2,222
Views
68
CrossRef citations to date
0
Altmetric
Review Article

Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research

, &
Pages 185-198 | Received 03 Sep 2012, Accepted 05 Mar 2013, Published online: 18 Apr 2013

References

  • Mackay J, Mensah G. The atlas of heart disease and stroke. Geneva: World Health Organisation 2004. Available from: http://www.who.int/cardiovascular_diseases/resources/atlas/en/ [last accessed 23 Jan 2012]
  • Department of Health, National stroke strategy. London: Department of Health. Crown Copyright 2007
  • Hackett ML, Yapa C, Parag V, Anderson CS. Frequency of depression after stroke: a systematic review of observational studies. Stroke 2005;36:1330–40
  • National Audit Office, Department of Health. Progress in improving stroke care. London: Stationery Office; 2010
  • National Audit Office, Department of Health. Reducing brain damage: faster access to better stroke care. London: Stationery Office; 2005
  • O’Connell B, Baker L. Managing as carers of stroke survivors: strategies from the field. Int J Nurs Pract 2004;10:121–6
  • Murray J, Ashworth R, Forster A, Young J. Developing a primary care-based stroke service: a review of the qualitative literature. Br J Gen Pract 2003;53:137–42
  • Anderson, CS, Linto J, Stewart-Wynne, EG. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995;26:843–9
  • Cao V, Chung C, Ferreira A, et al. Changes in activities of wives caring for their husbands following stroke. Physiother Can 2010;62:35–43
  • Franzén-Dahlin A, Larson J, Murray V, et al. Predictors of psychological health in spouses of persons affected by stroke. J Clin Nurs 2007;16:885–91
  • Ostwald SK, Godwin KM, Cron S. Predictors of life satisfaction in stroke survivors and spousal caregivers twelve to twenty-four months post discharge from inpatient rehabilitation. Rehabil Nurs 2004;34:160–7, 174
  • Bakas T, Austin JK, Jessup SL, et al. Time and difficulty of tasks provided by family caregivers of stroke survivors. J Neurosci Nurs 2004;36:95–106
  • Lincoln NB, Blackburn M, Ellis S, et al. An investigation of factors affecting progress of patients on a stroke unit. J Neurol Neurosurg Psychiatry 1989;52:493–6
  • Larson J, Franzén-Dahlin A, Billing E, et al. The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients’ stroke event: a longitudinal study. Int J Nurs Stud 2008;45:257–65
  • Smith LN, Lawrence M, Kerr SM, et al. Informal carers’ experience of caring for stroke survivors. J Adv Nurs 2004;46:235–44
  • Draper P, Brocklehurst H. The impact of stroke on the well-being of the patient’s spouse: an exploratory study. J Clin Nurs 2007;16:264–71
  • Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal primary carers of stroke survivors living at home – challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil 2009;31:337–51
  • Hunt D, Smith JA. The personal experience of carers of stroke survivors: an interpretative phenomenological analysis. Disabil Rehabil 2004;26:1000–11
  • Morrison V. Predictors of carer distress following stroke. Rev Clin Gerontol 1999;9:265–71
  • Han B, Haley WE. Family caregiving for patients with stroke: review and analysis. Stroke 1999;30:1478–85
  • Low JT, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med 1999;49:711–25
  • Greenwood N, Mackenzie A. Informal caring for stroke survivors: meta-ethnographic review of qualitative literature. Maturitas 2010;66:268–76
  • Larson J, Franzén-Dahlin A, Billing E, et al. The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients’ stroke event: a longitudinal study. Int J Nurs Stud 2008;45:257–65
  • Visser-Meily JMA, Post MWM, Schepers VPM, et al. Spouses’ satisfaction with caregiver support in stroke rehabilitation. Scand J Caring Sci 2005;19:310–16
  • Delaune M, Brown SC. Spousal responses to role changes following a stroke. Res Pract 2001;10:2:79–88
  • Visser-Meily A, Post M, van de Port I, et al. Psychosocial functioning of spouses in the chronic phase after stroke: improvement or deterioration between 1 and 3 years after stroke? Patient Educ Couns 2008;73:153–8
  • Forsberg-Wärleby G, Möller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 2004;18:430–7
  • Blonder LX, Langer SL, Pettigrew LC, Garrity TF. The effects of stroke disability on spousal caregivers. NeuroRehabil 2007;22:85–92
  • Blake H, Lincoln NB, Clarke DD. Caregiver strain in spouses of stroke patients. Clin Rehabil 2003;17:312–17
  • Blake H, Lincoln NB. Factors associated with strain in co-resident spouses of patients following stroke. Clin Rehabil 2000;14:307–14
  • Rigby H, Gubitz G, Phillips S. Topical review: a systematic review of caregiver burden following stroke. Int J Stroke 2009;4:285–92
  • Scholte op Reimer WJ, de Haan RJ, Rijnders PT, et al. The burden of caregiving in partners of long-term stroke survivors. Stroke 1998;29:1605–11
  • Jorgensen HS, Kammersgaard LP, Nakayama H, et al. Treatment and rehabilitation on a stroke unit improves 5-year survival. A community-based study. Stroke 1999;30:930–3
  • Wilz G, Kalytta T. Anxiety symptoms in spouses of stroke patients. Cerebrovasc Dis 2008;25:311–15
  • Cameron JI, Cheung AM, Streiner DL, et al. Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke 2011;42:302–6
  • Kerr SM, Smith LN. Stroke: an exploration of the experience of informal caregiving. Clin Rehabil 2001;15:428–36
  • Brereton L, Nolan M. “You do know he”s had a stroke, don’t you?' Preparation for family care-giving – the neglected dimension. J Clin Nurs 2000;9:498–506
  • Cecil R, Parahoo K, Thompson K, et al. “The hard work starts now”: a glimpse into the lives of carers of community-dwelling stroke survivors. J Clin Nurs 2011;20:1723–30
  • Lazarus RS, Folkman S. Stress, appraisal and coping. New York: Springer; 1984
  • Willig C. Introducing qualitative research in psychology: adventures in theory and method. 2nd ed. Buckingham: Open University Press; 2008
  • Salter K, Hellings C, Foley N, Teasell R. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med 2008;40:595–602
  • Pope C, Mays N. Synthesising qualitative research. In: Pope C, Mays N, eds. Qualitative research in health care. 3rd ed. London, UK: BMJ Books; 2000:142–52
  • Sandelowski M, Docherty S, Emden C. Focus on qualitative methods. Qualitative metasynthesis: issues and techniques. Res Nurs Health 1997;20:365–371
  • Finfgeld-Connett D. Generalizability and transferability of meta-synthesis research findings. J Adv Nurs 2010;66:246–54
  • Finfgeld DL. Meta-synthesis: the state of the art – so far. Qual Health Res 2003;13:893–904
  • Sandelowski M, Barroso J. Handbook for synthesizing qualitative research. New York: Springer Publishing Company; 2007
  • Tuleya, L. (Ed.). Thesaurus of psychological index terms. 11th ed. Washington, DC: American Psychological Association; 2007
  • Flemming K, Briggs M. Electronic searching to locate qualitative research: evaluation of three strategies. J Adv Nurs 2007;57:95–1000
  • McKibbon KA, Wilczynski NL, Haynes RB. Developing optimal search strategies for retrieving qualitative studies in PsycInfo. Eval Health Prof 2006;29:440–54
  • Noblit GW, Hare RD. Meta-ethnography: synthesizing qualitative studies. Newbury Park, UK: Sage University Press; 1988
  • Jensen LA, Allen MN. Meta-synthesis of qualitative findings. Qual Health Res 1996;6:553–60
  • de Leon Arabit L. Coping strategies of Latino women caring for a spouse recovering from a stroke: a grounded theory. J Theory Constructive Testing 2005;12:42–9
  • Bäckström B, Asplund K, Sundin K. The meaning of middle-aged female spouses’ lived experience of the relationship with a partner who has suffered a stroke, during the first year postdischarge. Nurs Inquiry 2010;17:257–68
  • Bulley C, Shiels J, Wilkie K, Salisbury L. Carer experiences of life after stroke – a qualitative analysis. Disabil Rehabil 2010;32:1406–13
  • Buschenfeld K, Morris R, Lockwood S. The experience of partners of young stroke survivors. Disabil Rehabil 2009;31:1643–51
  • Coombs UE. Spousal caregiving for stroke survivors. J Neurosci Nurs: J Am Assoc Neurosci Nurs 2007;39:112–19
  • Denman A. Determining the needs of spouses caring for aphasic partners. Disabil Rehabil 1998;20:411–23
  • Green TL, King KM. Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. Int J Nurs Stud 2009;46:1194–200
  • White CL, Korner-Bitensky N, Rodrigue N, et al. Barriers and facilitators to caring for individuals with stroke in the community: the family's experience. Can J Neurosci Nurs 2007;29:5–12
  • Brann M, Himes KL, Dillow MR, Weber K. Dialectical tensions in stroke survivor relationships. Health Commun 2010;25:323–32
  • Glaser B, Strauss A. The discovery of grounded theory. Chicago: Aldine; 1967
  • Critical Appraisal Skills Programme (CASP). 10 questions developed by the National CASP Collaboration for qualitative methodologies. Public Health Resource Unit, Milton Keynes Primary Care Trust 2002. Available from: www.phru.nhs.uk/casp/casp.htm [last accessed 11 Nov 2011]
  • Walsh D, Downe S. Appraising the quality of qualitative research. Midwifery 2006;22:108–19
  • Intercollegiate Stroke Working Party. National clinical guideline for stroke. 3rd ed. London: Royal College of Physicians; 2008
  • Care Quality Commission. Supporting life after stroke: a review of services for people who have had a stroke and their carers. London: Care Quality Commission; 2011
  • Rolland JS. In sickness and in health: the impact of illness on couples’ relationships. J Marital Fam Ther 1994;20:327–49
  • Eldred C, Sykes C. Psychosocial interventions for carers of survivors of stroke: a systematic review of interventions based on psychological principles and theoretical frameworks. Br J Health Psychol 2008;13:563–81
  • Lincoln N, Kneebone I, Macniven J, Morris R. Psychological management of stroke. Chichester: Wiley-Blackwell; 2012

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.