People with dementia in long-term care facilities: an exploratory study of their activities and participation

References

• Brookmeyer R, Gray S. Methods for projecting the incidence and prevalence of chronic diseases in ageing populations: application to Alzheimer’s disease. Stat Med 2000;19:1481–93
   PubMed Web of Science ®Google Scholar
• Ritchie K, Lovestone S. The dementias. Lancet 2002;360:1759–66
   PubMed Web of Science ®Google Scholar
• Alzheimer Europe. World Alzheimer Report. London: Alzheimer’s Disease International; 2009. Available from: http://www.alz.co.uk/research/files/WorldAlzheimerReport-ExecutiveSummary.pdf [last accessed 19 Dec 2012]
   Google Scholar
• Alzheimer Disease International. World Alzheimer report: the benefits of early diagnosis and intervention; 2011; London, UK
   Google Scholar
• National Institute for Health and Clinical Excellence (N.I.C.E.). Dementia: the NICE-SCIE guideline on supporting people with dementia and their carers in health and social care. London: National Collaborating Centre for Mental Health; 2007
   Google Scholar
• Sauvaget C, Yamada M, Fujiwara S, et al. Dementia as a predictor of functional disability: a four-year follow-up study. Gerontology 2002;48:226–33
   PubMed Web of Science ®Google Scholar
• Liu KPY, Chan CC, Chu MM, et al. Activities of daily living performance in dementia. Acta Neurol Scand 2007;116:91–5
   PubMed Web of Science ®Google Scholar
• Carpenter G, Hastie CL, Morris JN, et al. Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatr 2006;6:1–8
   PubMedGoogle Scholar
• Kurz X, Scuvee-Moreau J, Rive B, Dresse A. A new approach to the qualitative evaluation of functional disability in dementia. Int J Geriatr Psychiatry 2003;18:1050–5
   PubMed Web of Science ®Google Scholar
• World Health Organization. World report on disability. Switzerland; 2011. Available from: http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf [last accessed 19 Dec 2012]
   Google Scholar
• Hancock S. Intermediate care and older people. Nurs Standard 2003;17:45–51
   PubMedGoogle Scholar
• Scherer MJ. Assessing the benefits of using assistive technologies and other supports for thinking, remembering and learning. Disabil Rehabil 2005;27:731–9
   PubMed Web of Science ®Google Scholar
• Üstün TB, Kostanjsek N, Chatterji S, Rehm J. Measuring health and disability: manual for WHO disability assessment schedule – WHODAS 2.0. Switzerland; 2010. Available from: http://whqlibdoc.who.int/publications/2010/9789241547598_eng.pdf [last accessed 19 Dec 2012]
   Google Scholar
• Brooker D, ed. Individualised care. In: Person-centred dementia care: making services better. London: Jessica Kingsley Publishers; 2007:44–62
   Google Scholar
• Crane-Ross D, Roth D, Lauber BG. Consumers’ and case managers’ perceptions of mental health and community support service needs. Community Mental Health J 2000;36:161–78
   PubMed Web of Science ®Google Scholar
• Linden M, Gehrke G, Geiselmann B. Profiles of recreational activities of daily living (RADL) in patients with mental disorders. Psychiatria Danubina 2009;21:490–6
   PubMed Web of Science ®Google Scholar
• WHO. International classification of functioning, disability and health (ICF). Geneva: WHO; 2001
   Google Scholar
• Cieza A, Geyh S, Chatterji S, et al. Identification of candidate categories of the International Classification of Functioning Disability and Health (ICF) for a Generic ICF Core Set based on regression modelling. BMC Med Res Methodol 2006;6:36
   PubMedGoogle Scholar
• Brush JA, Threats TT, Calkins MP. Influences on perceived function of a nursing home resident. J Commun Disord 2003;36:379–93
   PubMed Web of Science ®Google Scholar
• Donmez L, Gokkoca Z, Dedeoglu N. Disability and its effects on quality of life among older people living in Antalya city center, Turkey. Arch Gerontol Geriatr 2005;40:213–23
   PubMed Web of Science ®Google Scholar
• Adib-Hajbaghery M, Aghahoseini S. The evaluation of disability and its related factors among the elderly population in Kashan, Iran. BMC Public Health 2007;7:261
   PubMed Web of Science ®Google Scholar
• Sousa RM, Dewey ME, Acosta D, et al. Measuring disability across cultures – the psychometric properties of the WHODAS II in older people from seven low- and middle-income countries. The 10/66 Dementia Research Group population-based survey. Int J Methods Psych Res 2010;19:1–17
   PubMed Web of Science ®Google Scholar
• Prince M, Acosta D, Ferri CP, et al. The association between common physical impairments and dementia in low and middle income countries, and, among people with dementia, their association with cognitive function and disability. A 10/66 Dementia Research Group population-based study. Int J Geriatr Psychiatry 2011;26:511–19
   PubMed Web of Science ®Google Scholar
• American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM–IV. 4th ed. Washington, DC: APA; 1994
   Google Scholar
• Folstein MS, Folstein SE, McHugh PR. “Mini-mental state”. A pratical method for grading the mental state of patients for the clinician. J Psych Res 1975;12:189–98
   Web of Science ®Google Scholar
• Guerreiro M, Silva A, Botelho M. Adaptação à população portuguesa do “Mini Mental State Examination” (MMSE). Rev Portuguesa Neurol 1994;1:9–10
   Google Scholar
• Fernández M, Gobartt AL. Balañá M; COOPERA Study Group. Behavioural symptoms in patients with Alzheimer’s disease and their association with cognitive impairment. BMC Neurol 2010;10:87
   PubMed Web of Science ®Google Scholar
• Miranda-Castillo C, Woods B, Galboda K, et al. Unmet needs, quality of life and support networks of people with dementia living at home. Health Qual Life Outcomes 2010;8:132
   PubMed Web of Science ®Google Scholar
• Simões MR, Caldeira S, Lima MP, et al. WHODAS II. Versão Portuguesa Autorizada. Coimbra: Serviço de Avaliação Psicológica da Faculdade de Psicologia e de Ciências da Educação da Universidade de Coimbra; 2007
   Google Scholar
• World Health Organization. ICF Checklist. Geneva: World Health Organization; 2001
   Google Scholar
• Fleiss J, ed. Reliability of measurements. In: The design and analysis of clinical experiments. 1st ed. New York: John Wiley & Sons; 1986:1–423
   Google Scholar
• Maroco J, ed. Testes não paramétricos para amostras indepenedentes. In: Análise Estatística com utilização do SPSS. 1 edição, Publicações Pero Pinheiro; 2003:299–330
   Google Scholar
• Orrell M, Hancock G, Hoe J, et al. A cluster randomised controlled trial to reduce the unmet needs of people with dementia living in residential care. Int J Geriatr Psychiatry 2007;22:1127–34
   PubMed Web of Science ®Google Scholar
• Hancock GA, Woods B, Challis D, Orrell M. The needs of older people with dementia in residential care. Int J Geriatr Psychiatry 2006;21:43–9
   PubMed Web of Science ®Google Scholar
• Paúl C, Ribeiro O, Santos P. Cognitive impairment in old people living in the community. Arch Gerontol Geriatr 2010;51:121–4
   PubMed Web of Science ®Google Scholar
• Marra TA, Pereira DS, Faria CD, et al. Influence of socio-demographic, clinical and functional factors on the severity of dementia. Arch Gerontol Geriatr 2011;53:210--15
   Google Scholar
• Nunes B, Silva RD, Cruz VT, et al. Prevalence and pattern of cognitive impairment in rural and urban populations from Northern Portugal. BMC Neurol 2010;10:42
   PubMed Web of Science ®Google Scholar
• Perkins P, Annegers JF, Doody RS, et al. Incidence and prevalence of dementia in a multiethnic cohort of municipal retirees. Neurology 1997;49:44–50
   PubMed Web of Science ®Google Scholar
• Bermejo-Pareja F, Benito-León J, Vega S, et al; Neurological Disorders in Central Spain (NEDICES) Study Group. Incidence and subtypes of dementia in three elderly populations of central Spain. J Neurolog Sci 2008;264:63–72
   PubMed Web of Science ®Google Scholar
• Plassman BL, Langa KM, Fisher GG, et al. Prevalence of dementia in the United States: the aging, demographics, and memory study. Neuroepidemiology 2007;29:125–32
   PubMed Web of Science ®Google Scholar
• Savva GM, Wharton SB, Path FRC, et al. Age, neuropathology, and dementia. New Engl J Med 2009;360:2302–9
   PubMed Web of Science ®Google Scholar
• Scazufca M, Almeida OP, Vallada HP, et al. Limitations of the Mini-mental State Examination for screening dementia in a community with low socioeconomic status. Eur Arch Psychiatry Clin Neurosci 2009;259:8–15
   PubMed Web of Science ®Google Scholar
• Kahle-Wrobleski K, Corrada MM, Li B, Kawas CH. sensitivity and specificity of the Mini-Mental State Examination for identifying dementia in the oldest-old: the 90+ study. J Am Geriatr Soc 2007;55:284–9
   PubMed Web of Science ®Google Scholar
• O’Bryant SE, Humphreys JD, Smith GE, et al. detecting dementia with the mini-mental state examination in highly educated individuals. Arch Neurol 2008;65:963–7
   PubMed Web of Science ®Google Scholar
• Anstey K, Burns RA, Birrell CL, et al. Estimates of probable dementia prevalence from population-based surveys compared with dementia prevalence estimates based on meta-analyses. BMC Neurol 2010;10:62
   PubMed Web of Science ®Google Scholar
• St John PDS, Montgomery PR, Kristjansson B, McDowell I. Cognitive scores, even within the normal range, predict death and institutionalization. Age Ageing 2002;31:373–8
   PubMed Web of Science ®Google Scholar
• Wolstenholme JL, Fenn P, Gray A, et al. Estimating the relationship between disease progression and cost of care in dementia. Br J Psychiatry 2002;181:36–42
   PubMed Web of Science ®Google Scholar
• Gure TR, Kabeto MU, Plassman BL, et al. Differences in functional impairment across subtypes of dementia. J Gerontol Ser A Biolog Sci Med Sci 2010;65A:434–41
   Web of Science ®Google Scholar
• Barberger-Gateau P, Fabrigoule C, Amieva H, et al. The disablement process: a conceptual framework for dementia-associated disability. Dement Geriatr Cogn Dis 2002;13:60–6
   PubMed Web of Science ®Google Scholar
• Muò R, Schindler A, Vernero I, et al. Alzheimer’s disease-associated disability: an ICF approach. Disabil Rehabil 2005;27:1405–13
   PubMed Web of Science ®Google Scholar
• Rabins PV, Blacker D, Rovner BW, et al. APA practice guideline for the treatment of patients with Alzheimer’s disease and other dementias. Am J Psychiatry 2007;164:5–56
   PubMed Web of Science ®Google Scholar
• Dunlop DD, Hughes SL, Manheim LM. Disability in activities of daily living: patterns of change and a hierarchy of disability. Am J Public Health 1997;87:378–83
   PubMed Web of Science ®Google Scholar
• Nakamura T, Meguro K, Yamazaki H, et al. Postural and gait disturbance correlated with decreased frontal cerebral blood flow in Alzheimer disease. Alzheimer Dis Assoc Disord 1997;11:132–9
   PubMed Web of Science ®Google Scholar
• Goldman WP, Baty JD, Buckles VD, et al. Motor dysfunction in mildly demented AD individuals without extrapyramidal signs. Neurology 1999;53:956–62
   PubMed Web of Science ®Google Scholar
• Pitkala K, Raivio MM, Laakkonen ML, et al. Exercise rehabilitation on home-dwelling patients with Alzheimer’s disease – a randomized, controlled trial. Study protocol. Trials 2010;11:92
   PubMed Web of Science ®Google Scholar
• Chung JCC. Care needs assessment of older Chinese individuals with dementia of Hong Kong. Aging Mental Health 2006;10:631–7
   PubMed Web of Science ®Google Scholar
• Morris JN, Fries BE, Morris SA. Scaling ADLs within the MDS. J Gerontol A Biol Sci Med Sci 1999;54:546–53
   PubMed Web of Science ®Google Scholar
• Njegovan V, Hing MM, Mitchell SL, Molnar FJ. The hierarchy of functional loss associated with cognitive decline in older persons. J Gerontol A Biol Sci Med Sci 2001;56:638–43
   PubMed Web of Science ®Google Scholar
• van der Flier WM, Scheltens P. Epidemiology and risk factors of dementia. J Neurol Neurosurg Psychiatry 2005;76:v2–7
   PubMed Web of Science ®Google Scholar
• Hatoum HT, Thomas SK, Lin SJ, et al. Predicting time to nursing home placement based on activities of daily living scores-a modelling analysis using data on Alzheimer’s disease patients receiving rivastigmine or donepezil. J Med Econ 2009;12:98–103
   PubMedGoogle Scholar
• Wattmo C, Wallin AK, Londos E, Minthon L. Risk factors for nursing home placement in Alzheimer’s disease: a longitudinal study of cognition, ADL, service utilization, and cholinesterase inhibitor treatment. Gerontologist 2011;51:17–27
   PubMed Web of Science ®Google Scholar
• Espiritu DAV, Rashid H, Mast BT, et al. Depression, cognitive impairment and function in Alzheimer’s disease. Int J Geriatr Psychiatry 2001;16:1098–103
   PubMed Web of Science ®Google Scholar
• Marengoni A, Agüero-Torres H, Cossi S, et al. Poor mental and physical health differentially contributes to disability in hospitalized geriatric patients of different ages. Int J Geriatr Psychiatry 2004;19:27–34
   PubMed Web of Science ®Google Scholar
• Mangialasche F, Kivipelto M, Solomon A, Fratiglioni L. Dementia prevention: current epidemiological evidence and future perspective. Alzheimers Res Ther 2012;4:6
   PubMed Web of Science ®Google Scholar
• Nygard L. Responses of persons with dementia to challenges in daily activities: a synthesis of findings from empirical studies. Am J Occup Ther 2004;58:435–45
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Clinical Excellence, National Collaborating Centre for Mental Health. NICE guideline: dementia supporting people with dementia and their carers in health and social care. London; 2006. Available from: http://www.nice.org.uk/nicemedia/live/10998/30317/30317.pdf [last accessed 19 Dec 2012]
   Google Scholar
• World Health Organization. The World Health Report: primary care putting people first. Switzerland; 2008;41–60
   Google Scholar
• van de Ven G, Draskovic I, Adang EM, et al. Improving person-centred care in nursing homes through dementia-care mapping: design of a cluster-randomised controlled trial. BMC Geriatr 2012;12:1
   PubMedGoogle Scholar
• Hancock GA, Reynolds T, Woods B, et al. The needs of older people with mental health problems according to the user, the carer, and the staff. Int J Geriatr Psychiatry 2003;18:803–11
   PubMed Web of Science ®Google Scholar
• Nishtala PS, McLachlan AJ, Bell JS, Chen TF. Determinants of antipsychotic medication use among older people living in aged care homes in Australia. Int J Geriatr Psychiatry 2009;25:449–57
   Web of Science ®Google Scholar
• Macdonald AJD. Dementia and use of psychotropic medication in non-Elderly Mentally Infirm’ nursing homes in South East England. Age Ageing 2002;31:58–64
   PubMed Web of Science ®Google Scholar
• Alzheimer’s Society. Reducing the use of antipsychotic drugs: a guide to the treatment and care of behavioural and psychological symptoms of dementia. London: Alzheimer’s Society; 2011
   Google Scholar