Secondary health conditions in persons with a spinal cord injury for at least 10 years: design of a comprehensive long-term cross-sectional study

References

• van der Woude LHV, de Groot S, Postema K, Bussmann JBJ, Janssen TWJ, ALLRISC, Post MWM. Active Lifestyle Rehabilitation Interventions in aging Spinal Cord injury (ALLRISC): a multicentre research program. Disabil Rehabil current issue.
   Web of Science ®Google Scholar
• Jensen MP, Molton IR, Groah SL, Campbell ML, Charlifue S, Chiodo A, Forchheimer M, Krause JS, Tate D. Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches. Spinal Cord 2012;50:373–378.
   PubMed Web of Science ®Google Scholar
• Post MW, de Witte LP, van Asbeck FW, van Dijk AJ, Schrijvers AJ. Predictors of health status and life satisfaction in spinal cord injury. Arch Phys Med Rehabil 1998;79:395–401.
   PubMed Web of Science ®Google Scholar
• Noreau L, Proulx P, Gagnon L, Drolet M, Laramée MT. Secondary impairments after spinal cord injury: a population-based study. Am J Phys Med Rehabil 2000;79:526–535.
   PubMed Web of Science ®Google Scholar
• Werhagen L, Aito S, Tucci L, Strayer J, Hultling C. 25 years or more after spinal cord injury: clinical conditions of individuals in the Florence and Stockholm areas. Spinal Cord 2012;50:243–246.
   PubMed Web of Science ®Google Scholar
• Johnson RL, Gerhart KA, McCray J, Menconi JC, Whiteneck GG. Secondary conditions following spinal cord injury in a population-based sample. Spinal Cord 1998;36:45–50.
   PubMed Web of Science ®Google Scholar
• Anson CA, Shepherd C. Incidence of secondary complications in spinal cord injury. Int J Rehabil Res 1996;19:55–66.
   PubMed Web of Science ®Google Scholar
• Whiteneck GG, Charlifue SW, Frankel HL, Fraser MH, Gardner BP, Gerhart KA, Krishnan KR, et al. Mortality, morbidity, and psychosocial outcomes of persons spinal cord injured more than 20 years ago. Paraplegia 1992;30:617–630.
   PubMedGoogle Scholar
• McKinley WO, Jackson AB, Cardenas DD, DeVivo MJ. Long-term medical complications after traumatic spinal cord injury: a regional model systems analysis. Arch Phys Med Rehabil 1999;80:1402–1410.
   PubMed Web of Science ®Google Scholar
• Adkins RH. Research and interpretation perspectives on aging related physical morbidity with spinal cord injury and brief review of systems. NeuroRehabilitation 2004;19:3–13.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Tonack M, Campbell KA, McGillivray CF, Boschen KA, Richards K, Craven BC. Secondary health complications in an aging Canadian spinal cord injury sample. Am J Phys Med Rehabil 2008;87:545–555.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Campbell KA, McGillivray CF, Boschen KA, Craven BC. Understanding age effects associated with changes in secondary health conditions in a Canadian spinal cord injury cohort. Spinal Cord 2010;48:330–335.
   PubMed Web of Science ®Google Scholar
• Krause JS. Aging after spinal cord injury: an exploratory study. Spinal Cord 2000;38:77–83.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Eng JJ, Miller WC, Sakakibara BM; SCIRE Research Team. An evidence-based review of aging of the body systems following spinal cord injury. Spinal Cord 2011;49:684–701.
   PubMed Web of Science ®Google Scholar
• Gélis A, Dupeyron A, Legros P, Benaïm C, Pelissier J, Fattal C. Pressure ulcer risk factors in persons with spinal cord injury part 2: the chronic stage. Spinal Cord 2009;47:651–661.
   PubMed Web of Science ®Google Scholar
• Drake MJ, Cortina-Borja M, Savic G, Charlifue SW, Gardner BP. Prospective evaluation of urological effects of aging in chronic spinal cord injury by method of bladder management. Neurourol Urodyn 2005;24:111–116.
   PubMed Web of Science ®Google Scholar
• Bloemen-Vrencken JH, Post MW, Hendriks JM, De Reus EC, De Witte LP. Health problems of persons with spinal cord injury living in the Netherlands. Disabil Rehabil 2005;27:1381–1389.
   PubMed Web of Science ®Google Scholar
• van Loo MA, Post MW, Bloemen JH, van Asbeck FW. Care needs of persons with long-term spinal cord injury living at home in the Netherlands. Spinal Cord 2010;48:423–428.
   PubMed Web of Science ®Google Scholar
• Groah SL, Charlifue S, Tate D, Jensen MP, Molton IR, Forchheimer M, Krause JS, et al. Spinal cord injury and aging: challenges and recommendations for future research. Am J Phys Med Rehabil 2012;91:80–93.
   PubMed Web of Science ®Google Scholar
• American College of Sports Medicine. ACSM’s guidelines for exercise testing and prescription. 8th ed. Philadelphia: Lippincott Williams & Wilkins; 2006. pp 42–59.
   Google Scholar
• Marino R, Ditunno J Jr, Donovan W, Hudson L, Priebe M, Stover S, et al. International Standards for Neurological Classification of spinal cord injury. Chicago, IL: American Spinal Injury Association; 2000.
   Google Scholar
• Bohannon RW, Smith MB. Interrater reliability of a modified Ashworth scale of muscle spasticity. Phys Ther 1987;67:206–207.
   PubMed Web of Science ®Google Scholar
• Catz A, Itzkovich M, Tesio L, Biering-Sorensen F, Weeks C, Laramee MT, Craven BC, et al. A multicenter international study on the Spinal Cord Independence Measure, version III: Rasch psychometric validation. Spinal Cord 2007;45:275–291.
   PubMed Web of Science ®Google Scholar
• Miller MR, Hankinson J, Brusasco V, Burgos F, Casaburi R, Coates A, Crapo R, et al.; ATS/ERS Task Force. Standardisation of spirometry. Eur Respir J 2005;26:319–338.
   PubMed Web of Science ®Google Scholar
• Kilkens OJ, Post MW, van der Woude LH, Dallmeijer AJ, van den Heuvel WJ. The wheelchair circuit: reliability of a test to assess mobility in persons with spinal cord injuries. Arch Phys Med Rehabil 2002;83:1783–1788.
   PubMed Web of Science ®Google Scholar
• Kilkens OJ, Dallmeijer AJ, De Witte LP, Van Der Woude LH, Post MW. The Wheelchair Circuit: Construct validity and responsiveness of a test to assess manual wheelchair mobility in persons with spinal cord injury. Arch Phys Med Rehabil 2004;85:424–431.
   PubMed Web of Science ®Google Scholar
• Dallmeijer AJ, Kilkens OJ, Post MW, de Groot S, Angenot EL, van Asbeck FW, Nene AV, van der Woude LH. Hand-rim wheelchair propulsion capacity during rehabilitation of persons with spinal cord injury. J Rehabil Res Dev 2005;42:55–63.
   PubMed Web of Science ®Google Scholar
• van der Woude LH, de Groot G, Hollander AP, van Ingen Schenau GJ, Rozendal RH. Wheelchair ergonomics and physiological testing of prototypes. Ergonomics 1986;29:1561–1573.
   PubMed Web of Science ®Google Scholar
• Bonniaud V, Bryant D, Parratte B, Guyatt G. Development and validation of the short form of a urinary quality of life questionnaire: SF-Qualiveen. J Urol 2008;180:2592–2598.
   PubMed Web of Science ®Google Scholar
• Krogh K, Christensen P, Sabroe S, Laurberg S. Neurogenic bowel dysfunction score. Spinal Cord 2006;44:625–631.
   PubMed Web of Science ®Google Scholar
• Fleuren JF, Voerman GE, Snoek GJ, Nene AV, Rietman JS, Hermens HJ. Perception of lower limb spasticity in patients with spinal cord injury. Spinal Cord 2009;47:396–400.
   PubMed Web of Science ®Google Scholar
• Sköld C. Spasticity in spinal cord injury: self- and clinically rated intrinsic fluctuations and intervention-induced changes. Arch Phys Med Rehabil 2000;81:144–149.
   PubMed Web of Science ®Google Scholar
• Washburn RA, Zhu W, McAuley E, Frogley M, Figoni SF. The physical activity scale for individuals with physical disabilities: development and evaluation. Arch Phys Med Rehabil 2002;83:193–200.
   PubMed Web of Science ®Google Scholar
• van der Zee CH, Priesterbach AR, van der Dussen L, Kap A, Schepers VP, Visser-Meily JM, Post MW. Reproducibility of three self-report participation measures: The ICF Measure of Participation and Activities Screener, the Participation Scale, and the Utrecht Scale for Evaluation of Rehabilitation-Participation. J Rehabil Med 2010;42:752–757.
   PubMed Web of Science ®Google Scholar
• van der Zee CH, Kap A, Rambaran Mishre R, Schouten EJ, Post MW. Responsiveness of four participation measures to changes during and after outpatient rehabilitation. J Rehabil Med 2011;43:1003–1009.
   PubMed Web of Science ®Google Scholar
• Post MW, van der Zee CH, Hennink J, Schafrat CG, Visser-Meily JM, van Berlekom SB. Validity of the utrecht scale for evaluation of rehabilitation-participation. Disabil Rehabil 2012;34:478–485.
   PubMed Web of Science ®Google Scholar
• Krupp LB, LaRocca NG, Muir-Nash J, Steinberg AD. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol 1989;46:1121–1123.
   PubMed Web of Science ®Google Scholar
• Anton HA, Miller WC, Townson AF. Measuring fatigue in persons with spinal cord injury. Arch Phys Med Rehabil 2008;89:538–542.
   PubMed Web of Science ®Google Scholar
• Forchheimer M, McAweeney M, Tate DG. Use of the SF-36 among persons with spinal cord injury. Am J Phys Med Rehabil 2004;83:390–395.
   PubMed Web of Science ®Google Scholar
• International Spinal Cord Injury Data Sets-Quality Of Life Basic Data Set [Internet]. Available from http://www.iscos.org.uk/. Accessed on April 2010.
   Google Scholar
• van Leeuwen CM, Post MW, van Asbeck FW, van der Woude LH, de Groot S, Lindeman E. Social support and life satisfaction in spinal cord injury during and up to one year after inpatient rehabilitation. J Rehabil Med 2010;42:265–271.
   PubMed Web of Science ®Google Scholar
• Geyh S, Fellinghauer BA, Kirchberger I, Post MW. Cross-cultural validity of four quality of life scales in persons with spinal cord injury. Health Qual Life Outcomes 2010;8:94.
   PubMed Web of Science ®Google Scholar
• Kroll T, Kehn M, Ho PS, Groah S. The SCI Exercise Self-Efficacy Scale (ESES): development and psychometric properties. Int J Behav Nutr Phys Act 2007;4:34.
   PubMed Web of Science ®Google Scholar
• Amtmann D, Bamer A, Brockway J, Cook K, Johnson K. Self-efficacy in multiple sclerosis. Int J MS Care 13(Suppl 3):81.
   Google Scholar
• Post MW, Brinkhof MW, von Elm E, Boldt C, Brach M, Fekete C, Eriks-Hoogland I, et al.; SwiSCI study group. Design of the Swiss Spinal Cord Injury Cohort Study. Am J Phys Med Rehabil 2011;90:S5–16.
   PubMed Web of Science ®Google Scholar