The course of health-related quality of life of preschool children with cerebral palsy

References

• Prevalence and characteristics of children with cerebral palsy in Europe. Dev Med Child Neurol 2002; 44:633–640.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, Dan B, Jacobsson B. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl 2007;109:8–14.
   PubMedGoogle Scholar
• Gorter JW. Rehabilitative therapies for the child with cerebral palsy: focus on family, function and fitness. Minerva Pediatr 2009;61:425–440.
   PubMedGoogle Scholar
• What quality of life? The WHOQOL Group. World Health Organization Quality of Life Assessment. World Health Forum 1996;17:354–356.
   PubMedGoogle Scholar
• McDougall J, Wright V, Schmidt J, Miller L, Lowry K. Applying the ICF framework to study changes in quality-of-life for youth with chronic conditions. Dev Neurorehabil 2011;14:41–53.
   PubMed Web of Science ®Google Scholar
• Rosenbaum PL, Livingston MH, Palisano RJ, Galuppi BE, Russell DJ. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol 2007;49:516–521.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health. 2001.
   Google Scholar
• Higginson IJ, Carr AJ. Measuring quality of life: Using quality of life measures in the clinical setting. BMJ 2001;322:1297–1300.
   PubMed Web of Science ®Google Scholar
• Morrow AM, Quine S, Heaton MD, Craig JC. Assessing quality of life in paediatric clinical practice. J Paediatr Child Health 2010;46:323–328.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shevell M, Rosenbaum P, Law M, Poulin C. Determinants of life quality in school-age children with cerebral palsy. J Pediatr 2007;151:470–5, 475.e1.
   PubMed Web of Science ®Google Scholar
• Livingston MH, Rosenbaum PL, Russell DJ, Palisano RJ. Quality of life among adolescents with cerebral palsy: what does the literature tell us? Dev Med Child Neurol 2007;49:225–231.
   PubMed Web of Science ®Google Scholar
• Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, Beckung E, et al. Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study. Lancet 2007;369:2171–2178.
   PubMed Web of Science ®Google Scholar
• Janssen CG, Voorman JM, Becher JG, Dallmeijer AJ, Schuengel C. Course of health-related quality of life in 9-16-year-old children with cerebral palsy: associations with gross motor abilities and mental health. Disabil Rehabil 2010;32:344–351.
   PubMed Web of Science ®Google Scholar
• Vargus-Adams J. Health-related quality of life in childhood cerebral palsy. Arch Phys Med Rehabil 2005;86:940–945.
   PubMed Web of Science ®Google Scholar
• Vargus-Adams J. Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy. Dev Med Child Neurol 2006;48:343–347.
   PubMed Web of Science ®Google Scholar
• Young NL, Rochon TG, McCormick A, Law M, Wedge JH, Fehlings D. The health and quality of life outcomes among youth and young adults with cerebral palsy. Arch Phys Med Rehabil 2010;91:143–148.
   PubMed Web of Science ®Google Scholar
• Fekkes M, Theunissen NC, Brugman E, Veen S, Verrips EG, Koopman HM, Vogels T, et al. Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children. Qual Life Res 2000;9:961–972.
   PubMed Web of Science ®Google Scholar
• Bunge EM, Essink-Bot ML, Kobussen MP, van Suijlekom-Smit LW, Moll HA, Raat H. Reliability and validity of health status measurement by the TAPQOL. Arch Dis Child 2005;90:351–358.
   PubMed Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997;39:214–223.
   PubMed Web of Science ®Google Scholar
• Palisano RJ, Cameron D, Rosenbaum PL, Walter SD, Russell D. Stability of the gross motor function classification system. Dev Med Child Neurol 2006;48:424–428.
   PubMed Web of Science ®Google Scholar
• Gorter JW, Ketelaar M, Rosenbaum P, Helders PJ, Palisano R. Use of the GMFCS in infants with CP: the need for reclassification at age 2 years or older. Dev Med Child Neurol 2009;51:46–52.
   PubMed Web of Science ®Google Scholar
• Brossard-Racine M, Hall N, Majnemer A, Shevell MI, Law M, Poulin C, Rosenbaum P. Behavioural problems in school age children with cerebral palsy. Eur J Paediatr Neurol 2012;16:35–41.
   PubMed Web of Science ®Google Scholar
• Mohangoo AD, Essink-Bot ML, Juniper EF, Moll HA, de Koning HJ, Raat H. Health-related quality of life in preschool children with wheezing and dyspnea: preliminary results from a random general population sample. Qual Life Res 2005;14:1931–1936.
   PubMed Web of Science ®Google Scholar
• Carr AJ, Higginson IJ. Are quality of life measures patient centred? BMJ 2001;322:1357–1360.
   PubMed Web of Science ®Google Scholar
• Beckung E, Hagberg G. Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Dev Med Child Neurol 2002;44:309–316.
   PubMed Web of Science ®Google Scholar
• Carlon S, Shields N, Yong K, Gilmore R, Sakzewski L, Boyd R. A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy. BMC Pediatr 2010;10:81.
   PubMed Web of Science ®Google Scholar
• Morrow AM, Quine S, Loughlin EV, Craig JC. Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy. Arch Dis Child 2008;93:119–125.
   PubMed Web of Science ®Google Scholar
• Sprangers MA, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 1992;45:743–760.
   PubMed Web of Science ®Google Scholar
• Haverman L, Engelen V, van Rossum MA, Heymans HS, Grootenhuis MA. Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr 2011;11:3.
   PubMed Web of Science ®Google Scholar