chsd.uow.edu.au/aroc/presentations/index.html.
  • Dijkers MP, Harrison-Felix C, Marwitz JH. The traumatic brain injury model systems: history and contributions to clinical service and research. J Head Trauma Rehabil 2010;25:81–91.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.