Validation of the Episodic Disability Framework with adults living with HIV

References

• Murphy EL, Collier AC, Kalish LA, et al. Highly active antiretroviral therapy decreases mortality and morbidity in patients with advanced HIV disease. Ann Intern Med 2001;135:7–26
   Google Scholar
• Palella FJ Jr, Delaney KM, Moorman AC, et al. Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection. HIV Outpatient Study Investigators. N Engl J Med 1998;338:853–60
   PubMed Web of Science ®Google Scholar
• Weiss JJ, Osorio G, Ryan E, et al. Prevalence and patient awareness of medical comorbidities in an urban AIDS clinic. AIDS Patient Care STDS 2010;24:39–48
   PubMed Web of Science ®Google Scholar
• Willard S, Holzemer WL, Wantland DJ, et al. Does “asymptomatic” mean without symptoms for those living with HIV infection? AIDS Care 2009;21:322–8
   PubMed Web of Science ®Google Scholar
• Rusch M, Nixon S, Schilder A, et al. Impairments, activity limitations and participation restrictions: prevalence and associations among persons living with HIV/AIDS in British Columbia. Health Qual Life Outcomes 2004;2:46 . Available from: http://www.hqlo.com/content/2/1/46
   PubMedGoogle Scholar
• Stanton DL, Wu AW, Moore RD, et al. Functional status of persons with HIV infection in an ambulatory setting. J Acquir Immune Defic Syndr 1994;7:1050–6
   PubMed Web of Science ®Google Scholar
• Gaidhane AM, Syed Zahiruddin Q, Waghmare L, et al. Assessing self-care component of activities and participation domain of the international classification of functioning, disability and health (ICF) among people living with HIV/AIDS. AIDS Care 2008;20:1–7
   PubMed Web of Science ®Google Scholar
• Meyer-Rosberg K, Kvarnstrom A, Kinnman E, et al. Peripheral neuropathic pain – a multidimensional burden for patients. Eur J Pain 2001;5:379–89
   PubMed Web of Science ®Google Scholar
• Blanch J, Rousaud A, Martinez E, et al. Impact of lipodystrophy on the quality of life of HIV-1-infected patients. J Acquir Immune Defic Syndr 2002;31:404–7
   PubMed Web of Science ®Google Scholar
• Dray-Spira R, Persoz A, Boufassa F, et al. Employment loss following HIV infection in the era of highly active antiretroviral therapies. Eur J Public Health 2006;16:89–95
   PubMed Web of Science ®Google Scholar
• O'Brien KK, Bayoumi AM, Strike C, et al. Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework. Health Qual Life Outcomes 2008;6:76 . Available from: http://www.hqlo.com/content/6/1/76
   PubMed Web of Science ®Google Scholar
• O'Brien KK, Davis AM, Strike C, et al. Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS. J Int AIDS Soc 2009;12:5 . Available from: http://www.biomedcentral.com/1758-2652/12/30/
   PubMed Web of Science ®Google Scholar
• Fougeyrollas P, St-Michel G, Bergeron N, Cloutier R. The handicap creation process: analysis of the consultation. ICIDH Int Network 1991;4:8–37
   Google Scholar
• Nagi S. Some conceptual issues in disability and rehabilitation. In: Sussman M, ed. Sociology and rehabilitation. Washington, DC: American Sociological Association; 1965:100–13
   Google Scholar
• Nagi S. Disability concepts revisited: implications for prevention. In: Pope A, Tarlov A, eds. Disability in America: toward a national agenda for prevention. Washington, DC: National Academy Press; 1991:309–27
   Google Scholar
• Verbrugge LM, Jette AM. The disablement process. Soc Sci Med 1994;38:1–14
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of impairments, disabilities and handicaps (ICIDH). Geneva: The World Health Organization; 1980
   Google Scholar
• World Health Organization. International classification of functioning, disability and health (ICF). Geneva: The World Health Organization; 2001
   Google Scholar
• Rourke SB, Gardner S, Burchell AN, et al. Cohort profile: The Ontario HIV Treatment Network Cohort Study (OCS). Int J Epidemiol 2012. [Epub ahead of print]. doi:10.1093/ije/dyr230
   Google Scholar
• Ontario HIV Treatment Network. OHTN Cohort Study. 2010. Available from: http://www.ohtn.on.ca/Pages/Research/OHTN-Cohort-Study.aspx [last accessed Feb 2011]
   Google Scholar
• Ware JE Jr, Gandek B. Overview of the SF-36 Health Survey and the International Quality of Life Assessment (IQOLA) Project. J Clin Epidemiol 1998;51:903–12
   PubMed Web of Science ®Google Scholar
• Horsman J, Furlong W, Feeny D, Torrance G. The Health Utilities Index (HUI): concepts, measurement properties and applications. Health Qual Life Outcomes 2003;1:54 . Available from: http://www.hqlo.com/content/1/1/54
   PubMedGoogle Scholar
• Radloff LS. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Measurement 1977;1:385–401
   Web of Science ®Google Scholar
• McHorney CA, Ware JE Jr, Raczek AE. The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993;31:247–63
   PubMed Web of Science ®Google Scholar
• McHorney CA, Ware Jr JE, Lu JF, Sherbourne CD. The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994;32:40–66
   PubMed Web of Science ®Google Scholar
• Justice AC, Holmes W, Gifford AL, et al. Development and validation of a self-completed HIV symptom index. J Clin Epidemiol 2001;54:S77–90
   PubMed Web of Science ®Google Scholar
• Brooks R, Rabin R, Charro F. The measurement and valuation of health status using EQ-5D: a European perspective. Dordrecht, The Netherlands: Kluwer Academic Publishers; 2003
   Google Scholar
• Statistics Canada. National population health survey household component documentation for the derived variables and the constant longitudinal variables (specifications): Cycles 1 to 7 (1994/1995 to 2006/2007). Ottawa: Statistics Canada; 2008
   Google Scholar
• Wu AW, Revicki DA, Jacobson D, Malitz FE. Evidence for reliability, validity and usefulness of the Medical Outcomes Study HIV Health Survey (MOS-HIV). Qual Life Res 1997;6:481–93
   PubMed Web of Science ®Google Scholar
• Lyon DE, Younger JB. Purpose in life and depressive symptoms in persons living with HIV disease. J Nurs Scholarsh 2001;33:129–33
   PubMed Web of Science ®Google Scholar
• Burack JH, Barrett DC, Stall RD, et al. Depressive symptoms and CD4 lymphocyte decline among HIV-infected men. JAMA 1993;270:2568–73
   PubMed Web of Science ®Google Scholar
• Chishinga N, Kinyanda E, Weiss HA, et al. Validation of brief screening tools for depressive and alcohol use disorders among TB and HIV patients in primary care in Zambia. BMC Psychiatry 2011;11:75 . Available from: http://www.biomedcentral.com/1471-244X/11/75
   PubMed Web of Science ®Google Scholar
• Lyketsos CG, Hoover DR, Guccione M, et al. Depressive symptoms as predictors of medical outcomes in HIV infection. Multicenter AIDS Cohort Study. JAMA 1993;270:2563–7
   PubMed Web of Science ®Google Scholar
• Cook JA, Grey D, Burke J, et al. Depressive symptoms and AIDS-related mortality among a multisite cohort of HIV-positive women. Am J Public Health 2004;94:1133–40
   PubMed Web of Science ®Google Scholar
• Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Ann Med 2001;33:375–84
   PubMed Web of Science ®Google Scholar
• Ware JE, Jr SF-36 health survey update. Spine (Phila Pa 1976) 2000;25:3130–9
   PubMed Web of Science ®Google Scholar
• Canadian Institute for Health Information. Definitions and data sources. Health Indicators 2003;2:4–41
   Google Scholar
• Revicki DA, Chan K, Gevirtz F. Discriminant validity of the Medical Outcomes Study cognitive function scale in HIV disease patients. Qual Life Res 1998;7:551–9
   PubMed Web of Science ®Google Scholar
• Mathews WC, May S. EuroQol (EQ-5D) measure of quality of life predicts mortality, emergency department utilization, and hospital discharge rates in HIV-infected adults under care. Health Qual Life Outcomes 2007;5:5 . Available from: http://www.hqlo.com/content/5/1/5
   PubMed Web of Science ®Google Scholar
• Wu AW, Jacobson DL, Frick KD, et al. Validity and responsiveness of the euroqol as a measure of health-related quality of life in people enrolled in an AIDS clinical trial. Qual Life Res 2002;11:273–82
   PubMed Web of Science ®Google Scholar
• O'Brien KK, Bayoumi AM, Strike C, et al. How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV. Health Qual Life Outcomes 2010;8:88 . Available from: http://www.hqlo.com/content/8/1/88
   PubMed Web of Science ®Google Scholar
• Carter SL, Rourke SB, Murji S, et al. Cognitive complaints, depression, medical symptoms, and their association with neuropsychological functioning in HIV infection: a structural equation model analysis. Neuropsychology 2003;17:410–9
   PubMed Web of Science ®Google Scholar
• Brown TA. Confirmatory factor analysis for applied research. New York (NY): The Guilford Press; 2006
   Google Scholar
• Kline RB. Principles and practice of structural equation modeling. New York (NY): The Guilford Press; 2005
   Google Scholar
• Muthén LK, Muthén BO. Mplus user's guide. 6th ed. Los Angeles (CA): Muthén & Muthén; 2010
   Google Scholar
• Hu LT, Bentler PM. Fit indices in covariance structure modeling: sensitivity to underparameterized model misspecification. Psychol Methods 1998;3:424–53
   Web of Science ®Google Scholar
• Hu LT, Bentler PM. Cutoff criteria for fit indexes in covariance structure analysis: conventional criteria versus new alternatives. Structural Equation Modeling 1999;6:1–55
   Web of Science ®Google Scholar
• Rigdon EE. CFI versus RMSEA: a comparison of two fit indexes for structural equation modeling. Structural Equation Modeling 1996;3:369–79
   Web of Science ®Google Scholar
• Joreskog KG. Testing structural equation models. In: Bollen KA, Long JS, eds. Testing structural equation models. Newbury Park (CA): Sage; 1993:294–316
   Google Scholar
• Wu AW, Rubin HR, Mathews WC, et al. A health status questionnaire using 30 items from the Medical Outcomes Study. Preliminary validation in persons with early HIV infection. Med Care 1991;29:786–98
   PubMed Web of Science ®Google Scholar
• Vidrine DJ, Amick BC, Gritz ER, Arduino RC. Assessing a conceptual framework of health-related quality of life in a HIV/AIDS population. Qual Life Res 2005;14:923–33
   PubMed Web of Science ®Google Scholar
• Sousa KH, Kwok OM. Putting Wilson and Cleary to the test: analysis of a HRQOL conceptual model using structural equation modeling. Qual Life Res 2006;15:725–37
   PubMed Web of Science ®Google Scholar
• Rourke SB, Halman MH, Bassel C. Neurocognitive complaints in HIV-infection and their relationship to depressive symptoms and neuropsychological functioning. J Clin Exp Neuropsychol 1999;21:737–56
   PubMed Web of Science ®Google Scholar
• Public Health Agency of Canada. HIV Epi updates. Surveillance and Risk Assessment Division, Centre for Communicable Diseases and Infection Control, Public Health Agency of Canada; July 2010
   Google Scholar